My wife starts chemo on 2/27.

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My wife was diagnosed stage3 2 weeks ago. 10 of 18 nodes.She had her port put in on Monday and starts chemo on 2/27. I want to be the best husband possible. I love her with all my life. We also have a 15 year old son. Any advice? God bless you all and my prayers are with each and everyone of you.
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  • plh4gail
    plh4gail Member Posts: 1,238 Member
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    Bless our caregivers
    My oldest daughter was 25 and was my caregiver through treatment a year and a half ago. Something a child should never have to do. The care and support of my family and friends was what got me through. Knowing things were being taken care of and I only had to do what I was able to. (not much because chemo was not easy for me). Without asking she told me what time we would be leaving for treatments, she sat and watched every infusion go in. I cooked, cleaned, shopped, cared for my little ones as much as I could but knew the rest would be done by someone. The second week after chemo's, when I felt a little better I usually wanted to get out of the house, then it was time for the next round.

    Celebrate your love every single day!! ...give her some room to be sad as it is life changing, but know that it is just going to be a new normal and takes a while to find your place of "normalcy".

    plh4gail
  • herdizziness
    herdizziness Member Posts: 3,624 Member
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    Advise?
    As a mother and wife, I think I have always been the caregiver, when I had cancer, I still was the caregiver, the nurturer, the one to help my family through the "terrors" of cancer such as they be.
    I think your wife will feel the same, HOWEVER, she will want and desire to be taken care of and some of the things that she will want is your hand laying upon her in the night, to know you are there, beside her, thinking of her even in your sleep, she will want as she lays there sobbing silently (as not to disturb you)in the night ranting and even raving at the cancer (in her mind, but not out loud, again so not to disturb the family dynamic) that has dared to invade her world, for you to awaken and hold her and tell her it will be all right, that the two of you are fighting for her together. When the sun rises in the morning and she is laying there wide awake, she will need you to brush the hair from her face and tell her that you love her. These are the most important things she will need. There are many others, but I think you will figure these out TOGETHER as you go along. I would say "be there" for her, but you already are, and that's a wonderful start.
    Winter Marie
  • Minnesotagirl
    Minnesotagirl Member Posts: 141
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    You have already showed that you will be the best husband
    Dear BJones

    I am so sorry that your wife has been diagnosed. I think you will be a wonderful caregiver to her and she is lucky to have you in her life.
    My husband was my best friend during this process. I am a 8 month survivor for Stage 3 Rectal Cancer. Just when you think you have shared everything about yourself to someone...along comes Colorectal cancer and you realized you hadn't but you will!!!! Oh boy, the conversations you will have about what goes in your body and comes out. You just have to take each day one at a time and try to be a sounding board for her...hold her hand when she cries...make her laugh at something everyday~ and of course we pray alot too.

    You will be great and she will love you more than ever for it~

    Minnesotagirl
  • mamalea333
    mamalea333 Member Posts: 27
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    God bless you Bj
    You are in a similar boat as I am...my husband wad diagnosed on Jan 23, 2012 with stage 3 rectal cancer, with some groin area nodes affected. he is completing week 2, today, of 6 weeks of chemo (5fu pump) and daily (week day) radiation. so far, the chemo has not had any side effects on him..we were told that it would not..so we are very pleased..we know that we can expect some soreness and other issues starting around the end of week three of radiation..We are very pleased that so far the tumor, which is about 6.5 inches long, is shrinking very well..we felt so wonderful when the process FINALLY began..it takes so long just to get things going..getting the chemo port put in & all the pre-chemo/rad labs & dr. visits..it was a relief to finally begin the fight! Arm yourself with whatever the dr.'s and nurses advise..and what you read here is very helpfull and comforting..I was afraid I would not have what it takes to be strong through this, but my husband is very strong, positive and upbeat, so I can be too! I have full faith in our Savior to pull us through..Prayers have been answered along each step of this journey so far, and I know they will continue to be answered..I will be praying for you and your wife along with your son...we also have a son age 16, and a daughter age 24..We are all in this together..lean on each other for strength & let them help..it gives them great pride to know they are in the fight too...stay strong..this is very do-able..learn to accept "one step at a time" and don't get overwhelmed with everything..that's one thing I am learning..God Bless
    Lea
  • mamalea333
    mamalea333 Member Posts: 27
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    God bless you Bj
    You are in a similar boat as I am...my husband wad diagnosed on Jan 23, 2012 with stage 3 rectal cancer, with some groin area nodes affected. he is completing week 2, today, of 6 weeks of chemo (5fu pump) and daily (week day) radiation. so far, the chemo has not had any side effects on him..we were told that it would not..so we are very pleased..we know that we can expect some soreness and other issues starting around the end of week three of radiation..We are very pleased that so far the tumor, which is about 6.5 inches long, is shrinking very well..we felt so wonderful when the process FINALLY began..it takes so long just to get things going..getting the chemo port put in & all the pre-chemo/rad labs & dr. visits..it was a relief to finally begin the fight! Arm yourself with whatever the dr.'s and nurses advise..and what you read here is very helpfull and comforting..I was afraid I would not have what it takes to be strong through this, but my husband is very strong, positive and upbeat, so I can be too! I have full faith in our Savior to pull us through..Prayers have been answered along each step of this journey so far, and I know they will continue to be answered..I will be praying for you and your wife along with your son...we also have a son age 16, and a daughter age 24..We are all in this together..lean on each other for strength & let them help..it gives them great pride to know they are in the fight too...stay strong..this is very do-able..learn to accept "one step at a time" and don't get overwhelmed with everything..that's one thing I am learning..God Bless
    Lea

    forgot..
    he will have surgery to remove whats left after the chemo/rad process..he will also have to have a permanent colostomy..and then 6 months of follow up chemo..We have a long road ahead..but one step at at time we will get there!
    and so will your wife!! and your family..God is so good..rely on Him fully..
  • Sonia32
    Sonia32 Member Posts: 1,071 Member
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    Hugs
    she is very lucky to have you, so glad your asking for help before hand and not later on down the line when some find it more difficult. Everyone has given you good advice, but I would say make sure you look after yourself as well. Your family will need you during this time, but you can't over do it. Just take each day as it comes, and keep talking to each other that is the most important thing.
  • buckeye2
    buckeye2 Member Posts: 428 Member
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    I feel your pain. As the
    I feel your pain. As the mother of a 13, 17, and 19 year old, I have had to make decisions regarding how to create the most stable environment for them during unstable times. While I am not keeping information from them, I also do not feel it is best to share every piece of information, fear, statistics, or prediction for the future. I really believe that it is possible to maintain normalcy during these times. That is the caregiver's #1 job. Your wife is lucky to have you and you her. You will find you've never been closer as you battle this as a team. I wish you and your wife better days ahead and a full recovery from this disease. Lisa
  • janderson1964
    janderson1964 Member Posts: 2,215 Member
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    You will do fine. Just by
    You will do fine. Just by the fact that you love her and want to be the best husband. I have been fighting this for over six years and couldnt have done it without my wife. I think it is just as hard on her if not harder. I have seen the pain on her face many times.

    God bless

    Jeff
  • joemetz
    joemetz Member Posts: 493
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    Advice
    Hello bjones60

    You have just added CareGiver to your list of names.
    You are Son, Dad, Husband, Friend... and now CareGiver.

    My wife is my caregiver and i've been going through chemo since 1-3-2012.

    I have a couple things to share that make my day.

    1. She is there with me at Chemo treatments. Not sure if you're able to do that, but it's so nice to NOT have to drive and to be as stress free as possible.

    2. I have to be re-assured that I have not become a burden to her. So, as you get into this... assure her that you're there with her all the way. (if you look on this blog site, you'll see a couple conversations when the spouse takes off half way through the chemo as many of the great things in your marriage might be on hold for awhile..) her number 1 priority has to be to Get Better. And, you're committment to her will make her NEVER have to worry about losing you.

    3. Have an agreement with her that you're allowed to make her laugh, whenever she's crying. And, its okay to laugh until you cry. This is a very emotinoal time.... and in the alone time, it's hard not to think negative thoughts. so, my wife keeps a close eye on me during those times... and she's there to make me laugh and it's wonderful.

    4. Love her like you've never loved her before.

    and, I know you will.

    My prayers are with you and your wife... and your 15 year old.
    we have four kids... and the best point on our teenagers... is straight forward honest answers. REmember, kids are better at Google than most of us. Remind them that NOT everything on the internet is true.

    cheers.
  • Patteee
    Patteee Member Posts: 945
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    My adult daughter, her
    My adult daughter, her boyfriend and their newborn son along with my 17 year old son were living with me when I was dx'd. My caregiver however, was my 70+ mother who lived 3 hours away. My 3 sisters, also 3 hours away, filled in nicely for her. After the first treatment, my WBC tanked and I was hospitalized for a week with a blood infection. Each chemo treatment, the symptoms would be worse. I was hospitaled 2 more times during chemo- - I got weaker and weaker, the neuropathy in my feet and hands was a huge issue- and in all honestly I looked and felt like a cancer patient.

    You will find a wide range of symptoms on this board, so please don't let me scare you with my experience. I am a teacher and did manage to work through that year, although most days were half days. What my caregivers did for me that was so valuable, was totally take charge of my house- from the meals, to cleaning the kitchen, to laundry, to thinking of things I might like to eat/drink or things to do. Example: my mother would mic Boost drinks for me in a coffee mug and sprinkle a bit of cinnamon on top. Most days that was all I could get down. She would make sure I took a shower everyday (I was so sweaty and smelly) and then we might go for a drive- go shopping, me in a wheelchair, go get plants she would plant for me in the garden, drive by the high school and watch baseball games from the car. Changed my sheets often- truly these seemingly little things made the time go by.

    I ended up going to chemo on my own - the first time mom went, she looked so bored and kept asking how much longer. Just felt like I had to entertain her. So then I would go and sleep there or talk to other patients or nurses.

    One critical thing- all of my caregivers made me feel like we were all in this together. All 4 very strong women, who all knew I was sick, but still treated me with love and kindness. Never once did any of them hint that I would not get through this- my mother's only comment early on was, "you are going to be just fine sweetie".
  • Honeybear4701
    Honeybear4701 Member Posts: 6
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    My Husband is my care giver, too.
    Hi BJ, I guess I'm about three treatments ahead of your wife. My Dear, Loving Husband is my caregiver also. My advice is give her space, go fishing or something. Really she loves you and she needs you but she needs alone time too. It will do a world of good for you both. It will let her feel a little independent.

    Another thing she needs is lots of hugs! I've even got to the point I tell my husband, "I need a hug".

    Keep her life as stress free as possible and please don't try to make her eat. At one time I even told my sister to "go home" because she was trying to talk me into eating when I wasn't hungry.

    I'm sure things will be good for you all, your family will be in my prayers.

    One more thing, try to include your son in the care giving, decision making and discussions. It's much worse to "know something is going on and not know what" than it is to "know and feel included on making the facts/decisions".
  • tommycat
    tommycat Member Posts: 790 Member
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    Hi and welcome~
    One thing

    Hi and welcome~
    One thing that might be helpful to everybody in your home is for someone to start a meal train for your family--delivery of a homecooked meal a couple times a week. Maybe you have a close friend/neighbor/colleague/church member to get this going for you?
    We used Lotsa Helping Hands and generous people marked off what dates they would be delivering meals. You can also blog on there to keep your friends updated, and request things like rides too.
  • tootsie1
    tootsie1 Member Posts: 5,044 Member
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    Hi
    Welcome to the group. Praying for you and your wife!

    *hugs*
    Gail
  • druidshadow
    druidshadow Member Posts: 85
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    joemetz said:

    Advice
    Hello bjones60

    You have just added CareGiver to your list of names.
    You are Son, Dad, Husband, Friend... and now CareGiver.

    My wife is my caregiver and i've been going through chemo since 1-3-2012.

    I have a couple things to share that make my day.

    1. She is there with me at Chemo treatments. Not sure if you're able to do that, but it's so nice to NOT have to drive and to be as stress free as possible.

    2. I have to be re-assured that I have not become a burden to her. So, as you get into this... assure her that you're there with her all the way. (if you look on this blog site, you'll see a couple conversations when the spouse takes off half way through the chemo as many of the great things in your marriage might be on hold for awhile..) her number 1 priority has to be to Get Better. And, you're committment to her will make her NEVER have to worry about losing you.

    3. Have an agreement with her that you're allowed to make her laugh, whenever she's crying. And, its okay to laugh until you cry. This is a very emotinoal time.... and in the alone time, it's hard not to think negative thoughts. so, my wife keeps a close eye on me during those times... and she's there to make me laugh and it's wonderful.

    4. Love her like you've never loved her before.

    and, I know you will.

    My prayers are with you and your wife... and your 15 year old.
    we have four kids... and the best point on our teenagers... is straight forward honest answers. REmember, kids are better at Google than most of us. Remind them that NOT everything on the internet is true.

    cheers.

    agree
    bjones i completely agree with joe here me and him have both just started all this and i am only one round ahead of your wife and my wife does the exact same thing for me that his does down to the letter and like he said do not be surprised when she thinks negitve just try to make her smile and turn to a positve thought mine does it without even knowing she does and in this process even tho i am new to it i have quickly learned that the caregiver is a very important role, cause with out her i know me i would have done slipped in to depression and given up and good thoughts and prayers are very important she has been at every thing for me the doc appointments the surgery and chemo with even a word on how it puts her out and trust me for her that is a very have thing to do cause she is a very blunt person and says everything on her mind and that is one of the things i love most about her, yes as for the kids my step daughter is 11 and we held back just a lil and like joe said the kids are better at google then most of us and she came asking questions so we told her every thing and now there is not a moment when she does not make sure i know how she feels about me and wishs me better. i am very thankful for that part of this as i do not get to see my sons much it is nice to have her here.
    bright blessings and may the light walk with you both
    john
  • druidshadow
    druidshadow Member Posts: 85
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    i hope
    hey i hope everything has went well today, did she come home on a pump and what not? any way let us know. i hope everything is good
    bright blessings and prayers
    john
  • Cathleen Mary
    Cathleen Mary Member Posts: 827 Member
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    i hope
    hey i hope everything has went well today, did she come home on a pump and what not? any way let us know. i hope everything is good
    bright blessings and prayers
    john

    Warm thoughts

    Just wanted you to know that you and your wife were thought of today. Hope all went well. She is blessed to have you. Together, you can do this.

    Cathleen Mary
  • mom_2_3
    mom_2_3 Member Posts: 953 Member
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    Thinking
    ThInking of you tonight and hoping your wife fared well today.

    Hugs,
    Amy
  • bjones60
    bjones60 Member Posts: 4
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    mom_2_3 said:

    Thinking
    ThInking of you tonight and hoping your wife fared well today.

    Hugs,
    Amy

    Thank you so much
    Darline did fine today. She is also doing clinical trial involving a compound that may ease the side affects of some of the chemo mess. Thank you all so much for the prayers and thoughts. They mean more than I can ever express. God bless and be well. February 25, 2012 - 3:44pm
    Advice
    Hello bjones60

    You have just added CareGiver to your list of names.
    You are Son, Dad, Husband, Friend... and now CareGiver.

    My wife is my caregiver and i've been going through chemo since 1-3-2012.

    I have a couple things to share that make my day.

    1. She is there with me at Chemo treatments. Not sure if you're able to do that, but it's so nice to NOT have to drive and to be as stress free as possible.

    2. I have to be re-assured that I have not become a burden to her. So, as you get into this... assure her that you're there with her all the way. (if you look on this blog site, you'll see a couple conversations when the spouse takes off half way through the chemo as many of the great things in your marriage might be on hold for awhile..) her number 1 priority has to be to Get Better. And, you're committment to her will make her NEVER have to worry about losing you.

    3. Have an agreement with her that you're allowed to make her laugh, whenever she's crying. And, its okay to laugh until you cry. This is a very emotinoal time.... and in the alone time, it's hard not to think negative thoughts. so, my wife keeps a close eye on me during those times... and she's there to make me laugh and it's wonderful.

    4. Love her like you've never loved her before.

    and, I know you will.

    My prayers are with you and your wife... and your 15 year old.
    we have four kids... and the best point on our teenagers... is straight forward honest answers. REmember, kids are better at Google than most of us. Remind them that NOT everything on the internet is true.

    cheers.

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    Patteee
    Posts: 899
    Joined: Jul 2009
    February 25, 2012 - 3:53pm
  • bjones60
    bjones60 Member Posts: 4
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    i hope
    hey i hope everything has went well today, did she come home on a pump and what not? any way let us know. i hope everything is good
    bright blessings and prayers
    john

    Thanks much
    She did fine today. She did come home with a pump. Has to wear it until Friday. I'm proud of the way she handled it. I rode with an "outlaw" club for years and thought I was a tough guy, not scared of a thing. That is until I met my wife and eventually all of you. I am humbled by your kindness love for your fellow man regardless of your respective situations. I can only hope that I can be half the person y'all are. Godbless you all. Brady, Brad,& Darline Jones
  • mamalea333
    mamalea333 Member Posts: 27
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    bjones60 said:

    Thanks much
    She did fine today. She did come home with a pump. Has to wear it until Friday. I'm proud of the way she handled it. I rode with an "outlaw" club for years and thought I was a tough guy, not scared of a thing. That is until I met my wife and eventually all of you. I am humbled by your kindness love for your fellow man regardless of your respective situations. I can only hope that I can be half the person y'all are. Godbless you all. Brady, Brad,& Darline Jones

    have been praying for her & you
    Hi bjones60
    i thought of your wife and prayed for you both yesterday..will keep her, you & your family in prayer. You will get through this..Trust in the Lord..Hold tightly to Him..He will not let you go, and will answer all prayers.
    God bless & stay strong
    Lea