Radiation burns

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Tkitty
Tkitty Member Posts: 56
I have had 33 radiation treatments so far. Was going to get my last 6 booster treatments when the skin under my arm started peeling off. The rad oncologist halted treatments for a week so I can heal up before the last 6. Has anybody else burned badly from radiation treatments? I am very fair skinned and I was told that is wasn't uncommon for fair skinned people to burn like this. I am trying to keep the area dry but keep the skin supple and not get an infection there. But I only have a few days left before treatment starts up again and I wonder if it will heal up enough. Any advice?
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  • disneyfan2008
    disneyfan2008 Member Posts: 6,583 Member
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    I have no advice..I HAD no
    I have no advice..I HAD no burning, dry or any irration....I wish you the best I HOPE YOU feel better soon.
    Denise
  • butterflylvr
    butterflylvr Member Posts: 944
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    I have no advice..I HAD no
    I have no advice..I HAD no burning, dry or any irration....I wish you the best I HOPE YOU feel better soon.
    Denise

    I too burned pretty good,
    I too burned pretty good, but we didn't have to halt treatments. I only had 28 regular treatments and 5 boosts, so I did 33 total. I can't imagine what I would have looked like had I went another week. YIKES....

    All I can recommend is keep using your creams the doctor gave you. Cornstarch works great to remove moisture, but if you are wearing creams it's one goopy gob. I didn't think I would ever heal but within two weeks of ending my treatments I started healing really quick. Once radiation stops... the healing is fast. When my rads were done my doctor prescribed me a cream called Silver Sulfadiazine. That was some wonderful stuff... maybe ask your doctor about it if your burned pretty good. But you can't use it until after radiation because of the metal content.

    Hugs,
    Lorrie
  • camul
    camul Member Posts: 2,537
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    It took a while for mine to
    It took a while for mine to heal, like 2 weeks, but it was on my bum, and burned and cracked in the crack, so it was a little harder as it didn't see a whole lot of air. But then had it again about 8 weeks later, and it didn't burn at all!

    Wishing you the best,
    Carol
  • Rague
    Rague Member Posts: 3,653 Member
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    I too burned pretty good,
    I too burned pretty good, but we didn't have to halt treatments. I only had 28 regular treatments and 5 boosts, so I did 33 total. I can't imagine what I would have looked like had I went another week. YIKES....

    All I can recommend is keep using your creams the doctor gave you. Cornstarch works great to remove moisture, but if you are wearing creams it's one goopy gob. I didn't think I would ever heal but within two weeks of ending my treatments I started healing really quick. Once radiation stops... the healing is fast. When my rads were done my doctor prescribed me a cream called Silver Sulfadiazine. That was some wonderful stuff... maybe ask your doctor about it if your burned pretty good. But you can't use it until after radiation because of the metal content.

    Hugs,
    Lorrie

    The healing may be "fast" -
    but it may not be. According to my Rads Dr 'It' keeps on 'cooking' for a while. Definately in my case. I only had a minor sunburn with the last TX but the next day the entire radiated area was 'open' and continued to get worse for weeks. Sulfadene/Silvadene is great for many but not all - IF you are allergic to Sulfa drugs it cannot be used. I was about to be sent to a burn unit but finally Domebro soaks worked. Probably about 1/2 the burned area healed with no scaring, 1/4 minor and 1/4 "good" scaring.

    WE are all different!

    Susan
  • grams2jc
    grams2jc Member Posts: 756
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    OK, I was the "bad rad girl"
    I burned and peeled and my RO called a halt. 1st 1 treatment day and a weekend and then an entire week. It made my already bad raditude even worse. I finally got the script for the Sulfadene cream and it really did help. I also spent at least 30 minutes each a.m. and p.m. with nothing touching my skin but the breeze from a fan, as instructed by my RO. I also did not wear a bra or my prosthesis during that time, (nothing like a lop-sided woman) which made the wardrobe challenging. I was given cold packs, not frozen just cold, to use...I don't remember what they were called but looked like a thin round gel pack that you removed when it got warm, 2 times daily.

    It was very frustrating to be so close to done and have to wait to finish, but I made it and you will too. All I could think was that I wouldn't be a rad grad, I couldn't stand to wait to be finished, I didn't want it to go on forever, I didn't want another calender page screwed up by treatment...and on and on and on. I have been done since 7/8/11 8 days later than planned but DONE.

    If you haven't healed they may make you wait a little longer, or they may start again and stop again before the course is done. Hang in there, if I could do it with my crappy raditude you can too, it just takes us "fair ladies" a bit longer.

    Jennifer
  • Tux
    Tux Member Posts: 544
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    rad burns
    I had pretty bad burns, but made it through (just barely) without having to stop for a while. My nurse told me to get "Domeboro soaks" at the drugstore (no prescription needed) and I used those 3 times a day (morn., after afternoon rads, & at bedtime). I continued to work full time. Ask your nurse--the improvement was immediate! I used birdseye diaper fabric for the soaks that I got at fabric store. I also lined my bra (cotton-from Just My Size) with flannel squares from the fabric store. I am rather "generous" and I was a teacher, so I had to wear a bra every day. Hope you can get some relief!
  • Tkitty
    Tkitty Member Posts: 56
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    Tux said:

    rad burns
    I had pretty bad burns, but made it through (just barely) without having to stop for a while. My nurse told me to get "Domeboro soaks" at the drugstore (no prescription needed) and I used those 3 times a day (morn., after afternoon rads, & at bedtime). I continued to work full time. Ask your nurse--the improvement was immediate! I used birdseye diaper fabric for the soaks that I got at fabric store. I also lined my bra (cotton-from Just My Size) with flannel squares from the fabric store. I am rather "generous" and I was a teacher, so I had to wear a bra every day. Hope you can get some relief!

    Radiation burns
    Thank you for the advice. I'm trying to keep positive about this and keep a sense of humor, but sometimes I falter. I am sooooo ready to be done with this part. It's been a long 8 months.
  • Kylez
    Kylez Member Posts: 3,761 Member
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    grams2jc said:

    OK, I was the "bad rad girl"
    I burned and peeled and my RO called a halt. 1st 1 treatment day and a weekend and then an entire week. It made my already bad raditude even worse. I finally got the script for the Sulfadene cream and it really did help. I also spent at least 30 minutes each a.m. and p.m. with nothing touching my skin but the breeze from a fan, as instructed by my RO. I also did not wear a bra or my prosthesis during that time, (nothing like a lop-sided woman) which made the wardrobe challenging. I was given cold packs, not frozen just cold, to use...I don't remember what they were called but looked like a thin round gel pack that you removed when it got warm, 2 times daily.

    It was very frustrating to be so close to done and have to wait to finish, but I made it and you will too. All I could think was that I wouldn't be a rad grad, I couldn't stand to wait to be finished, I didn't want it to go on forever, I didn't want another calender page screwed up by treatment...and on and on and on. I have been done since 7/8/11 8 days later than planned but DONE.

    If you haven't healed they may make you wait a little longer, or they may start again and stop again before the course is done. Hang in there, if I could do it with my crappy raditude you can too, it just takes us "fair ladies" a bit longer.

    Jennifer

    I never burnt, but, I know
    I never burnt, but, I know some that did. They also were stopped for awhile until they healed somewhat. For me, once I was done with rads, my skin healed up really quick and looked great!


    I hope that your burns get a lot better and you can finish. I will be waiting to celebrate your graduation with you.


    Hugs, Kylez
  • kookaa
    kookaa Member Posts: 27
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    yes
    Yes I also burned. The underarm seemed to be the worst spot. It was the first to burn and the last to peel. It seems that once it started peeling it felt better. I had 33 treatments 6 were boost. I ONLY HAVE 1 MORE TO GO!!!!!! My Dr. said frozen peas and the cream. Frozen peas come in all sizes but the small microwave packs worked perfect for me. Try to keep a very small pillow under your arm ( not the pit)to keep it aired and so it will not rub. Good luck and I hope you feel better soon.
    Tami
  • ginnyl
    ginnyl Member Posts: 38
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    Rague said:

    The healing may be "fast" -
    but it may not be. According to my Rads Dr 'It' keeps on 'cooking' for a while. Definately in my case. I only had a minor sunburn with the last TX but the next day the entire radiated area was 'open' and continued to get worse for weeks. Sulfadene/Silvadene is great for many but not all - IF you are allergic to Sulfa drugs it cannot be used. I was about to be sent to a burn unit but finally Domebro soaks worked. Probably about 1/2 the burned area healed with no scaring, 1/4 minor and 1/4 "good" scaring.

    WE are all different!

    Susan

    healing was slow
    I had 36 rad treatments and verything went south. I took teatment on fri and sat i was so burnt sar morning my skin was peeling and yellow gunk wass coming out, I went to er on mon because it was a holiday and they really didnt do much for me. Got up tue and weny yo rads and was sent straigth to the onocologist which he admitted me emmdiayrly. I was there for 11 days and every antibodic they had they used my temp went to 106 and they put me on a bed of ice Galled the family and ptist on, I then started getting better after 11 days. I have hoeeible scars on my neck chest and left arm. I now have severe lymphdemia. Oh I forgoy thius was a recurrancw od brest but it was under my arm
  • ginnyl
    ginnyl Member Posts: 38
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    Rague said:

    The healing may be "fast" -
    but it may not be. According to my Rads Dr 'It' keeps on 'cooking' for a while. Definately in my case. I only had a minor sunburn with the last TX but the next day the entire radiated area was 'open' and continued to get worse for weeks. Sulfadene/Silvadene is great for many but not all - IF you are allergic to Sulfa drugs it cannot be used. I was about to be sent to a burn unit but finally Domebro soaks worked. Probably about 1/2 the burned area healed with no scaring, 1/4 minor and 1/4 "good" scaring.

    WE are all different!

    Susan

    healing was slow
    I had 36 rad treatments and verything went south. I took teatment on fri and sat i was so burnt sar morning my skin was peeling and yellow gunk wass coming out, I went to er on mon because it was a holiday and they really didnt do much for me. Got up tue and weny yo rads and was sent straigth to the onocologist which he admitted me emmdiayrly. I was there for 11 days and every antibodic they had they used my temp went to 106 and they put me on a bed of ice Galled the family and ptist on, I then started getting better after 11 days. I have hoeeible scars on my neck chest and left arm. I now have severe lymphdemia. Oh I forgoy thius was a recurrancw od brest but it was under my arm
  • ginnyl
    ginnyl Member Posts: 38
    Options
    Rague said:

    The healing may be "fast" -
    but it may not be. According to my Rads Dr 'It' keeps on 'cooking' for a while. Definately in my case. I only had a minor sunburn with the last TX but the next day the entire radiated area was 'open' and continued to get worse for weeks. Sulfadene/Silvadene is great for many but not all - IF you are allergic to Sulfa drugs it cannot be used. I was about to be sent to a burn unit but finally Domebro soaks worked. Probably about 1/2 the burned area healed with no scaring, 1/4 minor and 1/4 "good" scaring.

    WE are all different!

    Susan

    healing was slow
    I had 36 rad treatments and verything went south. I took teatment on fri and sat i was so burnt sar morning my skin was peeling and yellow gunk wass coming out, I went to er on mon because it was a holiday and they really didnt do much for me. Got up tue and weny yo rads and was sent straigth to the onocologist which he admitted me emmdiayrly. I was there for 11 days and every antibodic they had they used my temp went to 106 and they put me on a bed of ice Galled the family and ptist on, I then started getting better after 11 days. I have hoeeible scars on my neck chest and left arm. I now have severe lymphdemia. Oh I forgoy thius was a recurrancw od brest but it was under my arm
  • ginnyl
    ginnyl Member Posts: 38
    Options
    Rague said:

    The healing may be "fast" -
    but it may not be. According to my Rads Dr 'It' keeps on 'cooking' for a while. Definately in my case. I only had a minor sunburn with the last TX but the next day the entire radiated area was 'open' and continued to get worse for weeks. Sulfadene/Silvadene is great for many but not all - IF you are allergic to Sulfa drugs it cannot be used. I was about to be sent to a burn unit but finally Domebro soaks worked. Probably about 1/2 the burned area healed with no scaring, 1/4 minor and 1/4 "good" scaring.

    WE are all different!

    Susan

    healing was slow
    I had 36 rad treatments and verything went south. I took teatment on fri and sat i was so burnt sar morning my skin was peeling and yellow gunk wass coming out, I went to er on mon because it was a holiday and they really didnt do much for me. Got up tue and weny yo rads and was sent straigth to the onocologist which he admitted me emmdiayrly. I was there for 11 days and every antibodic they had they used my temp went to 106 and they put me on a bed of ice Galled the family and ptist on, I then started getting better after 11 days. I have hoeeible scars on my neck chest and left arm. I now have severe lymphdemia. Oh I forgoy thius was a recurrancw od brest but it was under my arm
  • gagee
    gagee Member Posts: 332
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    So happy you are getting a
    So happy you are getting a rest from the rads. I too burned and took a long time to heal. I am very fair skin and light eyes and hair. It took so long but the silver stuff and aloe helped me. I used cornstarch some of the time also. My prayers are with you. Just know it will get better. Just seems like it takes forever. I will say an extra prayer for you.

    Hugs, Diana
  • Kylez
    Kylez Member Posts: 3,761 Member
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    Tkitty said:

    Radiation burns
    Thank you for the advice. I'm trying to keep positive about this and keep a sense of humor, but sometimes I falter. I am sooooo ready to be done with this part. It's been a long 8 months.

    Please do stay positive. I
    Please do stay positive. I know it seems easy to say, but, we have all been thru this and you will get better and heal. You will!


    Hugs, Kylez
  • Alexis F
    Alexis F Member Posts: 3,598
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    Tkitty said:

    Radiation burns
    Thank you for the advice. I'm trying to keep positive about this and keep a sense of humor, but sometimes I falter. I am sooooo ready to be done with this part. It's been a long 8 months.

    How are you doing now
    How are you doing now Tkitty? Better I pray.


    Hugs, Lex
  • Ritzy
    Ritzy Member Posts: 4,381 Member
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    kookaa said:

    yes
    Yes I also burned. The underarm seemed to be the worst spot. It was the first to burn and the last to peel. It seems that once it started peeling it felt better. I had 33 treatments 6 were boost. I ONLY HAVE 1 MORE TO GO!!!!!! My Dr. said frozen peas and the cream. Frozen peas come in all sizes but the small microwave packs worked perfect for me. Try to keep a very small pillow under your arm ( not the pit)to keep it aired and so it will not rub. Good luck and I hope you feel better soon.
    Tami

    I didn't burn from rads but
    I didn't burn from rads but I know I was real close..got really dark red. I used Aquaphor to keep my skin really moist, dove white soap, unscented, and Biafine for any burning that I might get. I know some have burnt badly, but, I don't know what they used.


    Hope you feel better.


    Sue :)
  • Tkitty
    Tkitty Member Posts: 56
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    gagee said:

    So happy you are getting a
    So happy you are getting a rest from the rads. I too burned and took a long time to heal. I am very fair skin and light eyes and hair. It took so long but the silver stuff and aloe helped me. I used cornstarch some of the time also. My prayers are with you. Just know it will get better. Just seems like it takes forever. I will say an extra prayer for you.

    Hugs, Diana

    burns
    Healed in one spot now blistering and peeling in other spots. Radiation halted for a second week. Honestly, I don't know how they would do any treatments with what my poor skin looks like. Putting Silverdine cream on it. It is healing, but looks very yucky.Now it is blistering where I can feel it and it is most uncomfortable, but I try to power thru. Really like having nothing touching the skin, but with children in the house, can't do that while they're up. :0)
  • dbhadra
    dbhadra Member Posts: 344 Member
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    Tkitty said:

    burns
    Healed in one spot now blistering and peeling in other spots. Radiation halted for a second week. Honestly, I don't know how they would do any treatments with what my poor skin looks like. Putting Silverdine cream on it. It is healing, but looks very yucky.Now it is blistering where I can feel it and it is most uncomfortable, but I try to power thru. Really like having nothing touching the skin, but with children in the house, can't do that while they're up. :0)

    sorry that you are going through this
    I have 6 more radiation treatments to go (total of 28) and I'm starting to get pretty red.

    Started with Aquaphor, which gave me a rash, now using Calendula Gel (got it from Whole Foods) which feels SO soothing on the red area. Just got a prescription for sulpha cream today to use for the rest of the time.

    Yes, I've also heard you keep "cooking" for awhile after being done.

    I know how frustrating it can be to feel that you are never getting "done" with treatment...it's been a long nine months for me with chemo, surgery and now radiation and sounds like it's been like that for you too.

    Telling myself "This too shall pass" - helps me to hang in there.

    Best,
    Laura Jean
  • RE
    RE Member Posts: 4,591 Member
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    Back when I had radiation if
    Back when I had radiation if the burn was bad enough they would give me Radia Care Gel sheets which were quite soothing. They stay in the fridge and when applied they are cool which feels great. They are expensive, they are sold on Amazon here is a link.

    http://www.amazon.com/Carrington-CA101052-Radiacare-Inch-Sheets/dp/B001SINCG2/ref=sr_1_1?ie=UTF8&qi[phone number redacted]63&sr=8-1 Hope this helps.

    Another thing that you can do while having radiation is to lightly dust the radiated area with corn starch (yes the stuff in your kitchen.) I was instructed to made a corn starch dust ball of sorts using cheese cloth or a stocking (sock) tying off the end. This really worked well as it made it easy to apply lightly. The cornstarch helps to keep the radiated area from chafing.

    I also used sween creme and aloe both of which worked well.