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Hope

barb55's picture
barb55
Posts: 91
Joined: Jan 2009

I was diagnosed in 2007 with UPSC stage 3C. I'm posting tonight for anyone who needs some hope. I saw my oncologist today and I am doing great. In fact, I don't need to see her for another year- kind of a graduation day for me. Four years and no recurrence. I know how enormously lucky I am and I know how much we all need to hear good news. Take care everyone. This discussion board has always been a real beacon of information and sharing and amazing women and I am so grateful. Barbara

Pat51
Posts: 111
Joined: Feb 2011

Congratulations!! That is great news!! It is always great to hear good news like yours.

Pat

barb55's picture
barb55
Posts: 91
Joined: Jan 2009

so sorry for the multiple postings- not sure what happened. Barbara

Rewriter's picture
Rewriter
Posts: 496
Joined: Dec 2009

I am so thrilled for you, Barb, and hope you are flying high!

Thank you so much for sharing with us your excellent news. It certainly gives ME hope, and I expect others will feel the same.

Jill

Ro10's picture
Ro10
Posts: 1473
Joined: Jan 2009

What wonderful news. You joined this board about the same time I did. I am so happy to hear you are doing so well. A whole year with no appointments. How great for you. Enjoy dancing with NED for many more years. In peace and caring.

Kaleena's picture
Kaleena
Posts: 1213
Joined: Nov 2009

Barbara,

I am soooo happy for you! Great news indeed! Thanks for sharing.

Kathy

HellieC's picture
HellieC
Posts: 458
Joined: Nov 2010

Congratulations on four years NED. That's the news we all love to hear.
Wishing you continued good health
Helen

daisy366's picture
daisy366
Posts: 1493
Joined: Mar 2009

Thank you for the hope. We can use lots of that. What do you think is helping you stay NED??

Mary Ann

jazzy1's picture
jazzy1
Posts: 1387
Joined: Mar 2010

Wow that's such great news!! Bet you're flying on "Cloud 9", and kicking up your heels.

Have you changed anything in your life that you'd say might have helped you stay on side of NED? We're all trying to keep the beast away, so any pointers would be much appreciated.

Best to you my friend~
Jan

barb55's picture
barb55
Posts: 91
Joined: Jan 2009

Thank you for your well wishes. I can't say I have any true pointers to keep the beast away. If I did, I would be following them. I've posted my treatment before and it was much like others here- I think my surgeon and radiologist were maybe more aggressive in the treatment from the get go- I know there was much discussion about how much radiation I could take. I also had the luxury of time to recuperate. I didn't have to rush back to my work or a young family and for that I'm grateful. I have a saying on my refrigerator that says, "Things to do today: Breathe In Breathe Out Breathe In Breathe Out. It brings me to the moment and calms me until my next Yoga class. I hope I don't sound trite- I know we are all living with real pain and real fear and if you have specific questions about lifestyle or my choices or anything I'm very happy to share, Maybe there is a key in one of my answers that may help you but I don't want to assume I have any special insight into fighting the disease. Best to all. Barbara

daisy366's picture
daisy366
Posts: 1493
Joined: Mar 2009

Barb, I think you bring up very important points - not rushing, taking time, stay in the now.

I wonder how much STRESS negatively impacts our total recovery. I think my working throughout treatment and taking little time to relax, trying to do everything, and not let cancer change my life eventually led to the recurrence.

I am now semi-retired, exercising and doing yoga regularly, and generally taking life at a more leisurely pace.

When we all get to the pearly gates, we can ask God what really help extend our lives. Until then, we can do the best we can.

Thanks again for sharing, Mary Ann

RoseyR
Posts: 464
Joined: Feb 2011

Thanks so much for showing that some of us can gain really long remissions, perhaps even cures, from even aggressive tumors.

Along those lines am wondering if anyone has been NED for three or more years after a diagnosis of uterine carcinosarcoma (formerly called MMMT), and if so, do you have any tips on your diet, supplements, or exercise?

Appreciatively,
Rosey

cleo
Posts: 124
Joined: Sep 2009

Delete

cleo
Posts: 124
Joined: Sep 2009

Delete

cleo
Posts: 124
Joined: Sep 2009

Yes Rosey. I received the results of my now yearly scan today....no change so I celebrate, with gratitude, 4 years. There is much hope for us as I was stage 3/4 as penetration was through to lymph glands and bladder.
I basically try to eat and live sensibly. Nervous of supplements as I don't like to add 'extras' to the body.
I didn't research. Googled, saw the 5 year prognosis and as I am no fan of data looked no further. This site gives me information that I may need. I think positivity and sheer B-mindedness can also pay a large part.
Interestingly enough I also think that...as Barb55, I also had a more aggressive surgeon and radiotherapy.
Take care

cleo
Posts: 124
Joined: Sep 2009

Sorry...have no idea how I managed 3!!! If there's a way to delete I haven't found it.

jazzy1's picture
jazzy1
Posts: 1387
Joined: Mar 2010

I'm MMMT as well. Now I'm counting time from post treatments which would be little over 2 years NED or 3 years from diagnosis (Feb '09) start of treatments. Not sure what the proper timing is for NED...ideas?

My doc as well was very aggressive with treatments, in fact, a few times I told him didn't have much side affects from treatments, told me "that's great, as I'm giving you some really potent drugs which are very strong".

I've learned most all of my new ways of eating from many here -- anti cancer foods, alkaline/acidic 80-20 ratio, nothing with sugars or processed, lots of organic foods, no red meat,chicken; small amounts of fish (ones with less mercury), green tea, many antioxidant foods; very limited on supplements as try to get most of vits from daily food intake; lots of deep breathing exercise, yoga and destressing. Just learning to enjoy life and take each day as it comes.

How about you Rosey...any thoughts???

Jan

snowbird_11's picture
snowbird_11
Posts: 160
Joined: Oct 2011

Thank you for sharing your good news - the hope, indeed, that such results can and do happen is such a wonderful gift.
Here's to your continuing good health!
Annie

Heather H
Posts: 11
Joined: Nov 2011

My sister just found out that she has UPSC from an endometrial biopsy and sees the gyn-oncologist today. We are all extremely anxious as we have heard the cancer is aggressive. It is wonderful to have the gift of hope from you! You Mary Ann and Annie are in my prayers.

Rewriter's picture
Rewriter
Posts: 496
Joined: Dec 2009

I had surgery in May 2008 for UPSC, had six rounds of carbo/taxol and five brachytherapy treatments, and have been NED ever since. I'm not sure whether we count from date of surgery or end of treatment, but I am a good three years NED in any case.

Hope and love,

Jill

sunflash's picture
sunflash
Posts: 158
Joined: Aug 2011

Barb and others,
Thanks for sharing and offering hope to us newbies to this type of cancer. It really helps to read how others are doing well after treatment!

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