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Glioblastoma Clinical Trial

archanasheth's picture
archanasheth
Posts: 5
Joined: Feb 2012

Has anyone heard of novocure.com? My doctor told me about this clinical trial that I may be qualified for.

mighty6
Posts: 47
Joined: Sep 2011

I've heard of somebody using this. The worst con is inconvenience, considering you have to carry a big pack and tons of wires/pads with you all the time. the little pad need to be replaced often too. But other than that, there is no side effect at all.
Based on current clinical reports, it improves QOL, but not always help on progression free survival & overall survival time. But who knows, it did help some people. I would seriously consider it as one of the options.

good luck.

Jane

connsteele
Posts: 232
Joined: May 2011

See my previous post re: Musella Foundation for Brain Tumor Research, posted 4/3. Last time I checked, on the main page is a YouTube link to a lecture about this research.

Sounds promising.

Hope all goes well for you.

sonfollower
Posts: 26
Joined: Nov 2010

My Doctor at Swedish Medical Center in Seattle is one of the docs that is working on this clinical trial. He wanted me to look into it. He gave me a pamphlet about it.
You have to wear these electrodes attached to your head 24 hours a day. They send small amounts of electrical shock into the tumor. The bad part about this is that you do have to carry around with you a box/pad about the size of a seat cushion everywhere. The other issue is that you have to have your head shaved every few weeks so the electrodes can stick to your head.
I opted not to do the trial. I didnt want to carry around the pad everywhere. Maybe you could call the Swedish Medical center and get more information.

God bless, Lora

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