Apr 29, 2012 - 6:47 pm
Hi, I have not posted for a while. Recently had gastroscopy and colonoscopy after having GI symptoms since October 2011. Gastro talked about Lynch syndrome and the connection with endometrial cancer. Had procedure two weeks ago and report said I had gastritis and a small polyp in cae*** which was sent for biopsy to pathology. When I went back to see gastro for report of findings, he could not find report and it seems the biopsy was lost when the endo nurse transferred specimen. Gastro told me it was small 1.5mm. Before I had the procedure I told him I already had specimens being retained following endometrial cancer and could they be tested for Lynch syndrome. He said he would talk to my gyn/onc. I do not think this occurred, but I will be asking when I see her in a month. I asked gastro since specimen was lost, what was likelihood of it being cancerous. He said it was tiny and it took several years for colorectal tumours to grow. I am scheduled for another colonoscopy in three years. He said I could have one sooner if I wished. I also asked was there a blood test I could have and he said no. On reflection, I think this was his opportunity to discuss having the endometrial cancer specimens examined. I am very disappointed and angry about what happened. I did a really thorough prep and was hoping for an unambiguous result one way or the other. I feel in limbo now. Have also noticed I am developed red, stinging raised growth between sternum and collarbone. Starting to wonder if this is a melanoma now! Seeing primary care doc in a few days and I plan to discuss with her.