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Are there any additional popular discussion groups for kidney cancer in the US?

Posts: 20
Joined: May 2011

Is there any other popular discussion group for kidney cancer we can join?

Posts: 18
Joined: Apr 2009

Try this one, it has a chat room in it. Ive never actually used it. www.kidneycancerkonnection.com

jona187's picture
Posts: 74
Joined: Apr 2011

this is probably the most active

i went to kidneycancer.org and its not as active.

Jamie1.3cm's picture
Posts: 188
Joined: Jan 2011

I know what you mean. This isn't the most user-friendly system, but at least people are here.

jona187's picture
Posts: 74
Joined: Apr 2011

I think this group is the most responsive I have been on and that's why I keep coming back :)

Posts: 67
Joined: Sep 2010

I agree with you one hundred percent. They are also very empathetic and just a great group of people. Unfortunate we all had to meet this way!

Posts: 19
Joined: May 2011

How are things going for your wif?.I'm back to work.I'm been walking on a cement floor for 3 days now.I'm in pain.I hope this is normal .its only been 7 weeks

Peggyz's picture
Posts: 8
Joined: Jun 2011

I am new to this group, and am very grateful to find it. However, I have had tremendous support, emotional and medical/technical through www.ACOR.org, which has a monitored email LIST SERV for kidney cancer. There are many active parties, many with great expertise, which has been a blessing to me.

I would add them to my list of support groups, and with that you can recieve even more education, recommendations, such as you are fnding here.

Posts: 3
Joined: Jul 2011

Go to ACOR.org, click on the kidney cancer link, sign in and you will receive emails daily from people all around the world and their caregivers with discussions on RCC. It is the best thing I have found and the information I have learned on there is absolutely incredible. It is such a blessing!

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