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HELP PLEASE, NEED SOME ANSWERS - symptons, did you have these and SHOULD I BE WORRIED?

debbiejeanne's picture
debbiejeanne
Posts: 2590
Joined: Jan 2010

Hi, all. I am 9 months post 35 rad treatments. I felt good a while back but it seems i have new symptons that are starting to worry me. I would appreciate if you could let me know if you have any of these this far out of trmnt and could they indicate trouble. The symptons are:
mouth (cheeks and roof) burns when I eat or drink

tounge feels raw and hurts

nose burns as though I got water in it

no memory (I honestly can' remember yesterday to well as well as many conversations I've had)

i get very dizzy at times

starting to studder

can't pronounce some words (this just happened when I tried to say symptons)

some foods won't go down when I swallow, it goes like half way then stops, I end up having to cough it up

when I chew gum (to keep my mouth moist) I cough the whole time it is in my mouth (feels like something is dripping into my throat

food is getting stuck at last once a day when before it didn't get stuck but maybe 1 time a week

when eat something the first bite tastes good but after that, I can't eat it

I would greatly appreciate any and all reponses. Thank you in advance.
God bless you,
debbi

Kent Cass's picture
Kent Cass
Posts: 1747
Joined: Nov 2009

about those symptoms, Debbie. The dizziness and studdering, speaking, and memory things- really think you should take these, and the other symptoms you mention, to a Dr.: Onco or ENT. You have headaches? 9-months out, your condition should be improving, rather than getting worse in all those ways.

kcass

debbiejeanne's picture
debbiejeanne
Posts: 2590
Joined: Jan 2010

HAS ANYONE ELSE HAD A PROBLEM WITH YEAST ON THE TOUNGE?

I just returned from the ent. I read him an entire list of problems and he checked my mouth and throat. He said the only thing wrong is that I have yeast on my tounge. I don't know if I buy that or not but guess I have no choice. He was rated in the top 10 docs both 2008 and 2010 so maybe I just worry too much.
I have an appt with my nureosurgeon for the other symptons. I had a brain turmor (not cancerours) about 15 yrs ago and they discovered during surgery that there is something in my middle brain that they couldn't mess with due to its location. Maybe its that as far as my memory goes.
Anyway, looks like all is fine and I want to thank you all again for your replies, support and prayers.
God bless you all,
debbie

lady4darknight's picture
lady4darknight
Posts: 90
Joined: May 2010

Debbie, two weeks into my treatment I developed yeast on my tongue or thrush. He gave me some kind of horrible tasting stuff for it but my mom said "eat lots of yogurt, it kills yeast" and since the medicine made me hurl I went to yogurt. all day for 3 days and no more thrush. I now eat it at least twice a day to try to keep this from happening again.

Best of luck with the nuero. Please keep us posted. You have helped me so very much. God Bless you.
Debbie

susan smiles
Posts: 12
Joined: Jul 2010

Dear Debbie, hope this helps, Olive leaf extract, organic will help your yeast problem very fast. Don't overdue, it also lowers blood pressure. In fact I was able to get off my blood pressure medicine with it. It's wonderful.
Sincerely Susan

debbiejeanne's picture
debbiejeanne
Posts: 2590
Joined: Jan 2010

Thank you, Susan. I would never have thot of that. This site and all the people here are just AWSOME!! Thank you so much. Thank you everyone!!
God Bless,
debbie

sally kay
Posts: 3
Joined: Aug 2010

i had terrible yeast infections on the inside of my cheek during and after radiation treatment...i think it is normal and eventually went away to where i have had no more problems with it

debbiejeanne's picture
debbiejeanne
Posts: 2590
Joined: Jan 2010

You are right, mine did the same. Thank you for the post.
God bless,
debbie

Pam M's picture
Pam M
Posts: 2194
Joined: Nov 2009

DebbieJeanne,

I'm with Kent - I think you should call doc ASAP, if for no other reason than to ask if these things sometimes happen after treatment.

I had a couple of new issues just before my three month check - the doc really eased my mind when I brought them up. I still have the issues, but don't feel so nervous about them.

Here's hoping this can be attributed to some odd, temporary issue. It seems like a lot of things to be cropping up.

Hal61's picture
Hal61
Posts: 656
Joined: Dec 2009

Hi Debbi, very sorry to hear you've been hit with such a rash of discomforts at this point. I agree with Kent and Pam though, I think your ENT would be the place to go since most of your symptoms seem to be from the neck up. It may be you have more that one thing going on to cause such an unpleasant laundry list, and the ENT should be able to diagnose and fix.

best wishes for you, Hal

Jan Trinks's picture
Jan Trinks
Posts: 470
Joined: Apr 2009

Hi debbiejeanne:

I'm with everybody else. I'd check with your doctor ASAP. Charlie did have his mouth burn some but it would be with certain foods that might be spicy and such more than usual. Take care girl and get those symptoms fixed. Prayers are coming your way!

Jan and Charlie

debbiejeanne's picture
debbiejeanne
Posts: 2590
Joined: Jan 2010

thank you all so much!! I have an appt with the ent tomorrow. I'm to scared to not see him asap. I agree that I should be getting better and not the reverse. I greatly appreciate all your replies. I'll let you know tomorrow what comes of it. Thank you again, you guys are awsome!
God bless you all,
debbie

micktissue's picture
micktissue
Posts: 432
Joined: Dec 2009

Like the others my response was "call your Dr". Please let us know what they say.

Best,

Mick

debbiejeanne's picture
debbiejeanne
Posts: 2590
Joined: Jan 2010

thank you all so much!! I have an appt with the ent tomorrow. I'm to scared to not see him asap. I agree that I should be getting better and not the reverse. I greatly appreciate all your replies. I'll let you know tomorrow what comes of it. Thank you again, you guys are awsome!
God bless you all,
debbie

Kimba1505's picture
Kimba1505
Posts: 557
Joined: Apr 2010

Debbie,
You have been such a support to all of us here. I am hoping for the best for you in your appointment with your ENT today. Please let us know; and know that you walk into that doctor's office with the support and care of all of us.
Kim

staceya's picture
staceya
Posts: 702
Joined: Jan 2010

Debbie,
I am glad you are going to the ENT!!
Stacey

miccmill's picture
miccmill
Posts: 247
Joined: May 2010

Debbie,

Hoping your ENT appointment went well.

debbiejeanne's picture
debbiejeanne
Posts: 2590
Joined: Jan 2010

HAS ANYONE ELSE HAD A PROBLEM WITH YEAST ON THE TOUNGE?

I just returned from the ent. I read him an entire list of problems and he checked my mouth and throat. He said the only thing wrong is that I have yeast on my tounge. I don't know if I buy that or not but guess I have no choice. He was rated in the top 10 docs both 2008 and 2010 so maybe I just worry too much.
I have an appt with my nureosurgeon for the other symptons. I had a brain turmor (not cancerours) about 15 yrs ago and they discovered during surgery that there is something in my middle brain that they couldn't mess with due to its location. Maybe its that as far as my memory goes.
Anyway, looks like all is fine and I want to thank you all again for your replies, support and prayers.
God bless you all,
debbie

dennis318's picture
dennis318
Posts: 349
Joined: Feb 2010

Whenever there is the smallest concern or question, always call or visit the family of your cancer center with any questionover the phone, alot of us here it's our first time with, i was relentless at first, now, i call anyone of them up and there happy to answer my question...Debbie you are always there for everyone, and you will be fine, Hang in there girl...Dennis, we are always here for you!

Landranger25's picture
Landranger25
Posts: 208
Joined: Nov 2009

Hi Debbi. I am 9 months out as well. Last treatment October 13 2009. 33 rads, 3 chemos for SCC BOT with mets to one node. I have had the headaches, sometimes for as long as 3 days straight. Mouth and tongue great some weeks but not so good others. Seems to cycle, come and go. This week the lower part of my tongue "aches" a bit, sides have a couple of sore spots. I do feel that sometimes when I'm talking that my mouth is not forming the words right. I slow down, back up and try again usually with no problem. My wife is a nurse and if I was speaking noticably poorly she would say so. My thinking seems to be normal. I returned to work the end of October and things have been fine. (Civil Engineering/Design) Food goes down well most of the time but like you sometimes not so smooth. (Try to stay hydrated helps, smaller bites and chew well)I see my ENT every 4 weeks. I have reported on 2 different visits that I had sore throat, swollen glands, one time even lost my voice. He said he thought I was over reacting. (Like everyone I had a virus, my body was doing it's thing) To tell the truth, I felt I may have been over reacting myself but after what we have all gone/going through how could we not be? Anyways, I hope you are seeing whichever Doc has control often. Tell him/her your concerns. Stay calm. Before all of this I had learned that it does no good to worry about something you can't control. (Like flying on an airplane) I put my life in the hands of my Doctors and did what they said. I tell them what I know about "me" that they can't assess on their own. They put it all together and we go from there. Bottom line is yes I have quite a few of what you have described too. You are not alone. Good luck and take care.

Mike

Greg53's picture
Greg53
Posts: 830
Joined: Apr 2010

Debbie,

Yeast on tongue = Thrush. I think there was a thread in the past on this, but I've had it 3 times. Once after tonsillectomy, once during R/C and once post treatment. Dyfluken(perscription) worked the best but affects your liver so I only used it the first time. The second time I used Nysatin (perscription-rinse and spit) and it worked ok. The last time I used the Nysatin along with starting probiotics (OTC). They eventually all worked but the Dyfluken worked the fastest for me.

Good luck!
Greg

wife of chris
Posts: 5
Joined: Jul 2010

My husband was stage 4 tonsil cancer, had alot of radiation and chemo. A lot of the problems you are explaining he has. I think you should talk to your doctor but the memory issue is really bad for my husband and it has been almost four years. We do not go out to ear because food gets stuck. I hate to sound depressing but he is now having major dental problems. Make sure you address your oral health right away. Good luck

Greend's picture
Greend
Posts: 679
Joined: Feb 2010

Not making this up - I read a newspaper article several months ago and the term they used was "chemo brain". Slurred speech is a side effect that (if it happens) normally does appeear until around the seven year point according to my Dr at UAB in Birmingham. It hit me at the 11 1/2 year point.

Thrush - needs medication.

Let us know what they say.

debbiejeanne's picture
debbiejeanne
Posts: 2590
Joined: Jan 2010

thank you Greend. they don't think it has anything to do w/radiation but i do. I know my memory is practically gone. I will b talking to someone and immedaitely forget what I had just said. It is really bad. I see a nurologist next month and tests are being run. I just hope I get some memory back. Life will be way too hard if it doens't. I am very depressed over it and sometimes my husband yells at me. It is awful not having a memory.
Take care and God bless you.
debbie

Jan Trinks's picture
Jan Trinks
Posts: 470
Joined: Apr 2009

Hi Debbie:

So sorry to hear you're still having problems with all this. Just want you to know you're in my prayers. I hope hubby realizes (I'm sure he does) that you are as upset over this as he is. It's hard on the spouse sometimes but we have to remember it's even harder on you! Going to the lake in TN with my best friend and her family this weekend. My sister has been here a few days and is coming back next week. Take care. God Bless.

Jan Trinks (aka as basketcase)

staceya's picture
staceya
Posts: 702
Joined: Jan 2010

Dear Debbie,
I was just reading some things about memory loss and thought of you.
OK it was in Oprah, not the AMA, but anyway...common causes of memory loss, these should sound familiar to many of us. I have added the stemming from and tx section. These are my highly subjective thoughts and not medical advice by any stretch, obviously given the original reference.
Just wanted to bring up extra info for you to share with your doctor, as you research this.
PS.How do you differentiate between "chemo brain" and when there is a more severe problem?

Problem Stemming From Treatment
1.Chronic Stress No surprise there, tx etc Check with Dr, multitudes of tx
2.High Cholesterol In my case, a diet of milkshakes Meds, diet change when able
3.Sleep Apnea It could be decreased room in the check with MD, sleep study.
throat, leads to airway problems.
4.Hypothyroidism Seems to be common post H&N rads Check with MD,labs, meds.
Do complete thyroid levels.
Look up thyroid problems to see
which labs you should have done.
I have read that sometimes low
thyroid levels can be missed.

Good Luck. I seem to be freezing and forgetful as well.(We could name this diagnosis F2)
I plan on looking into the thyroid issues as well. Good luck!
Stacey

Clearblue
Posts: 188
Joined: Apr 2010

My thoughts are with you.
Besides the thrush, the disorientation of memory loss must be just awful for you.
Hope you get to the bottom of this and that all turns out well.
Clear

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