ca125

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bleyed
bleyed Member Posts: 2
in Ovarian Cancer #1
I am aware that a normal ca125 is <35 .... when I was diagnosed in Jan 2011 my initial reading was 5882. Has anyone else had such a high reading?

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  • Tethys41
    Tethys41 Member Posts: 1,382 Member
    #2
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    CA-125
    Mine was 4,600 when I was diagnosed in Aug. 2009. I know a woman who's number was 14,000 at diagnosis, and I've heard of some higher.
  • poopergirl14052
    poopergirl14052 Member Posts: 1,183 Member
    #3
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    Tethys41 said:

    CA-125
    Mine was 4,600 when I was diagnosed in Aug. 2009. I know a woman who's number was 14,000 at diagnosis, and I've heard of some higher.

    mine was very high too
    before surgery I was in the 6000 range now I am 17 after chemo so 3 do go way down..val
  • poopergirl14052
    poopergirl14052 Member Posts: 1,183 Member
    #4
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    Tethys41 said:

    CA-125
    Mine was 4,600 when I was diagnosed in Aug. 2009. I know a woman who's number was 14,000 at diagnosis, and I've heard of some higher.

    mine was very high too
    before surgery I was in the 6000 range now I am 17 after chemo so 3 do go way down..val
  • bleyed
    bleyed Member Posts: 2
    #5
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    I completed my 6 rounds of
    I completed my 6 rounds of taxol/carbo every 21 days which have done wonders with my readings and prior to my last chemo my # was 135. I understand that it is only a "Marker" yet it is "Hope" to me.
  • Hissy_Fitz
    Hissy_Fitz Member Posts: 1,834
    #6
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    bleyed said:

    I completed my 6 rounds of
    I completed my 6 rounds of taxol/carbo every 21 days which have done wonders with my readings and prior to my last chemo my # was 135. I understand that it is only a "Marker" yet it is "Hope" to me.

    Mine was 4,000 at diagnosis,
    Mine was 4,000 at diagnosis, and my nadir (low point) was 4.8. It is presently 13 and I have been NED for over 14 months.

    Carlene
  • stella65
    stella65 Member Posts: 152
    #7
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    Hissy_Fitz said:

    Mine was 4,000 at diagnosis,
    Mine was 4,000 at diagnosis, and my nadir (low point) was 4.8. It is presently 13 and I have been NED for over 14 months.

    Carlene

    Abbreviations
    Hi Carlene,

    Could you please give me some info on abbreviations, I have seen several while looking on the forum that I don't understand NED being one of them, thank you so much X
  • Hissy_Fitz
    Hissy_Fitz Member Posts: 1,834
    #8
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    stella65 said:

    Abbreviations
    Hi Carlene,

    Could you please give me some info on abbreviations, I have seen several while looking on the forum that I don't understand NED being one of them, thank you so much X

    Stella, I apologize for my
    Stella, I apologize for my rudeness. I forget sometimes that there are new people here.

    NED stands for "no evidence of disease". It's a term that originally was used on pathology reports, etc and we have adopted it, and sometimes call it "dancing with NED."

    The other terms I can think of are:
    DFI Disease Free Interval
    DFS Disease Free Survival - time without disease prior to relapse or last follow-up
    OS Overall Survival
    PFS Progression Free Survival
    QOL Quality of Life
    DX Diagnosis
    RBC Red blood cell / red blood count
    WBC White blood count
    CBC Comp0lete blood count
    ACS American Cancer Society
    NOCC National Ovarian Cancer Coalition
    And of course, OVCA, which stands for ovarian cancer.

    Carlene
  • LaundryQueen
    LaundryQueen Member Posts: 676
    #9
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    Hissy_Fitz said:

    Stella, I apologize for my
    Stella, I apologize for my rudeness. I forget sometimes that there are new people here.

    NED stands for "no evidence of disease". It's a term that originally was used on pathology reports, etc and we have adopted it, and sometimes call it "dancing with NED."

    The other terms I can think of are:
    DFI Disease Free Interval
    DFS Disease Free Survival - time without disease prior to relapse or last follow-up
    OS Overall Survival
    PFS Progression Free Survival
    QOL Quality of Life
    DX Diagnosis
    RBC Red blood cell / red blood count
    WBC White blood count
    CBC Comp0lete blood count
    ACS American Cancer Society
    NOCC National Ovarian Cancer Coalition
    And of course, OVCA, which stands for ovarian cancer.

    Carlene

    One more abbreviation
    Here's one more abbreviation: ANC -- absolute neutrophil count
    I had to take a 3 week break from chemo because my ANC was too low. Neutrophils are the "new white blood cells" and reflect how suppressed the bone marrow is (from the platinum chemo). So if you want to impress your oncologist, you could ask "How's my ANC?" but if you do that, then you probably should know what's considered good! Hahahaha!

    LQ
  • kikz
    kikz Member Posts: 1,345 Member
    #10
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    LaundryQueen said:

    One more abbreviation
    Here's one more abbreviation: ANC -- absolute neutrophil count
    I had to take a 3 week break from chemo because my ANC was too low. Neutrophils are the "new white blood cells" and reflect how suppressed the bone marrow is (from the platinum chemo). So if you want to impress your oncologist, you could ask "How's my ANC?" but if you do that, then you probably should know what's considered good! Hahahaha!

    LQ

    My first CA 125
    was 6900 and it escalated to 9000+ before my first chemo. 3200 after first chemo and 1600 before surgery. 13 after surgery then 7, 7, 5 and the most current was 3.

    Karen
  • stella65
    stella65 Member Posts: 152
    #11
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    Hissy_Fitz said:

    Stella, I apologize for my
    Stella, I apologize for my rudeness. I forget sometimes that there are new people here.

    NED stands for "no evidence of disease". It's a term that originally was used on pathology reports, etc and we have adopted it, and sometimes call it "dancing with NED."

    The other terms I can think of are:
    DFI Disease Free Interval
    DFS Disease Free Survival - time without disease prior to relapse or last follow-up
    OS Overall Survival
    PFS Progression Free Survival
    QOL Quality of Life
    DX Diagnosis
    RBC Red blood cell / red blood count
    WBC White blood count
    CBC Comp0lete blood count
    ACS American Cancer Society
    NOCC National Ovarian Cancer Coalition
    And of course, OVCA, which stands for ovarian cancer.

    Carlene

    Thank you
    Thank you Carlene, that is most helpful X
  • kellyh33
    kellyh33 Member Posts: 287
    #12
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    Ca 125
    First you have to remember that most doctors don't focus on the numbers, what is important is the CT scans. Mom's number at diagnosis was 14.301.

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