Apr 07, 2011 - 9:09 am
There's nothing I can even ask the Board here; it is what it is. But I wanted to share my news anyway, since my CA125 number will surely make the rest of you at least feel better about YOUR number if it's up there at all. My CA125 went up from a scary 1600 from my labs 2 weeks ago, to an even scarier 2099 on Tuesday's draw. I still got my Avastin infusion and have been taking the cytoxin at 25 ml a day, but my oncologist said yesterday to stop the cytoxin as it probably isn't working. My next CT/PET will tell the tale. ARGH.
It sure seems like my cancer is charging ahead and that the chemos I've been trying to hold it back with just can't keep up with the beast. I'm hoping they're at least slowing it down! Taxol, Doxil, Carboplatin, Avastin, & Cytoxin: all allowing disease progression. I have no idea what we'll try next: Gemzar? Topotekan? something experimental? No idea. My oncologist is trying to get me scheduled for another CT/PET and then we'll try and come up with a new battle plan.
The GOOD news, and the "take away" I have for all of you is that, even with that crazy-high CA125, I still FEEL good! No pain, no nausea. I still went out to an Italian restaurant with a girlfriend yesterday; I still work out in the garden when the weather cooperates; I eat and sleep and poop normally. And that's with no pain killers or mood elevators or sleeping pills; no "pills" at all except a daily calcium and a multi-vitamin. I know I'm probably in VERY big trouble here, health-wise, but even now I feel good. This is still very do-able.