Jan 13, 2011 - 4:31 pm
I am 34 years old. the week of my 33rd birthday I began having different symptoms I didn' tknow were related and/or serious... at first I was told it was a bladder infection... then hepatitis, but when those tests came back negative, a scan revealed an obstruction in my bile duct. They told me at my age with my health and no family history it would most probably by residual blockage from my gallbladder surgery which I had out less than a year before. after more tests, I had the whipple surgery done, turns out the tumor was malignant AND spread to the surrounding lymph nodes and I was diagnosed with stage 2B biliary cancer. about a month after surgery I had a port installed and began chemo with gemzar, did 4 months of chemo, then 6 weeks of radiation AND chemo pump with a different medication. Scans in September appeared clear, and I have tumor markers checked every couple of months and now I know what symptoms to look for although the symptoms don't really show up until late. Today I had my first follow up with my oncologist since finishing treatment and I feel DOWN! I am a very optomistic person but I asked him to tell me straight out what the chances of this cancer comming back are, and turns out I have a 50% chance of this crap coming back!!! I have 2 young kids (who don't even know my diagnosis in the first place)... the thought of this THING coming back scares the crap out of me... and everything I read about this type of cancer just scares me further... does anyone have anything POSITIVE to share? any GOOD outcomes?? it's hard to keep a smile on your face for family and loved ones when this is constantly looming in my head! Any info would be greatly appreciated!