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My CA 125 is elevated. There is a history of ovarian and breast cancer in my family. My CT Scan is tomorrow. I am so worried

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  • mopar
    mopar Member Posts: 1,972 Member
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    SENDING PRAYERS, MARSHA
    I can imagine what you're feeling right now. It's not a comfortable place to be at. But as we always say here, there are lots of reasons for the CA125 to climb. Have you had other symptoms, and that's why they're doing a CT?

    Please let us know how it goes. In the mean time, sending lots of prayers and hugs.

    Monika
  • poopergirl14052
    poopergirl14052 Member Posts: 1,183 Member
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    mopar said:

    SENDING PRAYERS, MARSHA
    I can imagine what you're feeling right now. It's not a comfortable place to be at. But as we always say here, there are lots of reasons for the CA125 to climb. Have you had other symptoms, and that's why they're doing a CT?

    Please let us know how it goes. In the mean time, sending lots of prayers and hugs.

    Monika

    I also know how scared you are
    I am praying your scan is clear and you are cancer free. How high was your ca-125?. Keep us posted...val
  • lovesanimals
    lovesanimals Member Posts: 1,366 Member
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    I also know how scared you are
    I am praying your scan is clear and you are cancer free. How high was your ca-125?. Keep us posted...val

    Sending you good thoughts and a big hug
    And also praying that you don't have cancer. Please let us know when you get the results of the CT scan.

    Kelly
  • azgrandma
    azgrandma Member Posts: 609 Member
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    Sending you good thoughts and a big hug
    And also praying that you don't have cancer. Please let us know when you get the results of the CT scan.

    Kelly

    praying
    Honey i am praying for you. I know it is frightening, but you will meet lots of ladies here that will lift you up when needed.
    Try not to worry.
    Hugs Lynda
  • Radioactive34
    Radioactive34 Member Posts: 391 Member
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    Please take with a grain of salt
    I remember reading my initial lab reports and seeing a high CA 125. It was before I had seen my gyn. I was still in denial about it. It definitely struck fear in my heart. And even though everything pointed to cancer. The gyn/oncologist told me not to worry. She would tell me when to worry.....namely after surgery.

    So try not to worry...as it has been said before many reasons for CA 125 to go up. At the risk of offending you....when I could not help but worry, a shot of tequila helped. Lol, I am a cheap drunk...can't stand being drunk....but a shot of tequila took the edge off.
  • marsha044
    marsha044 Member Posts: 6
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    mopar said:

    SENDING PRAYERS, MARSHA
    I can imagine what you're feeling right now. It's not a comfortable place to be at. But as we always say here, there are lots of reasons for the CA125 to climb. Have you had other symptoms, and that's why they're doing a CT?

    Please let us know how it goes. In the mean time, sending lots of prayers and hugs.

    Monika

    frightened
    Thanks for all the comments, everyone. My CA - 125 was 120. I have had some pressure and pain in my lower stomach off an on for awhile. One sister was just diagnosed with Stage 1 ovarian and my other sister had stage 3 breast cancer but she is a surviver for over 5 years.
  • marsha044
    marsha044 Member Posts: 6
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    Please take with a grain of salt
    I remember reading my initial lab reports and seeing a high CA 125. It was before I had seen my gyn. I was still in denial about it. It definitely struck fear in my heart. And even though everything pointed to cancer. The gyn/oncologist told me not to worry. She would tell me when to worry.....namely after surgery.

    So try not to worry...as it has been said before many reasons for CA 125 to go up. At the risk of offending you....when I could not help but worry, a shot of tequila helped. Lol, I am a cheap drunk...can't stand being drunk....but a shot of tequila took the edge off.

    grain of salt
    I think the tequila will help. I appreciate you all being there. I had no one to talk to and I found this site. I am glad you all are here. I will keep you posted.
  • kikz
    kikz Member Posts: 1,345 Member
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    marsha044 said:

    grain of salt
    I think the tequila will help. I appreciate you all being there. I had no one to talk to and I found this site. I am glad you all are here. I will keep you posted.

    Welcome
    to a place where you will get much support. These ladies have helped me so many times by just being here. I wish you the best for a positive outcome.

    Karen
  • AnneBehymer
    AnneBehymer Member Posts: 738 Member
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    azgrandma said:

    praying
    Honey i am praying for you. I know it is frightening, but you will meet lots of ladies here that will lift you up when needed.
    Try not to worry.
    Hugs Lynda

    lynda
    I am so glad you are on this site it make me smile every time I read your post or you comments when you are ansering others post. You can always see how much love you have for the ladies hear on this site. I know your heart is in every post you make you have given me such support in what you have written post for me and I think you don't even relize it. Thanks for being there for all of us.

    Anne
  • AnneBehymer
    AnneBehymer Member Posts: 738 Member
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    I understand how you feel
    I went throw this just a few weeks ago so I so understand how you are feeling. I just had the catscan last Wednesday and found out this Monday that my scan is clear. I have stage four ovarian cancer and we thought the cancer was back. The scan came back clear and I am still in remission. My CA-125 went from 6 to 52 in nine weeks so I was scared. My doctor told me about a paper he wrote that is about to come out that there is about 10-20 percent of ladies that their CA-125 razor up and down ( he means sharp up movement and then sharp down way movement) and he feels I fall in that percent of ladies. Please try not to worry to much and I know that is hard but maybe it is nothing. I am praying for you and I hope you can relax some I know easier said then done. My prays and hopes going your way and a siber hug lol.

    Anne
  • Susan53
    Susan53 Member Posts: 178
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    marsha044 said:

    grain of salt
    I think the tequila will help. I appreciate you all being there. I had no one to talk to and I found this site. I am glad you all are here. I will keep you posted.

    Hi Marsha
    Wishing you all the best. Sharon
  • LaundryQueen
    LaundryQueen Member Posts: 676
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    I understand how you feel
    I went throw this just a few weeks ago so I so understand how you are feeling. I just had the catscan last Wednesday and found out this Monday that my scan is clear. I have stage four ovarian cancer and we thought the cancer was back. The scan came back clear and I am still in remission. My CA-125 went from 6 to 52 in nine weeks so I was scared. My doctor told me about a paper he wrote that is about to come out that there is about 10-20 percent of ladies that their CA-125 razor up and down ( he means sharp up movement and then sharp down way movement) and he feels I fall in that percent of ladies. Please try not to worry to much and I know that is hard but maybe it is nothing. I am praying for you and I hope you can relax some I know easier said then done. My prays and hopes going your way and a siber hug lol.

    Anne

    Anne: did your doctor say
    Anne: did your doctor say anything about the Avastin causing the CA-125 to rise a bit? I have heard that possibility may happen.
  • AnneBehymer
    AnneBehymer Member Posts: 738 Member
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    Anne: did your doctor say
    Anne: did your doctor say anything about the Avastin causing the CA-125 to rise a bit? I have heard that possibility may happen.

    LaundryQueen
    No not the Avastin it will cause you blood pressure to raise but not ca125 he thinks I am in the 20 percent of women that ca125 will go up and down sharply and it not be cancer. He is keeping a close eye on my number and if it does not drop then he has to go find the cancer because it is back in some kind of form or another.

    Anne
  • carolenk
    carolenk Member Posts: 907 Member
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    LaundryQueen
    No not the Avastin it will cause you blood pressure to raise but not ca125 he thinks I am in the 20 percent of women that ca125 will go up and down sharply and it not be cancer. He is keeping a close eye on my number and if it does not drop then he has to go find the cancer because it is back in some kind of form or another.

    Anne

    If you are still showing a
    If you are still showing a high Ca-125 & the scan of your pelvis/abdomen/chest is clear, you probably need to check your brain just to be on the safe side.
  • AnneBehymer
    AnneBehymer Member Posts: 738 Member
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    carolenk said:

    If you are still showing a
    If you are still showing a high Ca-125 & the scan of your pelvis/abdomen/chest is clear, you probably need to check your brain just to be on the safe side.

    just what I was thinking
    I was thinking the same thing I want to see what the next blood test shows and go from there. I have been having these headeach that I have never had before, I have had maigrianes since I was 8 years old and this is not the type I have ever had it is in this one spot on the right side of my head near the spin so if the numbers are up I am going to talk with my doctor.

    hugs, love, and prayers
    Anne
  • TexanByChoice
    TexanByChoice Member Posts: 44
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    carolenk said:

    If you are still showing a
    If you are still showing a high Ca-125 & the scan of your pelvis/abdomen/chest is clear, you probably need to check your brain just to be on the safe side.

    Absolutely agree with Carole
    As nyou've sdeen from my previous post it just happen to me. Had radiation this afternoon on two of three brain tumors and will have cranial surgery Monday...should have been caught sooner...but CA markers and just ab/pelvic CT which are negative don't catch everything else lurking out there. Be proactive. positive and hugs are coming your way.

    Shirley
  • carolenk
    carolenk Member Posts: 907 Member
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    Absolutely agree with Carole
    As nyou've sdeen from my previous post it just happen to me. Had radiation this afternoon on two of three brain tumors and will have cranial surgery Monday...should have been caught sooner...but CA markers and just ab/pelvic CT which are negative don't catch everything else lurking out there. Be proactive. positive and hugs are coming your way.

    Shirley

    Don't wait!
    Anne

    If I were you, I would have that headache checked out. I know you live with pain every day & take painkillers so maybe you don't realize how serious this could be. A strange headache really needs to be investigated. Don't wait until you start having other symptoms like speech problems the way Leesa did.

    I hope the testing is negative--you need to check this out sooner rather than later.
  • Radioactive34
    Radioactive34 Member Posts: 391 Member
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    How did the scans come out?

    How did the scans come out?
  • jbeans888
    jbeans888 Member Posts: 313
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    How did the scans come out?

    How did the scans come out?

    I haven't been on the board
    I haven't been on the board for a while. Welcome! How are you doing? How is the scan?