Sep 24, 2009 - 6:26 am
It would take forever to go over all my side effects from a bone marrow transplant I had for NHL 18 years ago but some are heart damage, lung damage, osteoarthritis and fibromyalgia. Now I am getting other weird and scarey symptoms that I have never had before and the list of all the things it could be is just overwhelming and the docs have no idea. I am doing research on my own but the number of specialists I would have to see to follow up is just more than I can take as I have so many already. I also have been told I now have a cyst and node they found on an ovary, the only system that was working alright til then. In Canada our health care system is overcrowding and I cant even get a freakin biopsy without a fight.
Bottomline is that I am overwhelmed, again, but this time its insane. I have symtomes that need to be followed up quickly and nowhere to turn it seems. My GP used to be right on it but she is swamped.
Had to get that out. Anyone out there with 20 years or more out of treatments with a ton of side effects and no answers, or few? How do you cope? Blessings, Bluerose