CSN Home » Cancer specific » Breast Cancer

Stage III after surgery



Total items found: 26

BonnieRose
Posts: 6
Joined: Dec 2009
February 1, 2010 - 1:55pm

I had a positve for cancer mamo in Oct 2009, I was then sent for an ultra sound which I was told could be just an infection of the lymphnodes, my primary care immediately became very concerned and refered me for a pet scan which lit up like a beacon on my left breast she then sent me directly to a surgeon who i believed was a good doc. he then refered me to get a biopsy of the primary tumor, which came back on xmas eve and was told by my primary care that i diffenently had invasive ductal carcinoma wonderful huh. then the following morning as we were about to set down with family for xmas breakfast we recieved a call from the surgeon who repeated the report that we were dealing with cancer. now the weird part they had a positive report no variations put because I was being treated at the VA hospital I had to have the report confirmed by a facility in Washington DC which didnt come back until the 7th of January, 2010. the report indicated that it was a worrisome cancer and and the main tumor was 1.7 cm. On Jan. 8,2010 I finally had my surgery I was in the operating room for 5hrs was told it would ony be 2 or3 at the most. they ended up doing a partial mas. with the tumor at 2cm and removal of lymph nodes with 18 of 20 cancerous well it took another week before I was told this info with the report indicating that I have stage 3 cancer and my surgeon had enough nerve to tell me they made a mistake and it really is a stage 1 with no problems. this was told to me a week after surgery well got copies of all my reports and was getting very fustrated while at this first visit he checked my wound and said I had alot of dead skin so he cut it away no problem.
well I went back the next week and he said I had more did skin and he removed it and left a hole under my arm about 1 1/2in to 2 in long by 1/2 in wide big holde huh not very pretty the following morning I got up and told my husband that I was not going back to that doc I wanted a new one so I called the cancer center near our home I was able to see the doc that day since I had all my records she was shocked at the treatment i wasnt getting I now have an appointment to see the hermatologist for chemo treatment this week and she also is sending me to a lymphodema clinic tomorrow she said becaause I will get it I just hope everything goes well now that i have the proper treatment available to me. the doc also indicated the I was in serious condition so treatment will be agrecive. Sorry for the complaining I just needed to get it of my chest,

arbojenn
Posts: 118
Joined: May 2009
February 1, 2010 - 2:10pm

Oh I am so sorry you have to live through this nightmare! I am glad you found another doctor and hope things will improve. Do you know yet if you are Stage I or III? Keep us posted as you are in our thoughts and prayers.

BonnieRose
Posts: 6
Joined: Dec 2009
February 1, 2010 - 2:23pm

Yes I am stage 3 no doubt

DebbyM's picture
DebbyM
Posts: 2390
Joined: Oct 2009
February 1, 2010 - 2:24pm

I am so sorry to read this. You went thru a nightmare. I am glad you are seeing another doctor. Please keep us informed on how you do. Sending you prayers!

Debby

dyaneb123's picture
dyaneb123
Posts: 964
Joined: May 2009
February 1, 2010 - 2:18pm

OMG. You poor thing. What a nightmare. Thank GOd you are seeing someone competent now.
I am so sorry you had to go through that.
Dee

MyTurnNow's picture
MyTurnNow
Posts: 2642
Joined: Aug 2009
February 1, 2010 - 2:33pm

BonnieRose, I just wanted to welcome you to this site. I'm very sorry for the lack of care you had been receiving and am thankful that you sought out other care. This is a great site full of very caring, knowledgeable, and loving individuals. Keep posting and we'll be here to asssit you and share our experiences with you. Best of luck.

Booberta
Posts: 61
Joined: Aug 2009
February 1, 2010 - 6:01pm

Bonnie Rose - Vent away!! I'm so sorry that you had to go through this mess. However, I applaude you for not just going along with the program! I hope you can now get the care and support that you deserve.

BonnieRose
Posts: 6
Joined: Dec 2009
February 1, 2010 - 6:19pm

I am very fortunate to have a very supportive husband he has been with me all the way he felt I needed to change long before I made the decision but he knew it had to be my idea so I would feel right about it

shortscake's picture
shortscake
Posts: 228
Joined: Nov 2009
February 1, 2010 - 6:53pm

Get it off your chest that is what we are here for please let us know how things go with your next visit.girl power

Mama G
Posts: 772
Joined: Nov 2009
February 1, 2010 - 7:47pm

Just so you know, I have a very good friend who sounds like she was in the same boat as you and is doing FINE 2 years later! I hope and pray you have a good "journey" from here on.
Please let us know if you need any advice or help Miss Bonnie. God bless you.
Lorraine

Moopy23's picture
Moopy23
Posts: 1758
Joined: Jan 2009
February 2, 2010 - 10:24pm

BonnieRose, I am sorry to hear of the true nightmare you experienced. A cancer diagnosis alone is horror enough, without incompetent surgeons.

It sounds like you are in very good hands, now. Finding that your diagnosis is staged later than you expected is terrifying, as several of us can attest. But, many are stage 3, like me, and doing very well. In fact, there was a recent thread asking for Stage 3 survivors to post. Hopefully, the women who responded will help you to know you are not alone.

My best wishes to you. Please don't hesitate to vent here. You will find much support and understanding and wisdom.

peacefulheart
Posts: 34
Joined: Jan 2010
February 6, 2010 - 3:27pm

Moopy,

I am Stage3 also, having been diagnosed last August. I would really like to connect with others in this stage. How do I do that?

Thanks, Cathy

Moopy23's picture
Moopy23
Posts: 1758
Joined: Jan 2009
February 6, 2010 - 8:07pm

Hi, Cathy, on this board, there aren't separate groups, which can make it harder to know when you're reading posts from someone with a similar diagnosis. For that, breastcancer.org is a great place, or youngsurvivors.org depending on your age, and some other sites. Or, you can PM folks here, like me. It can be discouraging when most everyone else was staged earlier than you and you feel alone; I know what you mean about having that kind of connection.

Sometimes I take a peek at the other boards, but we are a true community here, as you know. No matter the type of bc or stage or treatment plan, we are sisters and friends and a source of invaluable advice and support to each other.

You might also check out that earlier thread here asking for stage 3 ladies to respond--there were quite a few of us.

My best to you also, Cathy. I do not check in here every day, but will respond to PMs soon if not right away. Please don't hesitate to PM me.

peacefulheart
Posts: 34
Joined: Jan 2010
February 7, 2010 - 12:10am

Moopy,
Your kind words brought tears to my eyes. My tumor was just under 7cm and 7 of my 10 lymph nodes were positive. No cancer in my family and till the day they did the mastectomy, I still could not feel a lump. Two weeks after my mastectomy, my husband was diagnesed with terminal brain cancer. I passed on chemo because I could not see myself spending the last year of his life sick from treatments. I am going through rads now and doing hormone therapy.
I have some hard moments and can suddenly become tearful, but I feel that I am strong and I am determined to be positive. Thank you so very much for your support.

Major Hugs, Cathy

canoegirl's picture
canoegirl
Posts: 169
Joined: Dec 2009
February 2, 2010 - 9:09pm

Sorry you had to go through so much with your first surgeon. I was so frustrated trying to coordinate things with my first hospital that after 2 months I ended up on sleeping pills to try and deal with my emotions. Ended up at a cancer center about 2 hours from home, but I'm glad that I'm there now. Had surgery in January and will start chemo in March.

I pray that all goes well for you now and that you get the best treatment available.

Hugs,
Marcy

austinsmom's picture
austinsmom
Posts: 22
Joined: Jan 2010
February 3, 2010 - 9:55pm

I am sorry for such awful treatment. I am so glad you are in good hands. God bless you! I am also stage
3 breast cancer.

BonnieRose
Posts: 6
Joined: Dec 2009
February 6, 2010 - 8:43am

My husband and I Went to the new oncologist yesterday. She was very straight forward left no pages un turned. She didnt hesitate to answer any of the questions we had which made us feel so much better. This coming Monday she has me scheduled to see another surgeon to insert the port and check my wound and Tuesday go to a heart center to have my heart check for strength to see if I am going to be able to tolerate the stronger chemo which she says according to my records is what would be the give me the best results considering where my cancer is. She also told us I am only one step away from stage 4, fortunately I dont have a visual of any cnacer in my pet scan other than that which was removed so if there is any there it can be treated with chemo. she layed out the differrent plans pending on my heart test, so it looks like on on a path to deal with this. Thank You all so much for your wonderful support I really do appreciate you
oh one more thing I went to lymphodema clinic on tuesday and I am fortunate to not have it yet and she fit me for a support sleeve and all the exercises I need to know info I need to protect my arm from problems in the future, I go back Monday afternoon for training of massage of my arm

Moopy23's picture
Moopy23
Posts: 1758
Joined: Jan 2009
February 6, 2010 - 7:58pm

BonnieRose, glad to hear you are feeling stronger and more optimistic. Your new oncologist sounds excellent, thorough and very confident and prepared to treat you based on the best regimen for you.

My best, and thanks for keeping us posted.

SunnieC's picture
SunnieC
Posts: 37
Joined: Jan 2010
February 6, 2010 - 8:11pm

nothing but the best - you have been through a terrible ordeal - it sounds like you're on the right path now - let us know is there is anything we can do for you -

Health and happiness
Sunnie

Katz77
Posts: 602
Joined: Sep 2009
February 7, 2010 - 8:52am

Like you had a bit of a rocky start. Was diagnosised with a " fibroid" one yr also to the day. It started gowing very quickly. The tumor(5.5cm) was sitting high on my chest. Basically watching it grow.18/20 nodes positive. HER+, ER PR+. ac/cytotoxin, Taxol/ herceptin. All done 10/22/09. Taking every 2 wks herceptin now. Finished rads1/9/10. I feel like I've concured a small mountain. Was fortunate to have great surgeon and oncs.
Main thing is I've had min.lymph swelling. I wear my stocking mainly when working or exercise. I'm glad you've found proper help and getting care and support. Good luck with you're treatment.You'll love ur port. I'm going to keep mine as long as possible. You can get in touch with me if you have questions. I had a nurse tell me, sounds funny, "If I ever have cancer, I want to be just like you." lol Well good luck and let us know how ur fairing. Gayla

bjmom1's picture
bjmom1
Posts: 153
Joined: Jan 2010
March 8, 2010 - 11:33pm

I'm also stage 3c, I was diagnosis in 2007 and still here and fighting. I am also happy that u have a loving and supportive husband trust me it helps. I wish you well and you are in my prayers.

scout5000's picture
scout5000
Posts: 94
Joined: Apr 2009
February 7, 2010 - 12:32am

I just ran into a neighbor who was diagnosed with stage three breast cancer ten years ago. She has been doing fine with no recurrence. I asked her if she still worries and thinks about it- she said, "Nope, life goes on." Can't wait until we can all feel that carefree and confident. Glad to hear that you have solid doctors now. Best wishes.

newbiefromcananda's picture
newbiefromcananda
Posts: 235
Joined: Oct 2009
February 8, 2010 - 7:18pm

hello bonnie rose and welcome...I too was given the :stage 3: diagnosis after surgery.. 3 tumours found..5cm,2 cm and 1 smaller one.. no other tests positive.. Her+ as well that was in sept..have had 4 chemo treatments..2 more to go..5th next week...I had a good talk with my dr and as he says "you don't have cancer anymore..we took out the tumours and everything else looks good..the chemo is just pre cautionary..:) nice to hear... I really don't look at the stages (every one is different and will have different out comes) I am here I am healthy(lol) except for this cancer thing... you will be fine.. I am very gald to see you are being taken care of now :))))))) (((((((hugs))))))))))))Lisa

aztec45's picture
aztec45
Posts: 759
Joined: Jul 2009
February 8, 2010 - 8:17pm

You have had it tough. But it sounds like you got it back on track. No need to appologize. You have a right to be upset. This is too serious for the taste great; less filling debate. I hope all goes well for you.

Sending you some of my strength.

Take care,

P

BonnieRose
Posts: 6
Joined: Dec 2009
March 8, 2010 - 10:10am

Sorry for the complaining, I went to see my new surgeon last tuesday he gave me the results from the MRI I had the week before I under stood the reason for the MRI was to determine if my cancer had duplicate it self in another area, which I felt I was ready to deal with. but the good new was it didnt duplicate in stead it to attach to more lympth node were the other ones were and also some cancerwithin the same area. this was a very hard hit because the dr I saw at the VA told me " we are lucky we got it all infact you probably wont even need radiation and absolutly no chemo
well need less to say it has been along ride
I had my first treatment of chemo 2 weeks agoand am dong wel so far
My new oncologist wants to keep up with the chemo and let it do its work and surgeon agrees

carkris's picture
carkris
Posts: 4057
Joined: Aug 2009
March 8, 2010 - 10:32am

glad you had the sense to change and get on the right track. hope all goes well.

rrogers34's picture
rrogers34
Posts: 132
Joined: Dec 2009
March 8, 2010 - 1:35pm

I am so glad you are with a good Dr. I dont know how some Drs stay in practice. They are dealing with people's lives. I know you said you were Stage III. I recently met a woman who was diagnosed with Stage IV breast cancer. She is a year out of treatment and doing wonderful. Keep your chin up we are here for you.

God Bless