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Who has had a recurrence outside the abdominal area, while at the same time having a normal CA-125?

mom2greatkids's picture
mom2greatkids
Posts: 520
Joined: Jun 2011

My CA-125 on May 21 was 14.1. However, needle biopsy of the node in my neck indicates suspicion of recurrence. My dr. (medical oncologist) is puzzled since my CA-125 remains normal. It has been normal for close to a year now. He also says it's unusual for the recurrence to be outside of the abdominal area.

Just how reliable is the CA-125? The gyn. oncologist who did my surgery last year does not use it at all. He did not even do one before my surgery.

I'm just scared and confused. Mostly scared. I will have the node surgically remved sometimes after the 6th. (the surgeon ENT) is on vacation this week, so they could not get me in to see him before then.

I just wish I could get a trip on this fear.

Thanks,

Carla

Tethys41's picture
Tethys41
Posts: 1057
Joined: Sep 2010

Laundry Queen has often mentioned that it is not uncommon for a patient's CA-125 to remain normal if there is a recurrance that is confined to the lymph nodes. I hope your surgery goes well and that you find some peace in the meantime.

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