I am looking for people with bone metastasis.

Balentine said:

I am sure you will be hearing from someone soon
that has bone metastasis. I know it is a need while going through this to find someone else to talk to and empathize with the exact same dx that you have had. We need other to be able to relate and share our own personal struggle and burden. Please know that God is there for you to help carry this heavy burden and he longs for you to cast the burden on Him....we cannot carry it alone in our human strength...our dependence is on Him and Him alone. I hope someone responds soon that can help that is in your position. Look to Christ who gives us comfort and peace beyond our understanding. Be blessed.
Lorrie

bone mets
Hi PositiveThoughts. I had a lumpectomy a year ago this month, and that was followed by a CT scan and a PET scan, then a bone scan. Those tests revealed mets to bone on my spine, upper left arm and a small spot on my skull. The original plan was to start me on chemo, then rads, but with the stage IV dx and estrogen positive, the oncologist put me on Femara & Zometa instead. So far I have been doing very well. I have been having some discomfort in my upper left arm. The onc ordered an MRI to see what's going on to be on the safe side, although what I've described to him he said doesn't sound like bone pain. That was done this past Friday. (More like sore from overuse). I'm active. I walk, go places, spend lots of time with the grandsons, and I do a good deal of cooking, which includes lifting full pots onto or off the stove. I generally feel very good, so I'm optimistic that the arm really is just fine. Christ is my shield and my comfort, so even if there is something going on, I know He will help me get through.
I will try to answer your questions, and I'll be here for encouragement and support. God Bless, Gracie

m_azingrace said:

bone mets
Hi PositiveThoughts. I had a lumpectomy a year ago this month, and that was followed by a CT scan and a PET scan, then a bone scan. Those tests revealed mets to bone on my spine, upper left arm and a small spot on my skull. The original plan was to start me on chemo, then rads, but with the stage IV dx and estrogen positive, the oncologist put me on Femara & Zometa instead. So far I have been doing very well. I have been having some discomfort in my upper left arm. The onc ordered an MRI to see what's going on to be on the safe side, although what I've described to him he said doesn't sound like bone pain. That was done this past Friday. (More like sore from overuse). I'm active. I walk, go places, spend lots of time with the grandsons, and I do a good deal of cooking, which includes lifting full pots onto or off the stove. I generally feel very good, so I'm optimistic that the arm really is just fine. Christ is my shield and my comfort, so even if there is something going on, I know He will help me get through.
I will try to answer your questions, and I'll be here for encouragement and support. God Bless, Gracie

bone met
I was just reading your comments. I am new to the sight as of today and have been trying to find a website to tell me more about the metastized breast cancer. My PET Scan says it is in my upper spine and hip. Of course I found out about this just a month or so ago because I had a cough and after having it checked out found that fluid on my lung was actually breast cancer met. It is wonderful to hear that you are doing so well. I am doing well except I have to gasp for breath quite a bit and that wears we out. But I have so many praying for me and I know like you that the good Lord will get me through this. Continue to let us know how you are doing, it is inspirational.

breast to bone mets
My bone mets were discovered in 2003. I am hormone negative. My chemo
therapy is different than yours, since I am her+4. The drugs I get are
targeted for folks that are "her" positive. I hope you are doing well
This my first post. If I can be of any help please continue posting.
Arlene

arlene storfer said:

breast to bone mets
My bone mets were discovered in 2003. I am hormone negative. My chemo
therapy is different than yours, since I am her+4. The drugs I get are
targeted for folks that are "her" positive. I hope you are doing well
This my first post. If I can be of any help please continue posting.
Arlene

Bone mets
I was diagnosed in February, 2010 with BC, metastasized to many lymph nodes, liver, bones, and skin. I'm receiving Zometa once every 4 weeks for the bones - spine, ribs, and pelvis. I've had treatments for 21 straight weeks. Along with Zometa, I had Taxol and Herceptin for the first 10, now have had Herceptin only for 11 more weeks. My onc says the spots in the bones will never be gone - our goal is to keep them stable. That's where I am right now.

Best wishes. MM

juls4766 said:

You're not alone
I'm a 45 year old single mother of two boys (20 and 11) and I was diagnosed with bone metastasis in June 2010. I had a Krukenberg tumor removed from my pelvis in December 2009. I have been doing chemotherapy since February 2010. Primary cancer was never found which makes it difficult to treat the disease. Unfortunately, there is no cure for bone metastasis, only treatment. I am being treated at M.D. Anderson Cancer Center in Houston, Texas and the doctors there great. Like you, I have a good support system (family and friends). But like my doctor told me - we really are alone in this. I can handle the chemo and side effects but what I can't handle is knowing that I won't see my 11 year old son grow up and my doctors tell me that my chances of seeing my 20 year old graduate from Cornell University in NY in 2013 are not good. So believe me when I tell you I know what you're feeling on the inside.

My prayers are with you. God Bless!

I was diagnosed with bone
I was diagnosed with bone mets 2 1/2 years ago. I am also estrogen positive. I also have liver mets. I get Zometa every 3 weeks, my bone mets are stable right now. I have them in my spine t-10, i was having some back pain, but it seems to be under control now.

Mets
Hi,

I have stage 4 with bone mets. I was diagnosed first in 2003 with stage three then again in 2008 exactly 5 years later with stage 4 and bone mets. I've had lots of treatments and surgeries and am now on hormone therapy. I've been living like this for 1 1/2 years now. If you have any questions you can pm me.

Terry