Healthy ideas for those finished with treatments for CRC

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scouty
scouty Member Posts: 1,965 Member
edited August 2011 in Colorectal Cancer #1
Gail (plh4gail) asked on another thread what kinds of things she should/could be doing now that her western treatments (surgeries, chemo, radiation) are finished. I thought it was a great question and deserved its’ own thread.

My situation was dire so many will look upon my list as extreme but I just can’t argue with success and the more I learn the more I tweak. Given that I am in non-surgical remission, I’m a little afraid to change too much of what has worked for me cuz I am just not sure I can beat the beast a second time.

I hope others will share their thoughts, strategies, and experiences especially those that have been NED for several years.

Gail, recurrences for colorectal/anal cancers usually happen within 2 years of finishing treatments so I think you need to be extra careful now! I took a 2 pronged approach; boosting my immune system while minimizing my exposure to toxins that would stress my body. My recommendations are (in no particular order, if you want to know why, just ask me):

1) Only eat meat that is grass fed (not grain fed)that has not been shot up with steroids or hormones and are not fed antibiotics. I would only eat beef once a week but you can eat elk, bison, deer, and other non-shot up meat.

2) Only eat poultry that is free range and fed without antibiotics, hormones, or by-products.

3) Only eat dairy from “healthy cows”. Goat cheeses and almond mild are great choices.

4) Give your liver a break so it can work on purifying your blood and feeding your cells with healthy goodies.

a. Minimize added sugars as much as possible. Read your labels, if they have high fructose corn syrup, corn syrup or any other sugars on them look for an alternative product. Yogurt in particular here!!! Greek is the best, Activia the one that is supposed to help our gut is loaded with added sugars. Remember low fat does not mean low sugar!!! They lie just to make money. DO NOT believe TV commercials.
b. Juice fresh veggies and some fruits
c. Drink smoothies, mostly veggie but some fruit.
d. Try not to eat fruit or any kind of sugar on an empty stomach or before bedtime.
e. Print out foods on the glycemic index and focus on the ones below 50 expecially grains (which have the same effect as sugar to your body).

5) Exercise as you can but listen to your body and don’t overdo it. It is healing now so let it and don’t try to do too much, too soon. It could take 2 years or more for it to heal.

6) If you are overweight and especially if you are obese, LOSE WEIGHT!!!! There is a reason obese and type 2 diabetics have a 40-50% higher risk of cancers in organs surrounded by fat (colorectal, anal, breast, prostate and pancreatic are the ones I remember off the top of my head).

7) Memorize your blood test results, especially ANC (absolute neutral count). That is your body’s ability to fight infections, including cancer. Work to get it high and keep it there with loads of good veggies.

8) Find time for just you, total quiet time. You have kids so try to get 10-15 minutes alone with no TV, music or anything and get everything out of your mind. I had a really hard time with this one until I learned to lay on my back on the floor in total silence, arms out till I was comfortable and focused on inhaling and exhaling. Fill up your lungs and tummy and then let it out, slow and easy and before you know it your mind is totally blank and stress free.

9) Find a spiritual outlet that you are comfortable with. Some find it at their church, others in the outdoors; the important thing is to believe in something bigger and more powerful then you are.

10) Lastly and most importantly (this has taken me years to comprehend) but instead of thinking “cancer is the best thing that happened to you” believe that “you are the best thing to happen to you”!! The key is to believe in yourself, believe in others, just BELIEVE in something.

Enuff for now Gail and again great question!

Lisa P.
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Comments

  • 2bhealed
    2bhealed Member Posts: 2,064 Member
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    SCOUTY YOU ROCK!
    Girlfriend, excellent info. Thank you for taking the time to post this. I think I'll print it off. I learn something new everyday and today's new item in the ANC. Never heard of it and now I want to find out what mine is.

    Can't wait for Chi-town!!!

    peace, emily
  • plh4gail
    plh4gail Member Posts: 1,238 Member
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    :):)
    Ok first of all I just wrote and then lost a whole thank you with the whole shabang and then my computer lost it all. Why does that happen? Well I just want you and Emily to know that I so appreciate the information you share! I know that I don't want the last year I put into my treatment to end on that note...the end of my treatment. I love to be able to have choices and find what works for me. I'm looking forward to a healthy future! ...So thank you to everyone who encourages this and me! I hope I can be the same inspiration to someone also.

    peacelove&happiness,gail
  • scouty
    scouty Member Posts: 1,965 Member
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    Forgot about buying fruits and veggies
    My guidelines for buying them are (in order of preference):

    1) local organic
    2) local

    3) storebought:

    Remember that organic will always have more nutritional values than conventional if you can afford it. But if not, refer to the most contaminated list below for which to buy organic and the least contaminated for those that aren't as important.

    If I can't get fresh organic of the most contaminated produce I will buy frozen organic. Locall grown always trumps organic since it will be fresher and have more nutrients!

    The most contaminated fruits and veggies are: apples, pears, peaches, nectarines, strawberries, cherries, raspberries, grapes, peppers, celery, green beans, potatoes, spinach, lettuce, cucumbers, squash, and pumpkin.

    The least contaminated are: bananas, oranges, tangerines, pineapple, grapefruit, melons, watermelons, plums, kiwi, blueberries, mangoes, papaya, broccoli, cauliflower, cabbage, mushrooms, asparagus, tomatoes, onions, eggplant, peas, radishes, avocados.
  • scouty
    scouty Member Posts: 1,965 Member
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    plh4gail said:

    :):)
    Ok first of all I just wrote and then lost a whole thank you with the whole shabang and then my computer lost it all. Why does that happen? Well I just want you and Emily to know that I so appreciate the information you share! I know that I don't want the last year I put into my treatment to end on that note...the end of my treatment. I love to be able to have choices and find what works for me. I'm looking forward to a healthy future! ...So thank you to everyone who encourages this and me! I hope I can be the same inspiration to someone also.

    peacelove&happiness,gail

    Going slow
    Your welcome Gail and you nailed it in your PM when you talked about doing a little at a time. My experience has certainly been an evolutionary one, some changes a week/month until I got into a groove. Then I would add some more. As a nurse you will be amazed how much is out there for you to learn once you get started. Started is the hardest part!

    My first trip to a health food store was so intimidating. I walked around looking at labels and products for 2 hours before only buying an Oprah magazine! The second trip was better as I bought fresh produce and some canned goods.

    I think it is similiar to dieting where if you totally deprive yourself, you will break your diet and indulge before too long. I got rid of white flour, white sugar, and all products with it in them, my diet cokes (nasty withdrawal!!!), meats, poultry, eggs and dairy the first month. But remember, I was desperate since I stopped chemo way before my docs wanted me too.

    Let me know if you have any questions and I'm proud of you for listening to yourself!
  • lisa42
    lisa42 Member Posts: 3,625 Member
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    scouty said:

    Forgot about buying fruits and veggies
    My guidelines for buying them are (in order of preference):

    1) local organic
    2) local

    3) storebought:

    Remember that organic will always have more nutritional values than conventional if you can afford it. But if not, refer to the most contaminated list below for which to buy organic and the least contaminated for those that aren't as important.

    If I can't get fresh organic of the most contaminated produce I will buy frozen organic. Locall grown always trumps organic since it will be fresher and have more nutrients!

    The most contaminated fruits and veggies are: apples, pears, peaches, nectarines, strawberries, cherries, raspberries, grapes, peppers, celery, green beans, potatoes, spinach, lettuce, cucumbers, squash, and pumpkin.

    The least contaminated are: bananas, oranges, tangerines, pineapple, grapefruit, melons, watermelons, plums, kiwi, blueberries, mangoes, papaya, broccoli, cauliflower, cabbage, mushrooms, asparagus, tomatoes, onions, eggplant, peas, radishes, avocados.

    thanks for the info!
    Hi "Other Lisa" :),

    Thanks for the info and reminders on which produce is most important to buy organic and which may not be as bad. Organic does get expensive and isn't always readily available. I do try to buy organic as much as possible, but it's helpful to know which fruits and veggies may still be okay nonorganic, if that's all we can find.

    Take care!
    Lisa
  • plh4gail
    plh4gail Member Posts: 1,238 Member
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    scouty said:

    Forgot about buying fruits and veggies
    My guidelines for buying them are (in order of preference):

    1) local organic
    2) local

    3) storebought:

    Remember that organic will always have more nutritional values than conventional if you can afford it. But if not, refer to the most contaminated list below for which to buy organic and the least contaminated for those that aren't as important.

    If I can't get fresh organic of the most contaminated produce I will buy frozen organic. Locall grown always trumps organic since it will be fresher and have more nutrients!

    The most contaminated fruits and veggies are: apples, pears, peaches, nectarines, strawberries, cherries, raspberries, grapes, peppers, celery, green beans, potatoes, spinach, lettuce, cucumbers, squash, and pumpkin.

    The least contaminated are: bananas, oranges, tangerines, pineapple, grapefruit, melons, watermelons, plums, kiwi, blueberries, mangoes, papaya, broccoli, cauliflower, cabbage, mushrooms, asparagus, tomatoes, onions, eggplant, peas, radishes, avocados.

    I got the message too Lisa
    I got the message too Lisa :)and Hi Lisa :) You two are like me and Gail. I have it printed and magnated(?) (lol) on my fridge.

    Thanks :)
  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
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    thanks scouty
    Lovelly post.
    walking, yoga,the gym.
    You know the exercise stuff 53% for us crc.
    So maybe go as fast as you can into health, especially after our surgeries, if your healed well,

    All the supplements from digestion aides, to immune system, to fish oil, to liver supports, to juices, to mood enhances samE, to neuropathy helpers ala eta, of course good juicing, great unprocessed food.
    No alcohol, no coffee, no tea, no drugs, no chocolate.
    Lots of sex, basically its the only fun left after you remove all the social toxins.
    It sounds extreme, I guess it is. For some, for its easy. Going to naturopath seminars, reading, as helped me get discipline .

    Chinese herbal medicine for another 5 years to boost immune system.

    Did I mention walking.

    Get as much help now as you can, anywhere you can get, now the pressure goes from medical treatment to lifestyle.
    Our survival is in our own hands. The help is massage, diet, physiotherapy, meditation, retreats, holidays.

    Re enter the world, re engage with it in betterways.

    Gail made the comment somewhere we did not go through year 1 with crc to have it come back.
    So let's slam the door in crc face really really hard.
    Then lock it, bolt it and through away the key.

    Hugs,
    Pete
  • kristasplace
    kristasplace Member Posts: 957 Member
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    The greatest inspiration
    Lisa P., you are always the person i mention to my doctor, or to anyone who scoffs at what i'm doing to heal myself. I've even had people call me downright irresponsible for rejecting chemo treatments.

    I've been inspired by a lot of people on this board since my inception, but you are my hero! And i mean that literally. I've read of many others beating their cancer through nutrition, but you're the only one with advanced stage IV that i actually know who's beat it that way, and that is very, very, inspiring. I may not have been brave enough to do it myself without your story.

    Thank you so much for posting this, since i've only been cancer-free for a year, i've grown a little complacent, and barely juice anymore. I will start up again tomorrow, and do it at least every other day. i feel better doing it like that anyway.

    Thank you, Scouty, thank you sooooo much!

    Hugs,
    Krista
  • PhillieG
    PhillieG Member Posts: 4,866 Member
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    The is is GREAT Lisa
    But, I question your statement "DO NOT believe TV commercials."
    Do you mean my "Thigh-Master" was a waste of money???
    (you should see my thighs!)
    The next thing you'll tell me is that Politician's Lie.

    Thank you for your time and effort in putting this list together. I'm going to pay more attention to what I ingest and this does make it easier. I do "grow my own" veggies but the season is winding down. I also belong to a local CSA so I TRY to buy from there. It makes good sense to eat what is grown locally and what is in season. I remember that you could never find a peach or a melon in the winter. Now, everything is available 365 days a year and it's sub-par at best. Plus, you don't know what the laws are in Chile as far as pesticides, etc.

    I'll email you later about "that other thing..."
    hugs
    -p
  • toyfox
    toyfox Member Posts: 158 Member
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    Thanks for the post scouty
    My husband just finished his 12th cycle of fulfox. We want to do everything we can
    to prevent it from coming back.
    We just starting juicing thanks to you and Emily.
    His last few blood counts have improved since then.
    My husband exercises at least an hour a day
    We buy organic and avoid processed or fast food.
    We don't use sugar.
    Linda
  • Aud
    Aud Member Posts: 479 Member
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    thank you
    thank you, Lisa, for a wonderful post. I keep meaning to do more for myself in terms of diet and it all seems so overwhelming. What I do know about changing habits is to do at least one small thing to get started but I can't even seem to do that. I do, however, enjoy exercising.
    Even so, I find your words inspiring and encouraging and I have saved it to refer to it in the future.
    thanks again,
    Aud
  • have2believe
    have2believe Member Posts: 134
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    love # 10
    Thank you Lisa for all your suggestions!! I just wanted to add that I love your #10 because personally, I HATE it when people say “cancer is the best thing that’s happened to me” because usually they are the lucky ones and have survived. I just cannot give credit to cancer for anything.

    We also juice regularly—may I ask, what juicer do you use? A masticating type or a centrifuge?
  • Sundanceh
    Sundanceh Member Posts: 4,392 Member
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    love # 10
    Thank you Lisa for all your suggestions!! I just wanted to add that I love your #10 because personally, I HATE it when people say “cancer is the best thing that’s happened to me” because usually they are the lucky ones and have survived. I just cannot give credit to cancer for anything.

    We also juice regularly—may I ask, what juicer do you use? A masticating type or a centrifuge?

    Elder Lisa
    Hi Lisa

    Maybe we can chat about #10 in Chicago. It's been rattling around in my head for about 2 days now. I'm exploring this topic in more depth in about 2 more chapters.


    -Craig
  • coolvdub
    coolvdub Member Posts: 408 Member
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    Sundanceh said:

    Elder Lisa
    Hi Lisa

    Maybe we can chat about #10 in Chicago. It's been rattling around in my head for about 2 days now. I'm exploring this topic in more depth in about 2 more chapters.


    -Craig

    Been a while
    Hi all,

    I agree 100% with what Lisa posted. Number 10 is a little different for me. Here is why. If I hadn't got Cancer, I never would have changed my lifestyle. So for me it was a chance to start learning and finding out the importance of eating properly and exercising regularly.

    I have learned the important lessons of eating organically and the inter-relation of what the animals that I eat and what they eat have. My take on it is this,Cows were meant to eat grass and roam freely in lush pastures. If they are fed GMO(geneticaly modified organisms) then I am eating that also. I choose not to.

    Can I prove this has made me healthier, probably not. But since eating organically, my overall well being seems to be improving, my sense of taste and smell have improved beyond belief and so far the Cancer has not come back. Could it, Sure. But I'm betting my life that mother nature surely has and is a better plan than the man made Franken Foods that are so prevelant on most store shelves.

    The one thing I can prove. My diabetes is now under control. I don't have to test my blood sugar daily or take meds for it any more. My A1C is at a steady 6.1 and my primary Doc. is happy. He says as long as I keep it at 7 or below, that diet and exercise is all I need. So far he is 100% correct.

    I hope that everybody is doing well.

    Don
  • scouty
    scouty Member Posts: 1,965 Member
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    The greatest inspiration
    Lisa P., you are always the person i mention to my doctor, or to anyone who scoffs at what i'm doing to heal myself. I've even had people call me downright irresponsible for rejecting chemo treatments.

    I've been inspired by a lot of people on this board since my inception, but you are my hero! And i mean that literally. I've read of many others beating their cancer through nutrition, but you're the only one with advanced stage IV that i actually know who's beat it that way, and that is very, very, inspiring. I may not have been brave enough to do it myself without your story.

    Thank you so much for posting this, since i've only been cancer-free for a year, i've grown a little complacent, and barely juice anymore. I will start up again tomorrow, and do it at least every other day. i feel better doing it like that anyway.

    Thank you, Scouty, thank you sooooo much!

    Hugs,
    Krista

    I call it paying it forward!
    I was fortunate to have someone here who opened my eyes so I learned as much as I could and still am.

    And you need to look in the mirror and thank yourself! But cancer is a relentless disease and you can't be complacent too long especially so soon and you know that.

    Keep up the good work and remember to pay it forward!

    Lisa P.
  • scouty
    scouty Member Posts: 1,965 Member
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    Sundanceh said:

    Elder Lisa
    Hi Lisa

    Maybe we can chat about #10 in Chicago. It's been rattling around in my head for about 2 days now. I'm exploring this topic in more depth in about 2 more chapters.


    -Craig

    Can I get a hug first Craig!
    Absolutely we can talk about this in Chi-town. I will tell you that getting to #10 has taken me years and lots of contemplation. I was very angry and scared when I stopped chemo but it all drove me to do what appears to be the "right things". I never asked the big guy upstairs to cure me or any of that and still don't. All I have ever asked for has been help in making the right decisions and so far we are good there. It has not been easy by any stretch but I would be a fool to complain.

    I've also thought about writing a book and have written quite a bit of stuff down and today it amazes what and how I worded things the first several years. Anger, fear, and frustration do that to you! It wasn't until I got back into running 2 years ago (after a 20 year layoff) that things really started to make sense for and to me.

    I have a sister finishing up her last radiation treatment tomorrow for throat cancer and that has really stirred up loads of thoughts and feelings. She actually told me yesterday that "cancer was the best thing to happen to her" and I got really mad at her. Yes it wakes us up and we may decide to make changes but cancer never does anything good for any of us period! Cancer sucks and always will. Some are lucky to say it was a wake up call, but I've lost way too many friends to the beast to give it any credit for much of anything.

    Craig you are fresh out of treatment and I can't wait to read your book but do me a favor and leave 2 chapters at the end to be completed in a few years. That way I will know you are working on yourself internally. I worry you are not taking care of yourself the best you can right now. I know it is hard but try to make you NUMBER 1 to yourself and let your body heal. Feed it the right foods, etc.

    How's that for being elderly!!!!

    I'm really looking forward to lots of laughs and hugs in 2 months.

    Lisa P.
  • tootsie1
    tootsie1 Member Posts: 5,044 Member
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    Great
    This is awesome advice for all of us!

    *hugs*
    Gail

    P.S. I do still want to get together with you, but I think I better lose some weight before we do! *L*
  • Sundanceh
    Sundanceh Member Posts: 4,392 Member
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    scouty said:

    Can I get a hug first Craig!
    Absolutely we can talk about this in Chi-town. I will tell you that getting to #10 has taken me years and lots of contemplation. I was very angry and scared when I stopped chemo but it all drove me to do what appears to be the "right things". I never asked the big guy upstairs to cure me or any of that and still don't. All I have ever asked for has been help in making the right decisions and so far we are good there. It has not been easy by any stretch but I would be a fool to complain.

    I've also thought about writing a book and have written quite a bit of stuff down and today it amazes what and how I worded things the first several years. Anger, fear, and frustration do that to you! It wasn't until I got back into running 2 years ago (after a 20 year layoff) that things really started to make sense for and to me.

    I have a sister finishing up her last radiation treatment tomorrow for throat cancer and that has really stirred up loads of thoughts and feelings. She actually told me yesterday that "cancer was the best thing to happen to her" and I got really mad at her. Yes it wakes us up and we may decide to make changes but cancer never does anything good for any of us period! Cancer sucks and always will. Some are lucky to say it was a wake up call, but I've lost way too many friends to the beast to give it any credit for much of anything.

    Craig you are fresh out of treatment and I can't wait to read your book but do me a favor and leave 2 chapters at the end to be completed in a few years. That way I will know you are working on yourself internally. I worry you are not taking care of yourself the best you can right now. I know it is hard but try to make you NUMBER 1 to yourself and let your body heal. Feed it the right foods, etc.

    How's that for being elderly!!!!

    I'm really looking forward to lots of laughs and hugs in 2 months.

    Lisa P.

    LP
    Well you sure can get a hug, I'm counting on it:)

    If I don't get hugs, I'm not comin' LOL LOL!

    I'm really looking forward to Oct too! So glad, I lived to see it:)

    -Craig
  • plh4gail
    plh4gail Member Posts: 1,238 Member
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    Sundanceh said:

    LP
    Well you sure can get a hug, I'm counting on it:)

    If I don't get hugs, I'm not comin' LOL LOL!

    I'm really looking forward to Oct too! So glad, I lived to see it:)

    -Craig

    Ok...sooo...I reeellly want
    Ok...sooo...I reeellly want to go in Oktobr to the big thing. How can I get there too? From Cali?

    Oh..and I am on day 3ish of making diet changes and adding in some body movement!! It feels good too :):)

    plh,gail
  • luvmum
    luvmum Member Posts: 457 Member
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    Dear Lisa P
    Thank you so much for your advice! I have a question about sugar here: can my mum eat 'organic brown sugar'? can she eat 'honey'? she doesn't like vegie juice that much and I make her apple celery or apple carrot juice everyday, is that ok?

    I really appreciate your help and your post!
    Best, Dora