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Pseudomyxoma survivor support network

Pseudomyxomasurvivor
Pseudomyxomasurvivor CSN Member Posts: 1
edited November 2011 in Peritoneal Cancer #1
Hi all I am new to this forum so I hope to get to know some of you better and get to read your stories.

I am posting as I was diagnosed with pseudomyxoma peritonei in 2008 and wrongly given less than 3 months to live.

I would love to hear from anyone touched by this cancer. x
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Comments

  • janineramage
    janineramage CSN Member Posts: 1
    #2
    pmp
    I too have been recently diagnosed with PMP on november 28 I am still recovering from surgery. I am at a loss and would greatly love to hear any comments, treatments etc.
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  • Tina Brown
    Tina Brown CSN Member Posts: 1,036 Member
    #3
    janineramage said:

    pmp
    I too have been recently diagnosed with PMP on november 28 I am still recovering from surgery. I am at a loss and would greatly love to hear any comments, treatments etc.

    PMP?
    I've not about this cancer. Can you tell me about it?

    Thanks Tina xxxx
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  • AussieMaddie
    AussieMaddie CSN Member Posts: 345 Member
    #4
    Lack of knowledge
    Hi,

    I've not heard of it either. Would it be painful to talk about it?

    AussieMaddie
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  • abrub
    abrub CSN Member Posts: 2,174 Member
    #5
    I'm an Appendix Cancer survivor
    tho not PMP. However, there is an excellent closed PMP/Appendix Cancer support group on FB, if either of you are interested.

    While I had mucinous adenocarcinoma, I did not have the belly-full of mucin common to PMP, just some small pools. I know that I had the same treatment at Memorial Sloan Kettering as my friend with PMP: debulking followed immediately by multiple courses of Intraperitoneal chemo (they don't do HIPEC there) followed by systemic chemo with Folfox.

    Is your PMP of appendix origin?

    Alice
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