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parotid gland cancer

dave123's picture
dave123
Posts: 10
Joined: Mar 2010

I found out in December 09 that I had parotid gland cancer . On Feb 5 th this year I had a operation at John Hopkins hospital for the cancer the operation went well Then on March of this year I had 33 treatments of Radiation to make sure they got all the cancer. It has been almost 8 weeks since my last Radiation treatment and I still have all kind of pain and little blister like sores all through my mouth. I wonder if anyone has had this kind Of radiation treatments and how long before the mouth heals .

micktissue's picture
micktissue
Posts: 432
Joined: Dec 2009

Hi Dave.

I had scc unknown primary and had 33 rads + 3x cisplatin (chemo).

The mouth sores have FINALLY (well there's maybe one left) gone away. It has been a battle vs thrush plus blocked salivary ducts plus the effect of the treatment that contributed to the sores. I rinse with salt/baking soda, swish nystatin 3x daily, brush teeth 3x daily, and I keep swallowing. The only thing you can do beyond all that is endure. They do go away.

My last treatment was April 1 so now I am 8.5 weeks post treatment. Throat still hurts, mucus is nasty ("thick and rubbery" said my ENT today) but in general I am trending positively.

Best,

Mick

dave123's picture
dave123
Posts: 10
Joined: Mar 2010

Hi mick
thanks for the info
they took the salivary glands on the left side of my face plus 45 Lymph nodes in my neck

Hondo's picture
Hondo
Posts: 5865
Joined: Apr 2009

I am 5 years passed my last treatment and I still have a lot of pain in the neck and head at times. When it gets too bad I just take one Aleve a day and can general make it to the next day. A lot of the times the treatment does damage to the nerves I was told, might be the reason for the pain.

On the mouth sores Mick has some good advice; I too use the baking soda everyday.

Take care and welcome to CSN

dave123's picture
dave123
Posts: 10
Joined: Mar 2010

Thanks Hondo for the info I have been using Baking Soda & salt mixture several times a day sometimes it helps and sometimes no. Its nice to have some advice from people that has been there

rozaroo
Posts: 667
Joined: Apr 2010

I am three month's post treatment for cancer of the left tonsil. I had 38 radiation treatment's + 3 cicplatin chemo. I still have a few sore's on the inside of my left cheek.
My dentist at the cancer centre chcked them out yesterday & said they were caused by trama from the treatment & take time to disappear. I use the baking soda & salt water rinse but they are still hanging on. She said they take time to disappear.

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