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you mean what I feel really does matter

AnneBehymer's picture
AnneBehymer
Posts: 739
Joined: Jul 2011

Anne Behymer

Ok I am in pallative care but not because I am near the end. I have been having so much trouble with the pain that I am no longer living my life. The pain dictates my days and usally it stay home and try not to move. I have for three months been working with a pain doctor (really three) at AZ pain center with no help at all. Every time I say that the pain is really getting bad so bad that I walk with a walker, can no longer go upstairs so I am living in the bottom part of the house, and I go now where but doctors appointments and chemo. I am in so much pain that I either sleep all day or can't sleep at all. I told them I have felt like I am a slave to the pain and want the pain to stop, so instead of increasing until we reach a theraputice leave they through another drug at me that is not really a pain medication. So today I met with NP who sat down with me ask question listen to what I was feeling valudated that what I was feeling was ok and that she is here to help. She can not write a script for me because I am not under hospic yet, she does know that I have an appointment with my new pain doctor refered by them and set down with my current medication and upped some, removed some, and added back in one that was removed. In all it works out to the day of my appointment I will not run out until I get to the pain doctor. I felt like for the first time in a long time someone listen and cared about my pain. She also will call every day until I make it in to see the doctor to make sure I am not to drugged, She also told my mom what to look for what to have me do each day to make sure I was not to sedated. I really loved that fact that she included my mom in the discussion and in the treatment plan. I praise God for Pallative care at first I was scared like I must be dieing because I was now on it but they put that to rest the first day they set me up. Thank you all for your prays and support I have needed it very much. I will continue to pray for my teal sisters and anyone God has placed on my heart. LUV YOU ALL

Honordon's picture
Honordon
Posts: 49
Joined: Jun 2011

I just want to give you a hug, I cried reading your post I think you are so very brave God Bless you . Am so sorry you are in so much pain and am so happy you have found someone who will help you am praying that you will not have so much pain ...Hugs Donna :)

karen1951's picture
karen1951
Posts: 103
Joined: Oct 2011

i do so hope they will be able to help you.....you will be in my prayers....karen

Cafewoman53's picture
Cafewoman53
Posts: 732
Joined: Jul 2010

I don't believe anyone should be in pain, I go to a pain clinic for chronic back pain and they have reassured me that I will not have to suffer.you will be able to enjoy life if your pain is under control, I am so happy for you.
Colleen

kikz's picture
kikz
Posts: 1266
Joined: Jun 2010

what you feel matters very much especially to us. We are all in the same boat although some sisters are having a tougher time than others at the moment. I hope you get some respite from your pain very soon. Thank you for continuing to keep us informed about your condition though it must be difficult for you.

My very best to you.

Karen

AnneBehymer's picture
AnneBehymer
Posts: 739
Joined: Jul 2011

I do have you all so very fooled you think I am sweet lol just kidding. Thank you all for your support and here I do know what I say does matter I have never walked away from this site and said they just don't care, you all are great. I am praying for all of you that we see a cure to this beast before we leave this world. Have a great day and I love you all.

azgrandma's picture
azgrandma
Posts: 576
Joined: Feb 2010

may God bless yuou and take away our pain hon

lovesanimals's picture
lovesanimals
Posts: 1209
Joined: Sep 2011

And hoping that you get some relief from your pain.

Kelly

AnneBehymer's picture
AnneBehymer
Posts: 739
Joined: Jul 2011

my friend said to me today "Only someone in sever pain can understand what you are really going through". Wow I did not think about that until now, I love all of my teal sisters you really are close to my heart because I understand you pain and you understand mine. Thank you for all your kind words. Really all of you support has helpped more than you know. To all teal sisters have a great day enjoy it all you can and I will see you tomorrow.

Anne

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