Aug 17, 2010 - 10:30 pm
I had the most bizarre appt with Radiologist today. I'm 3 months post treatment. I went in to Rad's office for follow-up. This Rad did not examine me once during my whole entire 6 weeks of treatments meaning she never saw any of my burns. Now, she examined me after everything had healed up. When I told her about the problems I had with painful bowel movements (which have now improved significantly) and about my severe vaginal stenosis, she looked at me in astonishment like she never heard of these problems occurring with radiation. Secondly, she told me that there is no sign of tumor - the cancer is gone. I asked her how she knew...did she review printouts from the treatments or something? She told me because she looked at the area around my anus and everything looked like it healed up nicely. She said that she could tell by looking that the tumor was gone! Thirdly, she said there was no need to do a CT scan because the tumor never showed up on the 1st CT Scan to begin with because the tumor was very small (2cm). When I mentioned to her that I spoke with some other anal cancer survivors who mentioned PET Scans, she said, "Oh yeah, that's a good idea. I'll go ahead and schedule you to have one done in 4 months." FOUR MONTHS?!!!!! Is that normal? That means that I won't have any scans done until I'm 7 months post treatment. According to most of the discussions I've read, it seems that everyone else has had a PET Scan or CT Scan somewhere around 3 months! Does that seem normal to you? I don't feel very confident about my appt today. I'm more worried now than ever. She didn't seem to believe me about the vaginal stenosis because she said that vag sten does not even start occuring until around 6 months after treatment has finished. I'm so confused!