Pathology Report Not Good

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Sunrae
Sunrae Member Posts: 808
edited March 2014 in Breast Cancer #1
I spent today with my surgeon and oncologist to discuss what to do next because of what showed up after my masectomy. I had 17 lymph nodes removed, 11 which had cancer. Also had cells show up in the chest wall. I definitely will have radiation and it looks like now I'll start chemo in a couple of weeks after having a port installed. The oncologist thought chemo would only benefit me about 3% overall because my oncotype dx test showed I'm in the low range but she was concerned that so many lymph nodes were involved. I wasn't sure my other health issues (heart, asthma, diabetes, HBpressure) would allow me to get thru chemo without problems so we decided I would take chemo once a week for 12 weeks instead of the 4 cycles over 12 weeks. Then have radiation after that. I thought once I had the masectomy, all I would need is radiation but it looks like my journey will be a little longer. I just dread the chemo for what it might do to my already weak body. Girls, I need your encouragement and experience along this line. And I'm not looking forward to having a port put in, sounds like another form of surgery. Thanks for your input.
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Comments

  • BlownAway60
    BlownAway60 Member Posts: 851
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    So Sorry
    So sorry to hear you will have to take chemo with all of the other issues you have already have. You will probably be getting a lower dose of chemo by taking it once a week instead of every three weeks. Not quite as hard on your system.

    As far as the port goes, mine was done where I was not completely out. Recovery was much quicker. I went home the same day. You will be glad that you have a port when you do the chemo. Make sure your onc gives you a script for EMLA cream. You put a dab on your port site before you have chemo. It has lidocaine in it so it numbs the port area.

    Hugs

    Donna
  • Mama G
    Mama G Member Posts: 762
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    The Port is really nothing
    outpatient at many places. I went in for it and spent that evening at DisneyWorld.
    The port should be the least of your worries. It took about 20 min. for the surgery.
  • Calleen
    Calleen Member Posts: 411
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    So Sorry
    So sorry to hear you will have to take chemo with all of the other issues you have already have. You will probably be getting a lower dose of chemo by taking it once a week instead of every three weeks. Not quite as hard on your system.

    As far as the port goes, mine was done where I was not completely out. Recovery was much quicker. I went home the same day. You will be glad that you have a port when you do the chemo. Make sure your onc gives you a script for EMLA cream. You put a dab on your port site before you have chemo. It has lidocaine in it so it numbs the port area.

    Hugs

    Donna

    Oh SunRae
    I'm so sorry for what you are facing!! you know we are here for you!! even though I havent been on here for months I still have all my sisters in my thoughts everyday!

    Calleen
  • Kat11
    Kat11 Member Posts: 1,931 Member
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    Sunrae, you will do fine.
    Sunrae, you will do fine. Chemo is no walk in the park but it is doable and you will get through this just fine. I was told I would not need chemo, then the positive nodes changed everything. I just did not want to do chemo. I was so scared of it. Thanks to the many angels here on this site I got through the chemo and I am through the radiation. Just have to continue Herceptin and take my Tamoxifen. The port was no big deal for me and you have been through worse. You will not feel anything. It will be a little sore after,but that goes away. I was not put to sleep only in twilite. Don't worry about the port. I know this is all scary, but you can do it because you have to. Hugs
  • New Flower
    New Flower Member Posts: 4,294
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    Kat11 said:

    Sunrae, you will do fine.
    Sunrae, you will do fine. Chemo is no walk in the park but it is doable and you will get through this just fine. I was told I would not need chemo, then the positive nodes changed everything. I just did not want to do chemo. I was so scared of it. Thanks to the many angels here on this site I got through the chemo and I am through the radiation. Just have to continue Herceptin and take my Tamoxifen. The port was no big deal for me and you have been through worse. You will not feel anything. It will be a little sore after,but that goes away. I was not put to sleep only in twilite. Don't worry about the port. I know this is all scary, but you can do it because you have to. Hugs

    Sorry for you pathology report
    Sunrae,
    you will get through Chemo and we will help.I also had 11 positive nodes and had 6 Chemo cycles. As much as I did not want Chemo having positive nodes determined my treatment plan. It was not easy, but double. Please stay positive, we will be here for you. I am glad that you are going to have port. The procedure is much easier than mastectomy.
    HUgs,
    New Flower
  • Marlene_K
    Marlene_K Member Posts: 508
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    You can do it!
    I don't know why I thought you already had chemo, but I guess not. It's so hard for me to believe that I'm actually giving advice when it feels like just yesterday I needed all I could get! I was so scared! It's the unknown that frightens us the most. I guess it's not so 'unknown' when there are so many on here that have gone through it and not only survived, but thrived! Hopefully, with having it every week and obviously at a lower dose, you won't be overwhelmed. I got very tired towards the end, but just plan to take it easy, and post whenever you feel you need encouragement because it does help when you know that others have been through the same thing. The port really is nothing! Apparently, I wasn't 'put out', but I don't remember a thing. I was awake getting wheeled in and awake when it was over, but couldn't believe it was put in and I didn't know it, see it or feel it. Weird! They gave me juice and monitored me for a bit and I walked out... all in all, it took about 4 hours. The area was a little sore and it felt strange for a couple days, but after about a week, I didn't even realize it was there. Oh, unless I bumped it... be careful not to do that! The Emla cream was a blessing. I wasn't hurt the first two injections, but then I got a nurse that wasn't so good at it and it hurt! It hurt for the entire treatment. She had suggested I get the cream and after that, it never hurt again. You can do it, lady!! It goes by amazingly fast!

    Big hugs, Mar
  • lynn1950
    lynn1950 Member Posts: 2,570
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    Sunrae, You will be glad for
    Sunrae, You will be glad for the port. It is not a big surgery and it makes the blood draws and chemo so much easier. I am sorry that your pathology report showed lymph node involvement, but it sounds like your oncologist is taking good care of you. Be sure and ask for numbing lotion to put on your port before they access it for blood draws and and chemo. It's called EMLA. xoxoxoxo Lynn
  • Sunrae
    Sunrae Member Posts: 808
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    lynn1950 said:

    Sunrae, You will be glad for
    Sunrae, You will be glad for the port. It is not a big surgery and it makes the blood draws and chemo so much easier. I am sorry that your pathology report showed lymph node involvement, but it sounds like your oncologist is taking good care of you. Be sure and ask for numbing lotion to put on your port before they access it for blood draws and and chemo. It's called EMLA. xoxoxoxo Lynn

    Thanks for the advice about
    Thanks for the advice about EMLA cream. I think what threw me about having the port installed was I have to get to the hospital again at 5:30Am, surgery at 7:30Am, recovery for about an hour (can't eat or drink the night before) then go for my first chemo directly from the hospital. Sounded like the same instructions I had for the masectomy. I have to admit I've had it easy since being dxed in Sept, was put on Femara and wait for the tumors to shrink somewhat, then have masectomy. So that was the plan. Now the plan has changed and I'm in unfamiliar territory. But thanks to all of you I know you'll guide me just like you've helped everyone here on this board. It was my choice to go ahead with the chemo even tho the oncologist doesn't think I'll benefit much, only 3%. But I remember someone saying even if it were only 1%, they wanted that extra per cent, so that's helped me make up my mind. I have one drain tube left in my chest which I hope will come out in a few days, then heal up and gain some strength before starting chemo. Thanks for your support and help.
  • carkris
    carkris Member Posts: 4,553 Member
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    Sunrae said:

    Thanks for the advice about
    Thanks for the advice about EMLA cream. I think what threw me about having the port installed was I have to get to the hospital again at 5:30Am, surgery at 7:30Am, recovery for about an hour (can't eat or drink the night before) then go for my first chemo directly from the hospital. Sounded like the same instructions I had for the masectomy. I have to admit I've had it easy since being dxed in Sept, was put on Femara and wait for the tumors to shrink somewhat, then have masectomy. So that was the plan. Now the plan has changed and I'm in unfamiliar territory. But thanks to all of you I know you'll guide me just like you've helped everyone here on this board. It was my choice to go ahead with the chemo even tho the oncologist doesn't think I'll benefit much, only 3%. But I remember someone saying even if it were only 1%, they wanted that extra per cent, so that's helped me make up my mind. I have one drain tube left in my chest which I hope will come out in a few days, then heal up and gain some strength before starting chemo. Thanks for your support and help.

    sorry about the chemo news,
    sorry about the chemo news, we are here for you , Hugs and more hugs.
  • laurissa
    laurissa Member Posts: 773
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    Hi Sun
    I wish you the best. Those 12 weeks will soon be over. For me, the port was not easy. I was very bruised and had alot of pain for a few days after. Seems it was easier for others. I'm sorry you have to go through chemo.
  • jbug
    jbug Member Posts: 285
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    Sunrae
    So sorry your path report wasn't as good as anticipated. It's so frustrating to have a plan in mind, see the path you'll take and have someone throw up another roadblock and tell you there's another detour! You'll still make it to the end of the journey, though...just another path. Will pray that you get thru the rest of your treatments w/o any further complications...

    Blessings...
    Julie
  • TraciInLA
    TraciInLA Member Posts: 1,994 Member
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    Sunrae said:

    Thanks for the advice about
    Thanks for the advice about EMLA cream. I think what threw me about having the port installed was I have to get to the hospital again at 5:30Am, surgery at 7:30Am, recovery for about an hour (can't eat or drink the night before) then go for my first chemo directly from the hospital. Sounded like the same instructions I had for the masectomy. I have to admit I've had it easy since being dxed in Sept, was put on Femara and wait for the tumors to shrink somewhat, then have masectomy. So that was the plan. Now the plan has changed and I'm in unfamiliar territory. But thanks to all of you I know you'll guide me just like you've helped everyone here on this board. It was my choice to go ahead with the chemo even tho the oncologist doesn't think I'll benefit much, only 3%. But I remember someone saying even if it were only 1%, they wanted that extra per cent, so that's helped me make up my mind. I have one drain tube left in my chest which I hope will come out in a few days, then heal up and gain some strength before starting chemo. Thanks for your support and help.

    Sending hugs and sunshine your way, Sunrae
    Sunrae, I also chose to do chemo after my doctor estimated that it would decrease my chances of recurrence by only 4%, and I'm one of the people who would have done it for even 1%, so know that you're not alone in your decision, even though I wish you didn't have to face more treatment than you were expecting.

    I'm not familiar with giving a lower dose of chemo once a week instead of the standard dose every 3 weeks, but it sounds like it really may be a bit gentler for you. Keep in mind that the first one will probably be the hardest, because -- as I know you've read on this board 1000 times -- everybody reacts differently, and they won't know exactly precisely what medications to give you to help with side effects until they see how you react to the first one. But they really do have such an arsenal of good drugs to help you feel comfortable during chemo -- don't hesitate to speak up, loudly and often, if you need them!

    Traci
  • ms_independent
    ms_independent Member Posts: 214
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    so sorry
    I'm so sorry the report wasn't as good as we all hoped. You have the strength to make it through this--you've showed us that already. Prayers, good wishes and lots of support are coming your way.

    Hugs, El
  • carkris
    carkris Member Posts: 4,553 Member
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    so sorry
    I'm so sorry the report wasn't as good as we all hoped. You have the strength to make it through this--you've showed us that already. Prayers, good wishes and lots of support are coming your way.

    Hugs, El

    hate path reports, having
    hate path reports, having them, waiting for them, everything about them. just had to say it!!! damn path reports!!!! but you are strong and will get through the chemo. and we will help you .
  • Flakey_Flake
    Flakey_Flake Member Posts: 130
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    Bad News Sucks!
    Sunrae,

    Sure hate to hear that they've changed your life on you like that. Chemo is certainly doable. Not very fun, but doable. When you talk to your onc, or the nurse, ask for the info sheets on S/E's of what you will be receiving in your chemo. Not everybody gets all S/E's, but it is nice to know if something that is happening to you is a predicted thing, or something outside the ordinary. It will also let you know if you need to find medical help right away, or wait until the clinic opens.

    Hate to say it, but the chemo I was on had potential heart S/E's. Perhaps that is why they are choosing weekly chemo over heavier doses every three weeks. This way they can better monitor things and keep you in the best health possible. I hope they are also scheduling regular cardiograms to stay abreast (oops, did I make a pun?) of things.

    With cells in the chest wall, did they say anything about a PET scan? These aren't very precise, but show if cancer has mets to other organs. If it has spread to your chest wall, could it have sent a little bad guy somewhere else? I am sorry if I am putting more one you, but if I were in your shoes, it is something to consider.

    Sunrae, I wish I were in the same room as you so I could give you a big hug, and let you lay your head on my shoulder. Apparantly that is not possible, but I do want to tell you that everything will be allright. We may not always get what we want, but it is always allright. If I were you I would be in my room crying to myself and my Lord Jesus. I can tell you have tears rolling. I am praying to my Lord that you will receive comfort and strength. My Lord is the best at comfort and strength, besides many other things. When youy are hiccupping with sobbing, abd suddenly stop - that's my Lord touching you. Many don't recognize him. I think you will

    Okay - I've gone on long enough. Sunrae, you keep in touch with us. You know you have many sisters here. And we all will stand ready to cyber-belp all we can.

    BTW you have a smile that is unforgettable. I think you wear it alot, I think you are always ready with a prank, odr a joke or something funny. And that is how your close friends know you.

    Stay happy! Be Blesssed!

    Sharon
  • Sher43009
    Sher43009 Member Posts: 602 Member
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    Bad News Sucks!
    Sunrae,

    Sure hate to hear that they've changed your life on you like that. Chemo is certainly doable. Not very fun, but doable. When you talk to your onc, or the nurse, ask for the info sheets on S/E's of what you will be receiving in your chemo. Not everybody gets all S/E's, but it is nice to know if something that is happening to you is a predicted thing, or something outside the ordinary. It will also let you know if you need to find medical help right away, or wait until the clinic opens.

    Hate to say it, but the chemo I was on had potential heart S/E's. Perhaps that is why they are choosing weekly chemo over heavier doses every three weeks. This way they can better monitor things and keep you in the best health possible. I hope they are also scheduling regular cardiograms to stay abreast (oops, did I make a pun?) of things.

    With cells in the chest wall, did they say anything about a PET scan? These aren't very precise, but show if cancer has mets to other organs. If it has spread to your chest wall, could it have sent a little bad guy somewhere else? I am sorry if I am putting more one you, but if I were in your shoes, it is something to consider.

    Sunrae, I wish I were in the same room as you so I could give you a big hug, and let you lay your head on my shoulder. Apparantly that is not possible, but I do want to tell you that everything will be allright. We may not always get what we want, but it is always allright. If I were you I would be in my room crying to myself and my Lord Jesus. I can tell you have tears rolling. I am praying to my Lord that you will receive comfort and strength. My Lord is the best at comfort and strength, besides many other things. When youy are hiccupping with sobbing, abd suddenly stop - that's my Lord touching you. Many don't recognize him. I think you will

    Okay - I've gone on long enough. Sunrae, you keep in touch with us. You know you have many sisters here. And we all will stand ready to cyber-belp all we can.

    BTW you have a smile that is unforgettable. I think you wear it alot, I think you are always ready with a prank, odr a joke or something funny. And that is how your close friends know you.

    Stay happy! Be Blesssed!

    Sharon

    Sunrae, sooo sorry you have
    Sunrae, sooo sorry you have to have the chemo. I know how you feel about the port, it scared the beegeees out of me when I was told I had to have one but now I'm very glad I have it. You will be too since you'll be using it every week. Best advise I can give is drink tons of fluids, you do NOT want to get dehydrated.

    Best of luck
    Sher
  • pitt
    pitt Member Posts: 387
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    Sunrae, I'm so sorry that
    Sunrae, I'm so sorry that your journey is still continuing along this path but you will be able to get through this and smile when it's done. My very close friend had the chemo 1xper week for 12 weeks and she did GREAT! She seemed to think that it kept her from having so many of the problems that I had with the condensed dosage. Just remember to be kind to yourself, get plenty of rest, and drink lots and lots of water. I'm sending you all the strength I can spare and wishing you the very best. Pitt
  • jackbro35
    jackbro35 Member Posts: 7
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    you have my thoughts of encouragement
    Thinking about you....you are truly a "ray of light".....you will be strong....and this to shall pass.

    Sending all my strength to you....
  • natly15
    natly15 Member Posts: 1,941
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    Oh My Dear Rae of Sunshine
    Oh My Dear Rae of Sunshine we will pull you thru this with all our prayers, cyber hugs, support, encouragement and collective strength. I still have my port and I must say that it is truly a blessing for me. It was a quick surgery and so much easier on my body. all my blood draws and chemo were done thru the port. The port area is slightly sensitive but I wouldnt trade the sensitivity for use of veins. Have they decided which chemo they will use? Sunrae like we all said it is doable and the meds are so helpful. I have HB pressure, had asthma as a child and deal with allegies. My health concerns are not as yours, but I do believe that you can and will get thru this chemo in spite of your other health issues because it seems all your doctors are totally on top of your health. A bazillion hugs and prayers are being sent your way.
  • mwallace1325
    mwallace1325 Member Posts: 806
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    I'm sorry
    I'm sorry to hear your report wasn't what you'd hoped it would be. You'll get through this. Having the port put in shouldn't be a really big deal. It is usuallly out-patient and goes very quickly, with a minimum of discomfort.
    I also have asthma and high BP (taking meds for both) and got through 4 rounds of AC and 12 weekly does of taxol. Side effects were mostly being very tired (mostly with taxol) some shortness of breath which has since disappeared (finished 10/29).
    You'll come through this. You're a strong, courageous woman. Just keep your oncology team apprised of anything going on with you and you'll be fine.
    You're in our prayers.