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Endometrial CA Advocacy Group Forming

MoeKay
Posts: 63
Joined: Feb 2004

Hi All:

I recently received a copy of the latest Gynecologic Cancer Foundation's Newsletter in the mail. It includes information about the newly-formed Endometrial Cancer Advocacy Group, and states that this initiative marks the first time that there has been a national endometrial cancer (EC) group whose purpose is to create awareness about early warning signs of EC and prevention steps, as well as to create a dialogue among women diagnosed with EC.

For more information, or to join the group, the Newsletter instructs you to contact Marsha Wilson, GCF's Director of Communications and Advocacy Relations at mwilson@thegcf.org or by calling 301-332-0117.

I thought I would pass this information along in case some of you might be interested.

Happy New Year,

MoeKay (Maureen)

kkstef's picture
kkstef
Posts: 706
Joined: May 2008

Maureen, thank you for sharing this info. I will CERTAINLY check into it! A very much needed effort in my opinion!!

Karen

daisy366's picture
daisy366
Posts: 1493
Joined: Mar 2009

What do you think ladies about asking for more RESEARCH - on UPSC and other aggressive endometrial cancers. If we all ask, maybe they will do it. We can reference this site as a treasure trove of willing participants.

I will be one to step up and request, and I invite you too!!

Rewriter's picture
Rewriter
Posts: 494
Joined: Dec 2009

I am thrilled that we may finally have a chance to be heard. I am calling Marsh Wilson on Monday.

Songflower's picture
Songflower
Posts: 632
Joined: Apr 2009

I am ready to roll up the sleeve and work. I will be calling when I return for my trip. Research and those new molecular drugs are on my agenda!

Diane

deanna14
Posts: 733
Joined: Oct 2008

I am interested in sharing. Going to send an email!

susie1143's picture
susie1143
Posts: 109
Joined: Aug 2009

Glad to hear that a group is forming. I will be calling tomorrow for more information. Certainly not enough research has been done on any level with endometrial cancer. I'm considered Intermediate (Stage 1C, Grade 2) and there wasn't even a study available to me. All kinds for breas cancer but very few for endometrial.

Happy New Year,
Susie (Lilly the Clown)

shortmarge's picture
shortmarge
Posts: 295
Joined: Nov 2008

I emailed Marsha and following is her response. Please let's all let her know we are very interested in such a group.

Hello, Marge,

Thank you for your interest. We are just in the formative stages and wanted to gauge the
interest in forming such a group.

I am going to add you to the list and you will be hearing from us soon. We are very
pleased with the response to date.

Best regards,

Marsha

Here is her info again:

For more information, or to join the group, the Newsletter instructs you to contact Marsha Wilson, GCF's Director of Communications and Advocacy Relations at mwilson@thegcf.org or by calling 301-332-0117.

Hugs

livealot's picture
livealot
Posts: 19
Joined: Jan 2010

I just called and left a message for Marsha saying that I too would be interested in this.
elizabeth

deanna14
Posts: 733
Joined: Oct 2008

the same response that I received from Marsha.

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