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No surgery

Glenna M's picture
Glenna M
Posts: 1580
Joined: May 2009

After a couple of months of testing, scans and physical therapy my surgeon and oncologist decided yesterday that it is too risky to do any type of surgery. I have an appointment with my onco on Thursday to discuss his choice of treatment plans and then I meet with the rad onc next Thursday to get his plan of action. I'm disappointed because I wanted them to take out as much of the larger tumor in my right lung but since they couldn't get it all and I would still need chemo I'm okay with skipping the surgery. They won't even do a biopsy right now because even taking a small amount for the biopsy is risky, I'm already on oxygen 24/7 and they are afraid that it would make it even harder for me to breath.

Of course all of this leaves me with a million questions for my onco Thursday. Like how do they determine what type, stage, etc without a biopsy. My guess is they are going under the assumption that it is the same cancer (NSCLC) returned in my left lung and spread to my right lung.

I will be spending the next couple of days writing down all the questions I have and eating plus continuing with my physical therapy. I need to pack on a few more pounds before treatment starts, I'm still 7 pounds shy of what I weighed when I was first diagnosed two years ago.

Surprisingly I am still doing okay with all of this, I'm remaining calm and not thinking the worst yet. I've already got my big girl panties on and am lacing up my azz kicking boots now so I can kick cancer's azz again!!

Stay well everyone,
Glenna

lekkerone
Posts: 199
Joined: Jan 2011

With your amazing attitude Glenna, that cancer doesn't stand a chance of surviving in your body. All of that climbing of hills will make whatever treatment they throw at you easier as now you are ready!! Rememembe always that you have a team here that is watching your back!! Love, Diane

z's picture
z
Posts: 1266
Joined: May 2009

I want the tx plan you get to disolve the tumors. Maybe in the future could you get like that cyberknife? Or nanoknife, nanoknife is still very new. Or spheres rfa I think. Maybe after the tumors shrink you can get them zapped out. I wish you only the best. Lori

Glenna M's picture
Glenna M
Posts: 1580
Joined: May 2009

I'm hoping you are right and the chemo and radiation will shrink the tumors enough that they can possibly do some other type of procedure to get rid of it completely. The tumor in my left lung is not that large but the one in my right lung was 2 inches and it grew even more in between my last two scans.

Whatever the treatment plan is I know I will do well.

Stay well,
Glenna

Glenna M's picture
Glenna M
Posts: 1580
Joined: May 2009

Thank you Diane, I remember your saying that you would always be there if I needed help climbing that hill. I think I'll make the summit but want to have you and all my friends at the top to celebrate with me when I beat this again!!

It gives me comfort and strength knowing I have you all cheering me on!!

Love you all,
Glenna

lekkerone
Posts: 199
Joined: Jan 2011

See, I do know how to spell it. We'll be waiting Glenna with a large glass of whatever you like and huge smiles!!

Dan620
Posts: 219
Joined: Dec 2009

Glenna, I am so sorry to hear you have to fight this devil again, but remember there are many on this site that have beaten it a second and third time and with your postive attitude you will too! .... Thinking of you with many prayers....... Dan

soccerfreaks's picture
soccerfreaks
Posts: 2801
Joined: Sep 2006

So sorry to hear of this development, Glenna, but amazed by your awesome spirit and calm presence! You are a great example to all.

z is right: beat this stuff back and then look for ways to get rid of it.

Take care, my friend,

Joe

Glenna M's picture
Glenna M
Posts: 1580
Joined: May 2009

Yeah, it sucks but what are ya gonna do??? As you always say, "it is what it is" and I've finally learned that nothing I say or do is going to change this. Now all I can do is follow my doctor's advice and fight.

I've always loved a good fight and I intend to win this one. The last round of treatments bought me 2 years so now I'm going back to fight for as many more years as I can get. I've got too many people to live for in my life and I won't let them down.

Thanks for your kind words my dear friend.
Glenna

ann m
Posts: 30
Joined: Jul 2011

I love your attitude! The treatments and attitude is what gave you the 2 years and you have many more to come!

Glenna M's picture
Glenna M
Posts: 1580
Joined: May 2009

Thank you, I think my attitude and strength are even better this time as I've already been through this once. Hoping this time it will buy me at least 5 years :) Typical response, right??? Give me two years and now I want five...LOL

Take care.

Hondo's picture
Hondo
Posts: 5881
Joined: Apr 2009

Take control and run with the flow there is nothing stopping you, hit it as hard as you can (I like your azz word). You have always been strong and full of faith, so keep your focus on your game plan and you know what the rest of us will be doing for you.

Hondo

Glenna M's picture
Glenna M
Posts: 1580
Joined: May 2009

Thank you, I know I can always count on you for the prayers and they are very much appreciated.

Glenna

grannylove
Posts: 183
Joined: Apr 2011

So sorry Glenna, I know you were working really hard to be prepared for surgery. But all your effort is not in vain. Your lungs are stronger and will aid you in your new tx plan. You zigged and the cancer zagged! I admire your strength and attitude Glenna, you are going to win this fight, for sure. Heard about cyberknife and hopefully that could be an option for you in the distant future. Stay strong and when you need to lean, we will be here to lift you up. As always Glenna, you are on my prayer card. Keep us posted on how we may support you. A great big HUG coming your way.
Cheryl

Glenna M's picture
Glenna M
Posts: 1580
Joined: May 2009

Thank you for the encouragement, I'm a little disappointed but I am sure they know what they are doing. I have complete trust in my doctors. I plan on continuing my walks and exercises and trying to gain weight, I figure this will only help me during treatment.

It means the world to me to know that I have so many wonderful people here who will help me through this. Thank you for the hug and the prayers.

Glenna

hope0310's picture
hope0310
Posts: 324
Joined: May 2010

Hi Glenna - I have not been around in a while and am sorry to see that you are once again dealing with this.

Thank goodness you found your big girl panties and your azz kickin' boots!! You can do this!!

Positive T&P coming your way!!

~elysia~

Glenna M's picture
Glenna M
Posts: 1580
Joined: May 2009

Thank you for the thoughts and prayers!! Still wearing my big girl panties and azz kickin' boots :) Gonna do some serious business with them boots...LOL.

It's so nice to see your smiling face again, hope you are well!!

Glenna

mamacita5's picture
mamacita5
Posts: 254
Joined: May 2010

Keep on truckin' Glenna. I take so much comfort from your positive attitude.

granny maggie
Posts: 15
Joined: Jul 2011

Jut st got out of hospital because my labs for chemo were so low but doing okay had to postpone chemo for a week. As far as staging our cancer they just call mine reocurring cancer as it went from the left lung to the right and it's the same type but I had the cyberknife radiation as I can't have anym ore surgery. Just keep those panties and boots laced and go in fighting girl. Thinking about you take care.

granny maggie
Posts: 15
Joined: Jul 2011

Jut st got out of hospital because my labs for chemo were so low but doing okay had to postpone chemo for a week. As far as staging our cancer they just call mine reocurring cancer as it went from the left lung to the right and it's the same type but I had the cyberknife radiation as I can't have anym ore surgery. Just keep those panties and boots laced and go in fighting girl. Thinking about you take care.

stayingcalm's picture
stayingcalm
Posts: 656
Joined: Feb 2007

When I was told I couldn't have surgery because my lungs were in bad shape, I was happy! I was afraid to have surgery and maybe lose more lung function.

Have you had the tests for the mutations - EGFR and ALK at least? If you had a biopsy and they think this is the same cancer, then they may have tissue left over to test. I feel for you, Glenna! I'm hoping that you can beat this thing!

I'm still here after 6 years, and the only thing the doc can find wrong is my emphysema getting worse, no cancer. No cancer! If I can say that, then I have no doubt that you will be able to also before too long!

♥ Love, Deb

z's picture
z
Posts: 1266
Joined: May 2009

Deb, I am so happy to see you post. I am so glad that you have no cancer. One day will have a cure for emphysema. I wish you well. Lori

Glenna M's picture
Glenna M
Posts: 1580
Joined: May 2009

I saw my oncologogist yesterday and I will be starting carboplatin and taxol on the 22nd of September. They are going under the assumption that it is local recurrent in my left lung that spread to my right lung. They won't even do a biopsy because it is just too risky, all my doctors and the surgeon think that any type of surgery will put me at serious risk of leaks and other complications. They would all love a biopsy so they could tell exactly what it is but I'm in agreement with them...NO biopsy.

They are doing chemo only, once a week every 3 weeks and will do another scan after the 3rd session to see if there is any change. They will not be doing any radiation, I can't have any more to my left lung and they don't feel radiation and chemo is the route to go right now so I am getting the chemo first. He did say that if these drugs didn't do the trick there were other combinations they could try.

I am on antibiotics right now for 10 days because of the slight possibility I have some type of infection, I've coughed up some slightly green phlegm a couple of times. He doesn't want to start chemo if there is a chance of any active infection, even sinus, and they don't give you chemo drugs if you are on antibiotics.

He told me what I already knew, can't cure it but can treat it and hopefully buy me more time. I was in remission for 2 years and hope this time will be even longer. My emphysema is really bad, that is the biggest reason I can't have a biopsy, they are afraid of leaks but also of causing me to lose more lung function. I'm already on oxygen 24/7.

I'm not giving up the fight, I plan on kicking it's azz again!!!

Love you girl <3

lekkerone
Posts: 199
Joined: Jan 2011

I just posted to you but I think it's airborne. It sounds as though you are happy with the doctors' decisions so that is good. "Happy" being a relative term in this case. Yes, you can beat it's azz again. I believe that. Keep on trucking up that hill so you are in the best shape possible to face whatever comes.

Hondo's picture
Hondo
Posts: 5881
Joined: Apr 2009

Keep us up to date on how you are doing.

You are always in my thoughts
Hondo

NayPaul's picture
NayPaul
Posts: 231
Joined: Oct 2010

The test for the alk mutation can yield a false negative. My wife just retested positive as did a couple of people at our local facility that originally tested neg.

Glenna... thanks again for being such an inspiration!

z's picture
z
Posts: 1266
Joined: May 2009

I am glad you have a plan in place. I hope your infections will clear up quickly, and the tx plan will put you back into remission, as it did before. I wish you well. Lori

Glenna M's picture
Glenna M
Posts: 1580
Joined: May 2009

First I would like to thank you all for your words of encouragement, they help keep me focused and strong.

Diane, right now I am just happy to know I will be receiving any type of treatment. This sitting around doing nothing makes me worry about how much these tumors are growing while we wait. I'll be spending the next 3 and a half weeks trying to gain weight and continue with my walking.

NayPaul, you and your wife are the true inspirations!!!! She has been through so much and I pray that I can handle everything that is thrown at me as well as your wife has. She is truly amazing!!! The won't do a biopsy, too risky, so I won't be able to be tested for any of the mutations. My onco would love to do a biopsy so he would know definitely if the was a recurrence of the lung cancer or mets of the laryngeal cancer but he says it's too risky.

Z...Thank you for you well wishes. I'm on Augmentin (1750 mg) for 3 weeks as a precaution in case there is an infection anywhere, we're not even sure there is but my onc would rather not take any chances.

Thank you all...hope everyone is doing well!!!
Glenna

z's picture
z
Posts: 1266
Joined: May 2009

Are you a canidate for the new pill that came out, that is helping stage 4 lung cancer survivors? I know Deb posted that even though she has no alk mutation her dr said she would probably do well on it. If she can why can't you.
Lori

mamacita5's picture
mamacita5
Posts: 254
Joined: May 2010

Glenna have you been tested for the mutation?? Keepin' you in my prayers girl. Dang, I posted this, then noticed you can't be tested for the mutation. Maybe they will give it to you anyway.

Glenna M's picture
Glenna M
Posts: 1580
Joined: May 2009

Saw the pulmonologist again yesterday because I have been running a temp of 100.7 and my legs, feet, ankles and calves have been swollen and painful. He did chest x-rays to check for pneumonia and said that was not the problem. They were concerned about "right side heart failure" but he said my heart sounded good...so now we still have no idea why all the swelling and slightly elevated temps. Good news is that last night my temp only went up to 99.4 but the swelling is still the same.

Pulmonologist put me on 2 different types of inhalers, a diuretic and potassium chloride pills but he has no clue why I would start having these problems after being on augmentin for 6 days. He said these pills are pretty strong and should have cleared up any infection by now. So now I'm on so many pills and inhalers that I've had to make myself a chart to keep track of what I take when and which ones have to be taken with food, etc. I guess being sick has become my full time job now...LOL.

In 21 days I should be starting chemo and I'll be damned if I'll let this bump in the road stop me!!! My oncologist did say that if the carboplatin and taxol didn't work there were other drugs they could try so I will be sure to ask him about the Crizotinib. As I said, they can't test me for any mutations but maybe they will give it to me anyways.

Thank you all for your concern, support and prayers!!

Glenna

grannylove
Posts: 183
Joined: Apr 2011

Glenna, Sorry you are having such a bad time. Geeesh! I too would think Augmentin would take care of any infection you might have had. Have you ever taken it before? I am sure your pulmonary doc will figure this out so that your tx can go as planned. Keep them boots on and keep that positive attitude! You are used to trudging uphill so like you said, this is just another hurdle. I am praying for you and sending you healing thoughts. Stay strong in mind, spirit and body. Cheryl

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