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First Round of Follow-up Scans ~ 6 Months

LISAinTN's picture
LISAinTN
Posts: 143
Joined: Aug 2011

Hey Everyone,

My apologies for not being around for months. Seems that 2011 was one catastrophe after another here and I just didn't have a lot of computer time.

Anyway, I've read through some posts and am so glad to see all the great reports on clear scans from several of you. Everyone here is in my prayers. I have my first round of testing starting tomorrow (Monday the 16th.) I have a Chest X-ray tomorrow and bloodwork to check my creatine levels. If those levels are fine, I have a CT Scan on Wednesday with results on the 23rd. If anyone has some spare prayers laying around, I'd sure appreciate them.

If you remember any of my past posts, I did get past the depression I had early on after surgery. Seems like the surgery messed with my hormones and just about everything else. I feel like I've been back to normal for some time now. (Whatever that is. LOL) I enjoyed the holidays as well, but must say I had a bit of sadness, as this first round of tests approaches, with feelings of "what if this is my last Christmas". I hated that! I put it out of my head the minute it cropped up, but it reared it's ugly head more then once. Anyway, now I'm rambling. Hello to all here and looking forward to being able to chat more. Take care.

Blessings,
Lisa

newenglandguy
Posts: 66
Joined: Jun 2011

Lisa - I will definitely say a prayer for you. I don't recall seeing your original story but will make it a point to go look it up. Wishing you clear scans!

icemantoo's picture
icemantoo
Posts: 1452
Joined: Jan 2010

Dear Lisa,

Last August your doctors gave you a 5% chamce of recurrance and that is over 5 or 10 years.
Based upon your pathology report my commemt last August regarding chance of recurrance was slim or none. The basis for those comments has not changed.

While other people have had recurrances on this board most if not all joined our club with more baggage than you (size and grade of tumor). For you this is a routine follow up with no reason to be concerned. As for your creatine level with one kidney you are going to have a new normal.

Anyway whether you need it or not I am wishing you the best results possable so that you can get this behind you and relax.

Icemantoo

garym's picture
garym
Posts: 1651
Joined: Nov 2009

Hi Lisa,

No need to apologize for where life leads you, we'll be here if/when you need us. I remember all the emotions from dx and surgery flooding back before those first follow-up tests and I know it does not seem like it for you right now, but it will get easier over time, the first is the worst. The iceman has reminded you of some of the positive things you have going for you, concentrating on those will help hold the inner demons at bay. I am sure that NED is coming your way and will pray that this is the first in a long line.

Good luck and Godspeed,

Gary

LISAinTN's picture
LISAinTN
Posts: 143
Joined: Aug 2011

Thank you everyone! I had my CT Scan yesterday and the woman doing the scan whispered to me that the Chest X-ray results were back and were clear! So, now I just wait until Monday for the results of the CT Scan.

Blessings,
Lisa

MikeK703's picture
MikeK703
Posts: 235
Joined: Sep 2010

Congrats on your results.
You had one of the understanding technicians. I had an ultrasound done a few months ago and the technician told me all looked okay. But my wife had one done recently and asked how it looked and got the reply, "I'm not allowed to say." That she wouldn't say anything made us worry even more. Why wouldn't she tell us? we asked ourselves. Maybe there was something wrong. (It turned out okay though.) Can't blame them I guess if they've gotten heat for doing that. But getting that thumbs up sure beats waiting several days (or longer) for the results (that is, if the doctor remembers to send them to you.)
Mike

MikeK703's picture
MikeK703
Posts: 235
Joined: Sep 2010

Duplicate. sorry.

LISAinTN's picture
LISAinTN
Posts: 143
Joined: Aug 2011

Just wanted to say thanks for the prayers. I got the all clear on my tests today!! My urologist has concerns as to my age when I got the cancer and my family history, but we can only take it one day at a time. I go back in July for more tests. Thanks again!

Blessings,
Lisa

garym's picture
garym
Posts: 1651
Joined: Nov 2009

Lisa,

Congrats on the all clear (NED), its the best news we ever hear. Now life can get back to "normal" for awhile at least.

Wat to go,

Gary

foxhd's picture
foxhd
Posts: 1855
Joined: Oct 2011

So...you got big plans?..."When your smiling...When your smiling...."

LISAinTN's picture
LISAinTN
Posts: 143
Joined: Aug 2011

Thanks! My only big plans are to get a colonoscopy now, so they can look into (no pun intended. LOL) this diverticulitis that landed me in the ER and was the reason for catching this kidney cancer in the first place. I want to get all the poking and prodding behind me. (pun intended LOL)

Blessings,
Lisa

Katielynn
Posts: 61
Joined: Apr 2011

Hi Lisa,
So glad to hear you recieved good news. I feel every good report is a victory for all of us. Ahhh, the colonoscopy, it's nothing. The prep is the worst part. Thanks to my diverticulitis and an ovarian cyst, and much prodding and poking my mass was found "by accident" My nephrologist said "good thing you had pain"...otherwise I would have attributed the back pain and pelvic/abdominal pain to that ovarian cyst that my gyno (now replaced) had let hang around for 1 1/2 yrs. Or, I could have blamed in on my herniated L5. Thank God my PC didn't blow me off as some hypochondriac...I complained and he listened..So now I'm down 1 kidney, one ovary, and thanks to my new gyno at the time I had my ovary removed, he called in a gen, surgeon to remove my bad appendix. Still have the diverticulitis, but if that's going to be the worst of it AMEN, I could live without nuts and seeds. LOL Hopefully 2012 will be a very good, healthy year for us all...I pray God blesses us....Good luck with the colonoscopy...Look at it this way, it's a good nap, then you go home :-)

LISAinTN's picture
LISAinTN
Posts: 143
Joined: Aug 2011

Hi Katie,

LOL! You made me laugh. I can think of much better things to nap through, but I know what you mean. :o) I completely echo your sentiments on 2012. I told my husband that I hope this is the most boring year I have ever had in my life! I will not complain if it's boring! Take care.

Blessings,
Lisa

cww71964's picture
cww71964
Posts: 95
Joined: Dec 2011

Lisa,

It is so good to hear your good news. I wish the same for everyone that faces this stuff. I wish you happiness and health in this new year.

God bless,
Wayne

LISAinTN's picture
LISAinTN
Posts: 143
Joined: Aug 2011

Thanks so much, Wayne! I'm wishing for a very boring and happy year! :o)

garym's picture
garym
Posts: 1651
Joined: Nov 2009

Boring and colonoscopy hmmmm, there has to be a pun in there somewhere, isn't there?
LOL Gary

LISAinTN's picture
LISAinTN
Posts: 143
Joined: Aug 2011

Don't go there, Gary! LOL My colonoscopy is on Groundhog's Day and my husband is already coming up with, what he thinks are, "funny" little comments regarding the day. LOL Oh well, if I couldn't laugh about this, I'd have to be committed somewhere. :oD

Blessings,
Lisa

garym's picture
garym
Posts: 1651
Joined: Nov 2009

Groundhog's Day, tears are rolling down my cheeks.

When they did mine I asked afterwards if he discovered oil, without skipping a beat the doctor said "No, but the good news is that you don't have any cavities".

Gotta have a sense of humor for that job,

Gary

icemantoo's picture
icemantoo
Posts: 1452
Joined: Jan 2010

I just had my 5th Colonoscopy. Afterwords the Dotor told my wife that he had some bad news and some good news. The bad news was that I snoored like a horse. The good news was that he did not have to sleep with me.

Texas_wedge's picture
Texas_wedge
Posts: 2807
Joined: Nov 2011

Good one iceman!!

Keep them coming guys - it's definitely therapeutic.

Minnesota Girl's picture
Minnesota Girl
Posts: 115
Joined: Jul 2011

Love you guys -- too funny! Love the good news, too!!!

braswelm's picture
braswelm
Posts: 41
Joined: Oct 2011

I had mine scheduled for April 27th last year, and we woke up to tornadoes here in Alabama. Power outages, traffic jams, etc., made it unclear if I could get to the appointment on time. My wife commented that we might have to reschedule. I told her, "After the cleaning out I went through last night, somebody somewhere is going to stick a light up my butt!"
LOL!

LISAinTN's picture
LISAinTN
Posts: 143
Joined: Aug 2011

You all having me laughing so hard! I know what I'll be thinking about at my appointment. I hope I don't talk in my sleep while I'm under. LOL

Blessings,
Lisa

Tambo
Posts: 20
Joined: Nov 2011

Remember when Groundhog's Day meant Spring was right around the corner? And... it was time to start thinking about spring cleaning. Talk about spring cleaning.....YIKES!!! The prep is no fun but the procedure itself; is not even memorable. You'll do fine.
Glad to hear your tests have blessed you with good news. Now. that is a tune you can dance too. I wish you many more good reports.

Tambo

foxhd's picture
foxhd
Posts: 1855
Joined: Oct 2011

For those weight concious people. I 've known women who have said that they would remove their wedding band if they thought it would make a difference when they weigh themselves. Well here is a chance to be at your lightest! Keep a scale handy.The prep is your friend.

LISAinTN's picture
LISAinTN
Posts: 143
Joined: Aug 2011

Welp, I had my first colonoscopy. Good news, the doctor didn't see the Groundhog. LOL!! Everytime I think of these past posts, I burst out laughing. Hope you all don't mind my warped sense of humor. It's what keeps me going most days. LOL

I had 4 diverticula (pockets), but I'm all good for now and don't have to go back for 5 years on that. Strange as it sounds, I thank God for the diverticulitis, or they probably wouldn't have found my kidney cancer until it was too late.

As to prep day, my doctor prescribes Half Litely.......it wasn't bad at all. You take a pill and then drink that stuff, which wasn't bad at all either. I sucked each glass down with a large straw, so it went down fast. Only bad part of it was we got caught in the area of a wreck on the interstate and it took 3 hours to make a 30 minute drive. I was 2 hours late for my appointment! Thank GOD they waited on me. I called them several times begging them to wait. I did not care to go through the liquid diet/prep day thing all over again. When I got there, they asked me to sign a form saying they'd give me Propofol. I said, "Isn't that what they used to kill Michael Jackson"? LOL

Anyway, hope everything is great with everyone here. Have a great upcoming weekend.

Blessings,
Lisa

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