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Total items found: 32

rene9
Posts: 63
Joined: Nov 2009
November 20, 2009 - 6:18pm

Hi. I am 38 years old and have just been told that I have Infiltrated Ductal Carcenoma (IDC). I will have an MRI on next Tuesday and I'm scheduled to meet with a plastic surgeon on the following Monday. I am told I will have my surgery before Christmas. I will more than likely have a masectomy so I won't have to go back for another surgery. I am really looking forward to beginning the process so I can begin to heal. I am a teacher, wife, and mother of a 16 yr old and 10 yr old and hope that I can continue my life as much as normal. Thanks in advance for any support and if/when I can provide support, I am here. Thanks!

Rene9

Sam726's picture
Sam726
Posts: 218
Joined: Sep 2009
November 20, 2009 - 6:25pm

Welcome to the site....i know you dont want to be here but glad you found us. Sorry to hear of your diagnosis. I too am young, 33...HER2+....no mastectomy, but having lumpectomy after xmas, once Im done with chemo. R u going to have chemo also?

rene9
Posts: 63
Joined: Nov 2009
November 20, 2009 - 6:55pm

I'm not sure about my treatment plan yet. I think I'll find out after my MRI next Tuesday. I was hoping I could go through this and not broadcast it at work, but with chemo it seems I will lose my hair. Then, I guess it won't be any hair to sew into so...And yes you are young and I hope you continue to progress well!

chenheart's picture
chenheart
Posts: 2976
Joined: Apr 2003
November 20, 2009 - 6:28pm

For the record, you would be truly amazed at just how many teachers we have in this BC family~ it is incredible. Perhaps that is why we find ourselves here; we learn, share, read, educate and are educated!

Though a cancer diagnosis is never easy to hear, we still welcome you to the most empathetic, supportive group of women you will ever hope to meet!It has wisely been said that "you are our past and we are your future". We will hold your hand through this adventure in Beast-Killing, and sometimes, if you feel a tug, it's ony us pulling you!

Come in as often as you need or want; we are always open and you will find yourself in good company.

Hugs,
Chen♥

rene9
Posts: 63
Joined: Nov 2009
November 20, 2009 - 6:58pm

Thanks so much for your support. I think I'm still in shock. I reacted more before I actually received the news. I don't want to get depressed because my parents will be depressed enough for me. I think because I teach special education I can remain very calm when most people would panic. Thanks again-

Marcia527's picture
Marcia527
Posts: 1655
Joined: Jul 2006
November 20, 2009 - 7:03pm

Welcome but sorry you need to be here. Lots of women here to give support.

S3
Posts: 28
Joined: Nov 2009
November 20, 2009 - 7:14pm

I am also new here, but it looks like a great site. I am middle age with HER/2+ and posttive nodes. I have been able to work during most of my chemo and I only have 1 dose left.
If you do end up needing chemo, most insurance companies will cover a wig up to like 350 dollars, mine did. They said to get your hair cut short and fitted for a wig before you lose your hair and that it won't be as much as a shock and people won't notice as much. I work in the operating room, so cannot wear a wig at work, however people come and get me to use as an example for patient having a port inserted to help tame their fears. The worry seems to be on getting sick. Follow the recomended food intake, (High protien), and other things really will make a hugh difference in how you feel.
Just make a post when you have a concern and do some research, caring4cancer.com

rene9
Posts: 63
Joined: Nov 2009
November 21, 2009 - 11:57am

Hi, I plan to get it cut short after I meet with the plastic surgeon next week, then I'll get my wig cut the same way. My husband keeps telling me I may not even need chemo, but this will be my excuse for a trendy short haircut! Thank you for your support!

S3
Posts: 28
Joined: Nov 2009
November 21, 2009 - 3:19pm

Hopefuly you don't need chemo, however, you are young and most young do. It goes better if you are properly prepared.

LC815's picture
LC815
Posts: 156
Joined: Oct 2009
November 20, 2009 - 9:19pm

Hey, I'm a teacher, too. I couldn't WAIT for my mastectomy so I could get the beast out of me. It's not so bad, and you'll be fine. I could have gone back to work in two weeks, but I took six so I could have my chemo in the summer. I hope the family is prepared to treat you like a princess for a little while!

What age do you teach?

If you're meeting with your Plastic Surgeon, that tells me you're going to have reconstruction at the same time. I did a latissimus flap recon and walked out of the hospital looking "normal" in clothes. I think it helped a lot.

My kids were 12, 10 and 8 when I was first diagnosed in 2004. They barely noticed that I was unwell. In fact, I wanted to shout sometimes, "Hello, I have cancer! Could you please get your own juice?!"

Peace,
Linda

Sunrae's picture
Sunrae
Posts: 452
Joined: Oct 2009
November 20, 2009 - 9:55pm

My older heart goes out to your young heart and to all of you younger women with bc. I'm so sorry you are here but it just happens to be one of the best support groups around. There are incredible women here, strong courageous and a lot of love and support. All of you have your plate full with being young, working and having a family to take care of. You will find out that this will pull it all together and you'll find out how strong you really are. Again welcome, and keep us posted on how you're doing. Much love.

Vonn
Posts: 8
Joined: Nov 2009
November 20, 2009 - 10:52pm

Hello everyone, I am new here as well. I recently found out that I have BC. I will be going into surgery on Tuesday to do a lumppectomy and check on a few lymph nodes. So far this is my 1st topic I chose to read and I feel so welcomed. My prayers go out to each and everyone of you in my new family!

Cathy S
Posts: 1
Joined: Nov 2009
November 21, 2009 - 11:13am

I recently had a lumpectomy in Oct/09 and they found a small amt of cancer in the lymph nodes. I have to have radiation treatments which I will start the week after Thanksgiving.
I found everyone's prayers very comforting while going through each process. Stay focused and don't let yourself think the worse. It's very important to stay positive and just take one day at a time. Stay strong !

My thoughts and prayers go out to you and everyone else going through this.

rene9
Posts: 63
Joined: Nov 2009
November 21, 2009 - 12:04pm

My same thought is that I cannot wait to get these germs out of me! I assked yesterday if she scheduled my surgery yet and it was explained it won't be scheduled until after my MRI. So, Dec. 1 is when I go back to my breast specialst. Everything is happening so fast! I can't wait until the summer, wish I could, looks like I'll be taking a longer Christmas break. This past summer I had a TVH!- I am in GA and I teach special education to K-3rd grade students. I am also working on my doctorate (online) which I should complete the end of next summer. I plan to keep on doing everything- Thanks for your support it is really helping.

kimber10's picture
kimber10
Posts: 47
Joined: Jun 2009
November 20, 2009 - 11:52pm

Im new to this site as well I had a bilateral mastectomy in July no chemo or radiation just tamoxafin, Its nice to read everyones posts and see how supportive everyone on this site is I have family support but sometimes I think they are so worried about making sure they "stay positive" that I cant have a real conversation about my feelings and fears.
So I just hope that I can be there for someone if needed

Kimber10

Tux's picture
Tux
Posts: 274
Joined: Aug 2009
November 21, 2009 - 6:30am

Welcome to all newcomers! I am a teacher also. My doctors have tried to work around my schedule as much as possible, but I had to tell everyone at school--there was just no way to keep it to myself. I wish everyone good luck on their treatments. My advice---get plenty of rest, eat right, follow doctors instructions, and let others help you.

jbug
Posts: 231
Joined: Nov 2009
November 21, 2009 - 8:12am

I'm 45 and just received my diagnosis 12 Nov. Had an MRI guided bx that had some concerning types of cells-not cancer. They recommended local excision of this abnormal tissue. Surgeon and all seemed to think there would be nothing there, so when I got my biopsy results back, I was devastated. Nevertheless, the news, if it can be good so far, is. Very small tumor, the proverbial "needle in a haystack" at the lowest end of staging. No ER/PR results back yet. Still have to have sentinal node biopsy (scheduled for 25 Nov). Very nervous now, even though everyone says the percentages are in my favor. They were supposed to be for the tissue biopsy too, but I have cancer! Have already seen radiation oncology and am prayerful that at the end of this road, all I will need is a course of radiation. No further surgical excision is necessary at this point. Also had BRAC1/2 test drawn based on rad oncologist recommendation. Very remote possibility, but will certainly change my decision making process w/regard to more radical treatment such as mastectomy.
I too have been reading on this discussion board...some of the stuff scared the stuffing out of me! I started to imagine the worst case scenario (i think most of us do this anyway!).
Anyway, will be coming back often as I begin this unwanted journey...i'm sorry that others are in the same boat that I am, but also good to hear that I'm not alone in my fears and concerns.

rene9
Posts: 63
Joined: Nov 2009
November 21, 2009 - 12:08pm

Yes your words are very reassuring. I didn't realize you could have a masectomy and not receive chemo or radiation. I guess it depends on the person and the cancer. I can't wait to receive my treatment plan. I think I will feel a whole lot better. I am trying to remain positive because my poor husband doesn't know what to say right now-

S3
Posts: 28
Joined: Nov 2009
November 21, 2009 - 3:25pm

SOmetimes feelings and fears need to be talked about, My family and friends do not allow me to talk about feelings and concerns either. Cancer care counsler for free professional counseling 800-813-4673. They aloow you to talk about our grim fears and aloow us to face reality. It made me feel better, try them,

KathiM's picture
KathiM
Posts: 1952
Joined: Aug 2005
November 21, 2009 - 9:04am

I personally send big hugs to all of you new to this site. I have been around for 4 years, both on this board and the colorectal board (I got the '2-fer', day after Thanksgiving, 2004).

I came here often during my treatments. Sometimes to vent, sometimes to ask questions, sometimes just to bask in the warmth of sisterhood. Sounds corny, I guess, but I feel a part of a greater good!

I can't give much advice on the newer treatments, I had ACT those many years ago, but I can offer my hugs...

Hugs, Kathi

roseann
Posts: 2
Joined: Jan 2004
November 21, 2009 - 9:47am

Hi All,

I am oldie at 59 but am definately young at heart. I'm so sorry you lovely young women are dealing with this. The treatments will be done before you know it but our biggest challenge (long term) is dealing with the fear that pops up from time to time. I have developed a system for dealing with it so it doesn't "get" me. I have found guided meditation helps me get control of the "crazies". You can find CDs on the internet and in bookstores. I also recommend asking for help when you need it if you have difficulty sleeping or have symptoms of depression. Fortunately, meditating (not medicating) myself to sleep worked for me but everyone is different.

Do something nice for yourself whenever you can. When friends ask what they can do for you, tell them. Have them make meals for you and your family while you're getting chemo, ask them to take you to treatments and sit with you, they can help with laundry and house cleaning. Let them help! It is a gift to them as well as to you. Many of us with BC have a history of putting the needs of others before our own and that needs to stop NOW. We matter, too. For me, the bravest thing I ever did was to ask for and accepting help from those who love me. I was exclusively the giver until BC. My relationships are better and closer because of it.

Hugs.

Roseann

KathiM's picture
KathiM
Posts: 1952
Joined: Aug 2005
November 21, 2009 - 10:23am

And, by asking for help, it just makes you stronger...not weaker, like I thought...

I don't know what I would have done without my support team...

Hugs, Kathi

rene9
Posts: 63
Joined: Nov 2009
November 21, 2009 - 12:10pm

Thanks to everyone I didn't personally respond to for your support! Here is my HUG back at you! I am taking notes-

always's picture
always
Posts: 257
Joined: Oct 2009
November 21, 2009 - 1:08pm

Welcome. I know you don't want to be here. You will however find strength beyond measure here. Compassion and understanding that brings peace when it is greatly needed. Like many women I am not one to seek help...but the one who usually offers it. This is a forum where you will find so joy in seeking help and in doing so find strength you never knew. But remember in the process that those who are around you daily...at home, work, church, school they are on this journey with you. All they can do is help, if you let them. Ask! It is healing for all to stay connected. That is why this site works...the connection. Try to allow it in person as well. They may not help the way you want or always know what to say. But don't avoid asking or receiving.
becky

jbug
Posts: 231
Joined: Nov 2009
November 22, 2009 - 6:56am

WOW, thanks Roseann for your words here! (and everyone else)...right now, this is my greatest challenge. Professionally, I am a nurse (ICU) and have ALWAYS been the one to take care of people, at work and at home. I don't know how to ask or accept gracious offers of help. My sister arrives today to be w/me for my sentinal node biopsy on 25 Nov...she's giving up Thanksgiving w/her family for me! I really hate that and am touched by it as well.

I'm still early in the diagnosic stage, but have been emotionally overwhelmed. I even find it difficult to discuss a good prognosis here on this site in the light of others that are so much worse than mine. I feel guilty for still being so scared! Rationally, i know i still have the same fears to deal with...as well as that long term worry that will be with me forever. Right now, I can't help but feel that I should be not as worried and therefore not be so tearful.

helen e's picture
helen e
Posts: 135
Joined: Sep 2009
November 21, 2009 - 1:59pm

I was diagnosed with invasive ductal carcinoma in Sept. I have my mastectomy on the 11 of Dec. They will do reconstruction at the same time. I will not need rads or chemo because of mastectomy. I just want to get it over with so I can get on with my life.

We are lucky that we found this site. We all understand what you're going through right now because we have all been there. If there is anything you need someone on this site has probably gone through it so please do not hesitate to ask or just to vent. You are not alone.

rene9
Posts: 63
Joined: Nov 2009
November 21, 2009 - 2:20pm

Ok I have officially found my 2nd family right here! You all are the best! Even so, I will be a nervous wreck until December 1 when I hear my treatment plan. I don't mind the masectomy,, I just want it over too so I can continue my life, but better. Right now, I am actually feeling better about everything because I am always expecting the worst, but now I will expect the best. Thanks!

rene9
Posts: 63
Joined: Nov 2009
December 1, 2009 - 11:19pm

Hi, thought I'd post an update. I had my MRI last Tuesday and I still have a bruise on my arm. - I spoke with my doctor today and she said the tumor is really small and it's one behind it and it's small too and they are both together. She suggested a masectomy which is what I want. My surgery is scheduled for Dec. 15, but may change to an earlier date. I will also have expanders put in at the time of the surgery. She also said I may not need radiation or chemotherapy, but we'll see. I'm ready... Take care everyone!

S3
Posts: 28
Joined: Nov 2009
December 4, 2009 - 6:57am

I am happy for you that ypu may not needs rads or chemo, I'll pray for you!

susie09's picture
susie09
Posts: 1141
Joined: Jul 2009
December 7, 2009 - 11:12am

Wishing you good luck with your surgery on the 15th Rene!

♠♣ Susie ♠♣

walker7
Posts: 2
Joined: Dec 2009
December 4, 2009 - 4:38pm

This site has been so helpful already to me today when I found it. Thank you to all who have posted. I was diagnosed with BC on 9/11 (a hard date to forget), had a lumpectomy, margin and sentinel lymph node biopsy on 10/6, and will be having a port put in on Mon., 12/7, and my first chemo treatment on 12/9. Everything seems to be going in the right direction...praise God! Still nervous about the whole thing, yet have a peace that passes understanding.

DianeBC's picture
DianeBC
Posts: 1154
Joined: Jun 2009
December 7, 2009 - 10:49am

Welcome walker to the site noone wants to join. You will find a lot of support here and lots of encouragement. Post and let us know how you are doing. Good luck with your treatment.

Hugs, Diane ♥

walker7
Posts: 2
Joined: Dec 2009
December 7, 2009 - 11:38am

Thanks, Diane! I just got home from the port surgery and it went fine. I woke up while they were finishing, but that was planned because they asked me questions. It didn't hurt at all. I did have some trouble taking a deep breath...like my ribs hurt, but that's a bit better now. Left arm is a little sore, but assuming that is all normal. Overall, doing pretty good. I was given a prescription for Vicodin in case I need it. Not yet, but maybe in a while I will be sore...maybe not.

Thank you for your thoughts! Kathy