CSN Login
Members Online: 17

National Institute for treatment IL-15

P Brown
Posts: 2
Joined: May 2010

My wife has stage IV melanoma, originally a mole in 2006, has spread to various organs. We have used all the resourses that Mayo in Rochester currently has to offer. Her oncologist recommended we go to Bethesda for an interview.

In early June she will start treatment with IL-15. This is new, just approved for clinical trials. It is similar to IL-2, but new and improved. This is unavailble to those who have previously used IL-2.

They also have immunotherapy available.

I recommend anyone who doesn't know about NIH to check it out. We have no idea if this will stop her cancer, but as you all know, this is very tough to treat and these sound promising.

paulfoxhill@hotmail.com

jrthepr
Posts: 1
Joined: Jun 2010

I spent the last 2 months trying to get into the NIH TIL Therapy Clinical Trial, but I ended up being excluded. It was incredibly disappointing, but prior to leaving the hospital I was introduced to the team that was working on the IL-15. My wife and I have looked over the protocol and decided that this was something we would like to pursue. We are currently waiting to hear back from the research nurse. I wish your family the best and we may see you in June.

If I can help answer any questions for you, I would be happy to try. I might be able to help you with contacts for the travel system and lodging issues.

I would also recommend the NIH to anyone dealing with cancer. The staff and resources available at this institution are some of the best in the world.

Take Care and God Bless,

crthepr@gmail.com

P Brown
Posts: 2
Joined: May 2010

Looks like we won't see you there after all. Some test yesterday threw her out of the trial, I haven't heard from the doctor yet. It is very dissapointing to wait over a month, like you, with no treatment, waiting for treatment, only to be declined.

Hope it all goes well for you and let us know, please.

P

Subscribe with RSS
About Cancer Society

The content on this site is for informational purposes only. It is not a substitute for professional medical advice. Do not use this information to diagnose or treat a health problem or disease without consulting with a qualified healthcare provider. Please consult your healthcare provider with any questions or concerns you may have regarding your condition. Use of this online service is subject to the disclaimer and the terms and conditions.

Copyright 2000-2014 © Cancer Survivors Network