Jayne is still at home, treating her blockage and trying to avoid the ER
Jayne has a bowel obstruction and will probably be heading to the ER before long. She is hoping the doctors can resolve it quickly and send her home.
Carlene
Comments
-
Jayne
While not a personal friend of Jayne, I do follow her postings on Inspire and her blog. She is one amazing lady and this is just terrible. I cannot believe what she has been able to endure to stay alive.
While it does not look good, I am so hoping for a miracle for her. This is just not right.
While it is a bit selfish on my part, it is sometimes hard to read the boards each day. It is so hard to see this suffering, knowing that any one of us might be next... Jayne is certainly in my prayers tonight.. Ginny0 -
She is still posting onMK_4Dani said:Any status?
Bumping this up...does anyone have information? I am checking the blog and haven't seen an update. Praying for Jayne.
Mary
She is still posting on FaceBook, though not much - maybe once a day. This was her last post...
9 days till surgery (replacing 10 mth old stent); still on edge with blockage and refusing ER trip - yes; I'm hard headed; I can do this!
Yesterday she said...
So far so good; keeping my G-Tube open is working to stop uncontrollable vommitting; I do have a blockage and we are still on edge about going to ER; may have to after Doctor's appointment today....0 -
Wow,Hissy_Fitz said:She is still posting on
She is still posting on FaceBook, though not much - maybe once a day. This was her last post...
9 days till surgery (replacing 10 mth old stent); still on edge with blockage and refusing ER trip - yes; I'm hard headed; I can do this!
Yesterday she said...
So far so good; keeping my G-Tube open is working to stop uncontrollable vommitting; I do have a blockage and we are still on edge about going to ER; may have to after Doctor's appointment today....
she is quite the woman, a walking medical miracle. Such an inspiration. Did you have breast cancer too?
kathleen0 -
Breast Cancer??? Me??? No,kayandok said:Wow,
she is quite the woman, a walking medical miracle. Such an inspiration. Did you have breast cancer too?
kathleen
Breast Cancer??? Me??? No, thank goodness. One is more than enough.0 -
Thank you Carlene! I willHissy_Fitz said:She is still posting on
She is still posting on FaceBook, though not much - maybe once a day. This was her last post...
9 days till surgery (replacing 10 mth old stent); still on edge with blockage and refusing ER trip - yes; I'm hard headed; I can do this!
Yesterday she said...
So far so good; keeping my G-Tube open is working to stop uncontrollable vommitting; I do have a blockage and we are still on edge about going to ER; may have to after Doctor's appointment today....
Thank you Carlene! I will continue to lift her up.
Mary0 -
Here is her latest postMK_4Dani said:Thank you Carlene! I will
Thank you Carlene! I will continue to lift her up.
Mary
Here is her latest post (Thursday evening)...
Life's simple pleasures never seemed like so much! Still not out of the woods just yet and waiting to hear back from my doctor; not ready to go in (the hospital) just yet. Still being the stubborn woman that I am!0 -
For some reason,Hissy_Fitz said:Breast Cancer??? Me??? No,
Breast Cancer??? Me??? No, thank goodness. One is more than enough.
I can't get Jayn's blog, as hard as I've tried, so I can't read her story. It comes up as all kinds of Japanese. I noticed on her FB photo, she had had breast removal surgery, maybe that was preventive.
Just curious little me.
You are too funny, Carlene!
k0 -
Breast removal surgery???kayandok said:For some reason,
I can't get Jayn's blog, as hard as I've tried, so I can't read her story. It comes up as all kinds of Japanese. I noticed on her FB photo, she had had breast removal surgery, maybe that was preventive.
Just curious little me.
You are too funny, Carlene!
k
Are you sure? I don't remember reading/seeing anything about breast removal or breast cancer. In fact, I know she had at least one just a few months ago, because she lamented in one of her videos, where she was showing the tumor on her back, that she was trying not to expose her boob but if she did, there wasn't much to see because she is now so thin.
Jayne is so thin she can't have a port installed and has to have everything administered IV or via a stomach tube, in the case of her TPN feedings.
Have you tried a different browser? Maybe that would help with the blog problem. The videos make her story so personal, albeit very, very tragic at the same time.0 -
I am not sure,Hissy_Fitz said:Breast removal surgery???
Are you sure? I don't remember reading/seeing anything about breast removal or breast cancer. In fact, I know she had at least one just a few months ago, because she lamented in one of her videos, where she was showing the tumor on her back, that she was trying not to expose her boob but if she did, there wasn't much to see because she is now so thin.
Jayne is so thin she can't have a port installed and has to have everything administered IV or via a stomach tube, in the case of her TPN feedings.
Have you tried a different browser? Maybe that would help with the blog problem. The videos make her story so personal, albeit very, very tragic at the same time.
so that is why I was asking. One photo of the latest belly shots looks like she has two small incisions and no boobs! Anyway, I will ask the computer expert that I live with how to try and get this blog. Weird thing is that, several years ago, I never would have wanted to read about all this, but how things change. You are brave to be reading all this and so into the details only being a year out. That is the "tough cookie" in you I guess.
What I have read on her FB does inspire me to say the least. Praying for Jayne today.
K❥0 -
scarykayandok said:I am not sure,
so that is why I was asking. One photo of the latest belly shots looks like she has two small incisions and no boobs! Anyway, I will ask the computer expert that I live with how to try and get this blog. Weird thing is that, several years ago, I never would have wanted to read about all this, but how things change. You are brave to be reading all this and so into the details only being a year out. That is the "tough cookie" in you I guess.
What I have read on her FB does inspire me to say the least. Praying for Jayne today.
K❥
I'll be honest and say it scares the crap out of me. I read portions and can't bear the reality of it.0 -
It scares me, too. But Inancy591 said:scary
I'll be honest and say it scares the crap out of me. I read portions and can't bear the reality of it.
It scares me, too. But I have always been one of those people who has to have all the information, worst case scenario included. Plus I really like and admire Jayne. Hers is the most honest, heartfelt cancer blog I think I have ever seen. I would dearly love to meet Jayne, to sit down and talk to her for an afternoon. Of course, I feel that way about all of you, too. I have taken to referring to my CSN friends as "my girls". Gotta go log in and see how all my girls are doing. We are the sisterhood of the traveling angst.
Carlene0 -
You give me way too muchkayandok said:I am not sure,
so that is why I was asking. One photo of the latest belly shots looks like she has two small incisions and no boobs! Anyway, I will ask the computer expert that I live with how to try and get this blog. Weird thing is that, several years ago, I never would have wanted to read about all this, but how things change. You are brave to be reading all this and so into the details only being a year out. That is the "tough cookie" in you I guess.
What I have read on her FB does inspire me to say the least. Praying for Jayne today.
K❥
You give me way too much credit, Kathleen. I'm not particularly brave, but I do identify with this woman, who truly is brave, and i feel somehow like sharing the experience with her, via the Internet, is good for both of us.
I guess the devil really is in the details. One of the first things I went looking for, after I was diagnosed, was what happens at the end. I guess I can't shake the notion that knowledge is power - even really unpleasant knowledge.
Carlene0 -
You are brave !Hissy_Fitz said:You give me way too much
You give me way too much credit, Kathleen. I'm not particularly brave, but I do identify with this woman, who truly is brave, and i feel somehow like sharing the experience with her, via the Internet, is good for both of us.
I guess the devil really is in the details. One of the first things I went looking for, after I was diagnosed, was what happens at the end. I guess I can't shake the notion that knowledge is power - even really unpleasant knowledge.
Carlene
Carlene you are right sharing our experiences is good for everyone . When I read your posts I always feel better so many times you say exactly what I am thinking. I am also wanting to know more about what happens at the end of this hopefully long journey. I hope your friend Jayne feels better soon but why can't they address her pain? I have lived with terrible back pain for a long time and now it is under control at a pain clinic but whatever happens to me I am willing to do anything to save my life but I am unwilling to put up with terrible pain unless doing so will save or extend my life. Thanks for listening as my family and friends think you can't ask these questions and still be hopeful.I am very hopeful but like you I think the more you know the better.
Colleen0 -
Colleen...Jayne has a painCafewoman53 said:You are brave !
Carlene you are right sharing our experiences is good for everyone . When I read your posts I always feel better so many times you say exactly what I am thinking. I am also wanting to know more about what happens at the end of this hopefully long journey. I hope your friend Jayne feels better soon but why can't they address her pain? I have lived with terrible back pain for a long time and now it is under control at a pain clinic but whatever happens to me I am willing to do anything to save my life but I am unwilling to put up with terrible pain unless doing so will save or extend my life. Thanks for listening as my family and friends think you can't ask these questions and still be hopeful.I am very hopeful but like you I think the more you know the better.
Colleen
Colleen...
Jayne has a pain pump implanted in her belly, which delivers constant, albeit small doses of Morphine into her system. Regrettably, she still has breakthrough pain.
Jayne has very late stage recurrent Ovarian Cancer. She has had 6 or 7 surgeries and is plagued with gastrointestinal issues. She cannot digest food and is fed thru a tube, once a day. She has large mets, one in her belly and one in her back, which are very visible (due to her emaciated state), and which she has named Sarah Palin and Meg Whitman (Jayne lives in San Jose).
I have added you as a friend and sent you a message. Not everyone wants to read about end of the journey issues, so I'm not going to post an answer to your other question here.
Jayne was diagnosed almost 8 years ago, with Stage IIIc OC.
She writes a blog called "shopping kharma". http://shoppingkharma.blogspot.com/
I warn you, however, it's very graphic and very intense, especially for other OC patients.
Carlene0 -
Jayne's last post as of 9-18-2010Hissy_Fitz said:Here is her latest post
Here is her latest post (Thursday evening)...
Life's simple pleasures never seemed like so much! Still not out of the woods just yet and waiting to hear back from my doctor; not ready to go in (the hospital) just yet. Still being the stubborn woman that I am!
This is the lastest from Jayne....
I promise to give updates soon! For now we are staying out of the hospital; I finally got a good night's sleep last night (1st one in days), the drainage is slowing down drastically and I just start ed farting which I haven't done in weeks! You better believe I am treasuring those as a sign that my intestines will start to work and that my life is not done here yet!0 -
hissy fitzHissy_Fitz said:Breast removal surgery???
Are you sure? I don't remember reading/seeing anything about breast removal or breast cancer. In fact, I know she had at least one just a few months ago, because she lamented in one of her videos, where she was showing the tumor on her back, that she was trying not to expose her boob but if she did, there wasn't much to see because she is now so thin.
Jayne is so thin she can't have a port installed and has to have everything administered IV or via a stomach tube, in the case of her TPN feedings.
Have you tried a different browser? Maybe that would help with the blog problem. The videos make her story so personal, albeit very, very tragic at the same time.
I just came across your posting i am knew to this but am reading,asking research anything because my mom is adv ov cancer.She has a g tube also and a tpn,no energy at all,no food since january,my dad is her aid and shes just waisting away,very stubborn and he has no way of getting info so i am doing all i can.i fly up to boston to go to see the drs w him and am on oct 5th,i dont know jayne but some things sound alot like what my mom is going through shes had so many surgeries,and i just dont think shes getting everyrthing she should get,Boston is supp to be one of the best(i dont want to name hosp)and my mother wasa dr and professor of nursing so of course they say "they like to take care of their own" but now that has seemed to fizzle out after shes had everything removed,put on drugs,tubes changed,stint,blockage and complic from that,i dont know what i am asking ,i guess any insight,information i know its alot to ask or maybe you could just point me in the right direction,tryn to find someone who is going through or knows about or has overcome the same thing.Is there anyone that has?I Feel for Jaynes situation,i dont know her but i can relate because of my mothers place in this disease.GOD BLESS JAYNE,i will pray to St Jude for her,and St Peregrine and of course the Blessed Mother. My heart and prayers go out to Jayne. As well as everyone who suffers. "When i am without pain,help me to remember those who suffer; and remembering,help me to destroy complacency & bestir my compassion.Make me concerned enough to help,by word & deed,those who cry out for what we take for granted" Samuel F.Pugh Lord please hear the cries and help jayne & the thousands of others who are in need & also in pain. thank you K.S0 -
KS.....I sent you a message8isenough said:hissy fitz
I just came across your posting i am knew to this but am reading,asking research anything because my mom is adv ov cancer.She has a g tube also and a tpn,no energy at all,no food since january,my dad is her aid and shes just waisting away,very stubborn and he has no way of getting info so i am doing all i can.i fly up to boston to go to see the drs w him and am on oct 5th,i dont know jayne but some things sound alot like what my mom is going through shes had so many surgeries,and i just dont think shes getting everyrthing she should get,Boston is supp to be one of the best(i dont want to name hosp)and my mother wasa dr and professor of nursing so of course they say "they like to take care of their own" but now that has seemed to fizzle out after shes had everything removed,put on drugs,tubes changed,stint,blockage and complic from that,i dont know what i am asking ,i guess any insight,information i know its alot to ask or maybe you could just point me in the right direction,tryn to find someone who is going through or knows about or has overcome the same thing.Is there anyone that has?I Feel for Jaynes situation,i dont know her but i can relate because of my mothers place in this disease.GOD BLESS JAYNE,i will pray to St Jude for her,and St Peregrine and of course the Blessed Mother. My heart and prayers go out to Jayne. As well as everyone who suffers. "When i am without pain,help me to remember those who suffer; and remembering,help me to destroy complacency & bestir my compassion.Make me concerned enough to help,by word & deed,those who cry out for what we take for granted" Samuel F.Pugh Lord please hear the cries and help jayne & the thousands of others who are in need & also in pain. thank you K.S
KS.....I sent you a message thru the CSN email/message service.
Carlene0 -
Thank God for Farts!Hissy_Fitz said:Jayne's last post as of 9-18-2010
This is the lastest from Jayne....
I promise to give updates soon! For now we are staying out of the hospital; I finally got a good night's sleep last night (1st one in days), the drainage is slowing down drastically and I just start ed farting which I haven't done in weeks! You better believe I am treasuring those as a sign that my intestines will start to work and that my life is not done here yet!
I think all of us can attest to the fact that we appreciate our less desirable bodily functions more now than ever! Jayne has been in my prayers (along with everyone else) and I am glad to hear that she is gassy!
Farting become a topic of conversation in my classroom when one of my students farted (apparently one of those lethally odiferous types) and everyone responded with snickers and gagging. Imagine the immediate change in their reactions when I informed them that farting was, in fact, quite healthy and my doctors wouldn't let me eat any food until I farted in the hospital! Ever since then, farts garner a comment or two, but not the total disruption that they used to cause!
So, tell Jayne... Yay for farts! God Bless!
Leesa0
Discussion Boards
- All Discussion Boards
- 6 CSN Information
- 6 Welcome to CSN
- 121.2K Cancer specific
- 2.8K Anal Cancer
- 440 Bladder Cancer
- 306 Bone Cancers
- 1.6K Brain Cancer
- 28.4K Breast Cancer
- 391 Childhood Cancers
- 27.9K Colorectal Cancer
- 4.6K Esophageal Cancer
- 1.2K Gynecological Cancers (other than ovarian and uterine)
- 12.9K Head and Neck Cancer
- 6.3K Kidney Cancer
- 666 Leukemia
- 789 Liver Cancer
- 4.1K Lung Cancer
- 5.1K Lymphoma (Hodgkin and Non-Hodgkin)
- 235 Multiple Myeloma
- 7.1K Ovarian Cancer
- 53 Pancreatic Cancer
- 486 Peritoneal Cancer
- 5.3K Prostate Cancer
- 1.2K Rare and Other Cancers
- 532 Sarcoma
- 717 Skin Cancer
- 647 Stomach Cancer
- 190 Testicular Cancer
- 1.5K Thyroid Cancer
- 5.8K Uterine/Endometrial Cancer
- 6.3K Lifestyle Discussion Boards