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endometrial stromal sarcoma
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Sep 03, 2011 - 9:42 pm
I had a 2cm endometrial stromal sarcoma. Almost 4 years ago after years of chronic pelvic pain due to all types of issues. Finally found a doctor who agreed to remove my uterus. Well its a good thing I found him. Pathology then found the cancer. One month later had my right ovary removed. Had my left out many moons ago. No chemo was recommended. I am wondering if any one has had a this type of cancer. Thank you for reading |
Joined: Nov 2011
Hi Jackie,
I have also been diagnosed with endometrial stromal sarcoma. I had a total abdominal hysterectomy three weeks ago and soon with begin taking an aromatase inhibitor. I understand that this diagnosis is rare. There is little information about treatment. What information I have read is very conflicting regarding treatment and survival rate.
I wish you all the best and will share any information that I know.
linda888
Joined: Jan 2012
Hi Jackie and Linda:
I too was diagnosed with ESS and had been searching for information about our disease. This message board is wonderful for support but I wanted to suggest another site to join that may give you some other information you are seeking. It's a yahoo group that is dedicated to ESS. There are about 70 members and many are active. Here is the info:
http://health.groups.yahoo.com/group/Endometrialstromalsarcoma/
Good healing to you!
Julia