Update from blood transfusion

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kathyDDD
kathyDDD Member Posts: 34
edited March 2014 in Breast Cancer #1
My red blood cell count did respond to the transfusion in a positive swing. My count last week was 8.3 and yesterday it was 9.1. We are going to keep checking it and if it dips again, will schedule another transfusion. Totally lost it and broke down in the drs office yesterday at chemo, though. Every new ache or twinge scares the crap out of you and you wonder if the big C is showing up somewhere else. The left side of my chest hurts sort of like a muscle pull. There was no cancer on that side and there is no breast tissue left there. One of my side effects from taxol is a stuffed/runny nose and cough caused by post nasal drip. I have that in spades and I possibly have pulled a muscle from coughing. However, my bone scan did show a spot on an upper rib on the left side and my coughing could have exasberbated that spot. Neither the doctor nor nurse practioner think it is a new worry. My right arm and hand are slightly swollen, so I now have to see a physical therapist to be fitted for a compression sleeve because of the lymphedema. The swelling isn't painful yet, though I guess it can get that way, but it is causing issues with my bowling (neat excuse huh?) and I certainly can't have that. I was feeling very sorry for myself and very frustrated still about my lack of energy. I just started crying and couldn't seem to stop. My np was wonderful and said it was about time. She told me to concentrate on the things I can do and own the fact the I can't do everything I once could. She said if anybody can't handle that, tell them to f*** off. She said I am clearly not used to asking for help and not being in control. Gee, think she knows me? She apparently then went and tattled to the dr because he came in after I was hooked up. He pulled his stool right over to me and put his hand on my arm. He said that sometimes the health providers forget just exactly how much the patients are going through. He said it's ok to be angry at the situation and even at him if I want to be. He gave me permission to call him any names I want, he would understand. He said we are getting this under control and he will be with me every step of the way and I can vent in his office any time and ask to speak to him about any of it at any time. He is a very straightforward, not warm and fuzzy, but clearly cares about his patients mental well being too. I felt much better when I left.

Thank you all for being here and listening when we need to vent.

Happy Valentine's Day!

Kathy

Comments

  • TrSquirt
    TrSquirt Member Posts: 6
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    This brought tears to my
    This brought tears to my eyes; I'm so sorry that you are having to feel completely out of control. And what an awesome doctor. And remember it is ok to cry. Give your self a hug and I know we are suppose to stay away from sweets but that might be a good Chocolate Time.

    And try take 1 day at a time.

    Take Care and Hang in there. Trudy
  • cindycflynn
    cindycflynn Member Posts: 1,132 Member
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    I cried too
    reading this - as I sit here at work!

    I'm so sorry that you've had to go through this, but glad you're getting the emotional support that you need from your doctor. I also hope that your next transfusion is successful.

    It is far from easy to go through this. Just keep hanging on and the finish line WILL be there!!

    Take care,
    Cindy
  • New Flower
    New Flower Member Posts: 4,294
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    I cried too
    reading this - as I sit here at work!

    I'm so sorry that you've had to go through this, but glad you're getting the emotional support that you need from your doctor. I also hope that your next transfusion is successful.

    It is far from easy to go through this. Just keep hanging on and the finish line WILL be there!!

    Take care,
    Cindy

    Kathy
    I am glad that transfusion has been working. You are moving forward and support from your doc is very important. Every breast cancer survivor needs to cry and when we don't do it people forget about the horrible experiences we have been going through. Being "strong" and "tough" all the times is hard. Do not hold your emotions, let them go! Please keep posting.
    Hugs,
    New Flower
  • carkris
    carkris Member Posts: 4,553 Member
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    Kathy
    I am glad that transfusion has been working. You are moving forward and support from your doc is very important. Every breast cancer survivor needs to cry and when we don't do it people forget about the horrible experiences we have been going through. Being "strong" and "tough" all the times is hard. Do not hold your emotions, let them go! Please keep posting.
    Hugs,
    New Flower

    I have not had the same
    I have not had the same issues but others and it is very frustrating when despite you r best efforts things dont go as we want. and all of the issues pile up too. If it was one issue but when you combine them it can become too much and we need to explode or we will implode. I am glad your doc and NP were helpful -as it should be. this is tough stuff to go through. but you will,get through this. one day at a time. one minute AND ONE SECOND SOMETIMES. hugs to you I am glad you feel better!!!! Most of the time when i freak out about my aches and pains, I say if its not better by next week I will start to think about it. I also try and not always sucessfully to live in the present and not live in what I fear, because that is not happening right now. because sometimes i can have major anxiety attacks. then theres always ativan. LOL Wish I liked to drink
  • Moopy23
    Moopy23 Member Posts: 1,751 Member
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    What your Doctors said
    Wow, Kathy, you have the wonderful, caring, understanding physicians you deserve, and all of us should have. It is clear that you are respected and cared for by these understanding individuals. Glad you feel better and more energetic now. Your doctors clearly care about you, especially your PCP, who also knows you, as you wrote. That is a blessing. (My PCP is the same way. In that, we are lucky.)

    You have a strong and determined team fighting with you, and for you, Kathy. And many here who are cheering you on and sending the most positive thoughts your way.

    Happy Valentine's Day to you, too.
  • jbug
    jbug Member Posts: 285
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    Happy tears
    Thanks for that great post! I'm a nurse and have been for many years. My heart often aches when I read posts from our sisters about bad experience w/your health care providers. I had tears of joy to hear of this heartfelt support you received from your NP AND your doc. This is the way it is suppose to be...

    So important and am glad you have a supportive team. God Bless...
    Julie