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Radiated on purpose as an infant in the 1950's, cancer developed years later

dancercatsmom
Posts: 2
Joined: Jan 2010

I was born in the 1950's and treated with radiation as a newborn. I weighed 9lbs. 6oz. and my mom was told I was too big and had an enlarged thymus and radiation was necessary to prevent me from growing to gigantic proportions. Years later it came out that many babies were treated with radiation. The doctors I've found who know about it say basically back then it was young doctors with new toys that they wanted to use. They estimate a million babies were radiated during the 50's. Does anyone else know about this and can you share any information. I've battled thyroid cancer for 9 years now, it's come back throughout my lymph system. I've had a radical neck dissection and am told it may very well come back again. Just wondering what other folks know about this. Thanks for your time!

apeszt
Posts: 1
Joined: Jan 2010

I was also exposed to radiation as a child & developed thyroid cancer recently. It was slightly different for me tho, I was born in 1983 and was living in Poland at the time of the Chernobyl disaster of '86. At the time children were suppose to receive immediate iodine treatment but we didn't receive it until 3 days after the fact. I'm 26 years old, living in Canada for the past 18 years and I was diagnosed with thyroid cancer last October as a direct result of this. I have RAI scheduled for Feb 5th, hoping that the bulk of all this will be over after this.

smart4077
Posts: 3
Joined: May 2010

I was also born in the 50's and had a birthmark on my jaw that they radiated and treated with dry ice when I was 6 months old. It left me with a depressed scar on that area that has been impossible to totally cover up with makeup, a source of embarrassment for me. Gee thanks, everyone in the '50's....

Sure enough, I was diagnosed in my mid-40's with thyroid cancer, had the total thyroidectomy and have had little problem afterwards. Ever since I can remember I had a nodule on my neck/throat area that I was told (at age 16) that it was just some cartilage. Guess not!

2manyrads
Posts: 16
Joined: May 2010

I am currently working on a book about the tragic misuse of radiation on children for benign conditions (including thymus, earache, acne, tonsils, adenoids, birthmark, mumps, fungus, etc.) and would be very interested to hear other’s stories.

As an infant I was radiated in 1946 for an enlarged thymus gland in the mistaken belief that this would prevent SIDS. The amount of radiation I absorbed was equal to ten common CT studies today. After surgery, radiation and chemo treatments for four cancers (leukemia, thyroid, lymphoma, prostate), three open-heart operations, four years under Hospice care, and twenty-six years after being told I had six months to live, I believe that one of the reasons I am still alive is to tell this story so we can learn to use medical radiation with greater caution. I am firmly convinced that the proper use of radiation saves many more lives than it threatens—I have benefited from diagnostic and interventional radiation, without which I would not have survived the very diseases that excess radiation caused.

Below is a link to my blog if you wish to learn more about this project and talk to others who have experienced much of what I did.

On my site there are many links to other blogs and people determined to alert parents to the risks from the increasing amount of radiation children are receiving from CT scans today. According to a recent New England Journal of Medicine report, “there is direct evidence from epidemiologic studies that the organ doses corresponding to a common CT study result in an increased risk of cancer. The evidence is reasonably convincing for adults and very convincing for children.”

http://childhoodradiation.blogspot.com/

Teddy4050
Posts: 2
Joined: Apr 2012

I was radiated in 1948 and my mother had to beg for money from her friends and our relatives for the treatment. They told her I had an enlarged thymus and needed this to survive. She held me in her lap while I was radiated at Mount Sini of Philadelphia. She developed lung cancer in 1986 the same year my thyroid was removed for suspect lumps. I was in the US Army at the time. They said the lab results were inconclusive and I would not suffer side effects from the surgery. What a lie. It changed my mood, sex life and I gained a lot of weight . It also took forever to get my levels adjusted and I have been on antidepressants ever since. The VA refuses to recognize the thyroid removal as a cause of my depression but the antidotal evidence is undeniable.

Doug SSBN 618
Posts: 2
Joined: May 2013

Hi Teddy 4050,

    I too was radiated with Nasophyrngeal Radiation Treatments in 1963, US NAVY, Submarine Service. I was 17 years of age. I had Aerotitus Media, {blocked ears} from pressure.I was NOT told that they were performining a radiation treatment on me. In 1998, I developed Hyperthyroid Disease, Corroded artery of Neck, {requiring surgery}, Depression, Thyroid Nodules, Diabetes II, severe dental problems, High Cholesterol, and Hypertension. In 2011, I began internet researching my thyroid disease, I accidently stumbled upon an article about Military Nasopharyngeal Radiation, SUDDENLY, the light bulb came on and I realized that this was the treatment done to me, 45 years ago. I have suffered, horribly for 12 years now with these diseases both physicially and emotionally. I have NO family history of thyroid disease, thus I firmly believe that my thyroid disease is a result of the Radiation Treatments in 1963, and ALL the other ailments are the secondary effects of the thyroid disease. I too have filed for military disability, my claim is in the appeal process now. I have not developed Cancer as yet, but I live in daily fear and worry.

I would be interested hearing about your claim and denial from the VA and any other similar stories. Did you develop any thyroid diseases {problems} before removal?   Have you experienced any of the other diseases {ailments} that I named as SECONDARY? All of my research, has indicated a firm and valid connection between these diseases and Thyroid Radiation. One must remind the VA, that these treatments were done in a haphazard routine manner if compared to todays standards of Radiation Treatment.

Good Luck,

Doug.

beadgean
Posts: 3
Joined: Apr 2013

...all over the world. And get this they are using radiation to treat a disease that they know is linked to childhood irradiation…acoustic neuromas.  These are benign tumors of the brain with a laundry list of symptoms associated with it.  It’s like a nightmare..  How do I know?  I have acoustic neuromas!  So I theoretically would get radiation treatment for a problem that radiation caused in the first place!

I wanted to ask if you have researched Pubmed?  Some articles are in full, some only in abstract and some highly technical but its a great resource!  All the best to you!

 

grateful1
Posts: 81
Joined: Jun 2010

I WAS IRRADIATED FOR AN ENLARGED THYMUS AS AN INFANT. MY GYN FOUND A NODULE ON MY RIGHT SIDE BOUT 8 YRS AGO. THE DR SAID IF THE NEEDLE BIOPY CAME BACK BENIGN, I SHOULD STILL GET THE THYROID REMOVED. I WAS IN SUCH A HIGH RISK GROUP. BUT I HAve muscle disease and general was a risk for surgery. I WENT TO SEE ANOTHER SURGEON WHO TAKES IT OUT LOCALLY AND HE SAID THERE WAS NOTHING TO WORRY ABOUT--IT WAS JUST A GOITER AND PUT ME ON SYNTHROID.

I WENT BACK A FEW YEARS AGO FOR ANOTHER SCAN. THE DOCTOR DIDN'T TELL ME THEN BUT NOW THE TESTS SHOW I HAD DEVELOPED A NODULE ON THE LEFT SIDE. I ASKED HIM WHY HE DIDN'T TELL ME--HE SAID IT WAS TOO SMALL TO BIOPSY. THAT WAS 2006. NOW IN DECEMBER, 2009 I STARTED HAVING PAIN IN MY NECK. AFTER SEEING A DENTIST FOR TMJ AND BUYING A NEW BED. I SAW THE THYROID DR, HAD A BIOPSY AND IT CAME BACK MALIGNANT.

IT WAS CLOSE TO MY AORTA AND WINDPIPE AND THEY CALLED IT POORLY DIFFERENTIATED THYROID CANCER. SOME DRS I SAW THOUGHT IT WAS ANAPLASTIC. ALL THOUGHT IT WaS AGGRESSIVE. IN APRIL, THEY TRIED FOR HOURS BUT THE TUMOR WAS INOPERABLE. I STARTED ON SUPPLEMENTS ETC IN FEB THOUGH AND NOW WHEN THEY TOOK THE BIOPSY DURING MY SURGERY, THE BIOPSY CAME BACK BENIGN. THEY ALL AGREE THO IT IS AN AGRESSIVE CANCER. I CAN FEEL IT SPREAD FROM MY EAR TO MY SHOULDER. ANYWAY, NOW I AM ON AN IODINE FREE DIET. IN TWO WEEKS I START IODINE TREATMENT AND A DRUG CALLED SUTENT. SO WE'LL SEE. I AM A POOR RISK FOR REGULAR FIVE DAY A WEEK. SIX WEEK RADIATION.GOOD LUCK

2manyrads
Posts: 16
Joined: May 2010

I am stunned by the course of your medical challenges, especially the way you were undiagnosed, diagnosed, told it was too small, then too close to your aorta for surgery, then confusion over what kind of cancer it was, then a biopsy that said it was benign. I am moved by your courage not only to undergo all these challenges but to communicate them to me and others. I can only say that I hope you will stay in touch and let me and others follow your progress.

grateful1
Posts: 81
Joined: Jun 2010

Thank you for your concern. I don't usually feel down--butI am tonight. I went on the iodine free diet for two weeks and went for for my iodine treatment today. I was shocked when I got there--the dr--extremely highly regarded said he couldn't proceed. I thought I would have three days treatment and a scan next week with hope the tumor had shrunk by fifty percent. He said my case was so unusual he had to see discs of my pet scans which I came home and ordered for him. I had a pet scan in Feb when I was first diagnosed with left side nodule and told it was malignant.. I had another pet scan a few weeks ago--this was after the biopsy I had while undergoing five plus hours of surgery to try to get this tumor out. This biopsy came back benign which has the doctors baffled.

I really go to top doctors at top hospitals. But there isn't agreement among them. At the end of the consultation, the doctor examined physically my neck and said this is the worst tumor I have felt in a year. That brought tears to the back of my eyes. I didn't want the woman driving me home to see me cry so I held it in. Later with my husband who came with me I cried.I do have a lot of pain since Dec. For those interested, I asked the doctor if this ongoing pain (I am on liquid morphine) was due to the severity of the cancer or the position of the tumor. He said the position of the tumor.

But my case is so confusing to the doctors--they told me it had them scratching their heads. For the record, my diagnosis is poorly differentiated thyroid cancer. I am starting to feel as though I don't know where to turn. I take Poly-mva a supplement mentioned in Suzanne Somers book Knockout. I started taking this in Feb to try to help myself. I don't know if this is what changed the biopsy to benign or not. If I didn't take this four times a day and eat a wholesome diet and take other supplements, I would feel I am doing nothing. I don't know why I have a case that so many top doctors from the best hospitals can look at and not agree on. I love my teenage children and my husband, but I am starting to feel discouraged. Thanks for listening--and caring. For those just starting this process, I would say in hindsight, don't wait for the doctor to send you a report. In 2006 if I had known a nodule had appeard on my left side, I would have been more proactive. I just assumed all was fine--no news was good news. Please don't do that. It may have beeen in a letter never mailed me or it may have been forgotten phone call. I'll never know. I'd also go for a second opinion from the get go--not at the end like now. Also, I would probably chance it and get the nodule removed. Of course, I never knew it was there until now. But a small nodule is easy to take out. One close to your vocal cords, aorta, wind pipe is another story. I hope someone learns from my expeience and mistakes. Thanks and God Bless.

bonniesue
Posts: 126
Joined: Apr 2009

also had multiple rads in the 60's for a benign mole on my head age two. go for ultrasounds occasionally. t3 t4 and tsh are ok. anti-tpo is quite elevated ?110. saw endocrine who said to get ultrasound of thyroid every 2 yrs. no nodules seen. said not to worry. any advice? happened upon posts and have concerns. thanks.

grateful1
Posts: 81
Joined: Jun 2010

PLEASE DO YOURSELF A FAVOR AND GET THOSE SCANS REGULARLY BY A TOP DOCTOR. I WISH I HAD--IT WOULD HAVE NEVER DEVELOPED INTO INOPERABLE CANCER IF I HAD. ALSO, IF THEY DON'T GIVE YOU THE RSULTS OF A SCAN--AS THEY DIDN'T TO ME WHEN MY CANCEROUS TUMOR BEGAN AND SHOWED ON THE SCAN--DON'T ASSUME THEY WOULD HAVE TOLD YOU--ASK FOR A REPORT IN WRITING. ALSO I WOULD GET TWO OPINIONS IN RETROSPECT. EVEN THIS FEB WHEN I WENT ABOUT THE PAIN IN MY NECK, THE THYROID DR GAVE ME A PRESCRIPTION FOR DENTAL--TMJ--PHYSICAL THERAPY. I FOUND YOU HAVE TO REALLY STAY ON TOP OF IT IN MY CASE ANYWAY AND MY DOCTOR WAS LISTED AS ONE OF THE TOP DOCTORS IN THE STATE. GOOD LUCK--

bonniesue
Posts: 126
Joined: Apr 2009

Thanks for your info. I have been told not to worry about having this head radiation for a benign mole as a child in the 60's and not to worry about anti-tpo? being 112. which type of doc should I see--saw endocrine. thank you. sorry to hear about your scans not being told to you and you are in my prayers.

grateful1
Posts: 81
Joined: Jun 2010

I DON'T KNOW WHERE THE MOLE IS LOCATED BUT I AM ASSUMING THE NECK AS MY HUSBAND HAS A BIRTHMARK THERE. WHAT ABOUT SEEING A HEAD AND NECK SPECIALIST? GOOD LUCK--KEEP US POSTED.

grateful1
Posts: 81
Joined: Jun 2010

I DON'T KNOW WHERE THE MOLE IS LOCATED BUT I AM ASSUMING THE NECK AS MY HUSBAND HAS A BIRTHMARK THERE. WHAT ABOUT SEEING A HEAD AND NECK SPECIALIST? GOOD LUCK--KEEP US POSTED.

Smethport's picture
Smethport
Posts: 15
Joined: Mar 2010

I am not totally sure that I was irradiated for the acne, but the dermatologist used a lamp therapy and my ENT said that we have to assume that it was. He was an older gentleman and by the time that I realized that it was a risk, the dermatologist had died and they didn't know where the records were. I had surgery in Feb 2010 for colon cancer and on my follow up CT scan, it showed that I had a multinodular thyroid, and kidney stones. Funny how you can go along and not know you have diseases until you have a test for something else. I have had the thyroid US which showed a small nodule on the right and a larger one on the left. I am having FNA on both lobes next week. My ENT doc wants to definitely do a left lobectomy and not sure about the right. I am on Xeloda, chemo for the colon ca, and won't finish until about November. The ENT doc wants to wait for me to finish the chemo before surgery, says it won't hurt to wait that long. I am very apprehensive, both colon cancer and thyroid nodules run in my family.

Did the fine needle aspirations hurt? Did anyone have the thyroidectomy done endoscopically? Thanks everyone for your help. If this is cancer of thyroid, what a rotten 2010 to have found 2 type cancers! My best wishes to everyone.

Lochnes724
Posts: 1
Joined: Feb 2011

My mother died three weeks ago of a rare cancer, neuroendocrine cancer at the age of 72. She fought for years and finally lost her battle. She was always sickly and tired her whole life. In her early 20's and 30's she suffered from migraine headaches and sinus problems. In her fifties is when her real problems started. She had brain strokes, arthritis, colon cancer, thyroid disease, breast cancer, paget's disease on her breast, skin cancer on her ear, leg ulcers that would not heal and always had low white counts. When she was a child she was radiated for a runny nose/sinus problems. She lived in Johnstown, PA and I am almost sure that is where the radiation occurred. I feel confident that this radiation compromised her immune system and resulted in her almost unheard of poor health. Five different unrelated cancers in 17 years. I am currently hoping to learn more about these children that were radiated I suppose to educate myself as to why it occurred. I wanted to tell you our story and I am willing to provide you with any of her medical history. Thank you.

Becky7213
Posts: 1
Joined: Oct 2011

Well, yes, I guess most of us know that the irradiation that was given to us in childhood and infancy was a rather large error. There is a series of very good studies from the University of Rochester, NY. They followed a group of children with irradiated thymus glands for many, many years and reported on the after effects. It can be found online. If you have trouble finding it email me and I will send the link.

My own story-Premature birth in 1945-just 5lbs. Had trouble breathing-Peditrician diagnosed an enlarged thymus gland and decided to use radiation to shrink it at 6 weeks of age. 3 treatments. My hair all fell out when I was 2, it did grow back. At 17 I was hospitalized with my first autoimmune disease-Ulceratvie Colitis. Nearly died. Battled that since. Then came Hashimoto's Thyroid Disease, and recently breast cancer.

Would like to correspond with others who have had side effects-maybe create a group-something like "The Forgotten Children" since many of the kids died from leukemia and throid cancer before adulthood.

Wishing all good health.

Carol

gramabirdie
Posts: 1
Joined: Feb 2012

My thymus was also radiated in 1950's.Lets talk,price@caltel.com

bouncer
Posts: 27
Joined: Apr 2012

Although born 1950, I did not have any radiation until I was 9 years old. I was taken into Stoke Mandeville hospital, near Aylesbury in Buckinghamshire, UK, with suspected polio. After a short time it was re-diagnosed as rheumatic fever, but I failed to respond to treatment. After 3 months, and many x-rays all over my body, they eventually found I had osteomyelitis in my left hip. I was encased in plaster for the next 9 months, renewed (and x-rayed) monthly. Over the years I have suffered from many orthopaedic problems, and had many more x-rays, plus an x-ray with a camera that took "slice" pictures of my sinuses following hearing problems. Surprisingly, I have had very few dental x-rays done, which are often mentioned as something to avoid. When I had my thyroidectomy, I asked the surgeon if all those x-rays may have been a cause. He said that any x-ray taken before 1990 could be classed as a "dirty" x-ray, due to incorrect dosage or leakage from the machine, and failure to shield those parts of the body not being x-rayed.

JudySurvivor2
Posts: 1
Joined: Jul 2012

1954 my parents were told that radiation would cure me of tonsillitis, but two years later they were surgically removed. When I turned 14 my gym teacher mentioned I looked lethargic and for some reason I mentioned it to my mom. Within two months, 3/4 of my thyroid was removed along with half the muscles in in neck. Unfortunately I was not followed up correctly and within ten years, the thryroid cancer returned to eat up the last 1/4 of thyroid I had left and then it decided to continue to my lungs. I had at least 4 treatments of I-131(over 20 rads each)which seems to have worked. I am still here at 58. I recently lost my right breast to breast cancer and thankfully I was not required to take Chemo or radiation. Catch 22 - I have been told I have had my limit of radiation for a lifetime, whether I need it or not.

suggi
Posts: 2
Joined: Oct 2012

I was radiated as an infant for an enlarged thymus gland and then again at age 6 to remove scar tissue (I was told). I have had breast cancer, have become allergic to all antibiotics except 2 and since it happens over time as I use them I will probably become allergic to those also. Also have other drug allergies i.e. Crohns meds as I have Crohns disease, osteoporosis, esophagitis, thyroi8d nodules, a poor immune system and now have developed environmental allergies. I also developed hyperthyroidism and was treated with the radioactive iodine pill which apparently did not kill off the gland as now I am within the normal thyroid levels of TSH and t4. Just waiting for the bomb to drop.

Could all this be related to the childhood radiation? I know the radiation oncologist said I could never have radiation to the chest area because they used unmeasured cobalt back in the end of 1938 and early 1940's.

I think we were guinea pigs!!

suggi
Posts: 2
Joined: Oct 2012

Sorry new to board and my comment went in twice so tried to take out 2nd one.

wilsonpam
Posts: 1
Joined: Jan 2013

Hello. I just discovered this board, and am grateful to find a community of people who are survivors of childhood thymus irradiation. I was born in 1957 and had several radiation treatments for an enlarged thymus at Spartanburg Hospital in Spartanburg, SC (USA), in the spring of 1957. I wasn't even aware of this until I was college-aged and my mother read an article in Time magazine about a high rate of cancer among children who had had this procedure. I mentioned this to a doctor, who examined me and Lo! found a thyroid tumor which turned out to be malignant. I had the left lobe and isthmus of my thyroid removed in 1976 and have been on synthroid ever since. I did not have any radioactive iodine treatments, although an aggressive endocrinologist 20 years later wanted me to either have surgery to remove the remaining thyroid tissue or to have radioactive iodine treatments.

I haven't had any further problems with my thyroid cancer, thank goodness, but I've had chronic sinus problems all my adult life and multiple infections a year. When I had allergy testing about 18 years ago, the allergist found that, although I didn't have standard allergies, I had a very high eosiniphil count and a tendency to inflammation. He wondered at that time if it might be related to my history of thymus irradiation. About ten years ago, I had an extremely rare tumor in the bladder called a paraganglioma or pheochromocytoma, which was removed by a urologist.

Seven years ago, and again last week, I have had an occlusion of a branch retinal artery (in the eye); I am currently undergoing a slew of tests to try to determine the cause, but the previous slew of tests 7 years ago came up inconclusive, and so far the ccardiologist has not found anything that would make meprone to blood clots. However, in testing this week, my sed rate came back at 63, which is high and means that I have a high amount of systemic inflammation in my body and is often linked to immunodefiencies. Doctors have not yet begun to investigate this result, but I am suspicious that this is related to my zapped thymus gland. Has anyone else had unexplained high sed rates? 

 

Thanks for any insights,

Pam

 

kodsgy
Posts: 1
Joined: Feb 2013

I am 57 and was irradiated at a few months old for enlarged thymus after my parents brought me in for sinus symptoms (was probably only a milk allergy). I do not and have never had cancer, but I’m interested in ways the radiation could have negatively affected my life. I just joined here after finding this thread and don’t know if it exists somewhere in this forum, but would like to find a survivors support group for child thymus irradiation. Determining which health problems, short of cancer, could be related to the irradiation treatments would be valuable. I could list my health issues here and ask if anyone else has had anything similar, but I’m not sure it would be on topic.

 

beadgean
Posts: 3
Joined: Apr 2013

 

Hi!

I hope you get this message.  The need for information about our status is apparent but we are a diverse group of people and so spread out over the world.  I had radiation treatments for bad tonsils.  I am positive that I had four treatments maybe more.  What I find fascinating was the follow up that the government was doing since I had received the treatment through the military medical system…now exactly where is that information?

I have had two cancers (both rare) one benign tumor removed from my tongue, and I now have tinnitus and burning tongue an indication of dysesthesia.  So many issues but if I mention it to doctors I get the deer in the headlights look.  I did receive an honest assessment from an oncology team in the late ‘90s. 

It was through a university system and it was for the fifth episode of cystosarcoma phyllodes (rare enough cancer to be not well studied).  I bluntly asked the oncologist with specialty in chemo how closely was the cystosarcoma  phyllodes associated with the radiation and the answer was vague…maybe maybe not. 

I have had deteriorating teeth my whole life and I had surgery for a spinal vertebra that was growing into the spine upper neck position (C4-5).  The indicators for radiation involvement are a little more tentative with these but it’s odd that all of the problems are in my upper body.

I have had health issues my whole life and I was also diagnosed with hypothyroid but this episode was (I feel) in reaction to fear that there might be complications from the irradiation and it was in the military medical system.  I have had low thyroid function all my life was treated with synthroid and now have discontinued use.

I have looked into the history of our group of people and what is fascinating is that they are again using radiation to treat benign conditions like ours…don’t we ever learn?  But without investigation and a core of knowledge many doctors are unaware of the problems because there has never been a medical or patient “critical mass” to deal with the issues.  

I hope this finds you well and at the least validates that your hunches and guesses are not unfounded.  But where to get a comprehensive treatment and approach to your problems...sadly I have no answers.Frown  Let me know if you would like some of the web sites I have visited.

k61zo
Posts: 1
Joined: Aug 2013

Born in 1951, I received radiation for enlarged thymus as newborn.  The VA is recommending my thyoid be removed.  Just a few days ago I got fine needle biopsy results that it is "inconclusive".  This is the 2nd time in about a year that a fine needle biopsy has been done on my thyroid which is lumpy and bumpy and has nodules it shouldn't.  The ultrasound a few weeks ago is what prompted this last biopsy - appears things are growing - albiet slowly. First bx also was "inconclusive."  In my 20's went into the doctor with what turned out to be goiter. I've had Hashimoto's for about 40 years and on synthyroid.

It is comforting and anger-provoking to know there are others.

GaDancer
Posts: 1
Joined: Sep 2013

Both my sister and I received radiation as infants for a "chest rattle", she was born in 1941 and I in 1945.  My sister died at 57 from Type I Diabetes since childhood and Lupus (cause was respiratory failure).  I have had Multiple Sclerosis, Psoriasis, Ocular Rosacea, and Common Variable Immunodeficiency.  I have had non-stop sinus infections since 2005 and now have kidney failure from all the antibiotics.  I now get IVIG infusions once a month.  Both my sister and I had Hashimoto's with nodules.  I lost my son to Lymphosarcoma at age 2.

 

I have been accepted in a study at NIH for hypothyroidism and fungal infections.  It seems that they need to study this large group of people who have problems as adults from radiation treatments as infants.  Those machine emitted massive doses of radiation.

Missy5713
Posts: 1
Joined: Oct 2013

I had 6 applications of a radon capsule taped to the bridge of my nose for a "growing" birthmark when I was six months old, in the mid 1950's. My mother held me each time. She had colo-rectal cancer 2 years ago. I have had numerous health problems since an early age, starting with weight problems, severe allergies and early puberty at age 9. Even then, I had insomnia and fatigue. Then dental problems (soft yellowed teeth), migraines, and cervical spine osteoarthritus before I was 25. Fibromyalgia, IBS, reynaud's, endiometriosis, infertility treatments, 1 pregnancy ending in a miscarriage, lumbar osteoarthritus, gastro-reflux, hypothyroid & hypoglycemia followed. I have recently went through numerous blood tests to see why I have very high serum b12, without supplementation. I AM very thankful that I have never been diagnosed with cancer. This hemotologist seems perplexed as this point, as to why my b12 is so high. I am waiting on the results of an abdominal ct scan now. Please let me know of any group studies or research. Why isn't there any research about this? 

SNOWFLAKE55
Posts: 1
Joined: Jul 2014

When I was a baby I had a strawberry mark on my face.  My MD told my mom that she could take me to "radiation treatment" to help it go away.  I read a study follow up of these children years later as adults - most of which were in Norway/Sweden etc. 

I have just been diagnosed as having Invasive Malignant Melanoma and I am wondering if those radiation treatments had something to do with this.   The xray machines that they had back then were very high dose and out of control, nothing like the levels today. 

 

It would be great to see a few more in this group tell their tale.  

Thanks.

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