CSN Login
Members Online: 9

Hello and update

meena1's picture
meena1
Posts: 1005
Joined: Oct 2008

I have been reading all the posts, there are so many new ladies here! I had my second round of Ixempra, and was sick again, i had a lot of nausea and the big D, and some vomiting. I am down to 112 lbs!! i have not weighed that much since i was about 12. I have been weak and tired from all this, but today i am up and going to take a shower. My doctor said that i am stable, my count is about the same, so good news that i am not getting worse. Still have some pain, seems to be in the back, trying to figure that out. I met 3 woman at my treatment, 2 were from Michigan, 1 was from Baltimore and they come to Philadelphia to see my docotor, so i am lucky i live here. Hope everyone is feeling well. And, Welcome to all the new girls!

disneyfan2008
Posts: 5248
Joined: Oct 2010

Nice you are close to your dr that others travel to see...sorry you are not feeling well! But like you said NOT getting worse...so must look at the good things even if little!

Feel Better!

Denise W

Sher43009's picture
Sher43009
Posts: 601
Joined: Nov 2009

Nothing like a shower to make yourself feel better. I hope you get stronger with each day.
Sher

chenheart's picture
chenheart
Posts: 5182
Joined: Apr 2003

(((((((HUGS)))))) Meena! I am so sorry about the side effects, but it does seems you have some good news to help you know the treatment is working!!!! I am so happy to know that, and that you have a well-known and obviously respected doctor caring for you.

Thanks for checking in; you are a valued member of our Kindred Spirit family, you know!

Chen♥

Bella Luna's picture
Bella Luna
Posts: 1569
Joined: Aug 2009

Meena... it's so wonderful to hear from you! Sorry to hear about the treatment side effects, but it's great to hear you are stable and your count is about the same. Your doctor sounds like a gem! Glad to hear you are in good hands.

Take care, God bless.
BL

mimivac's picture
mimivac
Posts: 2147
Joined: Dec 2008

I'm so glad you are stable. Stable is good. It also sounds like you are on the mend. I hope the nicer weather will also brighten your days. Great to hear from you!

Mimi

missrenee's picture
missrenee
Posts: 2137
Joined: Apr 2010

glad you have such a great health care team right where you live. Hoping you get stronger and stronger every day and feel better. Thank you so much for giving us the update. We care about you.

Hugs, Renee

TraciInLA's picture
TraciInLA
Posts: 1828
Joined: Jul 2009

I remember so well those days after each chemo round when just taking a shower was The Big Event of the day -- so enjoy it, dear Meena!

Glad to hear that you're keeping on fighting, with a good team of doctors there with you.

Traci

fauxma's picture
fauxma
Posts: 3530
Joined: Dec 2008

Glad to hear from you. Sorry for the side effects but it sounds like this is at least holding everything at bay. Sometimes just taking a shower is all we can manage to do. I love to just stand in the shower and let the warm, well hot, water pour over me. I always look longingly at that home shows that have the multiple shower heads that pulse and dribble and rain on you. It would be my dream to have one of those and just stay in there for hours.
Sounds like you are with a great center and that they are doing everything they can. Glad it is close to you. Prayers and good thoughts are coming your way.
Stef

Noel's picture
Noel
Posts: 3101
Joined: Apr 2009

So sorry Meena for the side effects. I wish there something I or we could do to help you.

Just know how loved you are and how much we all are praying for you.

Hugs, Noel

Noel's picture
Noel
Posts: 3101
Joined: Apr 2009

double post

Noel's picture
Noel
Posts: 3101
Joined: Apr 2009

triple post

survivorbc09
Posts: 4378
Joined: Jun 2009

Hoping you are getting lots of rest Meena and feeling stronger.

Prayers for you,

Jan

Jean 0609's picture
Jean 0609
Posts: 2305
Joined: Jun 2010

It is so good to hear from you. We all miss you when you don't post. Sending you a big cyber hug!!!!!

xoxo,
Jean

Kat11's picture
Kat11
Posts: 1931
Joined: May 2009

So sorry you so very sick. I was wondering. When I was on Ac they gave me a drug called Emend that I took the day before treatment the day of treatment and the day after treatment. 3 pills. This kept me from getting sick. I wonder if this would help you at all. This really kept the nausea in control. It is good to hear from you. Hope you feel better soon. Hugs
Kathy

GreeneyedGirl's picture
GreeneyedGirl
Posts: 1001
Joined: Sep 2008

I know it can wipe you out and leave you zapped of energy~ so glad you got to get in the shower and let the water run over you~ how refreshing!
Little things like that mean alot when you go thru the "stuff" we go thru~
Hope you have more feel good days ahead!
Take Care~
Melanie

survivorbc09
Posts: 4378
Joined: Jun 2009

Praying Meena that these side effects will go away quickly.

Hugs, Jan

survivorbc09
Posts: 4378
Joined: Jun 2009

Praying Meena that these side effects will go away quickly.

Hugs, Jan

VickiSam's picture
VickiSam
Posts: 8219
Joined: Aug 2009

the side efforts are knocking you on your butt. Maybe this means .. that the chemo infusions are working, and doing what they do best.! Hydrate and rest, is pretty much all that you can do. Banana's will help with the big 'D'.

Strength, Courage and Hope ...

Vicki Sam

CypressCynthia's picture
CypressCynthia
Posts: 3872
Joined: Oct 2009

Meena I am so sorry that you are having the side effects but it sounds hopeful that it may be working? I am a bath girl but, shower or bath, nothing like some warm water and bath gels to make a gal feel better. Hang in there my friend--you have definitely been in my thoughts and prayers.

DebbyM's picture
DebbyM
Posts: 3295
Joined: Oct 2009

Praying for much better days ahead for you Meena. Stay strong and get lots of rest!

Hugs, Debby

DebbyM's picture
DebbyM
Posts: 3295
Joined: Oct 2009

Praying for much better days ahead for you Meena. Stay strong and get lots of rest!

Hugs, Debby

Miss Murphy's picture
Miss Murphy
Posts: 302
Joined: Feb 2010

Meena,

All kinds of positive thoughts are going out to you tonight and praying for you to have even better days ahead. Take good care of yourself and know that all of us are rooting for you. Hugs, Sally

dbhadra's picture
dbhadra
Posts: 344
Joined: Jan 2011

Are you at Fox Chase Cancer Center by any chance? I travel from Washington, DC to see Dr. Christofannelli, seeing him next Tuesday. I do my treatment locally and see another oncologist locally as well.

You are lucky to be close to such a great center, and sounds like you have a good doctor. You will get through this ordeal and come through to the other side stronger than ever!

Laura

dbhadra's picture
dbhadra
Posts: 344
Joined: Jan 2011

Are you at Fox Chase Cancer Center by any chance? I travel from Washington, DC to see Dr. Christofannelli, seeing him next Tuesday. I do my treatment locally and see another oncologist locally as well.

You are lucky to be close to such a great center, and sounds like you have a good doctor. You will get through this ordeal and come through to the other side stronger than ever!

Laura

dbhadra's picture
dbhadra
Posts: 344
Joined: Jan 2011

Are you at Fox Chase Cancer Center by any chance? I travel from Washington, DC to see Dr. Christofannelli, seeing him next Tuesday. I do my treatment locally and see another oncologist locally as well.

You are lucky to be close to such a great center, and sounds like you have a good doctor. You will get through this ordeal and come through to the other side stronger than ever!

Laura

Kristin N's picture
Kristin N
Posts: 1969
Joined: Mar 2009

Wish there was way that you could have your treatment with no side effects Meena. Take care of yourself and keep letting us know how you are!

Angie2U's picture
Angie2U
Posts: 2993
Joined: Sep 2009

Just to see you updating us Meena makes us all feel better! I pray that this treatment will do its job and that the side effects will cease for you very soon. We all love you!

Hugs, Angie

Angie2U's picture
Angie2U
Posts: 2993
Joined: Sep 2009

Stupid double post, sorry

phoenixrising's picture
phoenixrising
Posts: 1509
Joined: Feb 2007

Meena, thank you for updating us. We do worry so much about one another. I'm glad your tx seems to working and your getting up and around. Big hugs to you!!!
jan

linpsu's picture
linpsu
Posts: 725
Joined: Mar 2010

It was good hearing from you - thanks for checking in. I continue to send prayers and hugs to Philly!
Love,
Linda

carkris's picture
carkris
Posts: 4505
Joined: Aug 2009

I was wondering so i am glad you checked in. i am sorry the s/e are tough but appears the chemo is working. Perhaps the s/e improve with time? So glad you are in good hands with your doctor!!

DianeBC's picture
DianeBC
Posts: 3888
Joined: Jun 2009

I am glad you posted Meena. Your pink sisters worry about you. Continuing to pray for you!

Hugs, Diane

PinkPearl's picture
PinkPearl
Posts: 280
Joined: Oct 2010

So sorry that you are suffering those awful side effects but if you are stable then the chemo is helping. I just hope the side effects will disappear and that you can keep the nutrition going even though it must be hard. I know you will give it your very best and good days are ahead. Sending hugs and prayers.

lynn1950's picture
lynn1950
Posts: 2566
Joined: Jun 2008

Hi Meena, Glad to read your post, although sorry that the treatment is making you feel so lousy. Hopefully you will soon be on the mend and able to enjoy a beautiful day and a fine Examiner article. Hugs to you......xoxoxox Lynn

jo jo's picture
jo jo
Posts: 1175
Joined: Jun 2010

Hang in there Meena! Its so strange when the high light of your day can be something so simple as taking a shower!
Miss ya Meena

ladyg's picture
ladyg
Posts: 1577
Joined: Apr 2010

So glad to hear you are stable but I am sorry about the side effects. A shower is always a soothing thing and relaxing so enjoy.

Hugs,
Georgia

sea60's picture
sea60
Posts: 2601
Joined: May 2010

I'm glad your feeling better today. Those side effects are hard but I pray you feel better and stronger with each day.

Thank you for updating us.

Sending love and big hugs,

Sylvia

aysemari's picture
aysemari
Posts: 1586
Joined: Dec 2009

You did get accepted for the new drug? I am so happy it's working
for you. And I hope you will find relief for your back pain.

Hugs,
Ayse

Jennifer1961
Posts: 137
Joined: May 2010

Happy to hear things have stabilized for you. Take care of yourself.

RE's picture
RE
Posts: 4606
Joined: Feb 2004

Meena stable is good, I am glad to hear it. I hope you start to feel a bit better soon, no fun to have that nasty nausea and the big D, please be kind to yourself and as you know you continue in my prayers. Thank you so much for the update as you have been in all of our thoughts!

Hugs,

RE

Hippiechick58's picture
Hippiechick58
Posts: 320
Joined: Feb 2011

As you can probably tell, I am a newbie here. After reading the other posts I also want to say that I am glad you are stable. Sometimes that's all we can hope for. Showers are not only refreshing but life-affirming! Glad you were able to take one.

I will continue to pray for you in your recovery!

"May you be at Peace; May you be free of suffering."
Dianne

natly15's picture
natly15
Posts: 1930
Joined: Sep 2009

Good to hear from you and happy that you have a great doctor.

Ritzy's picture
Ritzy
Posts: 4384
Joined: Aug 2009

Meena, you are always in my prayers! Thanks for the update, although, I wish it said you were feeling better. Praying you will soon.

Take care and keep us updated.

Sue :)

pinkkari09's picture
pinkkari09
Posts: 878
Joined: Sep 2009

Hi Meena, just want to pipe in and say it's good to hear from you and although the side effects are kicking your butt, you seem to be in good spirits and good hands. Oh, how I remember those showers being a lifesaver. I start a new chemo on Monday, seems I wont be able to have my hands or feet in warm water for long periods of time (hand and foot syndrome) so I will take imaginary ones. Stay strong, keep fighting, and keep us informed.
Mountains of Love,
~Kari

MyTurnNow's picture
MyTurnNow
Posts: 2694
Joined: Aug 2009

Meena, so good to read your news. The fact that the treatments are working is wonderful news. Sorry you are experiencing some not so nice side effects but if that's the price for treatments working, then it's worth it, right? I know you enjoyed that shower and now you just need to rest and take good care of yourself. Post when you feel up to it. We really do miss you when you are away. Sending (((hugs))) and love your way!

mariam_11_09's picture
mariam_11_09
Posts: 693
Joined: Nov 2009

Meena, thanks for keeping us posted and sorry that about all the side affects. Nothing like a good shower to make you feel somewhat whole again! Am thinking of you.

Gabe N Abby Mom's picture
Gabe N Abby Mom
Posts: 2415
Joined: Sep 2010

Meena you are so inspiring! Thanks for the update...the good news helps to balance the side effects you are struggling with. I hope you can continue to post good news!

Many hugs,

Linda

sausageroll's picture
sausageroll
Posts: 415
Joined: Dec 2008

It is SO GOOD to hear from you. Thank you for checking in!
It stinks about the side effects...rotten...but great that you have stabilised. I'm thinking of you each and every day and sending good vibes from Maryland to Philadelphia!!!! Take good care of yourself. Pat

Christmas Girl's picture
Christmas Girl
Posts: 3629
Joined: Apr 2009

Glad you checked in here with us. Am sorry for the tough SEs; but, cheered to learn you are stable. I'll hope that next time, your counts are even better.

Please take good care of yourself.

Kind regards, Susan

Lighthouse_7's picture
Lighthouse_7
Posts: 1566
Joined: Jan 2010

Hi Meena,
So good to hear from you. I've been reading a lot too but haven't really posted. I'm so sorry to hear about the side effects but stable is great and it must be working!
Awesome about your doctor too!
Hugs and prayers,
Wanda

Subscribe with RSS
About Cancer Society

The content on this site is for informational purposes only. It is not a substitute for professional medical advice. Do not use this information to diagnose or treat a health problem or disease without consulting with a qualified healthcare provider. Please consult your healthcare provider with any questions or concerns you may have regarding your condition. Use of this online service is subject to the disclaimer and the terms and conditions.

Copyright 2000-2014 © Cancer Survivors Network