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Can any of you share what your symptoms were prior to diagnosis?

deanna14
Posts: 734
Joined: Oct 2008

Just wondering about early symptoms with Lymphoma. It would help me a lot if any of you felt like sharing how that were feeling prior ro diagnosis.

cathlinberreth01
Posts: 38
Joined: Jul 2009

I was pregnant so I can't really help you.

I lost weight and strength mainly. I was 12 pounds lighter at 5 months pregnancy than when I became pregnant. My tumor was in my chest and had collapsed my lung. So I was coughing for air at night but I didn't know why I was coughing.

I was tired. My heart was freaking out too because it was pressing on my heart.

Months prior it had paralyzed my diaphragm on one side and I had severe pain for a few hours.

Dull ache under shoulder blade for a few weeks a year earlier that doctor's didn't do anything about.

And ONE night sweat. That was it. Lymphoma didn't cause me much direct pain. It was under my rib cage so I felt no lumps...

Basically, no symptoms until my tumor was 10cm or bigger and almost killed me.

slickwilly's picture
slickwilly
Posts: 339
Joined: Feb 2007

Hi. First we have to remember that each individual case is different. Lymphoma does not seem to have any bounderies and I am a perfect example. I had lymphoma in my face and not in my lymph system where it should of been. Having said that my doctor is always checking for swollen lymph glands. The night sweats are also a common signal. A lump that seemed to be spreading and lots of pain was my final signal. But it still took the removal of a mass and 7 biopsies to find my cancer. There are proubly lots of medical problems that can cause the same symptoms as lymphoma so its always a matter of getting tests and scans done. And I will say I had a gut feeling that I would be dealing with cancer. 6 years out Slickwilly

Coupe35
Posts: 44
Joined: Feb 2010

Could yopu explain about what you meant by in your face. It was adnoids, tonsils or?

jpattersonkw
Posts: 4
Joined: Oct 2009

I would like to hear more about your story, it sounds so familiar to me.

I wasn't pregnant but I had medistinal lymphoma and a terrible cough, so hard I was vomiting every couple of hours. It started at night when I would lay down, I thought I was allergic to my down comforter and began sleeping on the floor. I also had a strange ache under the shoulder blade....so weird.

One symptom that I had that I've never heard before- for 3 or 4 months before I was diagnosed I had terrible constant pain in my neck and shoulders, like I had been in a car accident.

Annabella2179
Posts: 2
Joined: Jan 2013

Hi I was reading your symptoms... Mine were very similar. Wot we're u diagnosed with? I'm primary medialstinal large b cell! 

Jewel41510's picture
Jewel41510
Posts: 11
Joined: Mar 2009

With me I put it off and put it off until I couldn't ignore the pile of symptoms that had built up.

I itched like crazy, it would wake me up and I would scratch until I scabbed - pretty intense.

I lost about 30 lbs in a 6-8 month span without any effort

I was always tired, kept up from the itching I thought

Night sweats not soaking just overly warm always

Swollen lymph nodes in the neck

Not everyones symptoms are the same, and some have no symptoms at all.
Hope I was of some help. Sending well wishes your way.
Joleen

truckingalong
Posts: 444
Joined: Aug 2010

Yes - similiar symptoms as Joleen's. A year ago - first had itching then swollen nodes around the neck - was given antibiotics and they became smaller but still there. Then wintertime I was low in vitamins so got B-12 injections and supplements. My energy came back but later would have about once a month fatigue attacks. I lost about 30 lbs thinking that I suddenly became allergic to foods... Dr. called me mystery woman cuz she could not figure out what I have!! Three months later, she finally ordered me biopsy of the node and bingo, I have Hodgkins. My initial reaction was anger toward dr but am glad that I know what is wrong with me and people now realize I am not a hypochondriac! Will have PET and CAT scan next Monday. I am amazed how you and everyone survives such and fighting back. Please pray for me!!

Thanks,
Liz

COBRA666's picture
COBRA666
Posts: 2418
Joined: May 2010

Liz
We will pray for you. It is a scary thing to hear the word CANCER. I do not know how old you are, but it is not like it was years ago with this disease and we would hear that word. It is still not easy to deal with none the less. As you find out what we have and discuss on this site is very treatable. It is a pain in the ass with the treatments to control it though. Most of us have started treatments or finished them and some are waiting to begin treatment. We are pillars of strenght to each other here. I am sure if you are like me you have wore your computer out searching for answers. Just be careful with what you read. A lot of the info on some of these sites are way outdated. Some have some good info. You just have to learn which ones to rely on. I think your best source of info will come from the people here. They have or will go thru what you are talking about. John

truckingalong
Posts: 444
Joined: Aug 2010

Thanks, John for helpful tips. I found out about my diagnosis 4 days ago. My mind is exploding with questions and I know I gotta take one thing at a time. I say to myself wow I have cancer - I am 53 - yes, I am taking in a lot of strength and hope from people here and am happy to know about this site. I do look forward to a new and meaningful journey. Liz

COBRA666's picture
COBRA666
Posts: 2418
Joined: May 2010

Liz,
Believe me I know exactly what you are going thru. I did not know what to do when I was diagnosed a few months ago. I searched every site on the computer. That was a bad idea, but I didn't know what else to do at the time. Those sites are statistics and statistics only. and they may never pertain to you. Everybody is different with this disease. It took me a month to find this site and it was just by accident. I tell you I was a mess for that month. You will never feel as alone again in your life. There are at least 66,000 cases of nhl diagnosed every year. Thats the ones that are diagnosed. At least that many go undetected. I get a lot of my info from the cancer center where I go in North Carolina. It sounds crazy,but if we must have cancer and 1 out of 6 people will sometime in their life have it,this is the one to have from what I hear. It is a common cancer and very treatable. Stick with us and we will try to walk you thru it as best as we can. John

COBRA666's picture
COBRA666
Posts: 2418
Joined: May 2010

Liz,
Believe me I know exactly what you are going thru. I did not know what to do when I was diagnosed a few months ago. I searched every site on the computer. That was a bad idea, but I didn't know what else to do at the time. Those sites are statistics and statistics only. and they may never pertain to you. Everybody is different with this disease. It took me a month to find this site and it was just by accident. I tell you I was a mess for that month. You will never feel as alone again in your life. There are at least 66,000 cases of nhl diagnosed every year. Thats the ones that are diagnosed. At least that many go undetected. I get a lot of my info from the cancer center where I go in North Carolina. It sounds crazy,but if we must have cancer and 1 out of 6 people will sometime in their life have it,this is the one to have from what I hear. It is a common cancer and very treatable. Stick with us and we will try to walk you thru it as best as we can. John

COBRA666's picture
COBRA666
Posts: 2418
Joined: May 2010

Liz,
Believe me I know exactly what you are going thru. I did not know what to do when I was diagnosed a few months ago. I searched every site on the computer. That was a bad idea, but I didn't know what else to do at the time. Those sites are statistics and statistics only. and they may never pertain to you. Everybody is different with this disease. It took me a month to find this site and it was just by accident. I tell you I was a mess for that month. You will never feel as alone again in your life. There are at least 66,000 cases of nhl diagnosed every year. Thats the ones that are diagnosed. At least that many go undetected. I get a lot of my info from the cancer center where I go in North Carolina. It sounds crazy,but if we must have cancer and 1 out of 6 people will sometime in their life have it,this is the one to have from what I hear. It is a common cancer and very treatable. Stick with us and we will try to walk you thru it as best as we can. John

markwwxiii's picture
markwwxiii
Posts: 7
Joined: Mar 2009

for me it was just constant coughing for months. My lymph nodes had swollen so much that it was squeezing my airway.

dixiegirl's picture
dixiegirl
Posts: 1043
Joined: Apr 2006

Mine ranged from nightsweats, weight loss, and then I found my lumps in my groin. I generally was tired, my skin color was pretty gray looking and I just didn't look good. The bags under my eyes were very dark and just didn't feel great. I was getting ready to go see the doc just about the time I found the lumps.

Everyone is right, lymphoma symptoms are very individually different.

Hope everything is ok, keep your head up if you are waiting for diagnosis. The wait is by FAR the worst. NHL is treatable although a pain in the butt.

Beth

youngen2505
Posts: 3
Joined: Aug 2009

My main symptom was a constant cough. I had it for over a year! It wasn't until I coughed so hard I hurt my rib cage that the doctor gave me an x-ray and there was a large mass taking up most of my right lung. I had also lost a lot of weight 25+ lbs and had the night sweats but thought I was just overheating while I slept. I also coach basketball and could only exercise for a short time before tiring and having to stop. All the symptoms I just attributed to other things i.e tiredness, I just had a baby. Shortness of breath-asthma. Night sweats-my apartment was getting to hot at night.

ldot123's picture
ldot123
Posts: 276
Joined: Apr 2008

Hi there,

I felt under the weather all the time and once in a while got really sick - fever, night sweats enough to have to change the sheets. Initially was told it was a flu virus. Oh yes and also very fatigued with some weight loss- not much though. Finally went to a doctor who decided to do a chest xray and there it was a large tumor in the chest. They called me back to the doctor by the time I got home from the Xray. Went in the following week and had a biopsy done - they did not get a good sample and so had to have another one. Hodgkins was found - had chemo and radiation which did the trick - 20 years ago.

Cheers, Lance

MichelleHenry's picture
MichelleHenry
Posts: 11
Joined: May 2009

I can't believe how similar our stories are. Looking through these posts I am just amazed that my doctor didn't know earlier! As mean as it is, I'm glad I'm not alone. Sorry!

How are things going now? Where are you in treatment?

jbat409
Posts: 2
Joined: Aug 2009

My symptoms of lymphoma which I would never have associated were:
Extremely itchy skin
Rash outbreaks
Night sweats... drenching just before the mass appeared on my neck

Tom33Mi
Posts: 5
Joined: Oct 2007

first time around i had swelling in the neck second time a huge lump in the middle of my throat twelve years later

amybesunder
Posts: 15
Joined: Aug 2009

Almost none. A small bump on my upper thigh which I figured was nothing. Thankful that I had a good PCP who pushed me to get it examined.

m3cgm
Posts: 3
Joined: Aug 2009

lost lots of weight. I threw up every night after i would eat. Intense itching.

MichelleHenry's picture
MichelleHenry
Posts: 11
Joined: May 2009

I itched, lost a lot of weight (20 pounds in 3 months), night sweats so bad I would have to change the sheets, a cough that lasted at least a year, a weird nightly fever, and fatigue!!! I was very gray looking. My family just thought I was really depressed and wanted me to get help for it. I was told to just get over it several times and to tough it out. Then the day I was admitted, man did they feel bad. I never said I told you so or even held a grudge though. How could they have known?

MountainClimber's picture
MountainClimber
Posts: 1
Joined: Aug 2009

Hi, I'm new to this board.

I've been diagnosed with non-Hodkins L three times since 2001. The first time, I was suffering from what the doctor thought was tennis elbow in both arms. A week or two later, the pain extended the entire length of both arms. There was a mass in my clavicular area that was pressing on the brachio-ulnar nerve, which turned out to be lymphoma.

The second diagnosis came after a routine follow-up CT. There were no symptoms of any kind.

The third time (a year ago), one of my knees was swollen/painful. After CT, MRI, x-ray & PET scan & biopsy, they found that I had lymphoma in one of my vertebra.

greg814's picture
greg814
Posts: 1
Joined: Jul 2010

I am new here and just reading up on Hodkins and I learned alot from you all. Two months ago I noticed a large growth in the clavical area. My doctor sent me for an MRI and xrays. They determined their is a mass in the lungs and swallon Lymphs. I have extreme pain in both elbows and swollen knees. My spleen has also been detected as inlarged. So many doctors and appointments until I found one that knows what they are talking about. I am still under going test and a bit scared. I am 47 and have five children and dont know what to exspect next. It is a week away until my next appointment at Mount Signi Hospital Cancer Unit in NYC.

truckingalong
Posts: 444
Joined: Aug 2010

Hello,Greg,

It's been over a month - how did things go for you? I feel scared too but feel less when I hear all the supportive comments from you and sharing here. I also have HL and have to wait for the more detailed results this Thursday for treatment options ... Thanks for sharing and you are in my thoughts for good things to happen to you.

Liz

Val.CMZ
Posts: 5
Joined: Sep 2009

Ifound a lump on my cheek one day at work, right over my jaw bone. Didn't think too much of it but had to stop at my granddaughters dr. office on the way home, so casually asked him if it was anything to be concerned about. He immediately sent me to another dr. and the ball began rolling. That was in 1999 and it turned out to be NHL. Looking back the symptoms were clear, but I'd thought nothing about them being connected to cancer. First - itching. Every night as I laid in bed the back of my neck itched terribly. Complained to my husband about it all the time. Secondly, fatigue. Being tired like I'd never known. Was all I could do to stay awake at work after lunch. Could barely keep awake to drive home. Sometimes when i reached the driveway I was too tired to get out of the car and go inside. Just put my head back and napped right there.

DennisR
Posts: 148
Joined: Sep 2009

Hi Deanna,
For me the main symptoms were Drenching Night sweats accompanied by a low grade fever (approx 100 degrees), worsening pain in my groin, sudden weight loss, and loss of strength and stamina.
I was originally diagnosed as having a hernia, which could be easily remedied in an out patient operation. I soon learned that most people with hernias were merely inconvenienced by the bulge in their abdomen, but didn't rea;lly feel any pain associated with it at all or only slightly. That wasn't true in my case, I was in terrible pain and was taking prescribed Vioxx by the 10 or so a day just to keep moving.
I went to the local VA to see about getting the hoped for Hernia operation and was informed by the Surgeon that I didn't have a Hernia, but instead had a very large tumor which was surely malignant and was sert up for an emergency operation the following day. You can imagine the shock I was in and my life was turned upside down in about 5 minutes. The Tumor was successfully removed during a 6 hour operation which was then followed by a 30 day recovery in intensive care during which I could only have intervenous fluids, my weight dropped to 105 pounds from 165 pounds normal weight. There were many complications from the surgery, including a serious infection that required an additional 45 day hospitalization and another major surgery. After that I had 8 sessions of R-CHOP Chemo and eventually the cancer went into total remission and after 5 years I was considered "cured", by the Onco Dr.
My advice is, IF you have any of the above symptoms, you Run, do not walk, to the best surgeon you can find who specializes in Cancer and get a complete Check up, including and MRI or PET scan. Do not look for an easy way out, get the facts as they are, and deal with it. I very nearly lost my life while I put off a hoped for Hernia operation waiting for a more convenient time to have it done. My tumor had grown to grapefruit size, perforated my colon, involved my entire right lower quandrant and had completely disolved my appendix, All that in less than 3 months from the the day I noticed the very first symptom, which was an unusual pain in my side.
DennisR

JMAITRUMBLE
Posts: 2
Joined: Sep 2009

Hi Deanna,

As posted before by a lot of people my symptoms included extreme fatigue and drenching night sweats. I was also being treated for acid reflux at the time and prescribed Nexium. When I started taking the nexium I noticed I had black stool, which I assumed was a side effect of the nexium (Which it is). Unfortunately it wasn't a side effect it was a tumor that had grown to overtake almost 60%-70% of my stomach. I was told at the Mayo that the tumor had grown off of the 2 Lymphnodes around my stomach. When the doctors told me it was malignant I was in shock and my world turned upside down.

I'm currently on my first (2 of 4) round cycle of chemo and feel pretty good. I have completely changed my diet (No red meat) and my body is retaining blood with no bleeding in sight. I do wonder at times why my family doctor never thought it was cancer and was more proactive but it is what it is now.

Deanna have you been diagnosed?

DennisR
Posts: 148
Joined: Sep 2009

Hi Jamaitrumble,
Wow...can I ever relate to your experience. Glad to hear things are going well and the Cancer is responding favorably to the chemo, keep up the fight. Your obvious good mental attitude will prove to be very important, don't allow the occasional difficulties with the Chemo wear you down. Thanks for sharing your experience.
DennisR

catwink22's picture
catwink22
Posts: 239
Joined: Sep 2009

I am newly diagnosed, never heard the word Lymphoma until two months ago. Had a painless mushy lump over my left collar bone. Thought it was from wearing my heavy purse over that shoulder or the seat belt too tight in the car. Denial is a bad thing! Let it go for over 6 months, finally I was putting up my hair in front of a mirror and noticed my left armpit was very swollen. That's when I made the call. Looking back the only thing I had was itching on my back when I got undressed. Felt like I was allergic to the air. It would subside and I thought nothing of it. I haven't lost any weight, I've gained aout 20lbs (stress or middle age?)over the last year AND all my blood work came back normal. I had a lymph node removed from my left armpit and that's how I was diagnosed. A tiny spot on my hip has been found by my PET Scan and I am now waiting for bone marrow biopsy results, but I still do not have what I thought were "classic" symptoms.

lees1953
Posts: 20
Joined: Sep 2009

this is why I love these support groups! we just need reinforcement sometimes

I didn't really have symptoms when I was diagnosed; had gone to DR for diverticulis; it wouldn't go away even after antibiotics so they sent me for scan. I had extremely swollen abdomen but ONC at first was convinced it was a result of the diverticulits.

now diagnosed as Stage IV follicular due to bone marrow involvement, I've been on WW since surgery in April. But the symptoms have kicked in!! I am bone tired, like when I was when I first got pregnant and something is sucking the life out of you...except that was 32 years ago!
I am so tired that often at the end of the day I cry all the way home from work..15 miles.
And I am burning up! not hot flashes just HOT! I am freezing my husband and co-workers, they bought me a fan at work like they use in the server rooms. Abdomen is still swollen
but I couldn't lose a lb if I tried; in fact I really eat less than before, but because the surgery couldn't be done laproscopy had 22 staples and took a long while to be able to walk much...but now the fatigue discourages me fro doing that.

DR says he will leave it up to me if I want to start Rituxin but he isn't sure it will help my symptoms? any of you? did it help your symptoms?? something needs to change; next visit Oct 5...any input? sheila

Jessykah007
Posts: 2
Joined: Aug 2010

Hi I was just diagnosed a couple weeks ago with Stage 3 FNHL... pending results on my bone marrow biopsy... reading your symptoms is like what i am experiencing no sweats but i feel on fire at night .... so warm then go cold in the morning. It drives me nuts... Im curious what treatment did you do? I am 31 no kids yet (but want them bad) and would love to know how your treatment went since we are so close in age with same cancer :). Hope all is well.

Thanks,
Jessica

Jessykah007
Posts: 2
Joined: Aug 2010

Hi I was just diagnosed a couple weeks ago with Stage 3 FNHL... pending results on my bone marrow biopsy... reading your symptoms is like what i am experiencing no sweats but i feel on fire at night .... so warm then go cold in the morning. It drives me nuts... Im curious what treatment did you do? I am 31 no kids yet (but want them bad) and would love to know how your treatment went since we are so close in age with same cancer :). Hope all is well.

Thanks,
Jessica

Which_Way_Back
Posts: 1
Joined: Sep 2009

For me I had a tremendous amout of fatigue. One year i ran a fever of 105 for a week and didnt go to the hospital till I became unaware of what was going on around me. Couldnt eat I laid in tub for a while trying to manage the fever even went outside as the temp was 10degrees that year nothing worked. Upon arriving at the hospital after finding out I had no insurance they gave me a pain med and antibiotics and sent me off saying it was a bladder infection. so around 4 years later Im playing with my kids chasing them in the house I get to the 4th step and I stop only to not move anymore I tell my sons mother I need to goto the ER. She looks at me and says the ER? She knows I never go to the hospital. So I get there "different hospital than the first time" running fever of 105 again thy gave same diagnosement took my gal bladder and sent me home. Still running fever still fatigued. I return to hospital and am hospitalized for 28 days I laid in ice to try and control fever on that 28th I was giving the outcome. No pain ever can compare yet so much pain came from worrying about my children. so I fought wasnt going to but, thought of how selfish I would be if I didnt. Yet they still were gonna let me die no oncologist would come see me because of no insurance coverage but my girl found a way and I owe her what life I have left.

lees1953
Posts: 20
Joined: Sep 2009

on the earth can be against health care reform?

COBRA666's picture
COBRA666
Posts: 2418
Joined: May 2010

I haven't seen any posts from you lately. How are things going for you? What was your diagnoses exactly? Mine was follicular nhl stage 4. My tumors are located in the abdomen, but the chemo is shrinking them quickly. Just hope it continues that way. I have only had one round and it is kicking my butt. I know it feels like we are not going to make it sometimes, but when you read some of the posts here it does give you a lot of hope. They have come a long way in the past few years with this stuff it seems. Hang in there we are here to help each other. John

Lynn56
Posts: 1
Joined: Oct 2009

I had a stuffy nose for a few weeks before I went to my Dr. He said it was a sinus infection and put me on antibiotics. Nothing changed, so he tried another round of antibiotics before sending me to an Ear, Nose and Throat specialist. Fortunately this Dr. insisted on a nasal endoscopy which detected the lymphoma.

At first I was diagnosed as Stage 1. Then my oncologist asked me about a large bruise on my leg. I said it was from an injury and that I had showed it to my primary Dr.months before, because it just wouldn't go away. My oncologist insisted on a biopsy of the area and sure enough it was lymphoma. Because of the locations of the 2 sites, I was now diagnosed at Stage 4.

Except for the stuffy nose I felt great and had no typical symptoms.

I went through 6 rounds of aggressive chemotherapy. I carried a portable pump as I was on chemo 5 days a week/24 hours a day. I was very fortunate. I felt great during chemo except for some fatigue. My scans in July showed no signs of cancer. I do have scans coming up in two weeks, so I am feeling a little anxious, yet hopeful.

Lisa2009
Posts: 5
Joined: Jul 2009

Your symptons sound just like my husbands he had a stuffy nose and could not shake it went to the pcp and he said it was sinus, then got nosebleeds and we went to the ENT, and it was
nasal pharyngeal carcinoma stage 1 haed 31 radiation treatments went through a lot of mouth dryness and sores it's been almost 6mths since his last treatment his scans were good he goes back in November hopefully it will all be good the scarey thing about this is that it can come back anywhere. Hope everything goes well for you. Pray as much as you can.

liquidglas
Posts: 2
Joined: Nov 2009

i hope everything goes well for your husband. I just wanted to know how did they diagnose him exactly? was it just a nasal endoscopy? or a CT scan? both? I hear that MRI arent as effective. I myself am worried since Ive had these symptoms for a while however I also have itches and a rash on my abdomen that really worries me. I wish him the best.

Thank you

Gil

lisam61
Posts: 12
Joined: May 2009

Hi it's been awhile since I've been on this chat, my computer crashed it was a hassle trying to find everything again. My husband was diagnosed with a biopsy from the nose, the ENT thought it was a polyp and decided to biopsy it first, it came back as NHL, NPC, he had 31 treatments of radiation and had awful side effects, they ended in May of 2009, he has recently contracted an infection he went back to the ENT, and he cultured his nose and said he has a staph infection, he's been on antibiotics, but he had to have a repeat pet scan and the Oncologist called and said he saw some abnormalities so he's going back next week we are on pins and needles again. I hope the monster isn't coming back. I am praying for all of the people on this chat. It's so imporant. If I can be of any help let me know. God bless you.

liquidglas
Posts: 2
Joined: Nov 2009

I hope that things turn out well for you. They do sound hopeful. I am writing you because I would like to know a little more about how they went about your diagnosis. Was it only the nasal endoscopy? or did they also perform a CT scan in the beginning? Did you have any rashes on your body?

Thank you so much. I am concerned as not only have I have chronic sinus problems (dry throat, stuffy sinuses, slight voice change bc of mucus I believe) I have had a persistent itch in between my glutes, but specifcally one strange and itchy rash on my upper abdomen. i am going to see a dermatologist. I have also had feelings of weakness for a couple days but thought nothing of it as I just thought it was the onset of a flu that never hit me. After reading that this may be a cause, I am really worried. Im also scared to death of CT scans and hope that maybe just a nasal endoscopy and/or MRI will do the trick.

I hope you can help me... I would appreciate your advice on what i should do. The best of luck!

God bless,

Gil

lisam61
Posts: 12
Joined: May 2009

Hi was wondering how you are doing? My husband also had it in the right nostril, and then after he had radiation treatments 31, and clear pet scans we thought he was out of the woods, a year later he got sick again sinus infection again but we knew this time that it might be the return of the monster and they scanned him and sure enough lymphoma non hodgkins, now he is getting chemo chop which is making him so tired I was wondering how you are and which chemo did you get? The scan showed the cancer in the sinuses and other areas as well his sturnem and spine. We need to hang on to God it's all we can do. God bless you hope you are well.
Lisa

lisam61
Posts: 12
Joined: May 2009

Hi was wondering how you are doing? My husband also had it in the right nostril, and then after he had radiation treatments 31, and clear pet scans we thought he was out of the woods, a year later he got sick again sinus infection again but we knew this time that it might be the return of the monster and they scanned him and sure enough lymphoma non hodgkins, now he is getting chemo chop which is making him so tired I was wondering how you are and which chemo did you get? The scan showed the cancer in the sinuses and other areas as well his sturnem and spine. We need to hang on to God it's all we can do. God bless you hope you are well.
Lisa

lisam61
Posts: 12
Joined: May 2009

Hi was wondering how you are doing? My husband also had it in the right nostril, and then after he had radiation treatments 31, and clear pet scans we thought he was out of the woods, a year later he got sick again sinus infection again but we knew this time that it might be the return of the monster and they scanned him and sure enough lymphoma non hodgkins, now he is getting chemo chop which is making him so tired I was wondering how you are and which chemo did you get? The scan showed the cancer in the sinuses and other areas as well his sturnem and spine. We need to hang on to God it's all we can do. God bless you hope you are well.
Lisa

DenJ
Posts: 26
Joined: Oct 2009

For me the symptoms were a swollen lymph node in my neck....that was what made me see my doctor. After I was diagnosed with NHL.....I learned that the one other I had was night sweats. And mine were at times enough to soak my bed clothes. However, like most have stated, everyone is different. If you do have anything that you are concerned about, I encourage you to have it checked out. I waited only 4 days after I discovered the lump in my neck. I caught it at stage 2. Best of luck to you!!!
Den

Gaz's picture
Gaz
Posts: 22
Joined: Oct 2008

When I was diagnosed in February 2007 I really wasn't too surprised. My wife, an RN, dragged me to the emergency room with a temperature of 103. Ironically, my daughter also an RN was on duty that night and was called to my bedside. Up to that point I had ignored warning signs of hot/cold sweats, nausea, swollen abdomen and sharp electric shocks through my chest. Needless to say, I pay much more attention to my body now. I am 53 and recently ran the Denver Half Marathon. I feel good and my quarterly checkups continue to be good as well. The statistics point to a recurrence, but I am not fazed. I believe in living in the moment and thanking all those those that have gotten me to this point. I have faith.

pjcinnc
Posts: 3
Joined: Nov 2009

Boy as I read these posts it is amazing how we are somewhat all the same. I got sick the end of August. Head cold. couldn't fight it so I went to my gp..she did blood and gave me a perscription to get filled for antibiotics. Before I was 10 minutes away she called and told me to go to a radioloy place here in town and get a chest xray. thought I had pneumonia.And come back to the office don't go home. I got the xray. returned to the dr office. they gave me a shot of antibiotics. She said my white blood count was way too high. Went back 3 days later.. the same . another shot. different antibiotics. Went on and on with that for a bout 2 weeks getting blood test after test. Finally she told me they were calling a hemotologist to set up an appt for me. Well I had not idea what to expect. I went to the appt and walked in and on the wall was Cancer Center. My gosh was I shocked. Went in to see the dr. He thought for sure I had CLL but after the BMB he found out it was stage IV follicular lymphoma. I did not have a lot of symptoms. I was warm at night but I have been going thru the dreaded menopause so that wasn't anything new. I was getting more and more tired. I thought that was age..Now that you all talk about it I did get itchy sometimes. I am pretty sure my dr knew when she sent me what it might be because she told me not to worry it might not be anything.. Yea right!!
It sure does change the way you look at things. Little things become a whole lot more important and I am not in such a hurry anymore. I have faith that God will take care of me!
Patti

jerzpilot's picture
jerzpilot
Posts: 39
Joined: Nov 2009

About 4 years ago I felt a small ball at the right side of my upper neck, it didn't hurt, itch or grew in size; that was when I was 31. I was always hot to the point that the palm of my hands would get red and that was about it. No pains or other symptoms until 2006 were I had night sweats only but thought that I was just hot and nothing else. in 2008 The fevers only once in a while but not more than 100 degrees and thought I was just fighting off some type of cold, only a few rashes this year and thought they were bed bugs since I was traveling and staying in hotels. In Sept. of this year the lymph nodes around my groin area were slighty enlarged but didn't think nothing of it (just maybe extra muscle). In Oct. this year I was bathing and noticed this large ball trying to hang out my right amrpit, that's when I almost fainted when I first saw it. When to the doctor and he did blood work and found nothing, he suspected lymphoma and sent me for a CT-Scan and showed that I had a whole bunch of enlarged lymph nodes inside my body including an enlarge spleen. A week later got a biopsy done and the results came back as Indolent FNHL grade 2 of the B cell type. Now I have an appt. at Memorial Sloan-Ketterin Cancer Hospital in NYC on the 24th of this month. Now I am feeling the pains in my neck, chest, abdomen and weird, at the heel bone of my left leg. Can't wait until I start treament and start feeling better, althought the oncologist said it would most likely come back. Keep posting treatments and any new information, together we can help eachother. God bless all.

Edwin

aramance
Posts: 5
Joined: Sep 2007

I had a large mediastinal mass (behind my breastbone). So because of this I had chest pain that radiated to both arms. I couldn't feel any masses or nodes anywhere else. I was pretty tired all the time. I also felt like I had something in my throat all the time and problems swallowing. It was because the mass was so big, it was pushing my trachea to one side. The chest pain is what caused me to go to the ER, which is where I was diagnosed.

Bsmom1971
Posts: 5
Joined: Mar 2010

I had lung infections/bronchitus symptoms but no amount of prednisone, antibiotics or inhalers did the trick to help me. I have been fighting this (FNHL)for several years. I had a spot on my lung but the Dr. didn't think anything of it, then 2 yrs. later he decided it had changed enough that it warrented a petscan; I have a pacer so I'm unable to have MRIs.

Besides the Brochitus, I had night sweats, itching, lymph node swelling behind my ears, hives, dry mouth, complete dehydration, pain in my left arm pit, heaviness in my chest all the time but the one thing I never had was weight loss. I actually gained weight; I went from 120 lbs to 200 lbs., no amount of diet or exercise would help me lose it and I'm also diabetic and kept myself on a strict diabetic diet! I was also diagnosed with heart trouble as well as COPD over the past few years so the meds were a contributing factor, or so I was told.

I had a bronchial scope to have a biopsy done but the tumor was so low in my lung, the Dr. was unable to get too the tumor; they were going to do c-scans every 3 months to watch the tumor for changes but I asked the Dr. about surgery to remove it since my Mom and Brother both died of complications due to lung tumors. I had the surgery in Jan. of this yr., was diagnosed with FNHL, stage 4 and will be starting chemo next week.

Not all of us are going to have the same symptoms...When the Surgeon talked to my Primary Physician, he said, "You're going to be surprised to hear this but she has A cell, stage 4, FNHL!" So, I'm assuming, my symptoms were not all that common with the disease.

I also have PIDD/a autoimmune disease and it's my understanding Autoimmune is a factor with NHL. So if you haven't been tested, get an appointment with an Autoimmune Specialist; I've been taking IVIGs for almost 10 yrs. now and without them, I'd been dead long before now! I was always in the hosp., spent more time there then at home; Once I started the IVIGs 10 yrs. ago, I haven't been in the hosp. for lung infections but once or twice ;-)

I guess I'll stop for now...Take care and may God bless us all!

If God is your Co-Pilot, Change seats!

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