CSN Login
Members Online: 3

You are here

Pseudomyxoma survivor support network

Pseudomyxomasurvivor's picture
Pseudomyxomasurvivor
Posts: 1
Joined: Nov 2011

Hi all I am new to this forum so I hope to get to know some of you better and get to read your stories.

I am posting as I was diagnosed with pseudomyxoma peritonei in 2008 and wrongly given less than 3 months to live.

I would love to hear from anyone touched by this cancer. x

janineramage
Posts: 1
Joined: Dec 2011

I too have been recently diagnosed with PMP on november 28 I am still recovering from surgery. I am at a loss and would greatly love to hear any comments, treatments etc.

Tina Brown's picture
Tina Brown
Posts: 1054
Joined: Nov 2009

I've not about this cancer. Can you tell me about it?

Thanks Tina xxxx

AussieMaddie's picture
AussieMaddie
Posts: 345
Joined: May 2011

Hi,

I've not heard of it either. Would it be painful to talk about it?

AussieMaddie

abrub's picture
abrub
Posts: 1630
Joined: Mar 2010

tho not PMP. However, there is an excellent closed PMP/Appendix Cancer support group on FB, if either of you are interested.

While I had mucinous adenocarcinoma, I did not have the belly-full of mucin common to PMP, just some small pools. I know that I had the same treatment at Memorial Sloan Kettering as my friend with PMP: debulking followed immediately by multiple courses of Intraperitoneal chemo (they don't do HIPEC there) followed by systemic chemo with Folfox.

Is your PMP of appendix origin?

Alice

Subscribe to Comments for "Pseudomyxoma survivor support network"