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Pseudomyxoma survivor support network

Pseudomyxomasurvivor's picture
Pseudomyxomasurvivor
Posts: 1
Joined: Nov 2011

Hi all I am new to this forum so I hope to get to know some of you better and get to read your stories.

I am posting as I was diagnosed with pseudomyxoma peritonei in 2008 and wrongly given less than 3 months to live.

I would love to hear from anyone touched by this cancer. x

janineramage
Posts: 1
Joined: Dec 2011

I too have been recently diagnosed with PMP on november 28 I am still recovering from surgery. I am at a loss and would greatly love to hear any comments, treatments etc.

Tina Brown's picture
Tina Brown
Posts: 1054
Joined: Nov 2009

I've not about this cancer. Can you tell me about it?

Thanks Tina xxxx

AussieMaddie's picture
AussieMaddie
Posts: 345
Joined: May 2011

Hi,

I've not heard of it either. Would it be painful to talk about it?

AussieMaddie

abrub's picture
abrub
Posts: 1531
Joined: Mar 2010

tho not PMP. However, there is an excellent closed PMP/Appendix Cancer support group on FB, if either of you are interested.

While I had mucinous adenocarcinoma, I did not have the belly-full of mucin common to PMP, just some small pools. I know that I had the same treatment at Memorial Sloan Kettering as my friend with PMP: debulking followed immediately by multiple courses of Intraperitoneal chemo (they don't do HIPEC there) followed by systemic chemo with Folfox.

Is your PMP of appendix origin?

Alice

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