Waiting for more tests

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delilahsmom
delilahsmom Member Posts: 6
edited March 2014 in Ovarian Cancer #1
I had a abdominal and a transvaginal ultrasound last week due to post-menopausal bleeding after 3 years. The results came back showing 2 cysts on my left ovaries and thickening of my endometrial lining. December 8th I go back for an abdominal ultrasound again as well as a sonohysterogram (sp?) on December 9th.

I am experiencing pains in my abdomen as well as my back, groin, legs and rib cage. I also have bloating of the abdomen. I have been having bowels issues for probably a year and I am also having some wicked headaches. I am exhausted beyond belief and it takes all I have to make it through my work day.

It is driving me nuts waiting for all these tests and then it will be another week for those results. I wish they would get on with it so I know what is going on for sure.

I just lost my Step-Dad on July 14th due to cancer and my Dad was given 3 months to live as of October 8th. This has been a real tough year for my family and I have to say I am scared for sure.

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  • BonnieR
    BonnieR Member Posts: 1,526 Member
    #2
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    CT Scan and CA125
    Dear Delilah, I cna only imangine all you've gone through with your dad just passing from cancer and then this. Usually they can tell by the ultra sound but if in doubt I would ask for a ct scan and ca125 just to double check. Rather lean on the cautious side.

    Hugs N Prayers Bonnie
  • saundra
    saundra Member Posts: 1,370 Member
    #3
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    Ditto for me
    I think Bonnie has the right idea. The abdominal sonogram missed mine due to the fluid in the abdomen. The CT showed it all over though! Add to that the blood test CA-125 which some doctors are reluctant to do even though it is pretty cheap and you should know something for sure. We are here for you and will be praying that you get an answer soon. We all HATE waiting. Saundra
  • delilahsmom
    delilahsmom Member Posts: 6
    #4
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    saundra said:

    Ditto for me
    I think Bonnie has the right idea. The abdominal sonogram missed mine due to the fluid in the abdomen. The CT showed it all over though! Add to that the blood test CA-125 which some doctors are reluctant to do even though it is pretty cheap and you should know something for sure. We are here for you and will be praying that you get an answer soon. We all HATE waiting. Saundra

    CA-125
    Hi Ladies thanks for the replies. If I want the CA-125 test I have to pay out of my own pocket and I have no idea what it costs. I am concerned about them missing stuff. Not sure why the are doing the abdominal again but I will go for it anyway. I will just have to be patient and wait for the test results. I wish the doctor would at least start with sending me to an OB/GYN. Everything I read says that bleeding after menopause is NOT a good thing.

    Thanks Again
    Deb
  • lindaprocopio
    lindaprocopio Member Posts: 1,980
    #5
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    delilahsmom said:

    CA-125
    Hi Ladies thanks for the replies. If I want the CA-125 test I have to pay out of my own pocket and I have no idea what it costs. I am concerned about them missing stuff. Not sure why the are doing the abdominal again but I will go for it anyway. I will just have to be patient and wait for the test results. I wish the doctor would at least start with sending me to an OB/GYN. Everything I read says that bleeding after menopause is NOT a good thing.

    Thanks Again
    Deb

    I think the CA125 is relatively inexpensive.
    I don't know exactly how much it costs but I think a CA125 id relatively inexpensive, as far as tests go. It should be covered by insurance, though. It always has been for me.
  • saundra
    saundra Member Posts: 1,370 Member
    #6
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    delilahsmom said:

    CA-125
    Hi Ladies thanks for the replies. If I want the CA-125 test I have to pay out of my own pocket and I have no idea what it costs. I am concerned about them missing stuff. Not sure why the are doing the abdominal again but I will go for it anyway. I will just have to be patient and wait for the test results. I wish the doctor would at least start with sending me to an OB/GYN. Everything I read says that bleeding after menopause is NOT a good thing.

    Thanks Again
    Deb

    Call a lab
    You can call a lab and ask. In Colorado where my daughter lives it is $29. I have one each month and my doctor says they are cheap. It is however difficult to get a GP to order one here in Texas. We ladies with ovarian cancer, consider them important but doctors do not. It can be a battle but keep insisting because imperfect as the test is, it is a referral point. Saundra
  • mopar
    mopar Member Posts: 1,972 Member
    #7
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    delilahsmom said:

    CA-125
    Hi Ladies thanks for the replies. If I want the CA-125 test I have to pay out of my own pocket and I have no idea what it costs. I am concerned about them missing stuff. Not sure why the are doing the abdominal again but I will go for it anyway. I will just have to be patient and wait for the test results. I wish the doctor would at least start with sending me to an OB/GYN. Everything I read says that bleeding after menopause is NOT a good thing.

    Thanks Again
    Deb

    CA125
    The cost for mine jumped from $75.00 last year to $114.00 this year, with a $10 fee for the technician to take the blood sample. Thankfully, it is covered by my insurance. But even if it's not covered for you right now, if you can afford to do it I would. At least you would have a baseline to start with. And if you need to continue to have the test, maybe your doctor can send verification to the insurance company and they will cover it in the future.

    Hope this helps. Please let us know how you are doing and what test results show.

    (((HUGS)))
    Monika
  • delilahsmom
    delilahsmom Member Posts: 6
    #8
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    mopar said:

    CA125
    The cost for mine jumped from $75.00 last year to $114.00 this year, with a $10 fee for the technician to take the blood sample. Thankfully, it is covered by my insurance. But even if it's not covered for you right now, if you can afford to do it I would. At least you would have a baseline to start with. And if you need to continue to have the test, maybe your doctor can send verification to the insurance company and they will cover it in the future.

    Hope this helps. Please let us know how you are doing and what test results show.

    (((HUGS)))
    Monika

    More Symptoms
    Well just thought I would update everyone on my symptoms. I had severe pain in my right shoulder blade last night but it came and went. Then today I feel like I am pregnant and like I will explode. Wish they would hurry up with the tests.
  • saundra
    saundra Member Posts: 1,370 Member
    #9
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    mopar said:

    CA125
    The cost for mine jumped from $75.00 last year to $114.00 this year, with a $10 fee for the technician to take the blood sample. Thankfully, it is covered by my insurance. But even if it's not covered for you right now, if you can afford to do it I would. At least you would have a baseline to start with. And if you need to continue to have the test, maybe your doctor can send verification to the insurance company and they will cover it in the future.

    Hope this helps. Please let us know how you are doing and what test results show.

    (((HUGS)))
    Monika

    You may be filling with fluid. You should report this latest to the doctor. Saundra
  • delilahsmom
    delilahsmom Member Posts: 6
    #10
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    saundra said:

    You may be filling with fluid. You should report this latest to the doctor. Saundra

    Dr. Appointment
    I am going to the doctor tomorrow at 3 p.m. Not sure she can do anything at this point but need to let her know what's going on.

    Thanks Saundra
  • delilahsmom
    delilahsmom Member Posts: 6
    #11
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    delilahsmom said:

    Dr. Appointment
    I am going to the doctor tomorrow at 3 p.m. Not sure she can do anything at this point but need to let her know what's going on.

    Thanks Saundra

    OB/GYN & CA-125
    My doctor has now referred me to a OB/GYN for a biopsy and I found out a CA-125 test is $35.00 here. Hope it doesn't take too long to get an appointment. Still seeing my family doctor at 3 today just to keep her informed of changes.

    Deb
  • delilahsmom
    delilahsmom Member Posts: 6
    #12
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    delilahsmom said:

    OB/GYN & CA-125
    My doctor has now referred me to a OB/GYN for a biopsy and I found out a CA-125 test is $35.00 here. Hope it doesn't take too long to get an appointment. Still seeing my family doctor at 3 today just to keep her informed of changes.

    Deb

    Finally a Biopsy
    Well I go for my abdominal ultrasound tomorrow and then a sonohysterogram on Wednesday. Glad it is finally here. Also heard from the doctor on Friday and I have a biopsy scheduled for January 14th!!!
  • saundra
    saundra Member Posts: 1,370 Member
    #13
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    delilahsmom said:

    Finally a Biopsy
    Well I go for my abdominal ultrasound tomorrow and then a sonohysterogram on Wednesday. Glad it is finally here. Also heard from the doctor on Friday and I have a biopsy scheduled for January 14th!!!

    Good for you!
    Keep us posted. We will lift you up in prayer in the meantime. Saundra

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