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Waiting for more tests



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delilahsmom
Posts: 6
Joined: Nov 2009
November 21, 2009 - 9:11pm

I had a abdominal and a transvaginal ultrasound last week due to post-menopausal bleeding after 3 years. The results came back showing 2 cysts on my left ovaries and thickening of my endometrial lining. December 8th I go back for an abdominal ultrasound again as well as a sonohysterogram (sp?) on December 9th.

I am experiencing pains in my abdomen as well as my back, groin, legs and rib cage. I also have bloating of the abdomen. I have been having bowels issues for probably a year and I am also having some wicked headaches. I am exhausted beyond belief and it takes all I have to make it through my work day.

It is driving me nuts waiting for all these tests and then it will be another week for those results. I wish they would get on with it so I know what is going on for sure.

I just lost my Step-Dad on July 14th due to cancer and my Dad was given 3 months to live as of October 8th. This has been a real tough year for my family and I have to say I am scared for sure.

BonnieR's picture
BonnieR
Posts: 1001
Joined: Jan 2004
November 22, 2009 - 7:55am

Dear Delilah, I cna only imangine all you've gone through with your dad just passing from cancer and then this. Usually they can tell by the ultra sound but if in doubt I would ask for a ct scan and ca125 just to double check. Rather lean on the cautious side.

Hugs N Prayers Bonnie

saundra's picture
saundra
Posts: 1400
Joined: Mar 2007
November 22, 2009 - 4:33pm

I think Bonnie has the right idea. The abdominal sonogram missed mine due to the fluid in the abdomen. The CT showed it all over though! Add to that the blood test CA-125 which some doctors are reluctant to do even though it is pretty cheap and you should know something for sure. We are here for you and will be praying that you get an answer soon. We all HATE waiting. Saundra

delilahsmom
Posts: 6
Joined: Nov 2009
November 22, 2009 - 6:17pm

Hi Ladies thanks for the replies. If I want the CA-125 test I have to pay out of my own pocket and I have no idea what it costs. I am concerned about them missing stuff. Not sure why the are doing the abdominal again but I will go for it anyway. I will just have to be patient and wait for the test results. I wish the doctor would at least start with sending me to an OB/GYN. Everything I read says that bleeding after menopause is NOT a good thing.

Thanks Again
Deb

lindaprocopio's picture
lindaprocopio
Posts: 2093
Joined: Oct 2008
November 22, 2009 - 9:09pm

I don't know exactly how much it costs but I think a CA125 id relatively inexpensive, as far as tests go. It should be covered by insurance, though. It always has been for me.

saundra's picture
saundra
Posts: 1400
Joined: Mar 2007
November 23, 2009 - 10:27am

You can call a lab and ask. In Colorado where my daughter lives it is $29. I have one each month and my doctor says they are cheap. It is however difficult to get a GP to order one here in Texas. We ladies with ovarian cancer, consider them important but doctors do not. It can be a battle but keep insisting because imperfect as the test is, it is a referral point. Saundra

mopar
Posts: 1503
Joined: Apr 2003
November 23, 2009 - 12:30pm

The cost for mine jumped from $75.00 last year to $114.00 this year, with a $10 fee for the technician to take the blood sample. Thankfully, it is covered by my insurance. But even if it's not covered for you right now, if you can afford to do it I would. At least you would have a baseline to start with. And if you need to continue to have the test, maybe your doctor can send verification to the insurance company and they will cover it in the future.

Hope this helps. Please let us know how you are doing and what test results show.

(((HUGS)))
Monika

delilahsmom
Posts: 6
Joined: Nov 2009
November 24, 2009 - 4:30pm

Well just thought I would update everyone on my symptoms. I had severe pain in my right shoulder blade last night but it came and went. Then today I feel like I am pregnant and like I will explode. Wish they would hurry up with the tests.

saundra's picture
saundra
Posts: 1400
Joined: Mar 2007
November 24, 2009 - 5:55pm

You may be filling with fluid. You should report this latest to the doctor. Saundra

delilahsmom
Posts: 6
Joined: Nov 2009
November 25, 2009 - 10:43am

I am going to the doctor tomorrow at 3 p.m. Not sure she can do anything at this point but need to let her know what's going on.

Thanks Saundra

delilahsmom
Posts: 6
Joined: Nov 2009
November 26, 2009 - 8:12am

My doctor has now referred me to a OB/GYN for a biopsy and I found out a CA-125 test is $35.00 here. Hope it doesn't take too long to get an appointment. Still seeing my family doctor at 3 today just to keep her informed of changes.

Deb

delilahsmom
Posts: 6
Joined: Nov 2009
December 7, 2009 - 5:17pm

Well I go for my abdominal ultrasound tomorrow and then a sonohysterogram on Wednesday. Glad it is finally here. Also heard from the doctor on Friday and I have a biopsy scheduled for January 14th!!!

saundra's picture
saundra
Posts: 1400
Joined: Mar 2007
December 7, 2009 - 8:53pm

Keep us posted. We will lift you up in prayer in the meantime. Saundra