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Inability to walk. and talk plainly. Mentation good.

jbenford
Posts: 4
Joined: Sep 2009

Has anyone experienced trouble walking, balancing and speaking after receiving the drug Cytarabine? We were told it would pass but it has not. I am caretaker for my husband who requires 24 hr help..mainly because of his poor balance. It has been since May 2009 since he had his last Chemo. Also has anyone heard about a degenerative, affecting the nerves, serious, nearly always fatal side effect of Rituxin. (PVL)>

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beckyracn
Posts: 323
Joined: May 2009

I had this reaction to receiving Cisplatin. The chemo damaged my inner ear causing severe episodes of vertigo...hence the walking and balance problems. The chemo fog made it hard for me to say what I wanted to. My brain could formulate the words, but I just could not get them out. It slowly dissipated over the next 8 months or so. I still have a horrible time trying to spell anymore. Just over the past few months the walking, talking, speaking thing has become an issue again. I've been asked a few times, by family, if I've become a closet drinker (they are just trying to humor me) because when an episode hits they say I walk like a drunk and I can't speak well. Doctors don't seem to concerned about this. As far as they are concerned, they've done their part by getting rid of the cancer...at least for now. My general GP chalks it up to the inner ear damage. It's very scary when this hits me and I am driving. At least during the day I can judge distance and pull of the road...not so lucky at night.
I hope someone here has an answer for you. Wish I could have been more helpful.

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bluerose
Posts: 1081
Joined: Jul 2009

I have not had the drugs you are speaking about or at least don't remember if I did (chemo brain here). It was 18 years ago I had a bone marrow transplant for non hodgkins lymphoma but can say that I have had loss of memory that