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ROLL CALL, JANUARY 2011

HAWVET's picture
HAWVET
Posts: 318
Joined: Apr 2006

Roll call was established a couple of years ago so individuals can briefly view the status of all who were treated for head and neck cancer. Only names of those who enrolled will be listed.

An update will be provided in January and July of each year. In the past, I included the status of the individual. This takes a lot of time to update.

Effective with this January 2011 roll call, the format will be as follows:

Screen name, location, type of cancer, date diagnosed, enrollment date, last check in date

The enrollment date is not when you first had the cancer, but when you joined our roll call group. When you check in, provide a brief summary so others can read on your case and status. The date of enrollment and date checked in need not be provided. I can extract the information from the date of your posting.

If enrolling for the first time, please provide information on where you are from, type of cancer and date diagnosed (if known), your treatment and status. If you prefer to only list your state or country, that will be fine. The date the information was posted for the first time will be the enrollment date.

A special thank you to SKIFFIN16 for creating the map locations. Although you have indicated your state of residence in roll call, it can also be seen on the below map.

http://maps.google.com/maps/ms?hl=en&ie=UTF8&hq=&hnear=Tampa,+Hillsborough,+Florida&oe=UTF8&msa=0&msid=108290908437938654290.0004899d469e1599afb49

If there are sufficient responses, a roll call update will be provided in July 2011.

Aloha and Mahalo

HAWVET

(NAME, LOCATION, TYPE OF CANCER, ENROLLMENT DATE AND LAST CHECK IN.

Agatha, Toronto, Canada, DX stage IV left side of tongue in 2010. Enrolled on January 4, 2011.

Adventurebob, California, diagnosed Nasopharyngeal stage IV in May 2010, enrolled August 21, 2010

Areomech, Cincinnati, Ohio, DX I1N0M0 on September 24, 2010, enrolled January 5, 2011.

Backachedp, Minnesota, DX ? on September 29, 2009, enrolled on July 24, 2010.

Ballonk, Lousiana, DX SCC left tongue in 2001, enrolled on 02-04-2010.

Bigfuzzydoug, Mooresville-North Carolina, DX SCC above vocal cord July 2010, enrolled on July 30, 2010. Checked back in on December 29, 2010

BrianKrashpad, Florida, DX SCC left tonsil in November 2010. Enrolled on January 5, 2011.

Buzz99, New Mexico, DX with BOT in August 2010, enrolled January 5, 2011.

CajunEagle, Lousiana, 2009, checked in 02-03-2010, DX Stage 4, left tonsilar cancer in 2009. Enrolled on February 3, 2010.

Caspercamp, McKinney, Texas, Diagnosed SCC right tonsil, stage IV on May 26, 2010. Enrolled January 3, 2011.

Christmas, California, diagnosed Nasopharyngeal in 2004, enrolled July 8, 2008, had been absent and reported back on August 22, 2010.

Clearblue, state unk, for wife, DX SCC base of tongue in 2001, Esophagectomy in 2008, partial larpharingal + lobotomy lung on October 2009, enrolled July 13, 2010.

CLRRN, Maryland, reporting for partner Mike, DX SCC left tonsillar basloid, enrolled on 07-13-2010,

Cwcad, state unknown, checked in 01-31-2010, DX ge IV tongue cancer, in 2007, Enrolled January 31, 2010.

D Lewis, Sierra foothills, California, DX SCC base on tongue, January, 2010, enrolled February 5, 2010, checked in checked in July 23, 2010.

Davidgskinner, state unk, DX stage 4, SCC right tonsil, enrolled July 13, 2010.

Dazey, New York, diagnosed SCC unknown primary in 2009, DX SCC, enrolled on 01-31-2010, checked back in December 29, 2010

Debbiejeanne, Cincinnati, Ohio, DX larynx cancer in August 2009, enrolled on 07-11-2010.

Dennis318, Spring Hill, Tennessee, DX stage IV, throat cancer in November 2009. Enrolled on March 17, 2010, Checked in 07-12-2010 with update. Botched surgery when reported back on January 3, 2011 and will try hard to make positive strides in 2011. Good luck Dennis and with my prayers.

Delnative, Delaware, Diagnosed Stage III SCC Right tonsil in 2008. Enrolled February 2, 2010.

DJG1, Louisville, Kentucky, DX lymp node on right neck in April 2010, enrolled July 24, 2010.

Dogsrule, state unknown, DX SCC unknown primary in October 2009, enrolled July 11, 2010. Checked back in on July 11, 2010.

Doitforj, Georgia, Checked in 02-01-2010, DX SCC base of tongue and neck in 2009, enrolled on February 1, 2010.

Donna340, Walkerton, Indiana, DX SCC right side of tongue in 2003 and returned in 2010. Enrolled January 2, 2011.

Douglas08, state unknown, diagnosed stage 4 SCC sinus, enrolled August 21, 2010

Dragons7-7-2010, Texas, diagnosed SCC right tonsil in July 2010, enrolled August 21, 2010

Fbcuthguy, Tennessee, 2009, diagnosed SCC unknown primary Stage IV in 2009. Enrolled on March 16, 2010.

Finz2lift, North Carolina, DX SCC base of tongue, enrolled on 07-11-2010,

Fire34, Illinois, DX unknown primary June 2009, enrolled March 17, 2010, checked back in July 23, 2010.

Fisrpotpe, state unknown, diagnosed SCC 5 golf sized node around carotid on January 19, 1996, radionercrosis of pharynx in July 11, 2008, SCC back of tongue on February 5, 2009, broked neck March 5, 2006 in accident, enrolled on December 29, 2010. Glad you are with us John.

Frank10G, Virginia, Checked in 02-03-2010, Diagnosed Stage 3 NPC 2009, Enrolled February 3, 2010.

Glenna M, New Hampshire, diagnosed SCC laryngeal and NSCLC Aden carcinoma in left lung, enrolled on 1-31-2010. Checked back in on January 1, 2011.

GraceLibby, Renton, Washington, diagnosed Stage 3 SCC, right tonsil primary, enrolled in 07-14-2010.

Greg53, Missouri, DX SCC right tonsil, enrolled 07-20-2010.

HAWVET, Hawaii, DX Nasopharyngeal January 1998, Enrolled in January 2008, Last check in 01/01/2010

Hal61, California, diagnosed stage 3 SCC base of tongue in November 2009, enrolled 03-29-2010, checked in August 21, 2010

Hondo, Lafayette, Louisiana, diagnosed Nasopharyngeal, enrolled on 01-31-2010, checked back in July 25, 2010. Reported back in on January 4, 2011. Will be five years from treatment in March 2011.

Irishgypsie, Rochester, New York, DX SCC right tonsil, enrolled on 07-11-2010.

J3rey, Florida, SCC left lymph node April 2010, enrolled July 26, 2010.

Jagged, Washington, Diagnosed Breast 2005-Esophagus 2007 and lungs 2008. Enrolled on October 29, 2010. Checked in on March 29, 2010.

Joe14, Rochester, New ork, SCC unknown primary in April 2010, enrolled July 22, 2010

Jimbo55, from Chicago working in Bangkok Thailand, SCC BOT in May 2010, enrolled July 22-2010.

Jkinobay, Arizona & Mexico, HPV16 positive lymph nodes in 2007, Enrolled April 21, 2009, checked in July 27, 2010.

Kent Cass, Quad cities, Midwest, NPC unknown primary in 2009, enrolled July 22, 2010

Kimba1505, Pennsylvania, partner with SCC left tonsil April 13, 2010, enrolled July 20, 2010, Checked back in July 20, 2010.

Kingcole42005, California, DX Mucoepidermoid Carcinoma in 2010. Enrolled January 3, 2011

Lady4darknight, Mtn Grove, DX mass base of tongue, B lymphoma BOT and both tonsils in August 2008, enrolled July 11, 2010, checked back in July 23, 2010.

Landranger25, state unk 2009, enrolled on 01-31-2010

Lena Rose, state unk, Husband DX w/ BOT SCC HPV+ in March 2010, Enrolled July 14, 2010.

Ljoy, Sauk Rapids, MN, right tonsil cancer in 2005, enrolled August 20, 2008, checked in 01-31-2010, doing fine and no signs

Luv2cut1, Myka Landry, Colorado, husband DX SCC supraglottis in May 2008, recurrence in neck-March 2009. Enrolled January 6, 2011.

Luv4lacrosse, St Louis-Missouri, SCC right tonsil in June 2010, enrolled December 28, 2010

MarkN_Ct, Connecticut, DX SCC recurrent Tongue. Enrolled January 3, 2011.

Meinken, Georgia, DX nasopharyngeal in January 2007, enrolled July 12, 2010.

Miccmill, state unknown, reporting for spouse Glenn, DX with SCC on April 7, 2010, enrolled July 23, 2010.

Michelle H, state unknown, diagnosed cancer on base of tongue, enrolled August 21, 2010

Micktissue, Sonoma County, California, DX unk suspect Nasopharnyx December 2009, enrolled March 20, 2010, reported in July 23, 2010., 2008,

Mikki332, South Dakota, husband Gary w/SCC base of tongue in October 2010, enrolled December 28, 2010

Morris, Michael "Mick", California, diagnosed Stage IV unknown origin in 2009. Enrolled January 31, 2010.

Naturenaw, North Carolina, diagnosed SCC in tonsil in 2005. Enrolled on April 14, 2010.

PAM M, Kentucky, DX SCC BOT pm October 24, 2009, 2009, enrolled on 01-31-2010. Checked in on July 13, 2010. Update on January 4, 2010.

Pattyanny, New York, Undiagnosed primary head and neck in July 2009. Enrolled November 27, 2010. Checked back in January 1, 2011. Welcome back.

Pascotty, Bunbury, Western Australia, diagnosed SCC right tonsil in November 2009. Enrolled January 7, 2011.

Pumakitty, Virginia, father diagnosed cancer base of tongue in March 2010, enrolled July 22, 2010.

Rmdgy, Georgia, SCC right tonsil in 2009, enrolled December 28, 2010

Ron49, San Diego, California, DX SCC Mestasized to left lymph node, path reported Epitheleal Neoplasm in December 2009. Enrolled on January 4, 2011.

Rozaroo, Ontario, Canada, DX stage 4b cancer of the tonsil on December 18, 2009, enrolled January 6, 2011.

Rush1958, Kansas City, Kansas, SCC base of tongue January 12, 2010, enrolled July 20,2010. Checked in July 23, 2010.

RushFan, Cypress, Texas, diagnosed HPV=T) N2b MO unk primary in January 2010, Enrolled August 3, 2010

Sash, Florida, DX SCC base of tongue September 2009, enrolled August 24, 2008. Checked in okay, Jan 20 2009.
Checked in okay, 11-30-2009, Okay in July 23, 2010.

Scambuster, Hong Kong/China, SCC left tongue in August 2009, enrolled July 22, 2010

Scottied, state unknown, SCC base of tongue ending treatment in December 2009, enrolled, December 28, 2010

Silver_Foxette, Indiana, DX vocal cord cancer in January 2009, also 30 year cerval cancer survivor, enrolled July 31, 2010.

Skilffin16, Lakeland, Florida, DX right tonsil, January 2009, enrolled January 31, 2010, checked in July 23, 2010, rechecked on January 5, 2011.

Staceya, state unk, DX stage 1 NPC in 2009, Enrolled February 2, 2010. Checked back in July 28, 2010.

Stevenl, Fort Worth, Texas, DX SCC right tonsil, enrolled January 31, 2010, checked in July 23, 2010. Checked back in January 7, 2011.

Sweetblood22, Pennsylvania, SCC HNC unknown primary stage 4 DX December 2009. Enrolled 03-18-2010. Checked back in July 23, 2010. Checked back in on January 5, 2011.

Tanager75, state unknown, diagnosed SCC left tonsil in July 2009, enrolled July 26, 2010.

Terryscarlet, state unknown, DX SCC left tonsil in July 2010, enrolled January 1, 2011.

Tonyanddenise, Central Ohio, DX primary in left tonsil, enrolled July 12, 2010. Checked back in on January 2, 2011.

Up2myneck, state unknown, DX July 2008, recur March 2010, enrolled July 23, 2010.

Vermont Liz, Vermont, husband DX with SCC, stage IV base of tongue in December 2009, enrolled January 5, 2011.

Victor53, Rhode Island, Tonsil into base of tongue, Lives in Costa Rica, enrolled August 5, 2008. Had been actively checking in. Last check in on March 3, 2010 and hanging tough.

Wife for Life, Missouri, husband diagnosed with stage IV SCC base of tongue. Enrolled April 15, 2010.

PASSED AWAY
Hunpot, Massachusetts, Mom passed away, August 18, 2008 (Squamous cell carcinoma top voice box). Checked in Jan 2009 Name Tracy

MOM674, Passed away in December 2008. Was a brief member, fought hard…reported by knobby

Bany, Canada, 2008, Dad (TR2), SCC of the maxillary sinus (located near Canada). Enrolled on July 30, 2009.. Dad completed treatment 03-2009, Dad lost 70 pounds. Bany later reported that dad passed away on 11-02-2009.

There are several more noted as having passed away, but they were not on our roll call listings. Our condolences to the family.

luv4lacrosse's picture
luv4lacrosse
Posts: 1387
Joined: Jul 2010

STILL STANDING UP AND LOOKING DOWN AT THE GOOD OL MISSOURI CLAY.

MIKE

A PRAYER AND A POSITIVE THOUGHT TO ALL OF MY CSN FRIENDS CURRENTLY IN THE BATTLE.

Dazey
Posts: 86
Joined: Sep 2009

still doing well -upstate New York - will be celebrating 2 year anniversary since finishing treatment October 26. Dazey

luv2cut1's picture
luv2cut1
Posts: 285
Joined: Oct 2010

From Colorado! Hubby Pat still doing well 22mos post chemo reirradiation for recurrent/persistent scc. Thoughts, prayers and thanks to everyone here.

Myka

connieprice1's picture
connieprice1
Posts: 299
Joined: Oct 2010

connieprice1, Cleveland, Tx., Stage IV Base of Tongue, Diagnosed SCC Oct. 2010, Induction Chemo & 7 weeks of Radiation, enrollment 07/17/11

Greg53's picture
Greg53
Posts: 830
Joined: Apr 2010

15 months post tx and doing good!

Positive thoughts to all!

Greg

sweetblood22's picture
sweetblood22
Posts: 3230
Joined: Jan 2010

Sweetblood22, Pennsylvania, SCC HNC unknown primary stage 4 ****DX December 2009.**** Enrolled 03-18-2010. Checked back in July 23, 2010. Checked back in on January 5, 2011.

I was DX December 2008.

KTeacher
Posts: 928
Joined: Jan 2011

KTeacher, diagnosed July, 2010. Surgery at Stanford August 9, 2010. Radiation ended mid October, 2010. Back to work January, 2011. New lump on neck June, 2011, confirmed mets July 14, surgery cancelled Monday, rescheduled for this Friday, July 22. Will have a neck dissection.

SCC, HPV-; spindel cell varient, perineural involvement

I live in the central valley in California.

olybee's picture
olybee
Posts: 82
Joined: Jun 2011

Roll Call Olybee, diagnosed March 2011. Surgery in Olympia, WA, 4/20/11. Removed tonsils, 25 lymph nodes, 4 nodes over 4 mm. Stage 4a. Radiation ended July 19, 2011.

areomech's picture
areomech
Posts: 33
Joined: Sep 2010

Still Alive and Healthy!!
Diagnosed stage 1 scc right tonsil and left tonsil on Sept 24 2010. Next doctors visit in August for 8 months post treatment.

ratface's picture
ratface
Posts: 1238
Joined: Aug 2009

Ratface, Chicago, DX July 2009 BOT, T1N2BMX, IMRT radiation x39, Cisplatin x3 right side selective neck disection.

seenanN
Posts: 24
Joined: Oct 2009

SeenanN, Maryland. Dx 2004, NPC stage4 metastasis to lung. Tx ended 2004. No saliva, no taste, bad hearing but doing well.

Glenna M's picture
Glenna M
Posts: 1580
Joined: May 2009

Glenna M, New Hampshire, diagnosed May 2009 with NSCLC and Laryngeal cancer. Pet scan in June '11 shows cancer in both lung and lymph nodes. Can't have surgery yet as lungs are not strong enough. Will receive 6 to 10 weeks of Pulmonary Physical Therapy and see what happens. I haven't given up the fight!!!!

Ed_PortOrange's picture
Ed_PortOrange
Posts: 110
Joined: Jun 2010

Ed - Port Orange Florida, Diagnosed stage 4 SCC of the Vallecula region of throat in Nov.2009

pattyanny's picture
pattyanny
Posts: 523
Joined: Jul 2009

Diagnosed 6/2009 Lymph nodes in neck stage IV Unknown primary.March scan - NED. Next scan 8/2011. Watching a spot in the back of the throat. Enrolled 11/09. Gaining weight, and getting stronger.

bizshop
Posts: 1
Joined: Oct 2012

Stage IV tongue/lymph nodes both sides. 8 more radiation and 1 more chemo to go, then I hope to set a longevity record in the roll calls! Live in Port Angeles, WA

Tim6003's picture
Tim6003
Posts: 1495
Joined: Nov 2011

Tim dx October 2011 / Stage III base of tongue with one lymph node HPV+
No surgery or traditional chemo, just rads and Eributx
Joined the group (I think, November 2011)
Post TX PET showed looking good with a few hot spots in H&N
6 Month post tx scan showed NED
All follow up scopes and scans looking good :)

Tim / McCall, Idaho

Fire34
Posts: 352
Joined: Feb 2010

coming up on three years post, still in Illinois. Unknown primary July of 2009 finished treatment 11/27/09 stage 4a hpv+ Wishes & Prayers for those stil going thru treatment
Dave

Dazey
Posts: 86
Joined: Sep 2009

Checking in - finished tx October 26, 2009 - most recent cat scan and scoping are still showing all clear. Only positive thoughts and prayers are sent each day to all still taking this journey. Dazey

staceya's picture
staceya
Posts: 701
Joined: Jan 2010

Staceya, Whitefish MT (orig from Brooklyn NY)
DX 12/2009 NPC
Enrolled February 2, 2010.
Stage Tumor:1 Node:0
Rads 35
Chemo NO
Amifostine Yes!

Current Status
MRI/Scope June 2012-NED
Saliva Back to normal
Weight Back to watching weight.
Teeth Back to normal
Hair Returned, remains problematic, oh wait, it was always problematic.

Grateful for the above and all of the support here.
STacey

Skiffin16's picture
Skiffin16
Posts: 8076
Joined: Sep 2009

You know that you guys/ladies are following a newbies first post in reply to this old 2011 outdated thread....

Here is a link to the updated and most recent 2012 Roll Call...;

Roll Call 2012 - 16JAN2012

John

Dazey
Posts: 86
Joined: Sep 2009

Nah - didn't realize - but still doing well no matter which roll call! Thanks for the updated info....will post on that one.

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