Hi all, I’d like to say it’s a pleasure to be here, but it’s not.
I'm a M 58 year old and found out on Saturday that the cancer is going to cost me my bladder and I’m scared and worried. Thought I’d find others that have been through this for some real information and someone to talk to that understand what’s going on, so here I am.
Lots of blood and clots in urine went to the urologist and he did the scope thing. Took one look and scheduled the first surgery to scrap the tumors out and get the kidney tube opened up.
Had 8 BCG treatments and felt things were going good. Didn’t get too sick after the treatments and thought that this thing was whipped.
Started having difficulty going and felling a lot of pain in left kidney area. Went back to the urologist and did the scope thing again. Once again he took one look and scheduled the second surgery. This time he took out a couple tumors out and found the tube from the kidney again. Afterward he and I (and Chris, she’s my strength is this thing) had a very sobering talk about how aggressive this thing really is.(T3) During the talk he said we need to move fast on this and get the blader and prostate out. He also said he would biopsy the lymph nodes at the same time to find out where we’re at on this.
Thursday, this week:
Chris and I are meeting with doc and make a decision on Thursday. There really aren’t any alternates here, after reading about the survival rates for guys like me I know what I have to do. That’s where the fear comes from.
I'm intrested in any and all information any of you can provide.
Anyway, sorry for the long post, but it does feel good to put this thing in writing.