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Diet with one Kidney

Frank Fitz
Posts: 19
Joined: Jan 2010

Has anyone found diet suggestions and "no no's" for people with one remaining kidney?

The only obvious things I'v heard are to stay away from too much sodium and protein(but what is too much here?).

Thanks for any help.

Frank

Time2luv
Posts: 27
Joined: Dec 2009

Frank,
I've been trying to find out this exact same thing but with no support yet. Hopefully someone will have some suggestions for us. Like you all I was told was limit sodium and protein. My Doctor said no protein shakes or high protein diet plans. But other than that I don't really know how much protein I should or should not have. Hope someone can answer this for us. I lost my right Kidney January 2006 and discovered cancer in Left Kidney Sept 2009. Small spot at this time so watching and nervously waiting for another MRI in March.

Frank Fitz
Posts: 19
Joined: Jan 2010

I am going to keep looking for info and when I find it, will let you know.

I will say a prayer for you that the MRI turns out well. What type of cancer and stage did you have removed?

Time2luv
Posts: 27
Joined: Dec 2009

My cancer was clear cell, right kidney removed, with lymph nodes, etc. 4cm, Stage 1 (I think) but they said it was very aggressive. I'll watch for diet updates. Thanks!

RJardine
Posts: 1
Joined: Oct 2010

I recently started a site about kidney diets.

The kidney diet site has only a few articles so far, but I am adding to it regularly.

I also have some kidney diet articles

I will keep adding to it.

Deaconsdc
Posts: 6
Joined: Jul 2011

I had my radical nephrectomy 3 weeks ago and had 8.5cm tumor that was Papillary RCC. My appetite since has nearly doubled what it was before. Has anyone else experienced this? I literally feel hungry all the time. I realize some of this could be boredom hunger as I've been home sick, but was wondering what others experienced? Thanks and best wishes to you all!

sanjeev
Posts: 1
Joined: Sep 2011

respected sir,
i also have same problem.my left kidney has been removed due to kidney cancer 15 days ago. there is also increase in my appetite. sir,how much time i will survive? is there any risk to my life?

Deaconsdc
Posts: 6
Joined: Jul 2011

I had my radical nephrectomy 3 weeks ago and had 8.5cm tumor that was Papillary RCC. My appetite since has nearly doubled what it was before. Has anyone else experienced this? I literally feel hungry all the time. I realize some of this could be boredom hunger as I've been home sick, but was wondering what others experienced? Thanks and best wishes to you all!

Deaconsdc
Posts: 6
Joined: Jul 2011

I had my radical nephrectomy 3 weeks ago and had 8.5cm tumor that was Papillary RCC. My appetite since has nearly doubled what it was before. Has anyone else experienced this? I literally feel hungry all the time. I realize some of this could be boredom hunger as I've been home sick, but was wondering what others experienced? Thanks and best wishes to you all!

Eliezer2
Posts: 56
Joined: Aug 2012

Unless you have other issues, I have been told by my MDs that with one kidney you can eat and drink anything you want (even alcohol).

The creatinine and other kidney function measures are affected by how much liquids you drink but not, as far as I know, by diet.

Yorkie06
Posts: 2
Joined: Feb 2010

My dad has the same issues. We went and saw a nutritionist.Lean Proteins are ok in moderation. Such as turkey, chicken, fish, lean beef. I would schedule an apt with a nutritionist. They can give you a list of everything to eat. There are certain veggies you can and cant eat, and breads. Hope this helps a little..

Frank Fitz
Posts: 19
Joined: Jan 2010

Good info. I have an appt in April and will check on diet then.

Time2luv
Posts: 27
Joined: Dec 2009

I had appt yesterday with Dr. I asked him about diet since I only have one kidney and having surgery on it in early April. He said not to eat steak 3 times a day and just watch the salt. No other restrictions. Of course we should eat our fruits and veggies but sounds like endless you are a real meat eater like he said above then you should be okay. Anxious to hear of any other reports from Doctors.

breezesong
Posts: 1
Joined: Mar 2010

I have 2/3 of a kidney left and today, after an MRI last week the Dr called and said there is an indication of a couple of spots in the kidney. Now I have to be scheduled for a cat-scan of my chest to make sure I don't have any thing in my lungs. I was originally diagnosed in 2006 with RCC stage 4, but it didn't spread outside the fat tissue. Lucky there. But then, in late 2008 they discovered the other kidney had cancer. It was partially removed with no metastasize. So there I went again. I didn't have to do chemo or radiation, though. By the way my creatine levels have remained between 1.3 and 1.7 (I think I got that right).

I decided I had to take better care of my self if I wanted to continue to be a survivor, so I cut out beef and stayed with lean chicken in very, very moderation. I also added veggies, fruits and nuts, along with fiber and my daily vitamins (vitamin D is essential from the sun, also). After my news today, I am going on an exercise routine, By the way I am almost 61 years and not overweight, but still could lose some weight. I have never liked to "move" but now I see it as necessary "medicine" for my survival.

Good luck to all.

ejneary's picture
ejneary
Posts: 64
Joined: Mar 2010

In February, I had a radical right nephrecotmy to remove am 8CM RCC.

Since then, I have seen a dietician and a nephrologist. The following is a list of things that I was told through these visits:

The primary things to be concerned with as far as kidney health are

1. Blood pressure (Should be as low as possible) so reduce sodium (2-3G/day max)
2. Protein 1G/KG/day OR 1G/2.2lbs/day

So, if you are 165lbs, you can have a max of 75 grams of protein FROM ALL SOURCES

3. AVOID NSAI's (Ibuprofen, Motrin, Alieve)

Those were the big three from the Nephrologist.

The Nutritionist had the following advice:

In addition to lowering sodium and protein, you have to add high calorie foods to retain your weight. These include fats/oils, fruit juices and dried fruits. These will help replace the intake of calories from the elimination of protein and meats.

Foods to choose from the guide:

Milk: Fresh Whole or lowfat, 1/2 cup has 4 grams of protein

Meat: All types, Lean 7 grams of protein per ounce

Eggs: 1 egg equivalent to 1 ounce of lean meat 7 grams protein

Cheese: Same as meats, 1 ounce cheese has 7 grams protein

Beans: 1/2 Cup

Nuts: 1/4 Cup

other foods to eat...

Fruits (from 0 to 5 grams per 1/2 cup serving depening on fruit)

Other sources of protein are in breads as follows:

the following are worth 2 grams of protein each:

1 slice of bread
1/2 bagel
1/2 hamburger bun
1/2 english muffin
4 medium bread sticks
5 low sodium crackers
and the list goes on. This can be found online...

Vegtables contain some protein but they are generally low in protein which is a great reason to start eating more of them as they have lots of benefit, health wise, and you can eat more without going over the protein limit. Same with fruit.

The bottom line is stated above in the list of things to avoid, salt, lot of protein and NSAID drugs.

I have a pamphlet that talks about dietary needs if anyone would like a copy, i can scan it in and email...

Good luck!!!

John

miafox
Posts: 1
Joined: May 2010

Hi there John,
My dad is currently going through chemo and had his right kidney removed earlier this year. Can you please send the pamphlet info you have? It would be greatly appreciated!
Thanks

jazzykim
Posts: 3
Joined: Jul 2010

Hi John,
Just read your message posted and thanks.
I had a tumor (7 c.m.) in my right kidney which was diagnosed in December of 2009 (right before Christmas) and was removed on March 3rd, 2010. I had a radical nephrectomy through laparoscopy. I was in and out within three days (I am a bit of a control freak and felt mind over matter would apply).
I asked the hospital and my urologist the same thing as many; what should I be eating and not eating...dos and don'ts. Prior to this, I had gone back on a full protein diet plan (need to lose weight) and had done same plan back in 2004 successfully (could be reason for kidney overload and tumor???)

At any rate, you mentioned you had a plan (pamphlet) that you received and would be able to scan it and send it along...would love that if you are still willing.

My tumor and kidney were removed successfully, but I am now (about four months afterwards) still having on going (on again~ off again) swelling and pain and can certainly feel lumpy matter (scar tissue?) under the skin level.
Just curious, how long did you have any pain/swelling for? What types of post surgery treatments (ie, massage/chiro, etc.) did you try or continue using?

Sorry to overload you with questions and seek answers, but hoping you won't mind.
Not a day goes by that I don't awake and sleep thinking about this and worrying about my future. I have a follow up in August for a chest x-ray and abdominal ultrasound, then meet back with the urologist in September to review the outcome of these tests.
I do have a small liquid filled cyst in my left kidney and per my urologist, that is very commmon in most people (50% of population)...they just don't know they have one.

Any thoughts?

jazzykim

mea01
Posts: 4
Joined: Nov 2010

Hi John...thanks so much for sharing the diet info...I'm amazed the lack of info doctors don't provide post-op.Anyways I'm thankful for this site so that I can look for guidance if needed.I've always eaten a healthy diet,but didn't do alot of exercise other than daily walks....I think exercise and diet is the key to fighting cancer.I've made some more changes to my diet,no longer using non-dairy for coffee,unsalted butter instead of margarine.I also pray alot....I'm 3 mos post-op for left kidney,tumor was found by accident on ct scan done in Aug.had surgery on Sept 7th.My tumor was 5.6 cm stage 3 agressive,so I am pretty lucky that cancer was contained in the kidney and hadn't spread to other organs.First follow-up w/urology will in 6 mos,so I'm working on being positive until then.I believe with prayer diet and exercise the outlook will be promising in March.Good luck to you..keep the faith

Fran Chandler's picture
Fran Chandler
Posts: 29
Joined: Feb 2010

Hi John, Thanks for the information. I have been tied up going thru Bladder cancer treatments and had not taken the time to check out eating for one kidney. They found the kidney cancer and had to do the open type surgery. Then when I went in four months later to get the all clear results I got the news that I now had bladder cancer. I am going to Tampa in the morning to see what they want to do next. I have had bcg treatments and tumors removed and more treatments and 1 tumor this past time so doin't know what I will find out tomorrow about the last tumor removal and biopsy done January 19th,2011. But I really want to thank you for the info for the kidney removal food to eat. When I had a ct scan they said they had to hydrate me for one hour and one hour after to clear out the iodine from my other kidney and liver. Have you been told this? There are other things also you are not supossed to take medicine wise. I plan on checking this out later, but like I say the bladder cancer has taken the front seat for now. Take care and glad you are doing so well.

Fran

MrsZ
Posts: 1
Joined: Mar 2011

Hi John,

I just joined in on this group hope you don't mind, didn't mean just to but in but I just found out that I have cancer in my left kidney and if you could be so kind and send me the information you have I would like to get a head start on this to try and learn all I can before I go for surgery. Thank You and God Bless You. mszzq1@hotmail.com

tsmusic
Posts: 1
Joined: Apr 2011

Do you still have that kidney diet pamphlet. Could yiou send me a copy? Thanks.

Califguy
Posts: 4
Joined: May 2011

Can you add me to your growing list of people who want your pamphlet? Had my left kidney removed april 16 and doing pretty good. I went to a nephrologist also and said about the same. Watch the salt and keep the blood pressure low and when I can, start losing weight, I'm about 25 pounds overweight. Thanks for the info and "all" of you take care.

ejneary's picture
ejneary
Posts: 64
Joined: Mar 2010

http://home.comcast.net/~nearydom/docs/diet.doc (copy and paste into your browser location bar)

Califguy
Posts: 4
Joined: May 2011

Thank you , I just printed it and will help.

sannie1
Posts: 1
Joined: Sep 2012

I would love your pamphlet for my brother that's had surgery almost 2 weeks ago. It was a great shock for had no normal warning for it mimicked a heart attack when rushed to ER. 7.5 cm malignant tumor found via CT Scan when all tests were negatives. Metastasis also noted to sternum, spine, cervical, right shoulder & left hip bone. He was in the hospital only 3 days after surgery for he did so well, but then went into crisis after 5 days & had to be readmitted to hospital due to high platelets, high creatinine and high calcium. Had been having severe nausea ever since surgery. He got some limited diet information & I instructed his wife to request more in depth info & instructions. However, I know you're pamphlet would be very beneficial to him if it wouldn't be to much trouble. I'm trying to help him for he's so overwhelmed if what's going on right now! Thank you very much and God bless you. May God continue to give you strength in your journey to victory, in Jesus name. Amen. You'll be in my prayers John.

sannie1

Blessed and Grateful
Posts: 1
Joined: Oct 2012

Hi John

Can you please send me a copy of the pamphlet that talks about dietary needs.

Regards

scrambles99
Posts: 1
Joined: May 2013

Hi John,

I was wondering if I could get a copy of that pamphlet about dietary needs.  Ihad my right kidney removed last July.  I went in for my scan and bloodwork results.  The scans were good but he said that my kidney function was still low.  I know Ineed to make dietary changes and I am looking for information to help with that.

 

Thank you,

Terrie

opito bay
Posts: 8
Joined: Mar 2010

I was strongly advised to reduce if not delete red meats,alcohol,salt, bread,sugar and the like from my diet. As I have just the one kidney now I have to give my self every chance of surviving and protecting the remaining Kidney. I am drinking 2-3 glasses of fresh Vegetable juice every day, eating several fruits, drinking plenty of water, eating chicken and fish usually with a salad or fresh green vegetables. Have only had around 10 glasses of red wine in three months and trying to go for plenty of walks. It was suggested by my Neurologist that I see a particular dietitian whom I see once a mth. Lost around 30 pounds, feeling very good other than the same tiredness and anxiety attacks I have been having since the Kidney removal. This is getting slowly better, but wow its slow going.

Mike

ejneary's picture
ejneary
Posts: 64
Joined: Mar 2010

Definitely talk to your dietician!

The real goal is to reduce certain nutients to be good to your remaining kidney while not starving your system for those nitrients and also living a quality lifestyle.

I was informed by my doctors as well as by my dietician that there is no reason to cut out alcohol, sugar, red meat but that I need to remain within the guidleine of 1G/2.2Lbs/Day of protein (from all sources) and reduce sodium intake to 2-3 grams per day.

That said, if being healthy and happy means that you need a cheeseburger once in a while, that's OK as long as you stay below the sodium and protein limits.

Personally, I need a cheeseburger once in a while!!! So, I buy the ground beef from the store and have a measured amount on a piece of wheat bread.

As far as alcohol is concerned... Since I am on chemo, I don't really feel like drinking but, I do enjoy a good beer once in a while and was told that it was OK...

Essentially, lead a healthy life and this means that you should also enjoy foods that you like without guilt....

John

helperr
Posts: 1
Joined: May 2010

I don't know much about diet.

ejneary's picture
ejneary
Posts: 64
Joined: Mar 2010

Sorry it has been so long to respond to the request for a document....

Here is a link.

http://home.comcast.net/~nearydom/docs/diet.doc

This is a Kaiser Permanente document but I am sure that they don't mind it being published here...

Thrive!!!

John

Digger95
Posts: 59
Joined: Jun 2010

I adopted a vegetarian diet after my radical nephrectomy and have found it to be very beneficial as it naturally keeps my protein intake on the low side and my antioxidant intake on the high side. The extra fiber certainly doesn't hurt either. I'm lacto-ovo so I do eat eggs and a little dairy and my protein level tends to average about 70 grams per day. My nephrologist actually gave me no dietary advice at all but I'd been thinking about going veggie for some time so I figured it was a good time to start. Nice to meet others who are also living with one kidney.

Von55's picture
Von55
Posts: 57
Joined: Aug 2010

Hi! Good to hear from a fellow vegetarian- I've been wondering a lot about diet, esp the protein side of things. I very rarely eat eggs, but still use dairy- havn't eaten meat, fish, fowl etc for over 15yrs and can really vouch for the benefits (in spite of my kidney cancer!). I am scheduled for a radical nephrectomy in 2 weeks time and am hoping the hospital will allow me to bring my own nibbles- I eat a lot of raw foods as well as homemade nut/seed mix etc. You're on the right track with the antioxidants- I'm convinced that my RCC situation would be much, much worse if not for my diet- esp as I've been an idiot- I've been a heavy smoker. No diet in the world can tip the scales toward health if you smoke- but I'm determined to live & learn!
All the best to you, and I hope everything works out well!

Digger95
Posts: 59
Joined: Jun 2010

Hiya Von55!

I don't check the board as often as I should so I'm sorry it took me this long to reply. Glad to meet another vegetarian! How did your surgery go last week? I must admit that I was an idiot and smoked for over twenty years, so a good clean diet is even more important for folks like us. After trying several different diets after my surgery I've found that a vegetarian diet has been the most beneficial for me. I don't push it on others... it is simply what works best for me.

Hope all is going well with you and that you are recovering nicely from your surgery.

Jim

Von55's picture
Von55
Posts: 57
Joined: Aug 2010

Thanks for your comments and kind thoughts- my surgery went really well, thanks ( at least I hope so- Drs appt on Thursday- fingers crossed!). I'm still in a lot of pain- it was an open partial so the incision has its own zip code- but it gets better every day. My appetite isn't good, but I always have a big juice cocktail every day with wheatgrass (yuck),acai berries, Vit C etc & it really helps.
I agree with not pushing vegetarianism on others bit! I gave up all meat for humanitarian reasons a long time ago, but even though I'm still very anti-cruelty there are so many health benefits that there's no way I could ever go back. Teach by example, that's the ticket! I sometimes miss the ease of cooking meat meals though- it's a real no-brainer, whereas a lot of thought usually goes into making soy & veggies seem interesting. Any recipes you'd be willing to pass on would be gratefully received!
Cheers, Von

MandyBear
Posts: 14
Joined: Jan 2011

Excellent advice to go low protein. I'm 30 years post-nephrectomy with a huge tumor and doing well on that diet. Mainly veggies, some turkey and fish with eggs and cheese...Since high protein diets are a risk factor, why continue to eat mass amounts of it? I think the dieticians are wrong about how much protein we need so I limit my.
Also, easy on the hard liquor...I rarely drink it anymore and stick with white wine (less tannins than red) and am doing quite well. Good luck to everyone. Hope you'll join me on the long survivor list! :)

eweber
Posts: 5
Joined: Jul 2010

i have just had my kidney removed in feburary and was told to go to a low protein diet... so i'm basically a vegetarian now... quit smoking and drinking.. try to not use packaged foods with hi sodium

I've dropped about 25 lbs and feel much better.. my blood pressure is way down... try to walk everyday..

we only have one left.. we need to take the best care of it as possible...

blackbelt's picture
blackbelt
Posts: 32
Joined: Apr 2006

PLEASE EMAIL ME FOR FULL DETAILs!
ABLE TO RAISE KIDNEY FUNCTION FROM 74% to 82% THRU DIET!
LOST 3/4 of right kidney, had a open partial nephrectomy on 5/17/2006
Labs result 1/10/2010
Total cholesterol : 161.0
HDL: 53.0
LDL: 96.0
Triglycerides: 62.0
TAKE NO BLOOD PRESSURE MEDICATION!

VeryAnxious
Posts: 67
Joined: Sep 2010

Hi I would loveto e mail you for the full details. I am certain after my robotic surgery, my surgeon would be happy with 40-45% function. I would love to be able to have something to follow. Good luck to you. I do have mile hypertension.

epengerszzz
Posts: 1
Joined: May 2012

im a cancer survivor, now i only have one kidney. my left kidney was remove when i was 7 yrs of age, and now im already 20. im into body building, but not really too much, i dont take any supplements, im just having a high protein diet. im into high protein diet for almost a year. will you please give me any advise so i can take good care of my kidney. thanks you very much!(khristofhersantos@yahoo.com)

Texas_wedge's picture
Texas_wedge
Posts: 2807
Joined: Nov 2011

If you're not an obsessive bodybuilder, working a high intensity split routine with six or more workouts a week, then you won't need any more protein than you get from a decent normal balanced diet. Most Americans and a lot of Europeans actually eat more protein every day than they should, from a health point of view.

It sounds as though you're on a diet with far too much protein. With only one kidney you should limit your protein intake. Luckily, if you're bodybuilding, what you really need is a high carbohydrate diet, NOT high protein. The idea that to build muscle you have to eat a lot of protein is a myth that is kept going by people with an interest in selling food supplements to the gullible.

amurillo63
Posts: 29
Joined: Sep 2010

I learned a lot from a book called "The Cure" By Timothy Brantley , it's about the benefits of a natural diet, it's not easy to adapt to at first but considering what it does for your body makes it easy. There's also a book called "Juicing For Life" By Cherie Calbom and Maureen Keane, it has a lot of great recipes for everything from colds to cancer. IT REALLY WORKS, I'VE TALKED TO SURVIVORS WHO WERE GIVIN 3 MOS TO LIVE BY THEIR DOCTORS, WHO WERE LIVING BY THIS "NATURAL" METHOD. HOPE THIS HELPS.

MandyBear
Posts: 14
Joined: Jan 2011

I am a 30 year survivor of renal cell carcinoma so I hope my experience counts for something. My tumor was gigantic. size of a football. I went on a fairly low protein diet and never eat red meat anymore. It makes me feel tired. I also gave up hard liquor and just do moderate amounts of wine or beer. I suppose if you were inclined, it'd be best to give those up too. I take good amounts of B vitamins and when I was post surgery did 2000 mg of Vit C a day sometimes more.
Keeping protein low will be your friend. Eating 75 mg a day would be an outrageous day for me and not acceptable. Make sure you get enough oils, avocado, olive oil etc. and get down to a much lower level of protein grams. Good luck. MB

MandyBear
Posts: 14
Joined: Jan 2011

My cholesterol is way under 200 and my HDL Good Cholesterol is now hovering near 100. LDD and triglycerides are low! I now take fish oil and some niacin for a collateral heart problem. All seems to be working out well.

jona187's picture
jona187
Posts: 74
Joined: Apr 2011

Hey Mandy,

How are you doing?

It's great to see that you are a 30 year survivor and I hope you continue to go strong as well as wishing you the best.

By any chance do you have any other tips?

My wife was recently diagnose with Chromophone RCC and had her kidney removed. I have been juicing & blending vegetables w/ fruits. I'm just curious if there is anything else I can do to help with the situation and being that you have done so well, any information would be greatly appreciated. I have read about limiting sodium and protein intake as well.

Thanks in advance and just reading your post gave me a positive outlook just as long as we continue to work through this.

-JQ

DVOELKER
Posts: 1
Joined: Feb 2011

could you please send me a pamplet. xray1992@hotmail.com

puppetman
Posts: 53
Joined: Apr 2011

could you also please send me a pamplet garybrister1965@gmail.com

puppetman
Posts: 53
Joined: Apr 2011

I have been home for almost 2 days now, the only thing the told Me was, stay away from dark stuff like drinks "cokes" stuff like that, stay away from table salt, high protein, the only thing I can say for now is, walk as much as You can, don't move fast and take thangs slow , DO NOT lay flat for the first week or so, trying to get up is painful "TRUST ME, IT IS VERY PAINFUL" and drink lots of water.

ejneary's picture
ejneary
Posts: 64
Joined: Mar 2010

Sorry Folks. I have been battling metastatic RCC and have not been back here for many weeks.

The pamphlet can be downloaded from:

http://home.comcast.net/~nearydom/docs/diet.doc (copy and paste into your browser location bar)

Thanks. Also, please realize that the guidance for protein intake is per the following equation:

1G Protein/1KG Body weight/Day
OR
1G Protein/2.2Lbs Body Weight/Day

I weight 160 lbs so I can eat up to 160/2.2 = 72 grams protein (From all sources) per day.

That is the limit. You need protein in your diet so some amount below this will be perfect.

I am not saying that this is right for everyone. This is what BOTH my dietician AND my Nephrologist recommended. Passing it on to you.

The pamphlet also talks about a well balanced diet which is helpful also.

Good Luck!!!

NWKeith
Posts: 8
Joined: May 2010

Hello folks. I'm 1 year past my radical nephrectomy of left kidney; like everyone else I continue to fine tune my diet. 2 suggestions to add to the great guidelines already mentioned. First, take a look at Dr. Andrew Weil's anti inflammatory diet. Just go to his website. Second, for dinner once a week try a small salmon fillet with vegetables and brown rice.
It's been a long road back. My metabolism will never be the same. I'm 61 years old, and the past year has been a humble reminder of the limits of the physical body. Good luck to all.

NWKeith
Posts: 8
Joined: May 2010

Hello folks. I'm 1 year past my radical nephrectomy of left kidney; like everyone else I continue to fine tune my diet. 2 suggestions to add to the great guidelines already mentioned. First, take a look at Dr. Andrew Weil's anti inflammatory diet. Just go to his website. Second, for dinner once a week try a small salmon fillet with vegetables and brown rice.
It's been a long road back. My metabolism will never be the same. I'm 61 years old, and the past year has been a humble reminder of the limits of the physical body. Good luck to all.

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