Is it an obvious decision to start staying hom more?

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Amy41
Amy41 Member Posts: 13
edited March 2014 in Caregivers #1
I am taking partial family medical leave to take my hubby to appointments etc - but his condition his deteriorating and I'm feeling more and more torn to be home with him I don't know really what I would do for him at home because he is still mobile but doesn't really get out now but is able to take care of himself - I would probably just nag him to eat more, make smoothies but don't want to burn through my extended sick leave and have us in a finanical state if he is going to stick around for awhile (fingers crossed)

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  • newbride
    newbride Member Posts: 142
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    Go with you gut
    Amy, you have to do what is best for you and your family. I don't know your situation and whether you have kids or not or what type of work you do. I'd love to stay home with my husband but with his limited disability income I need my salary to pay our bills. However, that being said, I do have the opportunity to work from home when needed so when I need to take him to doctor appointments if I can't get one early in the morning or late in the evening I will work from home. When he has his chemo infusions at the hospital I bring my laptop with me and work from there. WHile I'd love to be home - I also know myself and would be of no use at home right now. I need to go to work for my own sanity to be around people and not talk or see cancer all day - it what gets me through the day. I am never more than a phone call away. Right now like your husband mine can take care of himself. I measure out all his pills for the week so he doesn't have to worry about that and also make sure he has what he needs. If the worse should occur later on then I know I have my vacation time and possible family leave should I need it. Go with you gut feeling for what is best for you and you won't make the wrong choice. Good luck and best wishes to you and your husband.
  • trish07
    trish07 Member Posts: 138
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    Financial State?
    What type of cancer does your husband have and what stage? I would say that if you are able to stay home and his condition would get better if you did,then that would probably be my choice. Of course, if you cannot survive financial wise then that choice is out of your hands.
    It must be very stressful to want to be home with him yet also needing to work. A terrible subject, but if something happened to your husband would you be o.k. financially without working? If not,then would your job be in jeapordy if you took an extended leave?
    Don't do anything that would put you in a vulnerable position should you be alone one day. The best scenerio would be that your employer would let you take the time you need without sacrificing your position when the time comes that you need to return.
    I would say that your husband would probably like having you home [ nagging or not ]. I hope everything works out for you and your husband- its terrible what this disease does to peoples lives, and the hard decisions we are faced with.

    Keep us posted on how things work out for you,
    Take Care, Trish
  • winthefight
    winthefight Member Posts: 162
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    Finance
    HI Amy,

    Making the decision to take time off vs staying to assist your love one is certainly a tough decision. It is can be mind boggling. I'm not sure of your hubby's situation if he is eligible for STD or LTD. But, what I would suggest is if you have not done so already, is to apply for SSD for your hubby. I'm told by an inside source, cancer is on the list. He should be approved to get SSD. That may help you financially.

    Good luck to both of you.
  • newbride
    newbride Member Posts: 142
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    Finance
    HI Amy,

    Making the decision to take time off vs staying to assist your love one is certainly a tough decision. It is can be mind boggling. I'm not sure of your hubby's situation if he is eligible for STD or LTD. But, what I would suggest is if you have not done so already, is to apply for SSD for your hubby. I'm told by an inside source, cancer is on the list. He should be approved to get SSD. That may help you financially.

    Good luck to both of you.

    SSD
    previous poster is correct, you can apply for social security disability if your husband is eligible AND he is will disabled a minimum of 6 months. You cannot collect a check until the person as been disabled for a full 6 months -- they will count backwards, so if you husband was first diagnosed in April that is when they will begin counting from. It actually was not a difficult process and you can do it all online -- just make sure you have ALL his work history (places worked, dates, etc) as well as a list of ALL doctors he has seen - I had to enter ever single doctor and hospital he had been too. It took about 2-3 hours to complete the on line forms, but overall it was very easy. After I completed the forms we got a letter in the mail telling us they would call us on a specific date/time which they did and they informed us then that he had qualified and when the first check would come (3 months after we applied since he had not been disabled for 6 months yet)
  • SonSon
    SonSon Member Posts: 174
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    Work from home...
    Hello,
    Is it possible you can do some, most or all of your work from home? - not sure what type of work you do.
    I was sent home July 1 as an "independent sales rep" to work from home (which I had done for the company for a couple years before moving down her to work IN the office) - the company is reorganizing.
    As luck would have it, that is about the time that my mother-in-law started to really need constant care.
    It is not easy to do but at least I can see her and help her when needed and still earn a living.
    If you do something that you can connect to the office network with your computer explore with your employer if you can do that. Maybe you can go in once a week for half a day for "face time" if they want.
    Good Luck.
    Fatima
  • esined
    esined Member Posts: 22
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    You know best what your
    You know best what your situation is for both you and your husband. Since he is still mobile your being at work my be keeping him mobile. Having something to do keeps my husband moving.
    Having financial difficulties can add as much stress as the medical situation and you do need to think and plan for both of you and for you should the worst happen.
    This may sound strange, but my first thought at reading your post was your need to monitor him. Perhaps a web cam set up would allow you to see him when you need while at work.
    You are now in my prayers.
    Denise
  • alex73
    alex73 Member Posts: 3
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    going crazy
    Hi Amy,

    First sorry for any typos I might have. I decided to stay home with for my wife because she makes more then I do and want to make things as easy for her as possible. She also on chemo weeks and work from home. I'm going crazy and do have anger not towards my wife but in general. (If left alone to long I start thinking to much good and bad things) I'm not telling you to stay or go.

    I love my wife alot but really staying home has taxed our relationship. But i love her and sucked it up. Also I would never leave her besides I could never have been able to give her the care while working.

    Amy you and your husband are in my Prayers. Sorry if I'm all over the place but it's 12 at night on Saturday( Labor day weekend) and my wife slept till 1pm and went back to sleep by 8. I feel I have too much time on my hands.

    Alex
  • Amy41
    Amy41 Member Posts: 13
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    alex73 said:

    going crazy
    Hi Amy,

    First sorry for any typos I might have. I decided to stay home with for my wife because she makes more then I do and want to make things as easy for her as possible. She also on chemo weeks and work from home. I'm going crazy and do have anger not towards my wife but in general. (If left alone to long I start thinking to much good and bad things) I'm not telling you to stay or go.

    I love my wife alot but really staying home has taxed our relationship. But i love her and sucked it up. Also I would never leave her besides I could never have been able to give her the care while working.

    Amy you and your husband are in my Prayers. Sorry if I'm all over the place but it's 12 at night on Saturday( Labor day weekend) and my wife slept till 1pm and went back to sleep by 8. I feel I have too much time on my hands.

    Alex

    Staying Home
    Thanks All
    I'm pretty sure the decision was made this weekend that I'll probably start buring through more of my ESL in October. My husband is currently on unemployment - it pays more then SSD so he is able to contribute to the household income. He would probably be able to go back to work part time at a low key computer job. I have plenty of ESL but was hoping that he was going to stick around awhile and I could dole the time out and not be left without money coming in. How did I make the decision - well I took one look at those chicken legs and got pretty worried that he is going downhill faster then I realized - he was a long distance cyclist and used to have big powerfull quads and calfs.
  • seanslove
    seanslove Member Posts: 70
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    staying home
    Amy,

    When the time comes you will know when leaving is no longer an option. Money will no longer be a worry and you will just know as I did. I will keep you both in my prayers.
  • onlyhuman
    onlyhuman Member Posts: 99
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    decision to start staying home
    Hi Amy

    I have been battling the same question over the last month or so. My husband was diagnosed with GBM in Mar 09, had surgery then and we were told the grim prognosis. He had to have further surgery in May as his stitches from the March surgery had not healed , causing fluid build up in the cavity created when they romved his tumour (left frontal lobe) which led to him havign an infection and another massive seizure. He was back in hospital again in August for another infection (short stay of 2 days only this time). The scan done on 30 Jul shows a recurrence / new tumour. We find out tomorrow if he needs further surgery.
    In spite of all this he is still able to take care of himself (he too is deteriorating). I am currently working full time although I move my hours around so I can attend all doctors appointments with him. When we found out about the new growth/recurrence, I figured it was a wake up call that I should rethink what I was doing so as not to have any regrets later. I took a week off work and we took our girls (aged 3 and 9) for a holiday by the beach. Its probably the best decision we have made since diagnosis. We have renewed our bonds as a family and even hubby is more optimistic. He has now gone back to work 2 days a week (although chemo still has him feeling tired) because he has said its soemthing he needs to do. I drive him to and from work and the hour / 45 min in the car with him in the morning and evening has been a special time.
    Because of our girls, I think my continuing to work gives them a sense of "normality". However, I worry all the time if this is the right decision.
    Its not hubby's first brush with cancer, he had a grade 3 tumour removed in 2001 but this time around he has issues with his heart and that means each surgery is high risk. The thought that I may not have adequate warning of impending death worries me a lot. (Please note this does not mean we have given up the good fight. We mean to give it our best shot to try to prevent hubby from being a statistic.
    I guess I haven't given you any answers but I thought it might help to know someone else has the same worries?