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forme's picture
forme
Posts: 1158
Joined: Aug 2010

Hi all,

Staying positive , the challenge of the day...

Talked to docs and now we have another plan. I am stopping the newest med, because of the negative effect on my heart. My BP is again becoming unstable and very high, even with 2 meds to control it. With the enlarged heart they felt like the risk is to high. I have to agree with them on that. But this leaves me back to only taking high dose daily meds and bp meds and pain meds. When I get to Texas and have the remaining scans and tests, we will see where I stand. He is hoping that the lung tumor is stable and that the spleen has remained the same or smaller and no tx will be needed.
If I do need tx, thats where things become difficult.
So for now, I wait some more.
Peaceful healing
Lisha

COBRA666's picture
COBRA666
Posts: 2418
Joined: May 2010

Lisha
I think about you everyday and only wish you well in this hard A$$ journey. You are really becoming my hero on here. I don't know if I could be as strong as you. if I ever have to be it will be because of you. John(FNHL-1-4A-5/10)

allmost60's picture
allmost60
Posts: 3167
Joined: Jul 2010

Between you, Beth,Fran, and Vinny..I'm humbled how all of you stay so positive and strong and still reach out to others. I hope with all of my heart that one day soon you will find some peace and healing. Love you...Sue (FNHL-2-3A-6/10)

forme's picture
forme
Posts: 1158
Joined: Aug 2010

Hi Sue,

Right back at you!!! I look forward to your posts everyday. You may not always post, but when you do you warm my heart... Stay strong and well.

May is almost here.....

Lisha

forme's picture
forme
Posts: 1158
Joined: Aug 2010

Hi John,

I have to tell you that I was lucky enough to read your post this afternoon, before they flagged it and removed "key" words. I was telling my hubby just yesterday, that you seem so much like him. The way you say it like it is and of course your humor. My hubbys is a bit out there if you know what I mean.

On another note, no one ever has said that I was a hero or close to a hero or any such thing. You touched my heart... Thanks...

As far as being strong, well I sure don't feel very strong. I feel like I am waking up, breathing, going to sleep and repeating. Maybe toss in a little life to the mix every now and then. We do what we got to do. You would do no less. We are surviving...

And, yes this is a very hard A$$ journey. Do I cry, sometimes. Do I great depressed, you bet. Do I go on, EVERYDAY..

Peaceful healing, John
Lisha

JoanieP's picture
JoanieP
Posts: 573
Joined: Mar 2010

Hi Lisha,
Just wanted you to know I am praying for you and all the regulars on this site. You have a great attitude . The Dr seems to be doing what is right for you. Have a blessed Easter

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