My update - good news

Good news! I am in remission again after a clear lung CT in Salt Lake City at the end of last week. How delightful to read "much improved" and "unchanged" in the radiologist's report! I danced in the oncologist's office.

Also my cough and wheezing, which started in April, and was likely pneumonitis from the stereotactic radiation to the lungs this past January, is finally gone as of September.

Ah, the long released breath……and breathing in again…..and then out….the reassuring rhythm of breathing.

The watchful waiting continues, hopefully for a long, long time.

My oncologists are pleased too, at how healthy and strong I am right now, though being oncologists, and wanting to do their job completely, they remind me of "progressive disease" and "likely chemo will be needed in the future" but that "I am doing well without it now". My next CT (chest, abdomen and pelvis) is scheduled for early January.

I breathe in the fall air, taking in the reds of the oaks and yellows of the aspens in Parley's Canyon on the ride home. I breathe in the sweaty, horsey smell while riding my Morgan, on an unseasonably warm Sunday afternoon after getting back home to Wyoming.

I continue to focus on five areas to stay as healthy as I can:
1) functional (how supportive is my home and/or work front? are my basic needs taken care of? am I keeping my life simple and light?),
2) physical (how fit am I? how is my diet? how does my body move?),
3) psychological (how is my mental frame of mind? do I keep curiosity right in the forefront? do I check frequently to see if I'm believing my thoughts rather than seeing what is? )
4) emotional (how am I able to maintain a confident, resilient outlook? how do I ride the ups and downs of good news/bad news? what habits do I need to cultivate? to change?)
5) spiritual (ultimately the question is about life and death, and we all face it if we inhabit a body on the planet. who am I? where did I come from? where do I go? )

In addition to the above, I will continue with my weekly IV infusions (one of IV mistletoe, and two of IV Vitamin C). I also will travel to Ann Arbor, MI in November for a 2 week retreat to visit with my doctor there who oversees the IV Vitamin C and mistletoe (Iscador). He has trained in oncology in Germany and at the Lukas Klinik in Arlesheim, Switzerland.

My oncology nurse and I have reached the point in our relationship where we are exchanging home-made canned goods (apple butter from her and jalapeños en escabeche from my husband). She and my husband love to talk about how good the jalapeños are with steak sandwiches. I haven't figured out how to juice them :-)

Mostly I feel grateful– for all the support, love and care, from my extended medical team and coaches, my family and friends, near and far,, my four-leggeds, my cancer survivor buds, and for all the natural beauty all around me, and in all the places I've been fortunate enough to visit on this planet. I feel grateful for my resilient body.

I really, really wish there were a cure for cancer. I grieve for everyone that I know that has been lost to this disease, for their families who deal with the loss of loved ones.

I grieve for all the suffering we all go through no matter the cause of the loss or suffering.

The Buddha said, "Compassion reconciles us to our own destiny by showing us the life of others, often much harder than ours."

I struggled writing this update and then found an article "Living With Chronic Illness Builds Courage" which I'll post separately.

all the best, Leslie

Comments

  • Kathleen808
    Kathleen808 Member Posts: 2,342 Member
    Leslie
    Leslie,
    It is sooooo good to hear from you. I love your good news! Thank you for sharing with us. Thank you also for sharing your balanced, peaceful life plan with us. I love reading about the way you are living your life.
    All my aloha to you my friend.

    Aloha,
    Kathleen
  • John23
    John23 Member Posts: 2,122 Member
    Leslie -

    Re:
    "Buddha said, "Compassion reconciles us to our own destiny
    by showing us the life of others, often much harder than ours.""


    He's a sharp observer! So are you!

    I'm soooooo happy for you!

    Keep on keepin' on!

    John
  • tootsie1
    tootsie1 Member Posts: 5,044 Member
    Great news!
    Leslie!

    That's just fabulous news!!! Keep it up!

    *hugs*
    Gail
  • wolfen
    wolfen Member Posts: 1,324 Member
    John23 said:

    Leslie -

    Re:
    "Buddha said, "Compassion reconciles us to our own destiny
    by showing us the life of others, often much harder than ours.""


    He's a sharp observer! So are you!

    I'm soooooo happy for you!

    Keep on keepin' on!

    John

    Leslie
    So great to hear that you are doing well. Very nice new picture ,also. My JBG has horses, as you may know, and sends me updated pictures every once in a while. They are an integral part of her life and a great help in each of her healing processes. I was a rider about 50+ years ago. Not sure I could mount a pony now.
    I envy the fact that you live in my favorite state, and have fond memories of the time I spent there as a child. Unfortunately, Jackson has turned way too commercial now and some of my memories of long ago have been blemished. Of course, everything changes with so called "progress" over the years.

    Take care,

    Wolfen
  • ron50
    ron50 Member Posts: 1,723 Member
    Big ((((((((((HUGS))))))))))) Les
    All the best Ron.
  • buckeye2
    buckeye2 Member Posts: 428 Member
    Congratulations on your good
    Congratulations on your good news. I am so happy to read good news. I think some are reluctant to share their good when others are not getting such good news but it is such a shot in the arm for all. Thanks for sharing. Lisa
  • johnnybegood
    johnnybegood Member Posts: 1,117 Member
    buckeye2 said:

    Congratulations on your good
    Congratulations on your good news. I am so happy to read good news. I think some are reluctant to share their good when others are not getting such good news but it is such a shot in the arm for all. Thanks for sharing. Lisa

    great news
    leslie on your progress.i am so happy for you.keep up the good work and i know where you are coming from when you talk about horsey smell.only us horse people can know the meaning of that.i go out to my horses everyday and hug their necks and just take in all of the smell.you take care and congrats.....Godbless.....johnnybegood
  • Sundanceh
    Sundanceh Member Posts: 4,392 Member
    Dear Leslie
    Hey Leslie:)

    In my next lifetime, I wanna' grow up to be just like you:)

    I couldn't be any happier for you and know you've worked hard for it. What I really appreciate about you is that you are 'in the now' moment, but are sharply aware of "progression" as your med team so succintly put it.

    That's important, because that means that you are aware of how this thing operates, but still holding out hope, just like me, that this thing won't hop back on you.

    I'll be collecting a big Texas bear hug in 2-weeks:)

    Say hi to your friend that I spoke too that time.

    Ride On!
    -Craig
  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    lovelly post , well worth the struggle
    thanks,

    if it ain't broken don't fix it.
    you sound like your routine is working so well.

    i liked your discussion of simple breathing, its one of the simplest healthful things i do on my treadmill. good deep breathing.

    its amazing comparing our strategies half way across the world. so many similarities

    hugs,
    pete
  • laurettas
    laurettas Member Posts: 372
    Neighbors
    Leslie, we are neighbors, as only one can be in the West! We live in Idaho.

    Thank you so much for your wonderful post. It was so uplifting to read. I, too, hope for a cure for this nasty beast. Only wish it could be tomorrow. Too many people who need that cure today. Great strides are being made, it seems, so am praying for the cure every day.
  • relaxoutdoors08
    relaxoutdoors08 Member Posts: 521 Member
    Enjoy LIfe and experience that wonderful place with nature.
    Enjoy life and continue to experience that wonderful place riding your horse in Wyoming. When one experiences the beautiful scenery one feels so close to God. Feel his warmth and healing hand.

    Prayers for continued good health.
    NB
  • maglets
    maglets Member Posts: 2,576 Member

    Enjoy LIfe and experience that wonderful place with nature.
    Enjoy life and continue to experience that wonderful place riding your horse in Wyoming. When one experiences the beautiful scenery one feels so close to God. Feel his warmth and healing hand.

    Prayers for continued good health.
    NB

    wunerrrful
    what a wonderful post Leslie.....thank you....

    could not be happier for you

    mags
  • pepebcn
    pepebcn Member Posts: 6,331 Member
    maglets said:

    wunerrrful
    what a wonderful post Leslie.....thank you....

    could not be happier for you

    mags

    Hi Leslie congrats for such a great post!
    Have a big hug!
  • Annabelle41415
    Annabelle41415 Member Posts: 6,742 Member
    Great
    So good to hear from you again and with such wonderful news to share with us. You must be going to UofM that is an awesome hospital. So happy for you.

    Kim
  • smokeyjoe
    smokeyjoe Member Posts: 1,425 Member

    Great
    So good to hear from you again and with such wonderful news to share with us. You must be going to UofM that is an awesome hospital. So happy for you.

    Kim

    Congratulations!!!
    Congratulations!!! Wonderful news :)
  • lisa42
    lisa42 Member Posts: 3,625 Member
    great news
    Hi Leslie,

    Glad to hear your great news!! Keep it up & ENJOY life!!!

    Hugs,
    Lisa
  • dorookie
    dorookie Member Posts: 1,731 Member
    great news
    I cant wait to meet you in CHI Town....only a few weeks away....

    HUGS
    Beth
  • lesvanb
    lesvanb Member Posts: 905
    Thanks you all
    I can't express enough thanks about how much it means to me to have you all a part of my support team. You guys ROCK!

    love, Leslie
  • herdizziness
    herdizziness Member Posts: 3,624 Member
    Leslie
    What a wonderful post, so glad you are doing so well and enjoying life so much.
    Winter Marie