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Care Giver Recognition Week - Per Kimba's Post

Skiffin16's picture
Skiffin16
Posts: 8100
Joined: Sep 2009

I wanted to let you all see my care giver since Kimba had such a great post and response.

I changed my profile photo, this photo is of my lovely wife and care giver ~ Shelley....I know that it wasn't easy. Believe it or not, LOL, I can be quite the Butt-Hole when I'm irritated and don't feel well. Something that we all go through under these conditions.

Anyways, this was taken a few weeks ago while on an outing at the beach and a local beach-dock eatery. Her name is Shelley and those that are on our Face Book, know we are both pretty humorous. She has to have a sense of humor to be married to me...we've been together for 18+ years now.

BTW, I'll probably get into trouble for this photo, she doesn't like it. But to me, it shows that inner beauty that she tends to protect most of the time.

Best to you all, let's see a week of your care givers on your profile.
John

Landranger25's picture
Landranger25
Posts: 208
Joined: Nov 2009

John, not sure why she wouldn't like it. I think it's a great pic. Like you I feel blessed that I have such a wonderful wife and friend to see me through this tough time. I'm sure you'll agree it was dark days for a time. I hope the sun stays out for you and Shelly for a long time to come. Take care.

As always, 4 months behind you, Mike

Glenna M's picture
Glenna M
Posts: 1580
Joined: May 2009

Shelley is a very beautiful woman and I especially love her smile. It is such a genuine smile, you can tell she was not posing for this picture, this smile comes from the heart. She sounds like a wonderful person so you'd better treat her right ;-) But, then again, I have the feeling that she can handle you quite nicely.

I'll have to see if I can dig up a pic of Bob, my husband, and I will post it for a week. Then I have to go back to my dog's pic cuz I love him as much as I love my husband - lol.

Tell Shelley this is a beautiful picture and she should be proud of it.

Take care,
Glenna

Skiffin16's picture
Skiffin16
Posts: 8100
Joined: Sep 2009

Yes, that's what I like most about it, I got her in a natural emotion and not posed....her true self.

Yes, she definitely keeps me inline, LOL....

I'll have to stick a photo up of Kali and Jasmine, our two Chocolates....check out Jasmines toothy grim on FB today.

JG

Glenna M's picture
Glenna M
Posts: 1580
Joined: May 2009

John, I have already checked out the pics of Kali and Jasmine, I love dogs and especially enjoyed your pics because I now know that I am not the only one who spoils their dogs ;-) I love the pic of them stretched out on the couch while you had to sit on the very edge. It reminds me of when I go to bed at night, I'm practically falling out of bed because "my boys" are all stretched out and snoring. Jasmine also has a beautiful smile ;-)

Glenna

Skiffin16's picture
Skiffin16
Posts: 8100
Joined: Sep 2009

No, tell me it isn't so, LOL.....

Skiffin16's picture
Skiffin16
Posts: 8100
Joined: Sep 2009

LOL, this is already getting a little weird, LOL...Seeing Shelley in my profile photo, and your husband for you, I feel like one of those chat rooms with posers, LOL....but fun.

JG

Glenna M's picture
Glenna M
Posts: 1580
Joined: May 2009

I know, I'm so used to seeing your picture but I have to say that Shelley is much prettier - lol. Is it showing a picture of my husband??? I tried to change it several times but it is still showing my dog for the pic.

If we all change our pics to our significant others it will really get confusing, interesting but confusing ;-)

Stay well,
Glenna

Greg53's picture
Greg53
Posts: 830
Joined: Apr 2010

I always like when people post their pics. Easier to remember them and when I'm thinking about this site when I'm not on it, I can picture all my new friends when I get a little down. But with Shelley and Claire's pics on there, all I can imagine is John and Mick's voices coming out of the girls mouths....Yes I am weird and that was almost frightening. LOL.

Another great thread Skif!

Best
Greg

PS- Glenna, I can't see Bob, unless he's wearing a necklace and drools a lot

Glenna M's picture
Glenna M
Posts: 1580
Joined: May 2009

Greg - LOL, Bob does drool a lot (in his sleep ;) but isn't into jewelry. Yesterday when I first changed the picture it didn't show up, today it shows the pic of Bob. Weird!!!

You are too funny, now I will see Shelley's picture and imagine John's voice. Love your sense of humor!!!

Glenna

Kimba1505's picture
Kimba1505
Posts: 557
Joined: Apr 2010

John,
I only see a picture of you. Shelley is not showing up on my computer. :(
Kim

rozaroo
Posts: 667
Joined: Apr 2010

This is a lovely photo of Shelley! Thank you for sharing!

micktissue's picture
micktissue
Posts: 432
Joined: Dec 2009

Wow John, your post made me cry just about instantly. I was thinking all week about how to respond to Kim's powerful post. I really had nothing to offer that everyone else already covered. At the sight of Kelly though, somehow I was moved to tears and I think it has something to do with connecting with the pain, frustration, disappointment, fatigue, stress, and all the other things our caregivers have held with and for us. Their commitment to us is a testament to love and the depth of feeling I have around this is huge. I am so deeply grateful.

My wife Claire (pictured here) has been/is amazing. I have alluded before to how cancer saved our marriage as it allowed us to refocus on what is important. I am a better person to have this selfless soul as my partner.

My friend Noah, pictured in my expressions, is another selfless soul who stayed with me in hospital and visited every day for weeks as he commuted 100 miles a day between San Francisco and Sonoma. His care and wit and strength and understanding helped me through some difficult moments.

I love them and thank them. I also love and thank this community. All your thoughts and prayers (yep I'll take 'em) have meant so much to my strength through treatment and recovery.

Thanks Kim for keeping it real and thanks John for your excellent post and suggestion.

Best,

Mick

RushFan's picture
RushFan
Posts: 218
Joined: Aug 2010

Here we are on my last day of treatment, about to ring the bell.

Linda and I have been married almost 15 years. She's a stay at home mom with a master's degree in entomology. We have four really great kids...Sarah is 10 years old, Grant & Paige are 7 yrs. old and Bryce is 3 yrs old.

Linda has never waivered in her care for me and our family. The kids haven't missed a beat this summer with art camps, science camps, trips to the pool, sleep-overs, even flew with all four to Oregon for a family reunion...You name it, she has done an unbelievable job keeping "normalcy" in our home. We have worried about our kids and their feelings / perceptions about my cancer. We have answered their questions and kept them in the loop with this challenge.

As for me, I am in awe of her caring, organization and attention to detail with the kids, my diagnosis, treatment and care. We took turns driving...and then she drove me to every appointment when I was a mess. She was always prepared with questions, taking copious notes at each appt. Our care team knows who we are; Linda can do some serious baking, and provided treats to our team all along the way.

I could go on and on...the bottom line is that I'm so fortunate to have her in my life, I'm a better man because of her. I love my Linda.

Greg53's picture
Greg53
Posts: 830
Joined: Apr 2010

My Care Giver, My Wife, My Best Friend, the Love of My Life!!!! And we just celebrated 29 years of marriage last week. (I'm still amazed she puts up with me). She's the best!!!

Greg

Kimba1505's picture
Kimba1505
Posts: 557
Joined: Apr 2010

All the new pictures are coming through, but seeing them clearly is difficult in that my eyes are filled with tears. You ALL are amazing BEAUTIFUL people!!!!
Thank you John for starting this thread!
Kim

Skiffin16's picture
Skiffin16
Posts: 8100
Joined: Sep 2009

Thanks Mick, Kim, Glenna an all, it is nice to see the beautiful people that are involved in our lives....

debbiejeanne's picture
debbiejeanne
Posts: 2590
Joined: Jan 2010

John and all, I want to say God bless all our caregivers. You were just as important to our healing as our treatments were. I personally could NOT have done it w/o the help of my mate. I would have been lost w/o all his love and care.
Now I'm gonna blow your minds, my mate is my EX husband. We still live together as tho we are married and we are best friends. I know that's strange but it works for us.
Anyway, thank you to all you caregivers. You could never realize what a vital part you played or are playing in fighting this nasty disease.
Thank You!! Thank You!! Thank You!! Thank You!! Thank You!! Thank You!! Thank You!!
Very Sincerely,
debbie jeanne

Skiffin16's picture
Skiffin16
Posts: 8100
Joined: Sep 2009

Sometimes the unconventional is the method that works best.... In your situation it could be thought that what you now have allows a more true commitment.

Anyways just a thought on the unconventional.

People tend to think that Shelley and I have a strange relationship concerning bills an banking.

Shelley and I still have and maintain separate checking and savings accounts (she is on my accounts and I hers). She pays for her expenses as for her car, insurance and personal bills, as do I with mine. She pays for some of the common bills and groceries, I pay a few common bills and the mortgage PITI. I don't give her any grief on what she spends her extra money on, an the same with her with me.

Anyways, LOL...just something that works well for us....

John

lady4darknight's picture
lady4darknight
Posts: 90
Joined: May 2010

I think it's great to post pictures of those who we couldn't have made it without, our caregivers. Here is a picture of Joey taken 2 summers ago. I love the care free laugh he has here. I know I don't deserve him sometimes, but I am sure glad he never gave up on me. Thank you Joey for always being there through the extra parts(lol), bald spots, vomiting, blood draws, and especially the mood swings. And an extra hug to my son Max..he was the one in the cap and gown that was in my old pic. 18 years old and yet he stepped in when Joey was working and couldn't be there. Not many kids can do that and still graduate with honors. God Bless our caregivers..all of them.

Debbie

wifeforlife
Posts: 189
Joined: Feb 2010

this is me... and my wonderful husband.

Skiffin16's picture
Skiffin16
Posts: 8100
Joined: Sep 2009

All of these photos ae great....

Glenna, for some reason, yours is back to your yellow lab.

Ladyfordarknight, isn't showing a photo for me this morning.

I know when I did mine it took a few tries. You (or at least I) had to delete my old one first, save with no photo, then put my new photo in. It said it updated, but had the old photo. I had to close the page, then open it again before it showed my new photo.

JG

Glenna M's picture
Glenna M
Posts: 1580
Joined: May 2009

This is getting a little strange ;-) For me it is showing the picture of Bob but I also see no picture for Lady4darknight. I had the same problem loading a new picture, tried it about 4 times and finally logged off, shut my computer down and then it finally showed the new picture.

It's funny because Bob plays poker on AOL everyday and sometimes his avatar would show up as a woman when he never changed it. His poker buddies have fun with him everytime this happens.

I am finally getting the results from my latest CT scan this afternoon and I'm starting to get a little nervous. Actually, A LOT nervous ;-) I know I have no control over what the results will so I'm trying to stay positive!!!

Hope everyone has a great day!!!
Glenna

debbiejeanne's picture
debbiejeanne
Posts: 2590
Joined: Jan 2010

John, that's how Jr and I are also. We put our names on each other's account so if we died, the state could not step in and take anything. People do think it's strange but like you said, it works. :0)
God bless,
debbie

Hondo's picture
Hondo
Posts: 5881
Joined: Apr 2009

Great post, I would fear to live through this with out my friend and companion by my side. I could not have made it with out her.

Hondo & Koreen

Skiffin16's picture
Skiffin16
Posts: 8100
Joined: Sep 2009

Nice to hear from you, hope your company is not suffering from the effects of the BP spill. I'm pretty disgusted with this whole mess, especially from the ecological view and devastation to the estuaries and wet lands where the major breeding of fish and crustaceans take place....

Hoping it doesn't also mess up the fishing and future fishing due to migrations and residual.

Good to hear from you friend....

Glenna, you are in our prayers today (as always)....be positive...and I know that is much harder to do than to say.

Best,
John

Hondo's picture
Hondo
Posts: 5881
Joined: Apr 2009

I just hope it don’t mess the fishing up in Tampa as I am still looking for that trip with you someday.

Lovely picture of the wife, it would be so nice to be able to meet everyone in person someday.

Thanks
Hondo

Skiffin16's picture
Skiffin16
Posts: 8100
Joined: Sep 2009

Fishing hasn't been effected to this point...boat is waiting. As a matter of fact, I'm taking it out tomorrow (making sure it's ready for you)....LOL actually you know me, I'm out nearly every week-end (if I get my yard chores down for the girls during the week).

Fishing has been a little slow in some areas this year due to the longer and lingering winter that we had (compared to our usual few days, LOL).

How is Chef, have you spoke to him lately, please let him know the boat is open for his trip to Tampa as well. He is still in our thoughts and prayers as is his children.

Best,
John

staceya's picture
staceya
Posts: 702
Joined: Jan 2010

Caregiver week..What a wonderful idea! I was wondering what was going on with the pictures!
My husband, Scott was wonderful. After working in a plywood mill and then having shoulder surgery this summer, he has taken care of me and done the cooking, cleaning, laundry...
He always made sure that I ate, encouraged me to sit with them at meals and to just try even if I did not feel like it. It has been amazing!!
Stacey
I have a better px than this taken a few days ago, but it is on his sister's camera...

stevenl's picture
stevenl
Posts: 587
Joined: Jan 2010

I would have posted much sooner here but I couldn't see the new pictures. Finally, after restarting my computer 3 times I just refreshed this page and everything worked. John, this truly was a great idea. It is pretty much the reason my wife has been included in my pic almost the whole time I've been on here. Without her I would not have made it. As for everyone else who has posted here it is great to get to know you a little better through the photos. Makes it feel like more of a family.

Best to all,
Steve

lady4darknight's picture
lady4darknight
Posts: 90
Joined: May 2010

Okay, well after 4 tries here is the picture of Joey...sorry for the lack of picture. Guess i thought it had showed up. I also have a picture on my expression page of Joey and Max at graduation. They are my 2 special caregivers as you all know.
Debbie

Skiffin16's picture
Skiffin16
Posts: 8100
Joined: Sep 2009

I love seeing all of your photos, like mentioned, you all are like family....LOL, better in a lot of ways.

Best to you and yours,
John

Scambuster's picture
Scambuster
Posts: 975
Joined: Nov 2009

Well here is my little girl & better half who stood by me through this journey and gave birth to our little boy between my surgery and rads/ chemo starting. Our little girl is about to turn 3 & our little boy about to turn 1 next week so it's a bittersweet anniversary.

Scam

Skiffin16's picture
Skiffin16
Posts: 8100
Joined: Sep 2009

Great photo, it's all good Scam....

The experience has left you with such a great love for life and your children are testimony to that, they are a part of your legacy.

Best Always,
John

miccmill's picture
miccmill
Posts: 247
Joined: May 2010

Here's my guy.

I don't have a picture of the two of us that I like so I cropped myself out and he's not happy with any recent pictures so this is an old one.

micktissue's picture
micktissue
Posts: 432
Joined: Dec 2009

Greta photo Scam.

Best,

Mick

PS - How's the Taylor treating you?

Kimba1505's picture
Kimba1505
Posts: 557
Joined: Apr 2010

Hondo,
I have always been struck...in your picture Koreen always "has your back". Love it!
Kim

JUDYV5's picture
JUDYV5
Posts: 392
Joined: Jun 2010

I was able to get a picture of my husband and myself. It was taken by our daughter on Panama City Beach about a month ago. He dragged me to our daughter's softball tournament. He announced that I could sit on the couch at home and watch TV or sit in a condo by the beach and watch TV. He was right. I just needed a kick in the... to start living again.

Skiffin16's picture
Skiffin16
Posts: 8100
Joined: Sep 2009

We like that area...we usually vacation at least once a year up on St. George Island.

John

Scambuster's picture
Scambuster
Posts: 975
Joined: Nov 2009

New Taylor is great thanks and luvin' it. .It really is a beautiful instrument ... ( Scam got a new guitar ;0) Oh Yeah...went on Micks recommendation and scored a beauty).

Not having played regularly in a good while, my fingers are hurting but they will soon be hardened up. I need to go online and revisit some songs as and chords as I have forgotten so many..Chemo Brain or maybe just getting older.

Cheers
Scam

staceya's picture
staceya
Posts: 702
Joined: Jan 2010

Have you ever seen the you tube video- United Breaks Guitars?
It is about a guy whose Taylor guitar is mishandled. The video is hysterical.

Below is a link that may or may not work..

http://www.youtube.com/watch?v=5YGc4zOqozo

Stacey

Scambuster's picture
Scambuster
Posts: 975
Joined: Nov 2009

Hi Stacy,
Unfortunately, the 'Great Fire Wall of China' has blocked youtube and many other sites. I did hear about the incident though about the 'Friendly Skies' not being so friendly with the guys guitar, and then not caring about the aftermath. I fly a lot and airlines are generally negligent when it comes to customer care. I won't get started. Airline horrors stories are boring and these days, I am just thank full if they land the bird safely.

Now that I hear it was a 'Taylor' that was mishandled, I will have to get my VPN fired up and break through that firewall and watch the clip ! The name 'Taylor' has a new meaning to me now. It's a new breed of exceptional guitars and will now rank with Martin, Gibson and Maton.

Scam

staceya's picture
staceya
Posts: 702
Joined: Jan 2010

The video is TOO funny..do find a way to watch it....

Dragons7-7-2010's picture
Dragons7-7-2010
Posts: 79
Joined: Aug 2010

I posted my 11 1/2 year old greyhound alice to my profile photo.

Alice was diagnosed with osteocarcinoma (cancer of the shoulder bone) one week after my initial diagnosis. Yet she refuses to give up and follows me around the house to make sure I am ok. I know to some she is just a dog with cancer. But to me Alice is my 24 hour caregiver, my rock, the giver of unconditional love and devotion. I feel like we are going through the scary time together. And who knows maybe I will learn something from her stoic nature and the fact that though she is in pain Alice takes a moment every day to do her favorite things, she wakes up to stretch, take time to play: toss the stuffed animal, stare out the window and bark at squirrels. And if I cannot sleep Alice stays up to make sure I am on. And if I am on the computer too long she comes and checks on me.

While I have great friends helping me deal with my diagnosis, my friend Peggy has gone to all my doctors appointments except one and that one she only missed because her nephew had appendicitis which required emergency surgery and his mom was 3 hours away. Two sisters who call or text me each day. Along with my college roommate who texts every chance she gets.

What would wedo without the internet, without cell phones and without the ability to text.

Thinking positive thoughts for tomorrow's appointment wth the medical onoloist.

~ E

PS: I came up with my profile name Dragons 7-7-2010 as it is a play on the expression "Here there be dragons" which is a phrase used to denote dangerous or unexplored territories. Well for me since cancer was the last thing I expected when I went to the doctor, and this all seems like dangerous and unexplored territory. And since the initial needle biopsy which revealed my tonsil cancer was 7.7.2010 I felt it relevant.

debbiejeanne's picture
debbiejeanne
Posts: 2590
Joined: Jan 2010

E, I completely understand about Alice, I feel the same way about my
Sara. She was with me also. My hubby was too but Sara also slept with me everynight. I'm very sorry to hear that she also has cancer. I had to put my last cocker spaniel down for brain cancer. It was heart wenching. I pray for you and her, because I KNOW HOW IMPORTANT OUR DOGS ARE!!!!!!
God bless you and Alice,
Debbie

Caring4Dad
Posts: 1
Joined: Aug 2010

Hi, I am new to the group and wanted to introduce myself. I'm not sure if this is the right place, but here goes... I am taking care of my father who has stage iv squamous cell carcinoma-head and neck. He survived five years without treatment after opting for holistic treatment. Over the last year he began to deteriorate and really just waited too long to do something about it. Now he weighs 118 lbs, has a tracheotomy and a PEG tube. He has begun chemo and radiation, but his prognosis is not good. I am trusting God for a miracle though.

I felt sad as I read these posts, because my mother has not been supportive of my father; she has run in the other direction because she cannot handle his illness. Because of this, I have had to leave my job and come home to care for him. It is bittersweet. I treasure this time with my father, but it has crushed my heart to see him sufferring. It has also hurt and angered me to witness my mother's disregard of him.

Right now I am focused on my father's diet and making food for his PEG tube. I look forward to all that I can learn from the others on this site. Thank you for allowing me to introduce myself. I look forward to getting to know you all more.

God bless you all!
Michelle
P.S. I also love Kimber's smile. Her smile makes me smile!

Skiffin16's picture
Skiffin16
Posts: 8100
Joined: Sep 2009

You have a family here.....

I love everyone's post, comments and photos....

Best to you and family,
John

stevenl's picture
stevenl
Posts: 587
Joined: Jan 2010

Hi Michelle,

I am glad you found your way here and sad about your father. He is lucky to have a daughter like you. Continue to post here with questions and the great folks here will do all they can to answer them based on their own life experiences. Truly an amazing group here. I will include you and your parents in my prayers.

Best,
Steve

P.S. You may want to start a new thread and reintroduce yourself and more people will see it.

Kimba1505's picture
Kimba1505
Posts: 557
Joined: Apr 2010

...so she can get the full welcome.

debbiejeanne's picture
debbiejeanne
Posts: 2590
Joined: Jan 2010

Michelle, I'm sorry to hear about your dad and the extra pressure you are dealling with. I just wanted to welcome you here and let you know that we will ALL be PRAYING for You, your dad and you mother. This is a good place to be with his dx. The information is great.
God bless you all,
debbie

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