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Stage IV inflammatory breast cancer

calipal
Posts: 1
Joined: May 2012

Doctor says "no more chemo"...what does that mean?

jamiegww's picture
jamiegww
Posts: 384
Joined: Dec 2009

but if your doctor said "no more chemo" and didn't explain it to you, then you need to find another doctor. Maybe your mind just shut down and you couldn't process what was being said? Can you go back to the doctor and take a friend or family member with you to help you get the answers you need? Hopefully someone else on this site will be able to share similar experiences and maybe answer your question.

HUGS!!!
Jamie

New Flower
Posts: 3979
Joined: Aug 2009

I am sorry, that you are having stage IV cancer
Jammie gave you a very good advice. Make an appointment and take a family member or friend with you to take notes and ask additional questions.
Second opinion is always beneficial, especially in difficult situations.
Hugs

Kylez's picture
Kylez
Posts: 3765
Joined: May 2009

I would suggest getting a 2nd or even a 3rd opinion. There are many on here that are stage iv and I hope they will post back to you.

Hugs, Kylez

Gabe N Abby Mom's picture
Gabe N Abby Mom
Posts: 2415
Joined: Sep 2010

Hi calipal,

I'm stage IV IBC also, with mets to the lymph nodes between my lungs. You don't say much about your cancer...more information might help us better reply to your post. Regardless, I agree with getting a second opinion.

I also think you should try and find an onc who is experienced with IBC. As you probably know, IBC is a slightly different beast from other breast cancers. And sadly, there are still many docs who don't recognize it or don't know how to treat it. From your name, are you in California? If so, there are some good IBC docs in San Fran. Also Dr. Cristofanilli at Fox Chase is widely considered the best IBC doc in the US.

If you would like to talk more, feel free to send me a private message. Just click on the CSN email in the pinkish box to the left. Best wishes, and let us know how you're doing.

Hugs,

Linda

VickiSam's picture
VickiSam
Posts: 8250
Joined: Aug 2009

bumping up ..

Vicki Sam

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