Help PROOF vegetable juicing safe with diarrhea and help cancer ONC SAID NO JUICING TODAY !!!! help,

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pete43lost_at_sea
pete43lost_at_sea Member Posts: 3,900 Member
edited March 2014 in Colorectal Cancer #1
I am depressed, my ONC said I cannot use my fantastic new juicer as VEG JUICE worsens DIARRHEA. Some thing called the osmotic effect.

I am really stuck with taking ONCs advice, she is really worried about VEG JUICE.
She has another patient in ICU because of diarrhea and stoma, she said diarrhea can kill you!!!!

She said no juice on chemo weeks if I am having diarrhea. Which I guess is fair enough on on one hand but freaks me out on the other as I have become emotionally dependent on the benefits of juicing. I have faith with no evidence, now she really raised a question specifically with my faith.

Do we have proof evidence peered reviewed and accepted by the medically community ?
I want to give to my ONC.

so now i have get my diarrhea under control with a more focused diet thats not as pure.
The new anti diarrhea diet will have bread, pasta, rice, bannana, toast, swude apple.

ONC also stressed not to over do the juice. I have been having 500ml breakfat and night of beetroot, celery, ginger, garlic, carrots, broccoli and occaisionally leftovers like blueberries, tomato, asparagus etc etc etc anything green and in range would get juiced.
Recently I was adding an organe and apple and some water melon.

I would normally get about 1 litre and share it with wife and kids. The kids hate it. I give them the juice part.

My champion 2000 juicer marvellous, more better tasting juice that kid, grand parents, vistors all love, even my wife has it now. Its easy to clean.

So thats my dilemma, I have a nice solid bag at the moment so I am having a small 250 ml juice before bed. I might break the 1000mla day into 4 x 250 ml after 30 minutes after meals so that I have food in the gut acting like a plug.

All comments welcome, especially any credible medical links about juicing.
Got daughter to make my juice as I could not handle the cold vegetables tonight I know they gave me folfox today.

thanks Pete
«1

Comments

  • plh4gail
    plh4gail Member Posts: 1,238 Member
    Options
    Pete, I was told my
    Pete, I was told my vegetable need to be cooked and peeled, easier to digest that way. I know it's not what you want to hear buddy, sorry. And friuts need to be peeled also but I bet you can still juice those without any change :)

    smiling for ya, Gail
  • PhillieG
    PhillieG Member Posts: 4,866 Member
    Options
    I'm No Expert
    but that's never stopped me from commenting before!
    ;-)
    I would think that if you are having serious diarrhea that putting basically more liquid in there would cause it to just run through you and possibly worsen your situation. Dehydration can be VERY serious, even deadly. Possibly you can do some juicing along with the BRAT diet to plug things up. You may have to sacrifice "purity" for getting nutrition if all of the juice passes through you like grass through a goose.

    Just my opinion...
    Good luck
    -p
  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    Options
    plh4gail said:

    Pete, I was told my
    Pete, I was told my vegetable need to be cooked and peeled, easier to digest that way. I know it's not what you want to hear buddy, sorry. And friuts need to be peeled also but I bet you can still juice those without any change :)

    smiling for ya, Gail

    its not what I want to hear buts its thought provoking
    thanks gail

    my understanding that the precious fragile enzymes that the sales guy/girl told me about get destoyed by cooking and peeling. So your process may loose most of the goodness, all the heavy duty books have pushed a spin on the raw raw raw raw veg is best approach to life.

    even fruit I was told is bad and not to add to my veg juice.

    so I guess who told you and what reasons ?

    is there medically accepted science behind all this juicing ????????????

    I want to come back and educate my ONC, maybe she want charge me the $175 each visit if I teach her something that saves lives. Only dreaming here.
  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    Options
    PhillieG said:

    I'm No Expert
    but that's never stopped me from commenting before!
    ;-)
    I would think that if you are having serious diarrhea that putting basically more liquid in there would cause it to just run through you and possibly worsen your situation. Dehydration can be VERY serious, even deadly. Possibly you can do some juicing along with the BRAT diet to plug things up. You may have to sacrifice "purity" for getting nutrition if all of the juice passes through you like grass through a goose.

    Just my opinion...
    Good luck
    -p

    IMNOEXPERT same here, good name for a club!!!
    thanks Phillieg,
    yeah agreed and BRAT is the way to go.
    I might get the stage of sipping my juice through a popper over a couple of hours, you know like 10 ml every 10 minute. We did this for my daughter when she had bad diarrhea 3 years a go, she ended up being admitted and dripped for a few days.

    I am really trying to think around the spare, I just spent $470 on this worlds best juicer and now I have told not to use it.

    My ONC is really sharp and she could probably tell just be looking at me if I have not done exactly what she said.

    Actually I think I'd brat and then juice.
    Pete
  • plh4gail
    plh4gail Member Posts: 1,238 Member
    Options

    its not what I want to hear buts its thought provoking
    thanks gail

    my understanding that the precious fragile enzymes that the sales guy/girl told me about get destoyed by cooking and peeling. So your process may loose most of the goodness, all the heavy duty books have pushed a spin on the raw raw raw raw veg is best approach to life.

    even fruit I was told is bad and not to add to my veg juice.

    so I guess who told you and what reasons ?

    is there medically accepted science behind all this juicing ????????????

    I want to come back and educate my ONC, maybe she want charge me the $175 each visit if I teach her something that saves lives. Only dreaming here.

    It was my surgeon, his Pa,
    It was my surgeon, his Pa, and my onc that told me. I know that the raw veges are definitly the way to go under normal conditions, just not sure that is true for you and I just yet. The raw veges are not as easy for us to digest with the roughage and with your ilio things can move ultra fast. But as I dont know much info on blending, maybe without the peel would be an option. I am actually wanting a juicer myself, but was planning on fruits. I will be interested in what we can find about veges in the blender for us.

    Gail

    p.s. I posted you a thank you about forgiveness on an older post. I want you to know it, but dont remember which post now. So thank's again for the reminder :)
  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    Options
    plh4gail said:

    It was my surgeon, his Pa,
    It was my surgeon, his Pa, and my onc that told me. I know that the raw veges are definitly the way to go under normal conditions, just not sure that is true for you and I just yet. The raw veges are not as easy for us to digest with the roughage and with your ilio things can move ultra fast. But as I dont know much info on blending, maybe without the peel would be an option. I am actually wanting a juicer myself, but was planning on fruits. I will be interested in what we can find about veges in the blender for us.

    Gail

    p.s. I posted you a thank you about forgiveness on an older post. I want you to know it, but dont remember which post now. So thank's again for the reminder :)

    thanks gail
    with a little luck we will get some heavy weight expert opinions and maybe even scientific facts. heaven forebid.!!!!

    Peeling the veg and fruit would be such a pain, I am a bit lazy. I can make a litre of top quality veg juice in about 5 minutes and can have it cleaned and put back together. And that includes getting the vegs out of the fridge, washing and cutting them as well. Have a look at the champion 2000 juicers for reviews. I'll look up the forgiveness post, I still remember it.

    Pete
  • tanstaafl
    tanstaafl Member Posts: 1,313 Member
    Options
    ND oncology support for 2nd opinion?
    We use extra nutrients (glutamine, lysine, glucosamine, C, Mg/Zinc glycinates, potassium citrate) to heal/prevent mucositis, another potential cause of diarrhea. I can't say I've ever met a doctor that I thought knew much about high performance nutrition unless they were "enthusiasts" and had unusual amounts of nutrition study, research or training.

    I've been to states where oncology oriented ND naturopaths with 4-5 yrs of natural medical schooling, specialized on nutrition for cancer patients. This takes some of the load of nutritional guessing off the MD oncologists, and may reduce uncertainty or risks for the patient.
  • lisa42
    lisa42 Member Posts: 3,625 Member
    Options
    tanstaafl said:

    ND oncology support for 2nd opinion?
    We use extra nutrients (glutamine, lysine, glucosamine, C, Mg/Zinc glycinates, potassium citrate) to heal/prevent mucositis, another potential cause of diarrhea. I can't say I've ever met a doctor that I thought knew much about high performance nutrition unless they were "enthusiasts" and had unusual amounts of nutrition study, research or training.

    I've been to states where oncology oriented ND naturopaths with 4-5 yrs of natural medical schooling, specialized on nutrition for cancer patients. This takes some of the load of nutritional guessing off the MD oncologists, and may reduce uncertainty or risks for the patient.

    Pete-maybe add digestive enzymes?
    Hi Pete,

    Just a thought here- in addition to peeling your veggies and combining the BRAT diet with the juicing, perhaps taking a digestive enzyme would help with the digestion and possibly not cause more diarrhea. I know more liquid in= more liquid output, but give a thought to the digestive enzymes. I have met with a naturpathic/holistic gal twice now & she explained alot of things to me about the help of taking digestive enzymes. Diarrhea can often be caused by lack of absorbtion in our intestines.
    The enzyme I'm taking focuses on fats, carbs, and protein, so you'd have to google or ask at a health food store/vitamin store about digestive enzymes targeted at fiber and/or vegetables. I know there's something out there for that!
    "Regular" doctors never seem to know anything about these kinds of things, unfortunately, and they're hesitant to advocate patients doing anything they aren't knowledgeable about or that they think isn't "proven". Actually, digestive enzymes are proven to help with digestion issues for many people. People who have certain digestive diseases and also who have cystic fibrosis rely on digestive enzymes to stay alive. As a former teacher, I once had a student who had cystic fibrosis & he had to go to the office before lunch every day to take his enzymes. His mom told me, if he didn't, he'd get terrible diarrhea and wouldn't absorb any of the nutrients in the food he ate.

    Take care & maybe this will help!
    Lisa
  • plh4gail
    plh4gail Member Posts: 1,238 Member
    Options
    lisa42 said:

    Pete-maybe add digestive enzymes?
    Hi Pete,

    Just a thought here- in addition to peeling your veggies and combining the BRAT diet with the juicing, perhaps taking a digestive enzyme would help with the digestion and possibly not cause more diarrhea. I know more liquid in= more liquid output, but give a thought to the digestive enzymes. I have met with a naturpathic/holistic gal twice now & she explained alot of things to me about the help of taking digestive enzymes. Diarrhea can often be caused by lack of absorbtion in our intestines.
    The enzyme I'm taking focuses on fats, carbs, and protein, so you'd have to google or ask at a health food store/vitamin store about digestive enzymes targeted at fiber and/or vegetables. I know there's something out there for that!
    "Regular" doctors never seem to know anything about these kinds of things, unfortunately, and they're hesitant to advocate patients doing anything they aren't knowledgeable about or that they think isn't "proven". Actually, digestive enzymes are proven to help with digestion issues for many people. People who have certain digestive diseases and also who have cystic fibrosis rely on digestive enzymes to stay alive. As a former teacher, I once had a student who had cystic fibrosis & he had to go to the office before lunch every day to take his enzymes. His mom told me, if he didn't, he'd get terrible diarrhea and wouldn't absorb any of the nutrients in the food he ate.

    Take care & maybe this will help!
    Lisa

    Lisa
    I learn so much from you Lisa, thank you!

    Gail
  • Nana b
    Nana b Member Posts: 3,030 Member
    Options
    plh4gail said:

    Lisa
    I learn so much from you Lisa, thank you!

    Gail

    Eat a berry and banana
    Eat a berry and banana smoothie!
  • lesvanb
    lesvanb Member Posts: 905
    Options
    Pete, try contacting Jeanne Wallace
    for info, evidence-based data, and perhaps a consultation which you can do by phone.

    http://www.nutritional-solutions.net/

    all the best, Leslie
  • PhillieG
    PhillieG Member Posts: 4,866 Member
    Options

    IMNOEXPERT same here, good name for a club!!!
    thanks Phillieg,
    yeah agreed and BRAT is the way to go.
    I might get the stage of sipping my juice through a popper over a couple of hours, you know like 10 ml every 10 minute. We did this for my daughter when she had bad diarrhea 3 years a go, she ended up being admitted and dripped for a few days.

    I am really trying to think around the spare, I just spent $470 on this worlds best juicer and now I have told not to use it.

    My ONC is really sharp and she could probably tell just be looking at me if I have not done exactly what she said.

    Actually I think I'd brat and then juice.
    Pete

    Juicing
    Hi Pete,
    I know how psyched one can get with juicing, especially if you have the Bentley of Juicers. I have the Ford Edsel of juicers and when I'm doing the juicing, I really enjoy it. I'm pretty sure you can find common ground with it even if it means laying low on it for now (only for now) then getting back to it when it won't jeopardize your treatments.

    I personally believe there is a lot of good stuff in those fresh fruits and veggies. The thing is that they don't always know who the chemicals are going to react with the natural chemicals that are in the foods.

    On a slightly different note, I have heard that slightly cooking the veggies is actually better in some cases since it releases different properties of the foods.

    Now I don't usually offer this, but I could take the juicer off your hands for...let's say...$75? I mean, why let it sit around and collect dust?

    Be patient Pete.
    ;-)
    -p
  • John23
    John23 Member Posts: 2,122 Member
    Options

    IMNOEXPERT same here, good name for a club!!!
    thanks Phillieg,
    yeah agreed and BRAT is the way to go.
    I might get the stage of sipping my juice through a popper over a couple of hours, you know like 10 ml every 10 minute. We did this for my daughter when she had bad diarrhea 3 years a go, she ended up being admitted and dripped for a few days.

    I am really trying to think around the spare, I just spent $470 on this worlds best juicer and now I have told not to use it.

    My ONC is really sharp and she could probably tell just be looking at me if I have not done exactly what she said.

    Actually I think I'd brat and then juice.
    Pete

    Pete

    What type of ostomy do you have, colostomy or ileostomy?

    John
  • scouty
    scouty Member Posts: 1,965 Member
    Options
    Not heard that one before
    Yes diarrhea can kill you usually due to dehydration and severly lowered electrolytes both of which can be helped by juicing.

    It sounds like your onc is suggesting that or you might be getting an excessive vitamin C intake which can cause diarrhea with the osmotic comment (there are several kinds of chronic diarrheas, osmotic being one). She is I wouldn't mix any fruit with veggies other than an apple though. Some mixture of veggies can irritate your tummy too.

    I'm not sure what end result you are looking for with your juice (fighting cancer, rebuilding, maintenance, immune booster, etc.) but you might want to check out Cherie Calbom and Maureen Keane's book "Juicing for Life". There are actually juices you can make to help with the diarrhea. I'd make sure you knew exactly what specific concern your onc has first and then see if you agree. Wonder if she knows that the number one by far, cause of chronic diarrhea is food allergies! I'm not sure your particular juice has too much vit C either.

    If you are having diarrhea issues, drink plenty of fluids to prevent dehydration; avoid coffee, alcohol, and carbonated drinks. Digestion is assisted with warmth so that helps with the cold stuff from the Oxi. If you experiencing diarrhea, you should avoid dairy products. Let me know of you need anymore help with diarrhea (can't remember if you do Pete).

    Drink your juice on an empty stomach to get the best nutrient benefits. I juiced twice a day, Emily did it 8 times. I never drank more than 20 oz at a time and usually kept it @ 16 oz. WHERE IS EMILY?

    Good for you Pete for doing so much to compliment your chemo!

    Lisa P.
  • 2bhealed
    2bhealed Member Posts: 2,064 Member
    Options
    scouty said:

    Not heard that one before
    Yes diarrhea can kill you usually due to dehydration and severly lowered electrolytes both of which can be helped by juicing.

    It sounds like your onc is suggesting that or you might be getting an excessive vitamin C intake which can cause diarrhea with the osmotic comment (there are several kinds of chronic diarrheas, osmotic being one). She is I wouldn't mix any fruit with veggies other than an apple though. Some mixture of veggies can irritate your tummy too.

    I'm not sure what end result you are looking for with your juice (fighting cancer, rebuilding, maintenance, immune booster, etc.) but you might want to check out Cherie Calbom and Maureen Keane's book "Juicing for Life". There are actually juices you can make to help with the diarrhea. I'd make sure you knew exactly what specific concern your onc has first and then see if you agree. Wonder if she knows that the number one by far, cause of chronic diarrhea is food allergies! I'm not sure your particular juice has too much vit C either.

    If you are having diarrhea issues, drink plenty of fluids to prevent dehydration; avoid coffee, alcohol, and carbonated drinks. Digestion is assisted with warmth so that helps with the cold stuff from the Oxi. If you experiencing diarrhea, you should avoid dairy products. Let me know of you need anymore help with diarrhea (can't remember if you do Pete).

    Drink your juice on an empty stomach to get the best nutrient benefits. I juiced twice a day, Emily did it 8 times. I never drank more than 20 oz at a time and usually kept it @ 16 oz. WHERE IS EMILY?

    Good for you Pete for doing so much to compliment your chemo!

    Lisa P.

    I'm here honey! :-)
    Good for you that you're juicing in the first place. Sounds like you may need to educate your oncologist on juicing-Scouty has a lot of good info. Thankfully mine was open to juicing--especially since he got colon cancer himself and I got him to start juicing as well! WOOHOO! But I didn't do any chemo so I never experienced what you're going through.

    You may want to add probiotics as well since they help to restore your gut flora that chemo wreaks havoc on.

    Interesting that when folks have diarrhea from chemo they don't tell you to stop doing chemo which is killing your immune system (they just give you an anti-diarrhea pill) but they tell you to stop juicing which is building your immune system and helping you heal. Hmmm.

    Actually to set the record straight, I juiced 3 qts/day rather than 8 x's. It was not optimal but it was how I had to do it with 5 kids (homeschooling 3 of them and nursing a toddler). I based my protocol on The Gerson Method but had to combine amounts for less frequency.

    Now I do maintenance juicing of once a day from 16 - 32 oz still with flax seeds. I wonder what would happen if you added ground flax seed to your juice? At the time I also added protein powder, fruit pectin with the flax to my juice. Perhaps it would help create some bulk? And don't forget the probiotic!

    Hope this helps.

    peace, emily the juice chick
  • John23
    John23 Member Posts: 2,122 Member
    Options
    Pete -

    Well, I had to go way back to: http://csn.cancer.org/node/207506
    to learn that you have an Ileostomy.

    An ileostomy output is -always- more liquid than mass; "Gravy"
    consistency (at best) is to be expected.

    Your Ileum will only absorb a specific amount of liquid at any
    one time. If you drink a large amount of liquid all at once,
    or during a too short period of time, it will go right through
    and out into the pouch; It's that simple.

    You would be best to take in about 4 oz of water per hour,
    since more won't be of any serious benefit, and too much
    will run through faster, and can actually cause you to end up
    getting less water into your system. That is the nature of an
    Ileostomy.

    Many physicians are not aware of the nuances of an Ileostomy,
    and prescribe anti-diarrhea medications. It's foolish to do so,
    since it invariably causes more digestive problems.

    Trying to treat dehydration by drinking a lot of water at once,
    and too frequently, will cause you to dispel that water faster.

    When you get an Ileostomy, the ileocecal valve is removed.
    That valve is part of the colon. The valve serves two purposes:
    1. It keeps waste and bacteria from flowing from the colon, back
    into the ileum, and 2. It provides another way for your body to
    hold back passage of waste from the Ileum into the colon.

    Without that valve, the waste goes through at whatever speed
    it desires. An Ileostomate (like me) will go through periods
    of rapid and very frequent discharge. It's often called
    "the Dumping Syndrome".

    So drinking a lot of fruit juice, is no different than drinking a lot
    of anything; It will go through faster and look like what you remember
    as a diarrhea condition. It very rarely is, and medically treating it
    as such, is counterproductive. You don't fix a problem by adding
    another problem to the mix.

    For an Ileostomate, drinking one glass of High Pulp Orange Juice
    will usually slow down and thicken the output very rapidly.

    With an intake of 4 oz of liquid per hour, you should be able to
    remain hydrated, provided you are not already dehydrated.

    And attempting to check for proper hydration using methods
    geared for those with a complete digestive tract, is useless.

    By the time an Ileostomate sees a darker urine, or notices
    the skin remaining peaked when pinched, it is already too late;
    dehydration has already set in, and it is then -very- difficult
    to become rehydrated using only ingested liquids. An IV is
    usually the best way for an Ileostomate to become rehydrated
    if the condition has gone that far.

    So the bottom line (in my opinion)?

    It sounds like your taking in more liquid than your body can
    deal with at any one time, so it's purging it. If you continue,
    your body will go into a dumping syndrome, and can take
    a week or more to resolve itself. (been there; done that)

    Those that have not dealt with an Ileostomy, really do not
    understand the nature of one. Using methods designed for
    any individual that does not have an Ileostomy is not a
    very good idea.

    I hope I 'splained it ok?

    Best of health!!

    John
  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    Options
    John23 said:

    Pete

    What type of ostomy do you have, colostomy or ileostomy?

    John

    Hi John ileostomy
    I got a bag on the right side, hooray.
    But as we know its a **** for diarrhea
  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    Options
    lisa42 said:

    Pete-maybe add digestive enzymes?
    Hi Pete,

    Just a thought here- in addition to peeling your veggies and combining the BRAT diet with the juicing, perhaps taking a digestive enzyme would help with the digestion and possibly not cause more diarrhea. I know more liquid in= more liquid output, but give a thought to the digestive enzymes. I have met with a naturpathic/holistic gal twice now & she explained alot of things to me about the help of taking digestive enzymes. Diarrhea can often be caused by lack of absorbtion in our intestines.
    The enzyme I'm taking focuses on fats, carbs, and protein, so you'd have to google or ask at a health food store/vitamin store about digestive enzymes targeted at fiber and/or vegetables. I know there's something out there for that!
    "Regular" doctors never seem to know anything about these kinds of things, unfortunately, and they're hesitant to advocate patients doing anything they aren't knowledgeable about or that they think isn't "proven". Actually, digestive enzymes are proven to help with digestion issues for many people. People who have certain digestive diseases and also who have cystic fibrosis rely on digestive enzymes to stay alive. As a former teacher, I once had a student who had cystic fibrosis & he had to go to the office before lunch every day to take his enzymes. His mom told me, if he didn't, he'd get terrible diarrhea and wouldn't absorb any of the nutrients in the food he ate.

    Take care & maybe this will help!
    Lisa

    thanks lisa, my POO looks good
    I am looking for a natropath asap, but I wanted to find a goodone, but time is critical.
    I will be patient, the onc advice was to nuke my gut with

    breakfast 2 x gastrow stop and 2 x panadiene forte for the three days of chemo.
    so far so good, no bad diarrhea, actually the poo looks goods.

    I have had the similar comments from a naturopath by email. she is also a bit of a guru but live along way away.

    thankyou thankyou, thankyou

    pete
  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    Options
    scouty said:

    Not heard that one before
    Yes diarrhea can kill you usually due to dehydration and severly lowered electrolytes both of which can be helped by juicing.

    It sounds like your onc is suggesting that or you might be getting an excessive vitamin C intake which can cause diarrhea with the osmotic comment (there are several kinds of chronic diarrheas, osmotic being one). She is I wouldn't mix any fruit with veggies other than an apple though. Some mixture of veggies can irritate your tummy too.

    I'm not sure what end result you are looking for with your juice (fighting cancer, rebuilding, maintenance, immune booster, etc.) but you might want to check out Cherie Calbom and Maureen Keane's book "Juicing for Life". There are actually juices you can make to help with the diarrhea. I'd make sure you knew exactly what specific concern your onc has first and then see if you agree. Wonder if she knows that the number one by far, cause of chronic diarrhea is food allergies! I'm not sure your particular juice has too much vit C either.

    If you are having diarrhea issues, drink plenty of fluids to prevent dehydration; avoid coffee, alcohol, and carbonated drinks. Digestion is assisted with warmth so that helps with the cold stuff from the Oxi. If you experiencing diarrhea, you should avoid dairy products. Let me know of you need anymore help with diarrhea (can't remember if you do Pete).

    Drink your juice on an empty stomach to get the best nutrient benefits. I juiced twice a day, Emily did it 8 times. I never drank more than 20 oz at a time and usually kept it @ 16 oz. WHERE IS EMILY?

    Good for you Pete for doing so much to compliment your chemo!

    Lisa P.

    could not believe my ears either thanks lisa P
    my onc is a great onc, been ever so awesome, getting me oxali for free, saving me $4000 per fortnight, she I am pretty loyal to her, but I am also hooked on juicing.

    Surely 2 medium carrots, large a beetroot, dash of garlic, ginger, rashish, spanish onion, and celery. even if I added a small orange and an apple. Is this too much vitamin C ?

    I sipped my juice all morning and no issues today.

    Been off alcohol, coffee, soft drinks 6 months now. xcept for new years eve when I enjoyed a bottle of baileys. gee it was god.

    I'll get the book.

    thanks,

    Pete
  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    Options
    John23 said:

    Pete -

    Well, I had to go way back to: http://csn.cancer.org/node/207506
    to learn that you have an Ileostomy.

    An ileostomy output is -always- more liquid than mass; "Gravy"
    consistency (at best) is to be expected.

    Your Ileum will only absorb a specific amount of liquid at any
    one time. If you drink a large amount of liquid all at once,
    or during a too short period of time, it will go right through
    and out into the pouch; It's that simple.

    You would be best to take in about 4 oz of water per hour,
    since more won't be of any serious benefit, and too much
    will run through faster, and can actually cause you to end up
    getting less water into your system. That is the nature of an
    Ileostomy.

    Many physicians are not aware of the nuances of an Ileostomy,
    and prescribe anti-diarrhea medications. It's foolish to do so,
    since it invariably causes more digestive problems.

    Trying to treat dehydration by drinking a lot of water at once,
    and too frequently, will cause you to dispel that water faster.

    When you get an Ileostomy, the ileocecal valve is removed.
    That valve is part of the colon. The valve serves two purposes:
    1. It keeps waste and bacteria from flowing from the colon, back
    into the ileum, and 2. It provides another way for your body to
    hold back passage of waste from the Ileum into the colon.

    Without that valve, the waste goes through at whatever speed
    it desires. An Ileostomate (like me) will go through periods
    of rapid and very frequent discharge. It's often called
    "the Dumping Syndrome".

    So drinking a lot of fruit juice, is no different than drinking a lot
    of anything; It will go through faster and look like what you remember
    as a diarrhea condition. It very rarely is, and medically treating it
    as such, is counterproductive. You don't fix a problem by adding
    another problem to the mix.

    For an Ileostomate, drinking one glass of High Pulp Orange Juice
    will usually slow down and thicken the output very rapidly.

    With an intake of 4 oz of liquid per hour, you should be able to
    remain hydrated, provided you are not already dehydrated.

    And attempting to check for proper hydration using methods
    geared for those with a complete digestive tract, is useless.

    By the time an Ileostomate sees a darker urine, or notices
    the skin remaining peaked when pinched, it is already too late;
    dehydration has already set in, and it is then -very- difficult
    to become rehydrated using only ingested liquids. An IV is
    usually the best way for an Ileostomate to become rehydrated
    if the condition has gone that far.

    So the bottom line (in my opinion)?

    It sounds like your taking in more liquid than your body can
    deal with at any one time, so it's purging it. If you continue,
    your body will go into a dumping syndrome, and can take
    a week or more to resolve itself. (been there; done that)

    Those that have not dealt with an Ileostomy, really do not
    understand the nature of one. Using methods designed for
    any individual that does not have an Ileostomy is not a
    very good idea.

    I hope I 'splained it ok?

    Best of health!!

    John

    John , I love you mate, your posts are awesome and clear as MUD
    what a great explanantion.
    read every word twice.
    got the message.
    sipping and small volumes.

    One trip to ER with severe dehydration caused by diarrhrea was enough.

    By the way after I got home from ER, my daughter got diarrhea, she was stool sampled, the test came back rotavirus. I was santa claus at the preschool my sons goes on the friday before the diarrhea set in that weekend. so maybe the cause is a bug not chemo.
    The ileostomy has been working well under the heavy duty ONC treatment of 2 gastrow stop and 2 panadience forte morning and night for each chemo day. been doing this and the poos
    solid.

    Only joking about the MUD. I actaully understood it all.

    cheers,

    Pete