Back to chemo
I'm doing ok, maybe shell shocked but ready for the battle. I hope I don't vomit through all of this, I was very blessed last time & never vomited. I hope the mouth sores don't get too bad & gosh I'm really hoping for no rusted metal taste. I just want to live!
Hugs & God Bless,
Dawne
Comments
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Dawne...
I understand.....I'm stage IV.....I've known all along, without asking or being told what I have...triple negative is not going away ....treated as a chronic disease...I'll have to fight it as long as I live....I just finished 10 radiation treatments to my brain....3 small spots showed up on my last scans...shocked at that....I started chemo, again, last Tuesday......had a port put in and now the fight starts again....but fight we must....
This sooooooo sucks for all of us!!!!!!!!
Start your anti nausea meds the day before chemo...I take them religiously for the next 3-4 days...no nausea.....
Wishing you the very best...
Hugs, Nancy0 -
GIGANTIC GENTLE HUGS!!
I hope you can feel my hugs!!! I'd say a trip to the store for some extra sturdy plastic dinner ware is in order. When I had the horrible metal taste I used plastic rather than metal and it helped a bit when eating. In regards to the mouth sores when back in 1978 when my mom had chemo the doctor told her to go buy ALUM (in is a spice of sorts) and to rinse her mouth with it, it dries out the sores and works great, it works so well that I keep it in my medicine chest and so do my son and daughter! Keep on fighting and I'll keep on praying!
Hugs and Well Wishes!
RE0 -
NancyMAJW said:Dawne...
I understand.....I'm stage IV.....I've known all along, without asking or being told what I have...triple negative is not going away ....treated as a chronic disease...I'll have to fight it as long as I live....I just finished 10 radiation treatments to my brain....3 small spots showed up on my last scans...shocked at that....I started chemo, again, last Tuesday......had a port put in and now the fight starts again....but fight we must....
This sooooooo sucks for all of us!!!!!!!!
Start your anti nausea meds the day before chemo...I take them religiously for the next 3-4 days...no nausea.....
Wishing you the very best...
Hugs, Nancy
I'm so sorry your going through this again too. Cancer sucks & while it sucks more everyday we must get more determined everyday that we will not let this ugly beast win. I will keep you in my prayers.
Hugs & God Bless,
Dawne0 -
Dawne--I am so sorryRE said:GIGANTIC GENTLE HUGS!!
I hope you can feel my hugs!!! I'd say a trip to the store for some extra sturdy plastic dinner ware is in order. When I had the horrible metal taste I used plastic rather than metal and it helped a bit when eating. In regards to the mouth sores when back in 1978 when my mom had chemo the doctor told her to go buy ALUM (in is a spice of sorts) and to rinse her mouth with it, it dries out the sores and works great, it works so well that I keep it in my medicine chest and so do my son and daughter! Keep on fighting and I'll keep on praying!
Hugs and Well Wishes!
RE
I am back in treatment as well--newly diagnosed as Stage 4 as well. But, like you, it's fight, fight, fight for as long as we can. We'll do it together--all of us. You are on my prayer list every night. I will continue with an extra prayer that the Taxol is kind to your body and WORKS!!!
I know there will be good days and bad days. Please come here when you're having either--we'll celebrate the good with you and be your shoulder to cry on and your warm, loving arms to comfort you when the days are not so good.
Stay strong, dear sister.
Love and hugs, Renee0 -
I had taxol and it was ok. Imissrenee said:Dawne--I am so sorry
I am back in treatment as well--newly diagnosed as Stage 4 as well. But, like you, it's fight, fight, fight for as long as we can. We'll do it together--all of us. You are on my prayer list every night. I will continue with an extra prayer that the Taxol is kind to your body and WORKS!!!
I know there will be good days and bad days. Please come here when you're having either--we'll celebrate the good with you and be your shoulder to cry on and your warm, loving arms to comfort you when the days are not so good.
Stay strong, dear sister.
Love and hugs, Renee
I had taxol and it was ok. I did not get mouth sores, or thrush like I did on
AC. I know this is scary we are here for you to help you fight, fight , fight. You are often in my thoughts!0 -
Dawne I will be praying forcarkris said:I had taxol and it was ok. I
I had taxol and it was ok. I did not get mouth sores, or thrush like I did on
AC. I know this is scary we are here for you to help you fight, fight , fight. You are often in my thoughts!
Dawne I will be praying for you sweetie...I hate that you have to go through this...lit makes me so mad that we do everything we can so this beast don't come back but it still shows up...keep fighting my pink friend
God bless
Eva0 -
Hugs & Prayers
Dawne... you are Muscle Girl Tough and we will stand firm with you. May the side effects be minimal as you get ready to start up with chemo. Wishing you continued STRENGTH, COURAGE, & HOPE.
God bless you and yours.0 -
I am not always the best
I am not always the best with words anymore, but I was very saddened and disappointed to see your news of mets. You seem like such a sweet caring person. I really hope your treatments work with the least amount of side effects. I wish you and your family well...0 -
I'm sorry Dawne...I hope to
I'm sorry Dawne...I hope to live long enough to see a CURE for this disease!
I hated that taste. It may sound weird but I had my foods that I could tolerate. Pinto Beans were what I gravitated to. I terribly missed chocolate.
Use Biotene toothpaste & mouthwash.
Keeping you in prayer and sending gentle hugs,
Sylvia0 -
Here every step of the waysea60 said:I'm sorry Dawne...I hope to
I'm sorry Dawne...I hope to live long enough to see a CURE for this disease!
I hated that taste. It may sound weird but I had my foods that I could tolerate. Pinto Beans were what I gravitated to. I terribly missed chocolate.
Use Biotene toothpaste & mouthwash.
Keeping you in prayer and sending gentle hugs,
Sylvia
Dear Dawne-
So sorry to hear the latest. Chemo is so difficult to deal with under any circumstances. I can't imagine all of you who are on it long term.
I'm sending all my hopes and prayers your way. I'll be there all along the way.
Suzanne0 -
Dawne, please keep fighting!epark said:Dawne I will be praying for
Dawne I will be praying for you sweetie...I hate that you have to go through this...lit makes me so mad that we do everything we can so this beast don't come back but it still shows up...keep fighting my pink friend
God bless
Eva
Dawne, please keep fighting! Sending prayers and hugs!
Leeza0 -
I get
I get the distinct feeling that cancer picked on the wrong female.0 -
Dawne, like the other stage
Dawne, like the other stage IV girls here, I know how hard it is to face chemo again. You are right, there is sadly no cure. And this is what it takes to continue to have time with our precious families....so it is what we do.
I strongly suggest that you look at Abraxane vs Taxol. As I understand it, they are both the same base drug. The difference is the binding agent...Abraxane is protein bound and Taxol is bound with a synthetic agent (I've forgotten exactly what). Something else to ask your ( onc about...the Abraxane doesn't require any pre-meds...no steriods, no zofran, no compazine. The article below was sent to me by our dear PhoenixRising when my onc was suggesting Taxol. It's worth reading...last but not least, there is very little change in my taste buds and I've been doing the abraxane for about 4 months now.
http://www.webmd.com/breast-cancer/news/20090603/breast-cancer-drug-abraxane-is-effective
Dawne, I recently read that dealing with IBC is all about adjusting (because it's such a sneaky b@5tard). You've shown that you can do that...but I still pray that you will have very few adjustments.
Hugs,
Linda0 -
Dawne, I'm sorry you have tolaughs_a_lot said:I get
I get the distinct feeling that cancer picked on the wrong female.
Dawne, I'm sorry you have to start chemo again, but you will fight and I'm praying win!
I have triple neg high aggressive BC. I had 8 weeks of every other week A/C and just started Taxol last week ( every week for 12 weeks). My husband has Esophageal Cancer and as luck (?) would have it, he started Taxol the same day I did. (Our cancer center was excited--never had a couple start Taxol on the same day)
Anyway, we had our second session today and are both very pleased so far with it. Better than A/C for me and better than Oxaliplatin/Xeloda for DH. Here are some things we were told that you may already know or, if not, might want to ask about:
1) Before first dose take 20mg Dexamethasone the night before and morning of. After that they give it to you IV while the chemo is being prepared.
2)Use saline rinse (1/2 tsp per cup warm water) 4 x daily to prevent mouth sores. If you should get some sores use more frequently for relief and healing.
3) Take 100 mg Vitamin B 6 twice daily to help prevent neuropathy.
4) Most do not have nausea problems with this.
5)For some, they see fatigue kicking in more after the first 4 or 5 times.
6)They have a nurse stay and watch for the 1st 15 minutes of each session after the chemo starts (takes about an hour to run with our dosages)
Of course, you know to check everything with your oncologist and different people respond differently.
Wishing us all uneventful and major cancer zapping results!!
Angie0 -
Dear Dawne
If the taxol is like Abraxane, that was the easiest of all the chemos I have been on. Being stage iv, we just fight harder, l have been doing weekly chemo for going on 15 months now. One look at my boys and I know I will fight this, God willing, until it becomes a chronic disease. I am so thankful for any good days that I am given now.
I will continue to pray for you and your family along with the rest of my fellow pinks for the continued strength to fight this even when you feel like you cant do it anymore.
Hugs and prayers,
Carol0 -
Stage IV ladies
have my utmost admiration and compassion. I know I can only
imagine what it must feel like but even just imagining makes
me understand what a hard road you are facing with such courage.
You have a special place in my heart and my thoughts.
Dawne, you are now one of our Elite fighters and we will be
here for you, every step of the way, as much as we possibly can.
I hope that we will all one day celebrate that magic moment
when a cure is found. I live and hope for that moment, every
day that goes by.
Wishing you peace of mind and comfort for the road ahead of
you.
Hugs,
Ayse0 -
Dawne, as one of your Stage
Dawne, as one of your Stage IV sisters, I want to extend my hope that Taxol is the answer and that it either puts the b@stard in remission or at least keeps you stable. I know how bad it sucks! I did Taxotere in '09 and it wasn't too bad. I believe it is in the family of Taxol. The biggest side effect I noticed was very dry skin. I made sure to use lotion daily after bathing and that seemed to help. We are here for you every step of the way. Stay strong and vent your frustrations on here because we surely understand!! Sending strength, love and ((hugs)).
Debbie0 -
I am very sorry Dawne thatsea60 said:I'm sorry Dawne...I hope to
I'm sorry Dawne...I hope to live long enough to see a CURE for this disease!
I hated that taste. It may sound weird but I had my foods that I could tolerate. Pinto Beans were what I gravitated to. I terribly missed chocolate.
Use Biotene toothpaste & mouthwash.
Keeping you in prayer and sending gentle hugs,
Sylvia
I am very sorry Dawne that you have to do chemo. You've already had enough to deal with.
I hate this disease..hate it!
I am cheering for you and am in your corner for the long haul!
Good luck and you are in my prayers,
Sue
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Fight like a GirlMyTurnNow said:Dawne, as one of your Stage
Dawne, as one of your Stage IV sisters, I want to extend my hope that Taxol is the answer and that it either puts the b@stard in remission or at least keeps you stable. I know how bad it sucks! I did Taxotere in '09 and it wasn't too bad. I believe it is in the family of Taxol. The biggest side effect I noticed was very dry skin. I made sure to use lotion daily after bathing and that seemed to help. We are here for you every step of the way. Stay strong and vent your frustrations on here because we surely understand!! Sending strength, love and ((hugs)).
Debbie
Sweet Dawne, I'm sorry to hear your news, I'm triple negative, and always have the fear in the back of my mind of it coming back, if it ever does I will Fight with all my might as you are!
Please keep us informed on how your doing, we all are right with you.
Take care dear sister, your in my prayers and thoughts daily.
Karie0 -
Like othersMyTurnNow said:Dawne, as one of your Stage
Dawne, as one of your Stage IV sisters, I want to extend my hope that Taxol is the answer and that it either puts the b@stard in remission or at least keeps you stable. I know how bad it sucks! I did Taxotere in '09 and it wasn't too bad. I believe it is in the family of Taxol. The biggest side effect I noticed was very dry skin. I made sure to use lotion daily after bathing and that seemed to help. We are here for you every step of the way. Stay strong and vent your frustrations on here because we surely understand!! Sending strength, love and ((hugs)).
Debbie
Like Others I pray that the taxol works.After reading a couple other posts it sounds like a good treatment. I wish nothing but the best for you and all others fighting this disease. My friend was Stage 4 for 12 years.That was in the 90's.I feel if she had been dx now she might still be here.Alot of new things.
I want nothing more than for you and all others with Stage 4 to beat this beast.
Dawne, Thoughts and Prayers to you and your family. I know you're worried about your family.
Lynn Smith0
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