When does this mess stop?

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Battscave
Battscave Member Posts: 14
in Breast Cancer #1
I had my first Chemo last week (Wednesday) and in the early hours of this morning (Tuesday) I was throwing up over and over again.. the sores appeared in my mouth and throat, the headache wont go away and now I have severe back and neck spasms. I go back tomorrow to get my 30 min IV infusion and I have no idea how I am going to deal with yet more when I feel like I can't put one foot in front of the other.

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  • Margeaux
    Margeaux Member Posts: 84
    #2
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    This mess
    So sorry to hear you are having such severe side effects. Please do make sure you inform your doctor immediately of these problems and, please, do not hesitate to call them immediately when you have a problem. I have had 6 months of chemo plus 1 year Herceptin. I had nausea, diarrhoe, threw up some bitter tasting stuff (ugh!) and had other problems, the most serious connected with my blood pressure and meds. First I got Herceptin infusion, this was followed by anti-nausea infusions and then chemo. Actually, I gained 10 lbs. during the whole ordeal. My regimen was - 12 Taxol, four A/C+5FU at 3 week interval, Herceptin every week. To keep nausea at bay during the 4 sessions of A/C and 5FU (Fluoruacil)I was prescribed 2 extremely expensive mediations I had to bring with me and take over 3 and 4 days to further suppress nausea. Please, do make sure you are given all the help available to you. To prevent mouth sores, the doctor gave us a recipe for a home made mouth wash, wished I'd remember it. The American Cancer Society has a booklet with information on diet during themo, what to eat or avoid if you have....symptoms, it helped me a lot. I got it when I first met the surgeon to have the port inserted.
    My Dear Pink Sister, some of us go through chemo holding down a job, some us us (like me) have such hard time and think it's not possible to go on another day, but, we do, we walk that hard walk, for - what is the choice?
    Lots and lots of warm hugs Margeaux
    PS - Just wanted to mention this - My chemo infusion lasted much longer than 30 minutes, at least 1-1/2 - 2 hrs, the first time even longer
  • AngieD
    AngieD Member Posts: 493
    #3
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    Margeaux said:

    This mess
    So sorry to hear you are having such severe side effects. Please do make sure you inform your doctor immediately of these problems and, please, do not hesitate to call them immediately when you have a problem. I have had 6 months of chemo plus 1 year Herceptin. I had nausea, diarrhoe, threw up some bitter tasting stuff (ugh!) and had other problems, the most serious connected with my blood pressure and meds. First I got Herceptin infusion, this was followed by anti-nausea infusions and then chemo. Actually, I gained 10 lbs. during the whole ordeal. My regimen was - 12 Taxol, four A/C+5FU at 3 week interval, Herceptin every week. To keep nausea at bay during the 4 sessions of A/C and 5FU (Fluoruacil)I was prescribed 2 extremely expensive mediations I had to bring with me and take over 3 and 4 days to further suppress nausea. Please, do make sure you are given all the help available to you. To prevent mouth sores, the doctor gave us a recipe for a home made mouth wash, wished I'd remember it. The American Cancer Society has a booklet with information on diet during themo, what to eat or avoid if you have....symptoms, it helped me a lot. I got it when I first met the surgeon to have the port inserted.
    My Dear Pink Sister, some of us go through chemo holding down a job, some us us (like me) have such hard time and think it's not possible to go on another day, but, we do, we walk that hard walk, for - what is the choice?
    Lots and lots of warm hugs Margeaux
    PS - Just wanted to mention this - My chemo infusion lasted much longer than 30 minutes, at least 1-1/2 - 2 hrs, the first time even longer

    You don't say what your
    You don't say what your chemo is, but there are SO many drugs and things to prevent these side effects. Ask at your cancer center and make sure you understand all the pre and post treatment things you are supposed to be doing, including prescription drugs you should use or have on hand. For mouth sores, dissolve 1/2 tsp salt in a glass of warm water and use after every meal to prevent them. If you already have them, use it every couple of hours for relief.
    I'm praying that things start to go better for you.
    Angie
  • disneyfan2008
    disneyfan2008 Member Posts: 6,583 Member
    #4
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    so sorry...a friend of mine
    so sorry...a friend of mine going through same things..I NEVER had chemo so I dont' have any advice..

    just thinking of you..

    Denise
  • Marcia527
    Marcia527 Member Posts: 2,729
    #5
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    Call your oncologist and he
    Call your oncologist and he can prescribe something to help with the side effects. Oh I see I'm answering you too late. Your appointment is today. Make sure you tell them what you are experiencing. Don't wait for an appointment. No need to suffer. I had a hard time on chemo also but not like you are having. I hope it goes better for you.
  • jnl
    jnl Member Posts: 3,869 Member
    #6
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    AngieD said:

    You don't say what your
    You don't say what your chemo is, but there are SO many drugs and things to prevent these side effects. Ask at your cancer center and make sure you understand all the pre and post treatment things you are supposed to be doing, including prescription drugs you should use or have on hand. For mouth sores, dissolve 1/2 tsp salt in a glass of warm water and use after every meal to prevent them. If you already have them, use it every couple of hours for relief.
    I'm praying that things start to go better for you.
    Angie

    I hope that you talk to
    I hope that you talk to your oncologist about your side effects. There are so many meds out there that can help you. You shouldn't have to suffer.

    Praying that you feel better,


    Leeza
  • bad121749
    bad121749 Member Posts: 31
    #7
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    Marcia527 said:

    Call your oncologist and he
    Call your oncologist and he can prescribe something to help with the side effects. Oh I see I'm answering you too late. Your appointment is today. Make sure you tell them what you are experiencing. Don't wait for an appointment. No need to suffer. I had a hard time on chemo also but not like you are having. I hope it goes better for you.

    Prayer sent your way
    You probably have the mouthwash by now but years ago in the South it was called "Dr. King's Magic Mouthwash" containing lidocaine and an antifungal agent. The sores are caused by Candida Albican and they can give you Diflucan tabs as well. I also ate a lot of yogurt. Praying for you on your journey.
  • Kylez
    Kylez Member Posts: 3,761 Member
    #8
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    bad121749 said:

    Prayer sent your way
    You probably have the mouthwash by now but years ago in the South it was called "Dr. King's Magic Mouthwash" containing lidocaine and an antifungal agent. The sores are caused by Candida Albican and they can give you Diflucan tabs as well. I also ate a lot of yogurt. Praying for you on your journey.

    I hope that you contacted
    I hope that you contacted your oncologist and that he gave you something to help you through the chemo.

    Praying for you,


    Kylez
  • DianeBC
    DianeBC Member Posts: 3,881 Member
    #9
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    Battscave, there are things
    Battscave, there are things you can get for mouth sores that should help and they can give you something also to help with the nausea. Please let the oncologist and chemo nurses know and I bet they can help you.

    Take care,

    Diane
  • Texasgirl10
    Texasgirl10 Member Posts: 668
    #10
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    DianeBC said:

    Battscave, there are things
    Battscave, there are things you can get for mouth sores that should help and they can give you something also to help with the nausea. Please let the oncologist and chemo nurses know and I bet they can help you.

    Take care,

    Diane

    Call your onc ASAP
    Please call your onc now. Cancer is bad enough but having all of these ugly side effects just makes it 100 times worse. I take compazine for nausea. It worked great last year while I was doing chemo & so far it' seems to be working this time. Also, for the mouth sores ask him/her for a lidocaine swish ( use it just like mouthwash 3 times per day) and use an extra soft toothbrush with biotine toothpaste & mouthwash. I learned last time that the only thing I could drink was super ice cold bottled water & do far that's the case this time. Please try to eat, I know it's hard but your body needs the fuel to help you fight. I eat a lot of potatoes, rice, and things smothered in ranch dressing. ( all the stuff that isn't good for you, but at this point it's working for me)

    Im so very sorry that you are going through this and I truly hope it gets better for you. Please remember that you are stronger than you realize and you can do this. Your pink sisters and brothers are here with you. You will be in my prayers.

    Hugs and God Bless,

    Dawne
  • Megan M
    Megan M Member Posts: 3,000
    #11
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    Texasgirl10 said:

    Call your onc ASAP
    Please call your onc now. Cancer is bad enough but having all of these ugly side effects just makes it 100 times worse. I take compazine for nausea. It worked great last year while I was doing chemo & so far it' seems to be working this time. Also, for the mouth sores ask him/her for a lidocaine swish ( use it just like mouthwash 3 times per day) and use an extra soft toothbrush with biotine toothpaste & mouthwash. I learned last time that the only thing I could drink was super ice cold bottled water & do far that's the case this time. Please try to eat, I know it's hard but your body needs the fuel to help you fight. I eat a lot of potatoes, rice, and things smothered in ranch dressing. ( all the stuff that isn't good for you, but at this point it's working for me)

    Im so very sorry that you are going through this and I truly hope it gets better for you. Please remember that you are stronger than you realize and you can do this. Your pink sisters and brothers are here with you. You will be in my prayers.

    Hugs and God Bless,

    Dawne

    The pink sisters are all
    The pink sisters are all right. You need to talk to your onco about these side effects and get some relief. I am so sorry that this is even happening to you at all.


    Praying for you,

    Megan

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