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Peritoneal Mesothelioma/Anybody else with this?

baseballgirl71
Posts: 11
Joined: Dec 2011

Anybody else out there with Peritoneal Mesothelioma? I was diagnosed after a hysterectomy 3 months ago. I am only 40 and have 3 kids. Would love to chat with someone else with this terrible disease.

Elissa

westie66's picture
westie66
Posts: 642
Joined: Jun 2010

You might check the Peritoneal Cancer discussion board. I have secondary peritoneal cancer resulting from gallbladder cancer diagnosed in April 2010. There was a discussion awhile back about peritoneal mesothelioma.
Cheryl

LaundryQueen's picture
LaundryQueen
Posts: 682
Joined: Mar 2011

Isn't mesothelioma a rare kind of cancer associated with asbestos exposure?

westie66's picture
westie66
Posts: 642
Joined: Jun 2010

Yup, that is what I've read. There was a discussion on this awhile back wasn't there?
Cheryl

onemore
Posts: 57
Joined: Jun 2010

Hi Elissa,

My dad had Peritoneal Mesothelioma. If I can be of any assistance please feel free to contact me.

Onemore

onemore
Posts: 57
Joined: Jun 2010

Hi Elissa,

My dad had Peritoneal Mesothelioma. If I can be of any assistance please feel free to contact me.

Onemore

onemore
Posts: 57
Joined: Jun 2010

Hi Elissa,

My dad had Peritoneal Mesothelioma. If I can be of any assistance please feel free to contact me.

Onemore

onemore
Posts: 57
Joined: Jun 2010

Hi Elissa,

My dad had Peritoneal Mesothelioma. If I can be of any assistance please feel free to contact me.

Onemore

baseballgirl71
Posts: 11
Joined: Dec 2011

What kind of treatment did he do? He is still living? How did you deal with this dx?

Elissa

onemore
Posts: 57
Joined: Jun 2010

My dad passed away on December 4, 2011. He was 66 years old. He was diagnosed in May 2010. We all stayed very positive through it all. We took one day at a time. Are you in the New York Area? I could recommend the surgeon he used. First he had chemo to shrink the tumor. After that he went in for surgery to remove the left lung and part of the diaphram. The surgeon came to us to tell us that it was inoperable. After that he had radiation which really kept it at bay for a long time. He also tried a chemo pill. He was part of a study. He was filling up with fluid on the lining of the lung in the beginning when we 1st found out and they put a drain in to drain the fluid.

Anything I can do to help you please feel free to contact me.

You are in my thoughts and prayers.

Onemore

jackiegleasonscores's picture
jackiegleasonscores
Posts: 24
Joined: Nov 2011

My mother in law has meso. and is struggling trying to find emotional support. She had fluids drained, then lung scraped and syhthetic diaphram. Recently she spent a week in Columbia Presb. to get blood clots dissolved. She refuses pain killing medication and is interested in sharing with someone but doesn't know where to reach out. There isn't much direction in that regard, and I am suspecting it is due to deadliness of disease and survival time. Can you help in any way with direction or even a phone call to her or she to you. awesome85@netzero.net Wayne

eward
Posts: 210
Joined: Feb 2010

My mom's diagnosis is Primary Peritoneal Cancer, stage 4, since April of 2009. She was diagnosed due to cancerous fluid in her lungs. She only had 3 small tumors in her abdomen, but had a scattering of cancer cells throughout her abdominal cavity at the time.

Has your cancer been staged yet? I am sorry to hear about your diagnosis and wish you the best. My mom was told at time of diagnosis that it would be treated like a chronic disease.
Eileen

Michael2012
Posts: 2
Joined: Feb 2012

Dear Elissa, i am sorry to hearabout diagnosis and i hope that are able to cope with it and fight it.
My cousin was diagnosed with malignant mesothelioma peritonel last week. Would it be possiblefor you and i to talk as i have questions about daily living with this diagnosis. I want to help her as much as i can. She is 49, married + 2 living in NY.

My personnal email is michael@rubinov.com

Thank you,
Michael

onemore
Posts: 57
Joined: Jun 2010

Dear Michael,

If I can help in anyway, I'm here...

My dad had this terrible disease...

You can read some of my earlier posts...

We live in NY as well...

Regards,

Onemore

Michael2012
Posts: 2
Joined: Feb 2012

Elissa, I got your contact details few days ago but by mistake have deleted this email and can't find it now. Please resend. My cousin was diagnosed with Peritoneal Mesothelioma after laporoscopy (removed ovaries). My cousin would like to reach out and ask few questions.
Thank you and best of health.

Michael Rubinov
michael@rubinov.com

Liz V
Posts: 1
Joined: Apr 2012

I hope you log back on. I was diagnosed after a hysterectomy also at age 39. Guess what, I will turn 49 this year. I will not say it was easy but I was so lucky that it was discovered by accident. I did the chem and then went to Omaha to see Dr Brian Loggie. His surgery is nothing short or a mirical. Lots of recovery needed afterwards but I DID recover. There is hope. Look at the web site of M.A.R.F

Liz

baseballgirl71
Posts: 11
Joined: Dec 2011

Hi Liz!

I am so glad to find someone else who has survived this. I had the HIPEC surgery (debulking and hot chemo) in October 2011. I just had my first 6 month follow-up at the end of March and I still have No Evidence of Disease. (Yea!!!) I would love to talk with you more, since you know exactly all the emotions and fear that go along with this. My personal email is baseballgirl71@gmail.com. Hope to hear from you soon.

Elissa

RogerB40uk
Posts: 5
Joined: Aug 2013

Hi bbg71

It might raise your spirits a bit to read of Stephen Jay Gould's story ... he was Dx'd with the same as yourself, at age 41, and told the median survival time was (at that time) 8 months, but he proved that statistics are just numbers and lived for a further 20 YEARS ... another, totally unrelated tumour finally did for him.

He wrote about it here:

http://www.phoenix5.org/articles/GouldMessage.html

Be well and stay positive

Roger (Stage 0 Lymphocytic leukaemia, Diagnosed last year, at age 72 ... luckily I am symptom free and determined to at least match my mother's span of 93 years!!)

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