Anyone else with a child who is very quiet about it?

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BioAdoptMom3
BioAdoptMom3 Member Posts: 43
DH and I have 3 children, ages 23, 20 and 11, all still at home. The night I was diagnosed (1/13/11)we talked with the boys (2 oldest) who responded with some questions and have continued to at least once in awhile ask questions or make comments. However our 11 y/o DD says nothing at all unless she is asked. And even when I approach the subject, she just sits or lies there very quietly and says nothing. I know she is concerned because on the way to softball practice in the car a few weeks ago DH asked her if she was worried about mommy (I wasn't there) and she told him yes. He said he reassured her that though I would need surgery and some treatments, the doctor insisted I would be fine. She didn't say anything else. I am very concerned about her lack of verbal response because I am afraid she is keeping it all inside. I have talked with her guidance counselor who with my permission notified her other teachers (she is in 6th grade - first year of Middle School) by email just in case they notice any changes in her progress, socialization, etc. Is there anything else I should do? Or, do we just let it go and let her deal with it in her own way?

Thanks!

Nancy

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  • Katmy
    Katmy Member Posts: 93
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    My eldest is 11 yr old boy.
    My eldest is 11 yr old boy. He is also quiet about my treatment. I occasionally seek him out quietly and tell him how I feel about him and give him the opportunity to open up to me. When he doesn't, I let it lie. When this Chemo is over, I want to take my children to therapy. I think we will need to deal with what they saw Mommy go through. It happens right in front of them.

    Your daughter may be going through emotions of her own: I'm a girl, will I get this, too? etc. A counselor gave me a book about parenting through cancer. It was excellent. It allowed me to see the needs of children. If I see it in her office, I'll get the title for you. Right now, chemo brain can't remember.
  • disneyfan2008
    disneyfan2008 Member Posts: 6,583 Member
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    i would have done the exact thing-notify school
    My girls then were 16 and 20-the youngest was very concerned quietly-now talks and asks things! The oldest still never mentions,talks, asks (even when she knows I have appt etc) -Ironically she is now employed at my imaging center where I go got my mammos and bone scans etc! What are th chances? Have you thought of therapy with or with you for youngest? My youngest goes-not about me but I am sure its been discussed!
  • lizzie17
    lizzie17 Member Posts: 548
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    school
    I am a teacher and am SOOO glad you notified her school and then the teachers. They can be aware, and one day she may approach one that she feels closer to.

    Hugs and prayers for you and your family.
  • JuJuBeez
    JuJuBeez Member Posts: 332
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    I was diagnosed 3/29/10, and
    I was diagnosed 3/29/10, and my daughter was 7 and in 2nd grade. I knew for a week before I told her anything. I waited until I had met with the surgeon so I could tell DD everything I knew.. the size, the type, what kind of surgery, etc. That was the most difficult part of this whole process, I think- telling her. My mother-in-law had DCIS and mastectomy just before I met DH. I was able to give DD an example of how someone could go through breast cancer, and be okay years later. I had IDC and a lumpectomy, so I told her it wouldn't be as drastic for me as it was for GG. Then she looked at every single booklet and brochure I had. She asked what everything meant, and I told her. She is still worried about getting breast cancer because it's on both sides of her family. I told her when she is older, she will be tested regularly, and if anything shows up it will be taken care of early, like mine was. I was totally honest with her about it. We had one of our 'This totally sucks, but it's true' conversations.

    I contacted the school nurse and DD's teacher to let them know what was going on. DD's teacher moved her desk to the front in case she needed a hug during the day. DD and I met with the school couselor together at first, and the counselor is a 10-year survivor too. DD met with the counselor once a week during lunch time. They would sit and eat together, and talk about how she was feeling and how I was feeling. DD did get very clingy to me during this time. She wanted to sit with me, sleep with me, follow me around. She started 'taking care' of me. She would take my temp, get me crackers and tea, and read to me. That seemed to help her, by helping me. I just went with it. I let her do whatever she needed to do. By the time I finished radiation, she seemed to ease up a bit. But we had a set-back two days after I finished my treatments. We found out that my father-in-law had been diagnosed with lung cancer. He was a 13-year survivor from throat cancer, then it showed up in his lungs. He went for surgery the next week, then it was down-hill all the way. DD got clingy and quiet again. My FIL passed end of September, 3 days before DD's birthday. She is now in a grief-support group at school. I'm back to 'can I sleep with you tonight' or 'will you sit here until I fall asleep' again. I've looked into Kamp Good Times, but I haven't set anything up yet.

    The emotional side of this ordeal has been the most difficult for me. I, too, want to be sure I'm doing the right thing by her. I didn't want to give her all this information and just send her out in the world to deal with it alone. I encourage her to talk about it with anyone she feels comfortable with.

    Has your DD shown any other symptoms besides being quiet? Has she become clingy or needy? Has she put distance between you? Does she have a diary or journal she writes in? Have her eating or sleeping habits or grades changed? I think I would be watching for those types of changes.

    Best wishes to you!
    Julie
  • Rague
    Rague Member Posts: 3,653 Member
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    Have you checked with your
    Have you checked with your local ACS to see if there is a support group of kids whose parent is going through (or been through) TX? You might also tlk to the BC Navigator at the Center you are going to for help - there might be a support group through them. I'm told that there are several good books out there aimed at children/preteens/teens - I don't know the names of them - Son was early 30's when I was DX'd.
  • mwallace1325
    mwallace1325 Member Posts: 806
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    My granddaughters
    Two of my granddaughters live with my husband and I. They were 13 and 16 when I was diagnosed (two years ago this month). I chose not to tell them until after the biopsy, consult with surgeon and onc so I had my treatment plan set. Whatever questions I had had been answered and I had answers for both of them. My 13 year old was always quiet about my treatment. Just recently she said she hadn't really worried too much because I'd told them everything at once, explained that I had a tumor, needed surgery, chemo, radiation, that I'd feel like cr*p and then I'd be better. She was comforted that that is exactly what happened. It made me feel good that my plan for telling them had been a good one for her.

    It's good that her school is aware and will understand anything that may come up. Take heart in the fact that you may have known just what to say to allay most of her fears.

    Good luck to all of you.

    Love and hugs,

    marge
  • mariam_11_09
    mariam_11_09 Member Posts: 691
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    I also have an 11 year old

    I also have an 11 year old girl who was 10 at the time of my diagnosis (11/09). The only thing she said to me when I told her I had breast cancer was that she didn't want me to die or loose my hair. I told her dying was likely to happen but loosing my hair well... maybe I could borrow some of her curls. She never approaches me with anything about the cancer, never asks questions about it, has never gone to any doctor's appointments or chemos or anything.

    I also told her elematary school at the time of diagnosis as well as spoke to her teacher. I did the same thing when she went to middle school last year. However all her teachers told me there was never a problem and she appeared well adjusted.

    I did what I could so she could continue with her life as normally as possible. I also worked, mostly at home throughout treatment. I do however have to stop her form time to time and remind her that I don't feel well, or am tired or something with regards to treatment on the bad days. She does pays attention to my hair growing in, all the chemo weight I lost and what I do for enjoyment.

    She did come to me over the Christmas break with her a lump in her developing breast. She said she was scared to get cancer because she doesn't want to have chemo. It turns out a friend elbowed her when they were wrestling and the lump did eventually go away.

    To be honest, I don't know how she is processing this. I would love to know but don't want to pressure her. All I wanted was for her to see me as a role model (and she does), that yes, you can get cancer and we don't all die and life carries on, we just do the best we can and feel grateful for what we have. I know my daughter watches me closely.
  • camul
    camul Member Posts: 2,537
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    My youngest was 15
    He totally shut down from me, then I was transferred out of state and he stayed with his dad. I came home every Thursday night and stayed till Sunday morning. I talked to his favorite teacher, she was amazing and he was able to talk to her, and she called me at least once a week (She also has a counseling degree). He and I regained the closeness once he realized that I was going to be ok. Bottom line he was scared.

    I am so glad that I talked to her, to this day 9 almost 10 years later, they still meet for lunch and she will be his mentor in his graduate studies. An amazing teacher and a life saver.... A good teacher is worth their weight in gold!
  • disneyfan2008
    disneyfan2008 Member Posts: 6,583 Member
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    My niece was 13 when I was going through BC
    she never talked about it to me until last week (almost 3 yrs since surgery) she said YOU had breast cancer right? I said yes told her surgery and radiation etc. She asked me many questions! She said well no one ever really talked about it...just curious.

    I THINK since I don't complain, just did what I had to..and AS I say never missed a beat-I THINK many overlooked what I went through...

    So your daughter...may be taking it all in...and sometime start asking things. My youngest now 19 recently said "why did you go to treatments alone" I said NO biggie! She felt bad she never came with me.

    so they all handle to much differntly...

    GOOD luck with your family
  • ms.sunshine
    ms.sunshine Member Posts: 707 Member
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    My niece was 13 when I was going through BC
    she never talked about it to me until last week (almost 3 yrs since surgery) she said YOU had breast cancer right? I said yes told her surgery and radiation etc. She asked me many questions! She said well no one ever really talked about it...just curious.

    I THINK since I don't complain, just did what I had to..and AS I say never missed a beat-I THINK many overlooked what I went through...

    So your daughter...may be taking it all in...and sometime start asking things. My youngest now 19 recently said "why did you go to treatments alone" I said NO biggie! She felt bad she never came with me.

    so they all handle to much differntly...

    GOOD luck with your family

    my son was 7
    When we told him he wanted to go pick out some cool hats for me. My son J inspired, and encouraged me. He never had any fear that I wouldn't make it. He would say "mom, take your meds, and get better." Child-like faith.

    He would read to me in bed while I was sick. He would keep checking my temp. He insisted I eat chicken soup.

    When the treatments were all done, I told him, no more meds. He ran across the room jumping into my arms shouting, "you did it mom, you're all better. I knew you could do it." He would pat me on the back as if to say "good job."

    That's all I needed to know we were alright.
  • PrettyBald49
    PrettyBald49 Member Posts: 21
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    Quiet, yes
    Nancy, This sounds so familiar. My daughter is 11 and started middle school this yr. My surgery was a month after school started. I did just what you did, talked to guidance counselor. I am not sure how far you are in your treatment but I have found my quite one to be stronger than everyone else, including me. Ironically, you were dx the same day I took my last chemo. My daughter insisted on seeing the results of my mascetomy. When I lost my hair she encouraged me. When I looked like I was having a hard time she would come to me and rub my arm. I continued to talk with her so she would be comfortable. There are some programs that reach out to children who parents have cancer. They have group sessions and do other things such as crafts, pizza, fun stuff to allow children to be comfortable to talk. Talk, talk, and more talk. let her ask questions that she might have and let her share concerns she might have. One concern my daughter had was if she would have breast cancer. That is a serious concern for an 11yr. old but I had to address it to help alleviate any anixety she may have experienced.
  • BioAdoptMom3
    BioAdoptMom3 Member Posts: 43
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    Quiet, yes
    Nancy, This sounds so familiar. My daughter is 11 and started middle school this yr. My surgery was a month after school started. I did just what you did, talked to guidance counselor. I am not sure how far you are in your treatment but I have found my quite one to be stronger than everyone else, including me. Ironically, you were dx the same day I took my last chemo. My daughter insisted on seeing the results of my mascetomy. When I lost my hair she encouraged me. When I looked like I was having a hard time she would come to me and rub my arm. I continued to talk with her so she would be comfortable. There are some programs that reach out to children who parents have cancer. They have group sessions and do other things such as crafts, pizza, fun stuff to allow children to be comfortable to talk. Talk, talk, and more talk. let her ask questions that she might have and let her share concerns she might have. One concern my daughter had was if she would have breast cancer. That is a serious concern for an 11yr. old but I had to address it to help alleviate any anixety she may have experienced.

    Thank you, thank you, thank
    Thank you, thank you, thank you to ALL you wonderful, warm and caring people! You have given me some additional great ideas, like emailing her favorite teacher (I am a teacher too so it is hard to get to her school during school hours) and asking her to approach the subject with DD if she feels like it might help at all (she is very bright, in the gifted program and always been a diligent student, but today brought home a D in science on her report card - this from a child who usually gets upset with a B). I am worried about that grade drop, especially since it is not typical for her, and her lack of concern about it. I will also contact the American Cancer Society and other organizations as a couple of you suggested to see what is available for kids of parents with cancer. Thank you too for encouragaing me to talk more with her. I have tended to let it go since she doesn't seem comfortable with it, but maybe addressing it more is part of the answer.

    I already just love you guys!

    Nancy