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biopsy tomarrow

littledarlin's picture
littledarlin
Posts: 102
Joined: Mar 2012

I called radiology today and they have scheduled me for tomarrow..I guess things are going my way. I know I will still have to have surgery but wanted to have this test first. Next big step will be calling and scheduling my surgery..

livealive's picture
livealive
Posts: 127
Joined: Feb 2012

Statistically too many false negatives, risk is too high, would not trust the biopsy...

littledarlin's picture
littledarlin
Posts: 102
Joined: Mar 2012

The doctor mentioned that. Just doing it for myself..He said he will still recommend surgery no matter what the results say but to go ahead and do it if it will make me feel better. I have had them in the past and have had no problems..Thanks for the info though..

livealive's picture
livealive
Posts: 127
Joined: Feb 2012

The risk of touching something malignant - I don't like the risk of touching it - maybe cancel the biopsy - what's the point ?

MikeK703's picture
MikeK703
Posts: 235
Joined: Sep 2010

Littledarlin,
I'm guessing that you want a biopsy because you are hoping it's not cancer. I agree with Raj that there's not much point in having a biopsy done if no matter what the results are your doctor is going to recommend a nephrectomy anyway. There is definitely a risk that cutting into the mass could spread the cancer cells if it is indeed cancerous. I wanted a biopsy also because I was concerned that I might be giving up a kidney for no reason. Thankfully, I couldn't have a biopsy because of the location of the mass. It was too risky. Now with a >90% survival estimate, I am glad I followed the doctor's advice. In any case, you will do what you feel is right. I hope all turns out well for you.
Regards,
Mike

foxhd's picture
foxhd
Posts: 1874
Joined: Oct 2011

If you will have surgery anyway, I would say avoid the biopsy. Medically the argument would be to avoid the risk for infection.

littledarlin's picture
littledarlin
Posts: 102
Joined: Mar 2012

This is going to be a fine needle aspiration biopsy so there will be no major cutting involved so it should be ok. I have had them in the past..The doctor said not to worry about the biospy spreading any cancer or seeding. So I would like to remain as positive as possible for tomarrow. I am feeling good about this decision. I am hoping they do find cancer cells tomarrow that way I will feel a lot better about having surgery. I was told to bring a overnight bag just in case they decide to have me admitted..This is a cake walk compared to surgery..Don't worry I will be ok. My surgeron well be right there at the clinic/hospital

Texas_wedge's picture
Texas_wedge
Posts: 2807
Joined: Nov 2011

If you have the courage and conviction to stand your ground like that then you're going to be fine whatever happens tomorrow.

The main contraindication to biopsy is risk of a false negative which you've already taken into account. The theoretical risk of needle spread is a minor factor because the risk is very small.

littledarlin's picture
littledarlin
Posts: 102
Joined: Mar 2012

Thank you so much Texas wedge for your positive support this evening..This is just what I needed tonight..The perfect medicine..Positive thinking at work..

littledarlin...

j_rod
Posts: 125
Joined: Mar 2012

I had the fine needle aspiration. Mine was positive for cancer. They had sent me to the radiology interventionist for a cryoablation not a biopsy. The RI guy did not push me one way or the other (for the surgery or a biopsy first). He did tell me what was involved with the cryo procedure - and the risks. Considering where my tumor is located, it would have been a mess to do a cryo - too close to the urether, stents put in to prevent damage, stents removed, possible damage to the ureter. He also gave me the risk of the biopsy, which he said was small.He did say the cancer did not look like the shape of a cancer. He took me to his office and showed me the pet scan and discussed what we were looking at. He said there was a possibility that it was an old hematoma. That made sense because while on vacation, I ended up at a go kart track - not kiddie go karts - but full sized FAST go karts. Coming around a hairpin turn, I couldn't hit the breaks in time, slammed into a wall, spun around and hit a concrete block wall. So I was hoping it was from that. Since this hospital could do a cryo or an open nephrectomy, but not a lap robotic, he was very good about giving me my options and possible risks. Even the urologist who had sent me to the RI recommended going to another hospital for a lap robotic. Considering that I often feel that hospitals are 'in it for the money' - this particular hospital and its staff were honest with me and told me they did not have the technology for what they were recommending. They made a referral to a highly rated hospital and doctor. My faith is somewhat restored - especially in the referring hospital. I haven't had my procedure yet, but I have heard good things about my doctor and his team.

Texas_wedge's picture
Texas_wedge
Posts: 2807
Joined: Nov 2011

How refreshing to hear of such responsible and helpful professional care.

The message here is how important it is to carefully consider the merits and demerits of any procedure and to be aware of as many options as possible.

It sounds as though everything is set fair for you.

By the way, you seem to have a pretty colourful life and to enjoy living on the edge! Such an adrenalin junkie should find the upcoming little episode a mere bagatelle!

j_rod
Posts: 125
Joined: Mar 2012

h

j_rod
Posts: 125
Joined: Mar 2012

yes. To say the least. I won't go into it here - there's not enough space :) Let's just say I can relate to Sponge Bob and where he is coming from ;) He is the poster child for us ADD or ADHD type people :)

j_rod
Posts: 125
Joined: Mar 2012

yes. To say the least. I won't go into it here - there's not enough space :) Let's just say I can relate to Sponge Bob and where he is coming from ;) He is the poster child for us ADD or ADHD type people :)

j_rod
Posts: 125
Joined: Mar 2012

yes. To say the least. I won't go into it here - there's not enough space :) Let's just say I can relate to Sponge Bob and where he is coming from ;) He is the poster child for us ADD or ADHD type people :)

j_rod
Posts: 125
Joined: Mar 2012

yes. To say the least. I won't go into it here - there's not enough space :) Let's just say I can relate to Sponge Bob and where he is coming from ;) He is the poster child for us ADD or ADHD type people :)

MikeK703's picture
MikeK703
Posts: 235
Joined: Sep 2010

Hey j_rod,
The stuttering will stop if you only hit the "Post comment" button once and wait. Be patient. It will eventually take your post.
Regards,
Mike

littledarlin's picture
littledarlin
Posts: 102
Joined: Mar 2012

Hey Guys..Maybe you should start your own thread..Just got home from my biopsy and they were not able to get any tissue. So this was probably a total waste of time and it really hurt this time too..but who cares looks like we are just playing games here anyway. Let the games begin..

Later..or Not..

Little darlin..

icemantoo's picture
icemantoo
Posts: 1479
Joined: Jan 2010

littledarlin,

For what it is worth all of us non medical people tried to add our 2 cents worth on whether the biopsy was necessary. For what its worth the surgery is necessary. Let the games begin.

Icemantoo

MikeK703's picture
MikeK703
Posts: 235
Joined: Sep 2010

Littledarlin,
Sorry to hear your biopsy didn't work. Please continue to post and let us know how things are going. BTW, people DO care here and nobody is playing games. Sometimes threads do get off topic a little but please realize, even though our postings are not always serious we are all going through pretty much the same thing, and some worse than others. Certainly nobody here takes kidney cancer lightly.
Mike

Texas_wedge's picture
Texas_wedge
Posts: 2807
Joined: Nov 2011

Is Sponge Bob an American cultural hero? Education please!

littledarlin's picture
littledarlin
Posts: 102
Joined: Mar 2012

Sorry for getting a little short with you all..You all told me so and yes I knew going in that the biopsy was probably a waste of time..Always has been before..I was grasping at straws this time. Feeling a little angry and mostly sad about all this cancer stuff. Talk to you all later just can't do it right now..

LD

icemantoo's picture
icemantoo
Posts: 1479
Joined: Jan 2010

littledarlin,

This surgery is serious stuff. We all went thru it. We were all scared to hear the big C word and being told we had to have surgery right out of the gate. Each of us has a little different experience. The only good thing for most of us is that when you go thru the surgery and it is over that most (over 50%) of us are cured. None of us voluntered to have RCC. We are trying to get the newbies thru this as easy as possible. Sometimes we are blunt. Sometimes too blunt. Sometimes we try to instill a little humor. Usually it works. Sometimes it doesn't. The really difficult cases are those where the RCC has spread and more than surgery is necessary. So far your diagnosis is not in that catagory.

As for the surgery it hurts a little. Maybe more than a little. Most of us got thru it without any complications, including myself. Just try and get the surgery behind you as quickly as possible. Then you can help me with the newbies. Between Faye across the street from me and myself we have almost 27 years of survival. Lets see if you can have those many years youself.

Icemantoo

j_rod
Posts: 125
Joined: Mar 2012

...I have been 'in the system' since Sept. 2011. That is when a ct scan picked up 'a worrisome mass.' I went into all kinds of denial. "not me...i'm too young...I eat right and exercise..." etc. etc. Then came anger, then depression, then anxiety, ... in short ... all of the stages of grief. I have been on this site for a month. It has helped me get to a point of acceptance of my situation. Even as I type this message, I feel sadness. A little depressed. Yes, I have started threads. Yes, they have gotten off topic sometimes WAY off topic. At times I felt left out because everyone knows everyone. Yes, it made me angry, too. But I stuck with it and it is the only place to come and talk about my diagnosis because my family - although very supportive - don't understand what I am thinking and feeling like the people on this site. What I get from the survivors on this site is that the operation will be over soon. I will go home. I will recouperate. My life will go on. And with luck, I will be cured and there will be no more cancer. I have a 90% cure rate predicted. I am sorry your biopsy did not go well. But the operation will be the definitive part. Even after my biopsy there are too many questions that can only be answered with the operation. So I am waiting until Tuesday for my operation so I can begin life again - without cancer.

garym's picture
garym
Posts: 1651
Joined: Nov 2009

LD,

No need to apologize, we all understand how you feel, sometimes you just need a place to scream where the real world can't hear you and that's perfectly fine here. This is not a ride anyone chooses to be on, the emotional ups and downs just keep coming in waves and it seems unbearable at times. Add to that caring friends and family that don't understand, scary medical procedures that sometimes don't work, and a trip to the O.R. on the horizon, and you have a formula for fear, anger, and frustration to reach a boiling point. Laughter has been very therapeutic for many of us, myself included, but it doesn't work for everyone, especially in the early stages and I suspect it is just a bit too soon for you. In any event, remember that you are always welcome here regardless of mood and we will help you any way we can, I promise.

A fellow survivor,

Gary

PS; The relief of hearing NED (no evidence of disease) when this is behind you, will allow you to breath easily and laugh again, and that's a promise too!

livealive's picture
livealive
Posts: 127
Joined: Feb 2012

LD, attribute it to human nature. We are programmed to "solve" things, know the plan, and sometimes we confuse the map for the terrain. It is what it is in terms of the biopsy, the quicker you get over it (there I am telling you something again, so listen), the closer you will move to surgery. I have shared with these guys here quite a bit, they know how anxious I have been, my doctor had asked me to "man up", and not be a "chicken", well, the truth is, the tumor has to be taken out. What happens after is not within 100% control, as much as I would like it to, so do what YOU can, do the surgery, schedule it, understand it, get a good doctor, at a good hospital. Remember, each one of us, has our own fears, some real, some imaginary which feel real, and some we don't even know about. If you want to share information, that's fine, we all will try and help - if you allow us.

littledarlin's picture
littledarlin
Posts: 102
Joined: Mar 2012

Well my Neph. Doctor called this morning with the results..and has sent the report over to my surgeon/cancer doctor..I am waitng for a call from him and we will discuss it and a date for sugery. I am feeling a little stunned about now "no one wants to hear they have cancer" of course you all know that already..and sad of course, but I am relieved to know that I am doing the right thing and that it looks like we caught it in time..Will update later..

On to the next step..
littledarlin..

MikeK703's picture
MikeK703
Posts: 235
Joined: Sep 2010

"Caught in time." Those are the key words, littledarlin. We're pulling for you.
Regards,
Mike

littledarlin's picture
littledarlin
Posts: 102
Joined: Mar 2012

Thanks mike for the well wishes and for bringing my attention to the Key phrase here.
"Caught in time"
LD...

littledarlin's picture
littledarlin
Posts: 102
Joined: Mar 2012

Well that was fast. My Surgeon just called. He told that before we did the biospy he felt I had a strong 50% chance of it being cancer and that I should have surgery but with the new information that we got from the biospy that, he now feels that number is 80%. So we talked about the next steps I that I need to take and we will be setting a date for the end of April for my surgery..I have to say this even though it may sound strange, I am feeling really relieved now and good about the plan we have put in place..I can rest assured that everything will be ok..

This has been a good day..
Littledarlin...

j_rod
Posts: 125
Joined: Mar 2012

You sound upbeaat. Mine was also scheduled for a month out, Then they called and pusehed it BACK another week. Someone remonded me "thank god they paushed it back a week - if they had said get here right away, you might have a reason to worry." I keep focusing on the positive side of whatever they tell me.

littledarlin's picture
littledarlin
Posts: 102
Joined: Mar 2012

I guess we will be going in about the same time..I feel the same way it could be a good sign that we don't have to have surgery next week..Like you I keep focusing on the positive side of whatever the doctors tell me..I think being positive will help us in the end..We are going to get through this with flying colors..

littledarlin..

foxhd's picture
foxhd
Posts: 1874
Joined: Oct 2011

that's the attitude! Your plan is in place. You have time to get everything in order. Now spend some time reading and learning. I didn't know much about kidney cancer specifically, but I knew alot about medicine, hospitals, surgery, and rehab. I've seen thousands go through the process. The only thing really new to me was in being the patient. That made it easier for me to get through it. I'll admit I wasn't very anxious about it. So..what I'm saying is experience and knowledge is valuable. Especially when you know thee right questions to ask. Good luck!
Fox.

littledarlin's picture
littledarlin
Posts: 102
Joined: Mar 2012

Thank you for your support and advice this morning..I have been reading up and even watched the robotic surgery on line. This has done a lot to ease my fears. My biggest fear right now is pain control after surgery..Like you I will be the patient this time. I am a retired Certified Nurses Aid/Home Health Aid and have seen and taken care of others facing the challenages of cancer and also dementia..Lots of Hospice work..So pain control is something I am concerned about and of course I am hoping to show others here at home how to help me get in and out of bed and such. Being a caregiver is no easy task..

little darlin..

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