Neulasta

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dee1962
dee1962 Member Posts: 99
I had my first Neulasta on Saturday and last night was in a lot of pain took 2 tylenols only for it to come back..... PLease any suggestions..I'm telling the Dr. next time i see her to stop it....Denise
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  • NJMom10
    NJMom10 Member Posts: 176
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    You need stronger pain meds
    I had the neulasta shot after every treatment, 4 AC and 4 Taxol. I didn't have any pain after the AC treatments, but I did after the Taxol treatments. Before I started my doctor asked if I had any pain medication at home. When I told him I never used anything stronger than Tylenol or Advil, he wrote out a prescription for Percocet (Oxcondyne). I was able to keep the pain manageable using that drug.
  • sparkle1
    sparkle1 Member Posts: 242
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    I too had pain after the
    I too had pain after the neulasta shots. Doctor prescribed hydrocodone. This really helped me.
    Sparkle
  • dee1962
    dee1962 Member Posts: 99
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    NJMom10 said:

    You need stronger pain meds
    I had the neulasta shot after every treatment, 4 AC and 4 Taxol. I didn't have any pain after the AC treatments, but I did after the Taxol treatments. Before I started my doctor asked if I had any pain medication at home. When I told him I never used anything stronger than Tylenol or Advil, he wrote out a prescription for Percocet (Oxcondyne). I was able to keep the pain manageable using that drug.

    I really don't want to be
    I really don't want to be zombied out will i . I need to function.....
  • Rague
    Rague Member Posts: 3,653 Member
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    Check with your DR (or Nurse)
    I was luckly with Neulasta - never had any pain from it at all. I was yold to take Tylenol IF I did and that Benadryl taken before could help. Others here have had this SE so they may have some other ideas for you.

    It is important to take it with some Shemos as it helps produce while cells which 'fight' infection. I took it after the 4 A/C but not with the 12 Taxol but I have seen some here say they had it on Taxol.

    Susan
  • dee1962
    dee1962 Member Posts: 99
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    sparkle1 said:

    I too had pain after the
    I too had pain after the neulasta shots. Doctor prescribed hydrocodone. This really helped me.
    Sparkle

    how long will the pain last
    how long will the pain last i will get it every 3 weeks. Do i have to go through this all the time or does it get better...Denise
  • Gabe N Abby Mom
    Gabe N Abby Mom Member Posts: 2,413
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    Ask your doc or pharmacist
    Ask your doc or pharmacist about claratin. I believe it's recommended by the manufacturer. I took it for neupogin (a cousin to neulasta) and had no pain.

    Hugs,

    Linda
  • dee1962
    dee1962 Member Posts: 99
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    Rague said:

    Check with your DR (or Nurse)
    I was luckly with Neulasta - never had any pain from it at all. I was yold to take Tylenol IF I did and that Benadryl taken before could help. Others here have had this SE so they may have some other ideas for you.

    It is important to take it with some Shemos as it helps produce while cells which 'fight' infection. I took it after the 4 A/C but not with the 12 Taxol but I have seen some here say they had it on Taxol.

    Susan

    what is shemos???

    what is shemos???
  • dee1962
    dee1962 Member Posts: 99
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    Rague said:

    Check with your DR (or Nurse)
    I was luckly with Neulasta - never had any pain from it at all. I was yold to take Tylenol IF I did and that Benadryl taken before could help. Others here have had this SE so they may have some other ideas for you.

    It is important to take it with some Shemos as it helps produce while cells which 'fight' infection. I took it after the 4 A/C but not with the 12 Taxol but I have seen some here say they had it on Taxol.

    Susan

    what is shemos???

    what is shemos???
  • dee1962
    dee1962 Member Posts: 99
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    Ask your doc or pharmacist
    Ask your doc or pharmacist about claratin. I believe it's recommended by the manufacturer. I took it for neupogin (a cousin to neulasta) and had no pain.

    Hugs,

    Linda

    thank you i will ask her
    thank you i will ask her when she calls me back...Denise
  • camul
    camul Member Posts: 2,537
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    Ask your doc or pharmacist
    Ask your doc or pharmacist about claratin. I believe it's recommended by the manufacturer. I took it for neupogin (a cousin to neulasta) and had no pain.

    Hugs,

    Linda

    I too had the pain and was
    I too had the pain and was told to take the claratin and it helped. I had no pain with the claritan!

    Carol
  • jphilpo
    jphilpo Member Posts: 177
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    neulasta
    I too had a terrible time with neulasta. It seemed like the 4 or 5 days after the shot, I was in a dark hole of pain. The cloud would pass and it was better until the next round. I really feel for you. I hung in there because the dr. told me how helpful it was after chemo.

    Good luck and keep speaking to your dr. about it.

    Jean
  • missrenee
    missrenee Member Posts: 2,136 Member
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    dee1962 said:

    thank you i will ask her
    thank you i will ask her when she calls me back...Denise

    The neulasta shot is important
    to increase the white blood cells so that you can be ready for your next treatment. I know--it's not fun. I felt like a truck ran over me for 2-3 days after the shot. I hate narc. pain meds too--so I toughed it out on Advil. I didn't know about the Claritin then or I would have tried that.

    Just to let you know--I had neulasta after my first 5 TAC treatments and we decided to not take it for the last one--I ended up in the hospital for 5 days on heavy duty antibiotics with a neutropenic fever. I was so wishing I had taken that last Neulasta!

    Good luck--this too shall pass.

    Hugs, Renee
  • NJMom10
    NJMom10 Member Posts: 176
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    dee1962 said:

    I really don't want to be
    I really don't want to be zombied out will i . I need to function.....

    I wasn't 'zombied out'
    Dee,
    I didn't get 'zombied out' with the stronger meds. I only took half of the prescribed dose (again my doc's recommendation) and it worked just enough to make the pain manageable but not make me dizzy or sick. I have heard about claritan but never tried it. good luck.
  • Rague
    Rague Member Posts: 3,653 Member
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    dee1962 said:

    what is shemos???

    what is shemos???

    Typo
    TYPO - should be Chemos
  • MAJW
    MAJW Member Posts: 2,510 Member
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    jphilpo said:

    neulasta
    I too had a terrible time with neulasta. It seemed like the 4 or 5 days after the shot, I was in a dark hole of pain. The cloud would pass and it was better until the next round. I really feel for you. I hung in there because the dr. told me how helpful it was after chemo.

    Good luck and keep speaking to your dr. about it.

    Jean

    the first Nuelasta...
    Injection kicked my butt..the first time...was never bothered by it again..Oncologist said usually the first chemo and first Nuelasta injection can be the worst...All these drugs are a tremendous shock to your body...and it it's hard to distinguish which causes the discomfort..as the chemo cocktail I had Cytoxan/Taxotere does produce some of the same side effects as the Nuelasta...I took the pain meds...no sense in suffering! And the Nuelasta helps, greatly, in preventing infections...if your white counts go to low it can delay your next treatment and land you in the hospital..as some have stated.
    I, personally, am glad to have had the Nuelasta...One less problem to worry about..
    It all sucks but we do what we have to do to regain our health...and we're all different..
    Wishing you better days...
  • dee1962
    dee1962 Member Posts: 99
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    Rague said:

    Typo
    TYPO - should be Chemos

    lol... i'm going crazy at
    lol... i'm going crazy at least i had a laugh.....
  • dee1962
    dee1962 Member Posts: 99
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    camul said:

    I too had the pain and was
    I too had the pain and was told to take the claratin and it helped. I had no pain with the claritan!

    Carol

    my dr.. called back and
    my dr.. called back and doesn't want me to take the claritan when i see her in 2 weeks i will find out why thanks Denise
  • Chickadee1955
    Chickadee1955 Member Posts: 355 Member
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    MAJW said:

    the first Nuelasta...
    Injection kicked my butt..the first time...was never bothered by it again..Oncologist said usually the first chemo and first Nuelasta injection can be the worst...All these drugs are a tremendous shock to your body...and it it's hard to distinguish which causes the discomfort..as the chemo cocktail I had Cytoxan/Taxotere does produce some of the same side effects as the Nuelasta...I took the pain meds...no sense in suffering! And the Nuelasta helps, greatly, in preventing infections...if your white counts go to low it can delay your next treatment and land you in the hospital..as some have stated.
    I, personally, am glad to have had the Nuelasta...One less problem to worry about..
    It all sucks but we do what we have to do to regain our health...and we're all different..
    Wishing you better days...

    I'll add my 2
    I'll add my 2 cents---Claritin or Benadryl did the trick for me. No difficulty with the Neulasta other than fatigue, but who knows if that was the Neulasta or the chemo.

    I never had an issue with low white blood counts while on chemo & Neulasta. That was a big relief.

    Best wishes on your next round.

    Chickadee
  • Tracey from Toronto
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    Neulasta side effects
    Hi Denise...I had my first Neulasta shot this past Monday, March 28. At first I was fine...then by about 9 pm I started getting bone pain in my lower legs. Now it's moved to my lower back....pretty bad pain too. My oncologist gave me Percs too....and I probably took too many Tuesday nite as I could not sleep either. So then I was sick Wed morning ( and still no sleep). I am not normally a 'pill' person so I think the combination of drugs in my system was just too much for my body. I am going to ask about Advil or Claritin when I see my onc next. Don't stop Denise ! They all warned me the pain means it's working in the bone marrow. We can all get thru this together. My fingers are crossed that I may get some sleep tonight (!)...averaging about 2 hours a night. As an aside the chemo I am on is Docetaxol.
  • Texasgirl10
    Texasgirl10 Member Posts: 668
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    Neulasta side effects
    Hi Denise...I had my first Neulasta shot this past Monday, March 28. At first I was fine...then by about 9 pm I started getting bone pain in my lower legs. Now it's moved to my lower back....pretty bad pain too. My oncologist gave me Percs too....and I probably took too many Tuesday nite as I could not sleep either. So then I was sick Wed morning ( and still no sleep). I am not normally a 'pill' person so I think the combination of drugs in my system was just too much for my body. I am going to ask about Advil or Claritin when I see my onc next. Don't stop Denise ! They all warned me the pain means it's working in the bone marrow. We can all get thru this together. My fingers are crossed that I may get some sleep tonight (!)...averaging about 2 hours a night. As an aside the chemo I am on is Docetaxol.

    Hate that Neulasta shot
    I hate that shot, it is NASTY!!! I am so sorry that you have to have this shot and are experiencing so much pain. I wish I could tell you something that would help with the pain, but I am trying to figure it out too. I take a daily claritin which actually takes some of the edge off of the pain, but it doesn't take it completely away. I hope the pain eases for you and that you can get some rest. I will be praying for you.

    Hugs and God Bless,

    Dawne