Apr 07, 2010 - 10:38 am
I am a 20 year survivor of Non Hodgkins Lymphoma and have many side effects and one of them is chemobrain. I first noticed forgetfullness but now have cognitive issues as well. Finally my doc sent me to a Memory Testing clinic where they test for things like Altzheimers and dementia and the neurologist put me through a battery of tests but the big thing that came out of that testing procedure and analysis was the validation from the neurologist/neurosurgeon that yes chemobrain does exist in some long term survivors. He said they are seeing it now and recognize it. It can appear earlier in survival as well and depends on what drugs you were on and radiation.
17 years ago when I first started to report issues with memory and other physical issues that I knew were related to treatments I was asked if I had seen a psychiatrist lately. lol. Now it has all come out in the wash with so many survivors living long past what years before we would have lived and with the advancements like computer contact through sites like this we started to realize that 'hey wait a minute it's not, just me'. Chemo brain is an accepted issue now that they realize that SOME chemo drugs do cross the blood brain barrier which before they thought they did not. The neurologist explained that it wasn't really 'damage' perse but a general weakening of the brain after certain chemo drugs, so that normal things like aging would not be as well tolerated in a brain that was 'chemoed' compared to one that was not.
Anywho thought you might be interested in getting tested if you can find a Memory Clinic near you.
All the best, Bluerose